Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 , Thank you your response. The Humira arrived today. I will probably start it on friday. I am glad for your honest response on this. I am hoping this will give me some relief. I was also on Enbrel too and it did not work well...then doc added MTX and that was a total disaster. I am no longer taking Enbrel or MTX due to side effects. I am taking Plaquinil, Lodine XL and Ultram as needed for pain and nexium along with that. Humira is the new addition. I will post once I take it which will probably be friday nite before I go to bed. Toni > > There's been so many questions I just thought I would share my experience > with Humira. I was on Enbrel previously and Humira has worked better for > me. It has always come well-refrigerated, no problem. I have mine delivered > at work and put it in the fridge. > > My Humira is covered by my Major Medical Insurance (whatever that means!) > and I do not have to pay a co-pay. I do believe there is a limit, up to $5 > million, so I've got to watch it, lol! > > I leave it out for about a half an hour. For me, it burns like Hell, I have not > found a way around this. I inject it slowly (30-60 sec.) and don't get up for a > while. I do it in front of my computer and I put up a nice picture or play videos > to distract me from the pain and I find this works pretty well. > > Humira does hurt but it is once every 2 weeks and it is better than the constant > and crippling pain of RA! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Hi all, I was so glad to see this group. I started on Humira just about a year ago, after working my way up from " everything else. " I was dx with systemic polyarticular jra more than 25 years ago, I'm now 36, and I find that each time the doc promises the " one that will work " it stops working after a while or I develop an alergic reaction. I'm now using Humira in combination with 20mg of mtx tabs. The mtx is weekly and the Humira is every 10 days. I got really sick on the mtx when I started it about 4 years ago, but then I got used to the side effects, and they lessened, but so did the ability of mtx to control my jra. Started the Humira at every 2 wks, but had to boost it to 10 days. Surprisingly, it has been working! I've managed in the last few months to finally get off predn after taking it daily (sometimes in large doses) since I was in 6th grade. I now have osteopenia as a result of that. I find I do have some side effects with the Humira, especially when I take it the same day as the mtx. I got hair loss again like I did with the mtx, but the bonus was that while my head hair did thin, I now have no underarm hair and almost no leg hair! Mostly, though, it's some nausea the next day, but I seem to be building my tolerance to that. The injection site hurts for a day or two, but then it's ok. I was such a chicken to give myself the injections at first, but the needle is so small and sharp that I don't have a problem Like everyone else, I get the burning with the injection. I do it at night, and turn on the tv to distract me while I'm doing the injection, and do it SUPER slow. Here's something that happened to me--even though I pull back on the syringe like the directions say (to avoid a vessel) once I put it in all the way through a small skin vessel (so none showed up in the syringe) and when I pulled it out I made kind of a mess and panicked. I called the nurse line and she let me know that this happens sometimes and that it's ok. Other side effects I'm wondering if others have? I feel like I smell funny the couple of days after I take it. Also, I've been having problems with serious constipation and hemmorhoids since beginning the Humira. Had some blood vessels break there, too, and panicked since I haven't had that before. But have been using lots of Tucks products and daily fiber tabs, and that seems to keep it in check, but not all the way. I'd love to hear the experiences of others with Humira. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Everyone must be different, because for me this is the opposite! If I inject too much at a time the pain almost makes me pass out. I guess you just have to experiement and find out what is best for you. > > I've been injecting Humira for about 4 months now. I think doing the > injection slowly makes it burn more. When I do it and a steady pace, > it doesn't burn as much. You can't go really fast but one smooth > motion and not too slow seems to ease the burning. > > susan > Quote Link to comment Share on other sites More sharing options...
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