Diet

[Guest guest]

,

Relax...it'll be okay! I have to say that changing a child's diet is one of

the most difficult choices...probably worse than medication! But with some

advance planning and resourcefulness, you can change a child's diet and

provide him/her with really good substitutions. I make macaroni and cheese

using rice pasta elbows and a really good cheesy sauce using tofu American

cheese slices (there is a trace of casein in the slices). Anyone whose child

misses this dinner, let me know and I will write it out. I can make him

pizza using a mix from the Gluten-free pantry. (Here's the link to this

mail-order company):

<A HREF= " http://www.glutenfree.com/ " >Gluten-Free Pantry</A> And he eats

hamburgers from Burger King (with the bun taken off). Cookies are easy to

substitute with the right " flour " combinations. In the beginning I wasted

LOTS of food trying to find things that were remotely palatable. Now I have a

pretty good routine.

But don't give up. I don't know what Dr. Goldberg's current dietary

recommendations are, but when I started with him almost three years ago, I

simply removed whole grain and dairy. I have since gone gluten and dairy

free. The gluten was a big culprit in my son's llife. Removing it has made a

big difference in ability to focus and communicate. This may not be the case

for all children, but some of theses food products can mess up their immune

systems... big time!

I feel I have rattled on and on. I will stop, but first want to encourage you

to check out this website for helpful and practical advice on adjusting to a

change in your child's diet.

<A HREF= " http://members.aol.com/lisas156/gfpak.htm " >Dietary Interventions in

Autism

</A> Print it out but load the printer because it is long (even longer than

my run-on letter her!! HA HA).

Good luck and keep writing for support!! Becky

[Guest guest]

OK everyone... I am not Child, so wish me luck explaining (and much

better luck to you for cooking!!)

Gluten and practically-casein- free Macaroni & Cheese

This may take some preparation on food ordering, and hopefully you'll be able

to find all the products, so here it goes:

Rice Elbows (I order them from Food For Life Baking Company. I order an

entire case which is about $25. Phone: 1-800-797-5090. I'm sure there are

other rice elbow suppliers out there; this one just tastes really close to

wheat macaroni).

American flavor Veggie Slices from Galaxy Foods. I find them in the produce

section, but sometimes they are with the real cheese slices. I get these from

local supermarkets. Here is their website which lists stores that sell their

products:

<A HREF= " http://www.galaxyfoods.com/ie_splash.html " >Galaxy Foods - Nature's

Dairy Alternatives

</A>

Rice Dream, plain flavor

The rest of the ingredients you probably have at home: salt, pepper,

margarine, garlic powder, corn starch

OK... I don't " measure " so I will guess the approximate amount to make this.

Boil water. Cook " a serving size " of macaroni. Personally I have found that

the package instructions recommend cooking less than what my son likes, so be

your own judge on the degree of doneness. A " serving size " is about 6 oz for

my 60-pound 8-year-old.

SAUCE: Over a low burner, melt about 2 TBSP. of margarine with about 2 TBSP

of Rice Dream and 3 slices of Veggie Slices/American cheese flavor. Using a

whisk, mix until all is melted. Add salt and pepper and garlic salt to taste.

Then add about 1 1/2 tsp. of corn starch to help thicken up the sauce. Keep

whisking over a low burner until it's the consistency of a nice cheese sauce.

Be careful not to add too much Rice Dream or Margarine because it won't be

creamy at the end. Mix cheese sauce with macaroni and pray to God that your

kid won't poo-poo it after all the effort buying all these ingredients from

the entire planet.

Please let me know if this recipe doesn't make sense and I will try to modify

it. GOOD LUCK!! Becky

P.S. Yes, I think sharing recipes would be wonderful! The gluten free pantry

(a link given earlier, but here it is again,

<A HREF= " http://www.glutenfree.com/ " >Gluten-Free Pantry</A> ) has really

terrific pretzels, crackers, and mixes. A little pricey, but the food is

really very good.

[Guest guest]

,

Which parts of the diet do you find most restrictive?

Other than avoiding dairy and any foods my son was allergic to, and

adjusting his diet away from excessive carbohydrates (hard to do, I

know!), my son eats relatively normally. Can you tell me where in

the web site the diet info is found?

Thanks!

Sandy

On 12 Apr 99 D. ( D. <onelist>)

wrote:

> From: " D. " <ryankd@...>

>

> Help! I just visited Dr. Goldberg's site and the section on diet

> really shocks me! I mean, do ALL autistic children need to follow

> this diet? Do all of you have experience with the diet? My

> neurologist never mentioned this to me. I must say, I'm somewhat

> depressed. First, they tell you that your child is going to have a

> difficult time trying to lead a normal life, then they tell you she

> can't eat practically ANYTHING. What a blow.

>

>

> --------------------------------------------------------------------

> ---- Has ONElist changed your life? http://www.ONElist.com Visit our

> homepage and share with us your experiences at ONElist of the Week!

[Guest guest]

To find the diet, go to " Articles " ,then go to " Autism " ,then go to " Diet Do's

and Don't's " .

Re: diet

From: " SandyD " <sandy@...>

,

Which parts of the diet do you find most restrictive?

Other than avoiding dairy and any foods my son was allergic to, and

adjusting his diet away from excessive carbohydrates (hard to do, I

know!), my son eats relatively normally. Can you tell me where in

the web site the diet info is found?

Thanks!

Sandy

On 12 Apr 99 D. ( D. <onelist>)

wrote:

> From: " D. " <ryankd@...>

>

> Help! I just visited Dr. Goldberg's site and the section on diet

> really shocks me! I mean, do ALL autistic children need to follow

> this diet? Do all of you have experience with the diet? My

> neurologist never mentioned this to me. I must say, I'm somewhat

> depressed. First, they tell you that your child is going to have a

> difficult time trying to lead a normal life, then they tell you she

> can't eat practically ANYTHING. What a blow.

>

>

> --------------------------------------------------------------------

> ---- Has ONElist changed your life? http://www.ONElist.com Visit our

> homepage and share with us your experiences at ONElist of the Week!

------------------------------------------------------------------------

Start a new hobby. Meet a new friend.

http://www.ONElist.com

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[Guest guest]

,

I went over the do's and don't article - it's really not as

intimidating as it sounds.

To sum it up:

Increase protien and fiber consumption, decrease empty calories

(sugar promotes yeast in the digestive tract).

Avoid allergens (stuff your kid is allergic to) and some of the stuff

that a larger percentage of the population is allergic to (whole

grains contain the proteins that cause the allergies, thus avoid

whole grains but processed grains are safer because the proteins

have been stripped away).

Avoid certain additives like BHT, red dye, lots of people have

problems with these, not just autistics.

It really isn't as difficult as it sounds! There are lots of

substitutes available, depending upon what your child's allergies

are.

Best wishes,

Sandy

On 12 Apr 99 D. ( D. <onelist>)

wrote:

> To find the diet, go to " Articles " ,then go to " Autism " ,then go to

> " Diet Do's and Don't's " .

>

> Re: diet

>

> From: " SandyD " <sandy@...>

>

> ,

>

> Which parts of the diet do you find most restrictive?

> Other than avoiding dairy and any foods my son was allergic to, and

> adjusting his diet away from excessive carbohydrates (hard to do, I

> know!), my son eats relatively normally. Can you tell me where in

> the web site the diet info is found?

>

> Thanks!

> Sandy

>

>

> On 12 Apr 99 D. ( D. <onelist>)

> wrote:

>

> > From: " D. " <ryankd@...>

> >

> > Help! I just visited Dr. Goldberg's site and the section on diet

> > really shocks me! I mean, do ALL autistic children need to follow

> > this diet? Do all of you have experience with the diet? My

> > neurologist never mentioned this to me. I must say, I'm somewhat

> > depressed. First, they tell you that your child is going to have a

> > difficult time trying to lead a normal life, then they tell you she

> > can't eat practically ANYTHING. What a blow.

> >

> >

> > --------------------------------------------------------------------

> > ---- Has ONElist changed your life? http://www.ONElist.com Visit our

> > homepage and share with us your experiences at ONElist of the Week!

>

>

>

> --------------------------------------------------------------------

> ---- Start a new hobby. Meet a new friend. http://www.ONElist.com

> ONElist: The leading provider of free e-mail list services!

>

[Guest guest]

Me! Me! I want the Mac n Cheese recipe!

Sandy

P.S. Perhaps others here could post their favorite recipe for " our

kids " ?

[Guest guest]

our son who was diagnosed " severely autistic " 3 yrs ago and who now shows no

real signs thankfully follows no special diet at all. he eats dairy,etc. We

have improved his eating habits over the last couple of years, but I can

truly say his diet had little to nothing to do with his changes. He was

tested for allergies early on, and we were cautioned to stay away from a few

things but no big deal. I'd say that is worth checking, but I don't think

anyone is saying all " a " kids should be on particular diets.

[Guest guest]

Dear -

I understand your shock over the diet section -- it was my initial reaction

at first, too, that and yet another sense of being overwhelmed. However, I

would encourage you to at least do some more reading about it and possibly

some additional testing. Our son is 7. From the time he was 4 till

he was 6 he was on a casein-free (no dairy) and gluten-free (no wheats,

oats, barley or rye) diet (and at the same time his baby brother was

allergic to eggs -- there were many days when I was practically tearing my

hair out trying to figure out how to put something on the table that

everyone could eat!).

When we put on the diet restrictions initially, he was having 4 to 5

temper tantrums a day, each lasting between 45 minutes and 2 hours, during

which time he pretty much had to have an adult supervising him so he didn't

hurt himself or destroy the house. Within 3 weeks on the diet, he

basically had no tantrums at all (certainly none more than 5 minutes or so

duration). So - it was an incredible hassle to be managing the food, but

our life as a family changed dramatically when we were able to reduce

's tantruming. is still dairy-free, citrus-free and

peanut-butter-free (he tested allergic for all those) and though we don't

maintain it perfectly all the time (it's tougher as the kids get older and

are around other children so much) it has definitely helped him.

My suggestion would be to do some more reading, do some thinking, and for

you and your child you'll have to weigh the possible improvements/benefits

versus the hassle. Take it a step at a time and it's easier. If you

decide to go with the diet restrictions, there are a lot of resources to

help and it is possible to get into habits that while overwhelming at first

can soon be mangeable. Good luck!

--Kathleen McClatchey Whiteman--

>From: " D. " <ryankd@...>

>

>Help! I just visited Dr. Goldberg's site and the section on diet really

>shocks me! I mean, do ALL autistic children need to follow this diet? Do

>all of you have experience with the diet? My neurologist never mentioned

>this to me. I must say, I'm somewhat depressed. First, they tell you

>that your child is going to have a difficult time trying to lead a normal

>life, then they tell you she can't eat practically ANYTHING. What a blow.

>

>

>------------------------------------------------------------------------

>Has ONElist changed your life?

>http://www.ONElist.com

>Visit our homepage and share with us your experiences at ONElist of the Week!

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Kathleen J. McClatchey (Whiteman) kjm@...

Executive Communications office phone: (734) 763-8190

Office of the Chief Information Officer fax: (734) 764-3988

5085 Fleming Administration Building cell phone: (734) 358-5122

University of Michigan home phone: (734) 944-1828

Ann Arbor, MI 48109

[Guest guest]

,

I know the info on Dr. Goldbergs web page is overwhelming, but once you see

the difference it can make, you will not think of it as being difficult, but

rather a little work for a big difference. You will also notice that the

diet is important, but it is just one part of a total package. Continue

reading the information and I also suggest going through one of the

presentations he has done and posted as well.

It does not suprise me that your Dr. did not mention this to you. After

doing some reading, you will notice that this is not new. On the other hand

it is not widely used do to the fact that the tools have not been there in

the past prove the results. They are now. We had a hard time finding a

doctor in Indiana to work with us and Dr. Goldberg. They were not saying it

was bad, in fact many agreed with what he was saying, but it was not

" medical protocal " and therefor they would not touch it. The Dr. that is

working with us was reluctant at first, but know he doesn't even ask why Dr.

Goldberg wants this or that, he says he will do anything the Dr. wants as

long as Tyler continues to progress like he is.

diet

From: " D. " <ryankd@...>

Help! I just visited Dr. Goldberg's site and the section on diet really

shocks me! I mean, do ALL autistic children need to follow this diet? Do

all of you have experience with the diet? My neurologist never mentioned

this to me. I must say, I'm somewhat depressed. First, they tell you that

your child is going to have a difficult time trying to lead a normal life,

then they tell you she can't eat practically ANYTHING. What a blow.

------------------------------------------------------------------------

Has ONElist changed your life?

http://www.ONElist.com

Visit our homepage and share with us your experiences at ONElist of the

Week!

[Guest guest]

I have responded to a few people on this- I frankly didn't know it went to

everyone the way it does-anyway, I think Goldberg was 70% of it-we tracked

his changes over the last 3 1/2 yrs. since he's seen him-when he began taking

Kutapressin, an immune booster, we noticed a big difference and we think it

continues.

Froma therapy standpoint, we tried it all. Lovass is NOT it. Greenspan from a

theoretical standpoint is where it is-from a practical point, the Koegel's at

UC Santa Barbara were wonderful-we saw them for 3 yrs. They find what

motivates a child and teach them to initiate. It's obviously much more

complicated, but it worked well. Their approach is the answer to therapy.

We decided not to " go public " with our story becasue we don't think it's fair

to our son. Anyway, if you'd like to discuss this for your personal use, you

can call me at 404-355-4511 and i'll talk about the details. thanks

[Guest guest]

Dear C. Wither,

What would you say helped your child the most if it was not the diet. I,

too, agree with your observation regarding diet. You can e-mail

privately if you would like.

thank you for sharing...

marilu schmier

CWither43@... wrote:

>

> From: CWither43@...

>

> our son who was diagnosed " severely autistic " 3 yrs ago and who now shows no

> real signs thankfully follows no special diet at all. he eats dairy,etc. We

> have improved his eating habits over the last couple of years, but I can

> truly say his diet had little to nothing to do with his changes. He was

> tested for allergies early on, and we were cautioned to stay away from a few

> things but no big deal. I'd say that is worth checking, but I don't think

> anyone is saying all " a " kids should be on particular diets.

>

> ------------------------------------------------------------------------

> Has ONElist changed your life?

> http://www.ONElist.com

> Visit our homepage and share with us your experiences at ONElist of the Week!

[Guest guest]

Lenny

Please check out this website and order the French Bread/pizza mix. It is

very good (my son gobbles it up!). Let me know if you have more questions.

Becky

P.S. Order the $1 recipe book for that product too. I make my dough in a

breadmaker.

[Guest guest]

Here's my favorite recipie for gluetin-free hotcakes/pancakes:

Equal parts soy flour, brown rice flour and either quinoa or amarath flour

(health food stores and $$$). Mix into same volume of water (or soy milk,

rice milk). Sugar substitute to taste. Add baking soda until you get a

quick rise on the griddle.

(You'll have to experiment as the mix of flours give different results. I

also add some artificial butterflavoring, again to taste. I use a

telfon-like griddle so I don't add oil, but you can. And here's the kicker:

I make it for me, and not my son!

When I tried diet for him, I went on it too, just to make cooking meals

easier -- and to model it for him. It didn't do a thing for him, but I FELT

GREAT! ha! I found out I'm somewhat alergic to wheat, dairy etc. and I

feel great if I don't eat much of it. So he eats some wheat and dairy and I

generally avoid it. How's that song go... " Isn't it ironic... "

-lenny

Izak's dad

ps. I sure do miss pizza (and pasta), though

> Re: diet

>

>

> From: " SandyD " <sandy@...>

>

> Me! Me! I want the Mac n Cheese recipe!

>

> Sandy

>

> P.S. Perhaps others here could post their favorite recipe for " our

> kids " ?

>

>

>

>

> ------------------------------------------------------------------------

> Start a new hobby. Meet a new friend.

> http://www.ONElist.com

> ONElist: The leading provider of free e-mail list services!

>

[Guest guest]

I must be a terrible parent of a child with autism. My 18-year-old is on no

diet or medication whatsoever!

[Guest guest]

What constitutes " excessive carbohydrates? "

[Guest guest]

BECKY,

THAT WAS AN EXCELLENT RESPONSE TO KIMBERLY. I WOULD LIKE TO HAVE THE RECIPE

FOR MACARONI AND CHEESE. MY DAUGHTER LOVES IT, BUT WE ONLY LET HER HAVE IT

OCCASSIONALLY, BECAUSE OF DR. GOLDBERG DIET.

Re: diet

>From: Monday506@...

>

>,

>Relax...it'll be okay! I have to say that changing a child's diet is one of

>the most difficult choices...probably worse than medication! But with some

>advance planning and resourcefulness, you can change a child's diet and

>provide him/her with really good substitutions. I make macaroni and cheese

>using rice pasta elbows and a really good cheesy sauce using tofu American

>cheese slices (there is a trace of casein in the slices). Anyone whose

child

>misses this dinner, let me know and I will write it out. I can make him

>pizza using a mix from the Gluten-free pantry. (Here's the link to this

>mail-order company):

><A HREF= " http://www.glutenfree.com/ " >Gluten-Free Pantry</A> And he eats

>hamburgers from Burger King (with the bun taken off). Cookies are easy to

>substitute with the right " flour " combinations. In the beginning I wasted

>LOTS of food trying to find things that were remotely palatable. Now I have

a

>pretty good routine.

>

>But don't give up. I don't know what Dr. Goldberg's current dietary

>recommendations are, but when I started with him almost three years ago, I

>simply removed whole grain and dairy. I have since gone gluten and dairy

>free. The gluten was a big culprit in my son's llife. Removing it has made

a

>big difference in ability to focus and communicate. This may not be the

case

>for all children, but some of theses food products can mess up their immune

>systems... big time!

>

>I feel I have rattled on and on. I will stop, but first want to encourage

you

>to check out this website for helpful and practical advice on adjusting to

a

>change in your child's diet.

><A HREF= " http://members.aol.com/lisas156/gfpak.htm " >Dietary Interventions

in

>Autism

></A> Print it out but load the printer because it is long (even longer

than

>my run-on letter her!! HA HA).

>

>Good luck and keep writing for support!! Becky

>

>------------------------------------------------------------------------

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>http://www.ONElist.com

>Tell them about ONElist's 115,000 free e-mail communities!

[Guest guest]

kimberly,

the diet is not that restricted, you will get the hang of it. just stay away

from dairy products and whole wheat mainly. our daughter eats mcdonalds and

arbys about every day. she only eats the meat, though. no buns. she is now

healthy. it may not sound like the best diet, but our daughter is healthy

now and a big part of it goes to goldberg. she also gets her fruits and

vegetables everyday.

don't get depressed!! i heard something the other day that said that maybe

we might be special people, because we were trusted in raising these

children. i have a web site you might be interested in looking into. it is a

institute that helps with autism and other disabilities. the web site is

www. option.org

good luck

mike and donna

diet

>From: " D. " <ryankd@...>

>

>Help! I just visited Dr. Goldberg's site and the section on diet really

shocks me! I mean, do ALL autistic children need to follow this diet? Do

all of you have experience with the diet? My neurologist never mentioned

this to me. I must say, I'm somewhat depressed. First, they tell you that

your child is going to have a difficult time trying to lead a normal life,

then they tell you she can't eat practically ANYTHING. What a blow.

>

>

>------------------------------------------------------------------------

>Has ONElist changed your life?

>http://www.ONElist.com

>Visit our homepage and share with us your experiences at ONElist of the

Week!

[Guest guest]

Nobody is a terrible parent if they are on these lists. That is step one.

Step 2: visit www.autism.com/ari That will get you started. Read about DMG

first. It tastes good and is easy to take chewable or better yet

sublingual. you don't have to do vitamins, most of us just want to try to

make things better and will try *anything* to see improvement. Last night

on our local news a 33 year old autistic man was shown being abused by the

director of a group home. She was giving him a " shower " nude in the yard

with a garden hose. It was on video. I almost barfed my dinner. Sad

things like this is my inspiration to find a better way. Most doctors are

apathetic, indifferent and ignorant. It is up to us parents who have a

vested interest in helping our children.

I cannot just sit and hope he will outgrow it. I am actively trying to

find a cure, short of that, effective treatment is next best. ~

Re: diet

>From: Virri345@...

>

>I must be a terrible parent of a child with autism. My 18-year-old is on

no

>diet or medication whatsoever!

>

>------------------------------------------------------------------------

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>Come join one of the 115,000 e-mail communities at ONElist!

[Guest guest]

As far as the benefit of seeing Dr. Goldberg, it is well worth the cost. For

us it is the best thing we did for my son. Look at it as an investment in

your child's potential. My only regret is that I did not know about Dr.

Goldberg sooner. We first saw Dr. G. when was 6, and he was diagnosed

right before he turned 3. When first saw Dr. G, he was starting to

repeat kindergarten with some time in special ed. and some time in regular

class. During that repeat year of kindergarten, he was doing so much better

under Dr. G's care that caught up on the first grade work, and the

following year he was placed in second grade. This year in third grade doing

regular third grade work he has gotten all A's and B's except for one C. We

have been thrilled. has great potential. We are not " recovered " , but

have had super progress. I could probably have been better, if we had

started sooner!

Remember also with Dr. G., he will follow up with your child more closely

than any other Dr. - You give weekly fax updates, with feedback from him. He

will do phone consultations with you. He also goes to NYC for appointments,

with may or may not be as expensive as LA. He is so dedicated to helping

these kids, that its amazing.

As far as the diet, it's not that hard. (We do not go the harder route of

gluten-free as some parents do.) We use Rice Dream rice milk (found with the

natural products, un-refrigerated section of grocery store). We just avoid

high sugar content, not all sugar. We don't use a lot of sugar substitutes,

I think is sensitive- he gets hyper from them. My son is also very

picky, but has gotten less picky since following this diet. Now he will eat

meat of any kind and he eats vegetables, before he only would eat peanut

butter sandwiches (still a mainstay of his school week lunches), chicken

nuggets, and hot dogs. We use Gatorade for a juice because there is less

sugar, and is not real keen on water. eats popcorn, but you might

need to watch for the hidden dairy in some-butter solids. We had better

luck with Natural (vs butter flavor) microwave popcorn. Good Luck! :-)

diet

From: " D. " <ryankd@...>

Thanks to all for their input. I really do appreciate all of your comments.

I've decided to try the diet and I'm strongly considering taking my daughter

to LA to see Dr. Goldberg.

I have not shopped yet for the diet. Are there things that I might have

here in my home that I might be able to start my daughter on? She's a picky

eater. What about light popcorn or hot dogs? Do you just supplement your

children with a multivitamin or certain ones? Isn't anyone concerned about

these children getting too much nutrasweet? Nutrasweet or aspartame seems

the only way to make this work. My grandmother lives with me and is on

dialysis and on a renal diet. She cannot have milk products either, and on

her cereal, she uses coffee rich (non-dairy creamer). I gave some of this

to my daughter to drink and she liked it. Do you think that was a good

choice? How soon can I expect to see results?

The office visit alone to see Dr. Goldberg is $395, besides lab tests,

travel from St. Louis, and lodging. Those of you with experience with him

can you help me to weigh the benefits of seeing him with the risks of not

seeing him?

Thanks, in advance, for your kind replies.

Kim/MO

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[Guest guest]

Kim - I can say from our perspective that all the hassle and expense of

going to see Dr. Goldberg was well worth it.

--Kathleen--

>From: " D. " <ryankd@...>

>

>Thanks to all for their input. I really do appreciate all of your comments.

>

>I've decided to try the diet and I'm strongly considering taking my

>daughter to LA to see Dr. Goldberg.

>

>I have not shopped yet for the diet. Are there things that I might have

>here in my home that I might be able to start my daughter on? She's a

>picky eater. What about light popcorn or hot dogs? Do you just

>supplement your children with a multivitamin or certain ones? Isn't

>anyone concerned about these children getting too much nutrasweet?

>Nutrasweet or aspartame seems the only way to make this work. My

>grandmother lives with me and is on dialysis and on a renal diet. She

>cannot have milk products either, and on her cereal, she uses coffee rich

>(non-dairy creamer). I gave some of this to my daughter to drink and she

>liked it. Do you think that was a good choice? How soon can I expect to

>see results?

>

>The office visit alone to see Dr. Goldberg is $395, besides lab tests,

>travel from St. Louis, and lodging. Those of you with experience with him

>can you help me to weigh the benefits of seeing him with the risks of not

>seeing him?

>

>Thanks, in advance, for your kind replies.

>

>Kim/MO

>

>

>------------------------------------------------------------------------

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>http://www.ONElist.com

>Sign up for a new e-mail list today!

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Kathleen J. McClatchey (Whiteman) kjm@...

Executive Communications office phone: (734) 763-8190

Office of the Chief Information Officer fax: (734) 764-3988

5085 Fleming Administration Building cell phone: (734) 358-5122

University of Michigan home phone: (734) 944-1828

Ann Arbor, MI 48109

[Guest guest]

Dr Goldberg heads east at least 2 times per year which would greatly reduce

your expense. Call his office and see what is planned next-he was considering

the Carolinas in June.

It is worth seeing him-he is the ONLY one approaching this as a medical

problem, and having success treating it accordingly. It's a little expensive

but....

[Guest guest]

Have you heard about the biological conference to be held in Orlando FL next

month?

I think Dr. V. Singh is speaking on the immune response subject.....

Re: diet

>From: CWither43@...

>

>Dr Goldberg heads east at least 2 times per year which would greatly reduce

>your expense. Call his office and see what is planned next-he was

considering

>the Carolinas in June.

>It is worth seeing him-he is the ONLY one approaching this as a medical

>problem, and having success treating it accordingly. It's a little

expensive

>but....

>

>------------------------------------------------------------------------

>Share the wealth!

>http://www.ONElist.com

>Tell a friend about ONElist's 115,000 free e-mail communities!

[Guest guest]

Delaine,

Congratulations! I'm so happy for you and Jim! You've waited a long time

for

this, and now you will be able to relax a little more.

I feel the same way about this " diet " . I don't consider it a diet either,

it is a way of life.

Loosing weight will be a nice benefit

Neither your hands or feet are affected?

a

----- Original Message -----

From: Jim & Delaine Lowry <keywest@...>

onelist < egroups>

Sent: Tuesday, October 10, 2000 9:48 PM

Subject: [ ] Diet

> a

>

> I understand completely about your feer of losing your hands. This has

> been

> the scariest for me, also. I have RA in both ankles, both knees, both

> elbows,

> both wrists. When I got carpel tunnel in both hands, I was really

> scared.

>

> That's why I've been able to stick to my diet, also. I've never really

> stayed

> on a diet to lose weight before...but, this is not about losing

> weight...it's about

> losing my hands AND being in pain all the time.

>

> I've been pain free for so many days lately; I was thinking that maybe I

> didn't

> have RA anymore. Then, it came back yesterday and I thought back as to

> what did I eat that would make me hurt.

>

> I'm still on the arava and mtx...but with the change in my diet, I'm not

> in any

> pain like I was before. And, if I eat something wrong and it starts

> again, it

> starts first in my ankles and knees. Then, if I continue to eat wrong,

> it moves

> into my elbows and wrists and then I'm hurting all over.

>

> So, to not have pain keeps me from eating those things that I love.

> But, I've

> decided that those few seconds of having something that tastes SO good

> is

> not worth the hours of pain afterwards.

>

> Good luck to your continued improvement.

>

> Off subject, our guest house is being sold Thursday at 11 AM. Jim and I

> are

> SO excited.

>

> Delaine

>

[Guest guest]

Well hi there Delaine from Fl.

So the weather is perfect huh? well here in Indpls. it is cold and rainy and

boy that makes yours bones ache. I had a miniture schnauzer, candy the

sweetest little dog I ever had and guess what? her bro.'s name was Nick he

was a prancer, could have been shown I'm sure. The reason I am responding is

you mentioned your diet. Could you tell me exactly what your regemine is very

enterested . Thanks Judy from Indy

[Guest guest]

Hi,

Would you please let me know more about your diet? I am convinced that diet

can help with RA. One of the Rheumatologists in my clinic -- he is

Chinese -- suggested I stop eating red meat. I haven't had any in a year.

Recently I was told by one of the other doctors that a vegetarian diet with

eggs and dairy is best for RA. I suspect sugar is my worst culprit, so I

was interested in the sweets that seemed to make you worse. Interestingly,

none of my doctors have mentioned sugar! For awhile I was very good with

salads and vegetable juice being a mainstay of my diet. I did feel better,

but then someone without RA would probably feel better too. Please write

and share your diet.

Thanks,

Patsy

-----Original Message-----

From: Jim & Delaine Lowry [mailto:keywest@...]

Sent: Wednesday, November 08, 2000 12:48 PM

onelist

Subject: [ ] Diet

I've been in North Carolina for the past week visiting my family. It

was

my parents' 50th wedding anniversary. They had a party on Saturday

that was very nice. I met a couple that had double dated with my

parents

before they were married.

I got a bunch of 50th anniversary items for them from ebay. They were

priced really reasonable...a lot cheaper than buying from Hallmark.

Well, my RA has been so much better with my following my diet. I

went off of it while I was in Burlington, NC. I ate anniversary cake

and

then cake for my niece's birthday and basically blew my diet. And my

joints hurt horribly. A couple of nights I took some of my husband's

percocet (?) as vioxx50 did nothing for the pain. I'm back home and

following my diet again and no RA pain again. So, for me, a good

diet is essential to my joints not hurting.

For those interested, the guest house still hasn't sold. Maybe the

closing will

be Monday. This has been a nightmare.

We got a new puppy. He's a giant schnauzer that is a half brother to

the 9

month old giant schnauzer puppy that we have now. Jim has named him

Yogi as " it's deja vu all over again " . This puppy, Yogi, is very much

like

Nick, the giant schnauzer that we lost to bloat in January. The dogs

are

7 months apart in age.

So, the trip to North Carolina was quite unusual as we had a new puppy

with us. When we came home, the puppy which we had had for one week

didn't know we were at home. He still thinks that the van is his home

as he

was in it most of the time. Chance is acting more grown up now that we

have the new puppy. He sees how the new puppy must stay in the kennel

most of the time and knows that he is the Big dog and doesn't have to

stay in it.

Delaine from Key West, FL where the weather is just perfect.

Our websites: http://rheumatoid.arthritis.freehosting.net/

http://www.rasupport.webprovider.com/

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