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Re: TABOO

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I agree Alana, I don't think Meg has to wait for

marriage, that just happened to be my choice in my

situation. What I meant was, " Meg, please don't give

in to raging hormones " , at least care about the guy

first. One thing I've learned is that sex for women

is more emotional than guys. I just didn't want her

to give in to her hormones because she had the

opportunity. So, I second that, follow your heart ;)

Simone

--- Alana <alrt@...> wrote:

> vicki...i'm one of the jezabels, too...lol...still

> " living in sin " .

>

> but in all seriousness, simone earlier on the this

> thread said to meg

> that she'll be happy that she waited for the right

> partner...preserving virginity was the topic.

> reading this reminded

> me how very diverse this list is. it's so important

> for each

> individual to follow her or his heart on this issue

> of sex. some

> have spiritual and/or ethical beliefs that guide

> them to maintain

> their virginity until they marry or go through some

> sort of

> sanctioned joining. i myself am glad i didn't wait

> for the right man

> or woman. i've learned so much from each partner

> both emotionally

> and physically, and i've really enjoyed my

> relationships [except for

> that one asshole ;) ]. i don't have spiritual,

> ethical beliefs or

> family pressure that disagree with other than what i

> have done, so

> this has made my choices right for me.

>

> people should definitely follow their hearts while

> paying attention

> to their hormones. ;)

>

> alana

>

>

>

> >

> > Jeez, I feel like a real Jezebel! I had 6 sexual

> partners before I

> married

>

>

>

>

>

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inspired, and success achieved. "

__________________________________

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As for the still " living in sin " , you and Chuck are

very committed to each other, in my eyes, that's not

living in sin. Not to mention, you guys make a cute

couple. Okay, I'm outta here. Happy New Year!!!

Hugs,

Simone

--- Alana <alrt@...> wrote:

> vicki...i'm one of the jezabels, too...lol...still

> " living in sin " .

Album: http://community.webshots.com/user/ssegerter

Website: http://www.geocities.com/sunshine9573

" Character cannot be developed in ease and quiet. Only through experience of

trial and suffering can the soul be strengthened, vision cleared, ambition

inspired, and success achieved. "

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

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I'm with ya there, darlin!! :)

>

> I play a huge role in our sex life despite having little

independent

> movement. I *can* move all the important parts. ;)

>

>

> Amy

> Wife to Will 11/3/95

> Mama to Olivia Isabelle 9/18/03 - she's two!

> http://www.babiesonline.com/babies/o/oliviathegreat/

> Phineas Maximilian 11/30/05 - he's here!

> http://babiesonline.com/babies/m/mama20305/

>

>

>

>

>

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Im not exactly waiting for marriage or for that

" perfect " guy.... I moreso am waiting to be with a guy

that I could trust. Some of the guys Ive dated were

great and I had fun with them and all, but I dont know

that I would have felt completely at ease if I had

gone all the way with them. I think the only guy I

have felt that way about was when I was 15! And at

that age I just wasnt ready for sex maturity wise I

dont think. If I were with that guy now at this time

and age, I'd so jump his bones! lol

I think that sex can be great no matter what your

'ability'. It might feel a bit weird telling your guy

or girl to help ya out, but I think that if you are

having sex with that person in the first place, your

communication skills should already be up to par!

I look forward to that day that I get to 'share

myself' but in the same, I am just fine not having

sex!

--- Alana <alrt@...> wrote:

> vicki...i'm one of the jezabels, too...lol...still

> " living in sin " .

>

> but in all seriousness, simone earlier on the this

> thread said to meg

> that she'll be happy that she waited for the right

> partner...preserving virginity was the topic.

> reading this reminded

> me how very diverse this list is. it's so important

> for each

> individual to follow her or his heart on this issue

> of sex. some

> have spiritual and/or ethical beliefs that guide

> them to maintain

> their virginity until they marry or go through some

> sort of

> sanctioned joining. i myself am glad i didn't wait

> for the right man

> or woman. i've learned so much from each partner

> both emotionally

> and physically, and i've really enjoyed my

> relationships [except for

> that one asshole ;) ]. i don't have spiritual,

> ethical beliefs or

> family pressure that disagree with other than what i

> have done, so

> this has made my choices right for me.

>

> people should definitely follow their hearts while

> paying attention

> to their hormones. ;)

>

> alana

>

>

>

> >

> > Jeez, I feel like a real Jezebel! I had 6 sexual

> partners before I

> married

>

>

>

>

>

__________________________________

for Good - Make a difference this year.

http://brand./cybergivingweek2005/

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I think that was well stated . I disagree with the sexual peek

for men that was posted. males from about 12 to mid 20s will hump

anything that will stand still. women in mid 30s to 40s are more

sexually hungery than they were in their 20s. but i dont think

comparing ab people to special situation people is a linear scale

either.

> > >

> > > Jeez, I feel like a real Jezebel! I had 6 sexual

> > partners before I

> > married

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> for Good - Make a difference this year.

> http://brand./cybergivingweek2005/

>

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I don't agree about DA men.. I think urges can be equal, & men have easier

access to satisfy them.

Ksmile96@...aol12/30/05 5:55 PM

Nick,

I've always felt DA men have it harder than DA women when it comes to

sexual

urges. Most men have a higher sex drive than most woman, thus needing a

outlet for it or a need to satisfy the urges. I heard about the DMD guy

who was

reported by his nurse for masterbating, and IMO it's the nursing agency's

duty to help w/psycho-social needs which includes sex. I'm not saying that

they are required to help them actively relieve themselves, but setting a

guy up

or giving him a urinal to masterbate in doesn't seem very harmful to either

party. I also wish there was a way to educate society and especially

caregivers of the DA about sexual needs of DA ppl. This is also a heated

ethical

topic when it comes to the mentally DA. I know of one institution in PA

where

a male sex therapist instructs the mentally DA on how to masterbate. Some

may think this is gross and wrong, but really is it?? I'd like to hear

others

thoughts on how to educate society about the sexual needs of the DA.

Kimi

In a message dated 12/30/2005 12:37:07 P.M. Eastern Standard Time,

nickdupree@... writes:

Remember disabled men too.....

Unfortunately, it is still taboo for most people with disabilities.

Hell, as recently as the 1970s Americans with disabilities were still

subject to court-ordered forced sterilization.

A guy on Duchenne's listserv got reported to the agency for " sexual

harrassment " just because a nurse caught him masturbating (in his own

house) in the urinal she gave him and freaked out. This is the

predominant attitude in most parts of the US, that people with

disabilities should not be sexual and we shouldn't see it or talk about

it. .

How do we change this? How do we go from taboo to no taboo?

Nick

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LOL. yes, sin is such a relative thing...isn't it. :)

Hugs,

Alana

>

> As for the still " living in sin " , you and Chuck are

> very committed to each other, in my eyes, that's not

> living in sin. Not to mention, you guys make a cute

> couple. Okay, I'm outta here. Happy New Year!!!

>

> Hugs,

> Simone

>

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:)

>

> I agree Alana, I don't think Meg has to wait for

> marriage, that just happened to be my choice in my

> situation. What I meant was, " Meg, please don't give

> in to raging hormones " , at least care about the guy

> first. One thing I've learned is that sex for women

> is more emotional than guys. I just didn't want her

> to give in to her hormones because she had the

> opportunity. So, I second that, follow your heart ;)

>

> Simone

>

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my thing is, i met an AWESOME guy, but hes got another form of md, & is

almost totally paralized, hes also full time on a vent, & i can only use 1

hand & its extremely limited. i dont really know how we could ...........

ive had sexual relationships b4 with other da men, but i was stronger then &

they were more abled too. we never had intercourse, but we did EVERYTHING

else. any1 got any ideas 4me???????

ty,

~

Ksmile96@...aol12/30/05 3:46 AM

Your ? is not Taboo. 1st off you need to get away from the stereotypical

notion that disabled people do not have sex. You are woman, and that's a

natural part of a woman's life, disabled or not. There are many couples

here who

have kids, so we all know they have had sex ;). Just b/c you can't always

physically do everything involved w/sex, doesn't mean " no sex. " The right

person will be willing to help you out to make you feel comfy. My fiance

and I

are both disabled but still have an active and healthy sex life in my

opinion.

So I wouldn't say sex is not in the cards for you. If you find the right

person, there's nothing wrong w/experimenting w/your sexual side. It's

natural for God's sake!

Kimi

PS Where are you from?

In a message dated 12/30/2005 3:32:36 A.M. Eastern Standard Time,

deepatarzan@... writes:

hI Kimi,ALana, MEg,and all

Im back to ask all u people a taboo stuff..or atleast

i feel it to be a taboo..for me.

I get my minds open when peoples opnion bout it...and

please dont feel bad bout wat im gonna say and

ask...its just taut of sharing my views to u people.

" SmA women and SeX "

Being a SMA gal i feel when it comes to sex, i feel im

not right person for it. since sex if full of action

generally..i feel awful that action and me are not

that connected :(

Yup i have never had once till time ...even thou its

like a no word for my mind.

MY QUESTION WUD BE... IS IT OK TO HAV SEX,WHEN U PLAY

A LIL ROLE IN DOIN STUFFS[ ] SORRY ...?

OR EVEN TO HAV SEX..IS IT TO BE PLANNED FOR OUR

COMFORT?

Please let me kno wat u people thing bout it..if its ok..

Love u

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Hormones change, just like the weather. It's easy to just give in to

them rather than practicing self-control and discipline. Just turn on

tv or open a magazine, sex is every where. It seems like every one is

doing it - perhaps this may contribute to the high divorce rate and

people cheating on each other and unfaithfullness.

Waiting for marriage (or in the case for us on disability financial

support than often decreases when you get married) deeply commited

relationship is much better in the long run. If I am struggling with

my self-image and my sexual side, if I know my partner and I have

saved ourselves, we can be sure that we aren't comparing each other

with people we've been with before or thinking that I am not good enough.

This belief is so contrary to the majority. Look at the pain people

deal with when they find their partner sleeping with someone else. If

I can't discipline myself to wait for that committed relationship, how

can I maintain that faithfullness when the hormones rage again, or

relationships go through difficult times and someone else catches my

eye, and a million other scenarios.

I will refrain from this topic cuz this list is about SMA. I had to

express contrary opinions to what is being expressed by many on the list.

Lori

>

> people should definitely follow their hearts while paying attention

> to their hormones. ;)

>

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me too.

PurplGurl3@... wrote:

Thanks for sharing your beliefs, Lori. Just for the record, I agree with

you. :)

-e

In a message dated 12/31/2005 6:17:04 P.M. Pacific Standard Time,

LKMartz@... writes:

Hormones change, just like the weather. It's easy to just give in to

them rather than practicing self-control and discipline. Just turn on

tv or open a magazine, sex is every where. It seems like every one is

doing it - perhaps this may contribute to the high divorce rate and

people cheating on each other and unfaithfullness.

Waiting for marriage (or in the case for us on disability financial

support than often decreases when you get married) deeply commited

relationship is much better in the long run. If I am struggling with

my self-image and my sexual side, if I know my partner and I have

saved ourselves, we can be sure that we aren't comparing each other

with people we've been with before or thinking that I am not good enough.

This belief is so contrary to the majority. Look at the pain people

deal with when they find their partner sleeping with someone else. If

I can't discipline myself to wait for that committed relationship, how

can I maintain that faithfullness when the hormones rage again, or

relationships go through difficult times and someone else catches my

eye, and a million other scenarios.

I will refrain from this topic cuz this list is about SMA. I had to

express contrary opinions to what is being expressed by many on the list.

Lori

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Ditto :)

Blessings,

Holly

>

> From: PurplGurl3@...

> Date: 2006/01/01 Sun AM 12:40:14 GST

>

> Subject: Re: Re: Taboo

>

>

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I have been with my Wife for 12 years and have never even com close to

cheating nor would I ever. I didn't wait for marriage and had had sex

in the past. I am in love and would never cheat on her. I think it's

about the people involved not if you waited or not.

Terry

> doing it - perhaps this may contribute to the high divorce rate and

> people cheating on each other and unfaithfullness.

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,

I date a guy w/DMD, and he sounds a lot like your guy. I have limited use

of my hands, etc...but we manage to have a sex life. Feel free to email me,

since this is a sensitive subj for an open forum. We have figured out a few

things, maybe I can help. I have no problem sharing experiences:) My email is

_ksmile96@..._ (mailto:ksmile96@...) and my id on AIM or

msger is ksmile96.

Smiles,

Kimi

In a message dated 12/31/2005 8:26:38 P.M. Eastern Standard Time,

designms@... writes:

my thing is, i met an AWESOME guy, but hes got another form of md, & is

almost totally paralized, hes also full time on a vent, & i can only use 1

hand & its extremely limited. i dont really know how we could ...........

ive had sexual relationships b4 with other da men, but i was stronger then &

they were more abled too. we never had intercourse, but we did EVERYTHING

else. any1 got any ideas 4me???????

ty,

~

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Hey Vicki, I had no idea we were gonna " lay " all our cards on the table, LOL!

Like you I was 18 when I lost my V and all of my lover/dates/boyfriends/ and

two fiancees were able bodied.....6 is also my tally, 7 if you count hubby.

I also agree that one's attractiveness is all about how they " radiate "

themselves sexually to others. You don't need to be wearing slutty clothes

either or wear tonnes of makeup, all it takes is a wink and a smile!

Inside, you envision yourself as a hot sexy mama!

Angie

On 2005.12.31 17:08, VickiLJurney@... wrote:

> Jeez, I feel like a real Jezebel! I had 6 sexual partners before I married

> when I was 33. My first experience was when I was 18. It's funny,

> but all of my partners BEFORE were able-bodied.

>

> I've always had a good feeling about my body, despite being only 70 lbs.

> That has a lot to do with your sexual attractiveness. If you think that

> you're attractive, you are attractive to others. Personality is 90% of the

> equation. Don't let anyone tell you otherwise.

>

> Vicki

>

>

>

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In light of what Alana has said, I may have lost my V at 18yrs, but he and I

were serious at the time and stayed together for 1.5yrs. Those before and

after (not including hubby) were mainly " heavy petters and deep kissers. "

I had only two serious lovers before meeting Doug aka hubby. Funny thing here

is my V-taker was also a fella named Doug then came Mike who was my 1st

fiancee. It wasnt until Mike " played me as the other-woman " that I threw up

my protective shield around my heart. It took three years before becoming

serious with Doug-hubby that I gave up my heart and soul again. This time for

the long haul, LOL!

I did all this with only my self-center as my guide; some of my upbringing and

religion played a role, but a small part just enough for me to know how to

" play safe. "

Angie

On 2005.12.31 18:44, Alana wrote:

> vicki...i'm one of the jezabels, too...lol...still " living in sin " .

>

> but in all seriousness, simone earlier on the this thread said to meg

> that she'll be happy that she waited for the right

> partner...preserving virginity was the topic. reading this reminded

> me how very diverse this list is. it's so important for each

> individual to follow her or his heart on this issue of sex. some

> have spiritual and/or ethical beliefs that guide them to maintain

> their virginity until they marry or go through some sort of

> sanctioned joining. i myself am glad i didn't wait for the right man

> or woman. i've learned so much from each partner both emotionally

> and physically, and i've really enjoyed my relationships [except for

> that one asshole ;) ]. i don't have spiritual, ethical beliefs or

> family pressure that disagree with other than what i have done, so

> this has made my choices right for me.

>

> people should definitely follow their hearts while paying attention

> to their hormones. ;)

>

> alana

>

>

> > Jeez, I feel like a real Jezebel! I had 6 sexual partners before I

>

> married

>

>

>

>

>

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..) may

> occur occasionally in emails. Over use of inappropriate language will

> not be allowed. If your under 16 ask your parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the disabled.

>

> Post message:

> Subscribe: -subscribe

> Unsubscribe: -unsubscribe

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

>

>

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sorry guys I hope y'all don't get sick on this 1.

The subject of having sex brought up a funny experience I once had. I had an

aide caring for me, she was new. When she went to bathe my private area she

stopped and pointed and stuttered it's bleeding. I said yeah all women have

their cycles. She stated she didn't know women in wheelchairs had cycles. I

replied yes and we can have sex too. Her eyes got really big and went how do

you do that. I explained so her dense mind would understand, well you take a

man and a woman. STOP i DON'T WANT TO HEAR NO MORE! ! !

She left never did come back

I've been with my guy 26 yrs now.

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In some ways I am sort of jealous of those of you who were able to follow

through with your choice to wait for the " right " person, weither all the way to

" marriage " or weither it was just for a person who you felt safe with or

whatever the case may be. I was not so fortunate to get to keep that choice. I

wanted to be that way, but some guys didn't want that for me and decided to do

stuff to me even before I had any idea what was going on. You see I was molested

from the age of about four or five by my father, then from 8 to 18 by my cousin,

at around 12 I was molested by my fathers cousin while at a family gathering,and

was raped at 15 by a guy from church. After all that I went through for a while

I turned into a rebel who didn't care about her body since no one else did

either and had several sexual relations, even if they weren't all full

intercourse, the heavy petting and other things were enough, and sometimes past

the line I wanted to hold. I now regret them all. I don't feel

like I am able to give my boyfriend all of me that I would have been able to if

I waited. I am deeply in love with my boyfriend now and we are commited to each

other and would never even think of cheating on each other. I just feel like in

some ways I am cheating him by not being all I could. So those of you who are

waiting....keep it up! It is well worth it when you find that special person.

---------------------------------

for Good - Make a difference this year.

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Bravo!

VickiLJurney@... wrote:

>

> I've always had a good feeling about my body, despite being only 70

> lbs. That

> has a lot to do with your sexual attractiveness. If you think that you're

> attractive, you are attractive to others. Personality is 90% of the

> equation.

> Don't let anyone tell you otherwise.

>

> Vicki

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Good point!

Terry Willoughby wrote:

> I think it's about the people involved not if you waited or not.

>

> Terry

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indeed, terry. i've had a number of partners, but never cheated,

despite having the opportunity on a few occasions. i am monogamous,

and have selected partners who also want monogamy. to me, it's about

how committed the individuals in a couple are to honesty, not whether

someone has had sex in the past with someone else.

>

> I have been with my Wife for 12 years and have never even com close

to

> cheating nor would I ever. I didn't wait for marriage and had had sex

> in the past. I am in love and would never cheat on her. I think it's

> about the people involved not if you waited or not.

>

> Terry

>

> > doing it - perhaps this may contribute to the high divorce rate and

> > people cheating on each other and unfaithfullness.

>

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,

That's a pretty damn funny story, along with being about sad about

how naive people can be about disability and that we have to deal

with it.

A couple of years ago one of my attendants asked her new boyfriend to

meet her after work for lunch. She explain that she wouldn't be at

the regular place, " No, pick me up at Alana's boyfriend's house. Uh,

huh. Yes, she stayed with him last night. " She gave him directions.

The next day she showed up for work laughing hysterically. " Miss

Alana (she's the only person allowed to call me that), you'll never

believe what Jimmy said yesterday. " She proceeded to tell me about

his astonishment that I had a boyfriend, that he didn't have a

disability, and that I regularly slept over at his house. He

embarrassedly asked, " Can she, um, you know, um...? " My attendant

burst out laughing and proclaimed, " Her pussy ain't broken!! "

I thought that was the funniest thing! And I also appreciated having

such lovely attendants who view me as a peer instead of an " invalid, "

and that they're eager to set people straight on the their

misconceptions.

Cheers!

Alana

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Well, gee - it stopped mine in its tracks - instant menopause. :)

D.

jayrho74 <jayrho74@...> wrote:

>I never hear any discussion how menstruation affects Lyme : either

>symptoms intensity or herxes ... Lyme seems to cause more pain during

>cycle, But I help this by taking large doses of UNIZYME (WOBEZYME)

>during period.Sometimes my lyme symptoms are better after the period

>but not always.

>RHONDA

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

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You all CRACK me up ! Yes I have had incredible menstrual symptoms from Lyme.

I`ve always been like a clock . Then when my lyme became serious and chronic

about five years ago my cycles went crazy. no rhyme or reason. too long , too

short, 2 weeks in between, 8 weeks in between and PAIN ...good grief ! I also

had hot flashes like CRAZY. After a few months on Samento it began to go back to

normal. Now , a year and a half later , at 43 : ) they are like a clock again !

It all amazes me ! in WV

DeMarco <ponyrubs@...> wrote: Well, gee - it stopped mine

in its tracks - instant menopause. :)

D.

jayrho74 <jayrho74@...> wrote:

>I never hear any discussion how menstruation affects Lyme : either

>symptoms intensity or herxes ... Lyme seems to cause more pain during

>cycle, But I help this by taking large doses of UNIZYME (WOBEZYME)

>during period.Sometimes my lyme symptoms are better after the period

>but not always.

>RHONDA

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

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>

> >I never hear any discussion how menstruation affects Lyme : either

> >symptoms intensity or herxes ... Lyme seems to cause more pain during

> >cycle, But I help this by taking large doses of UNIZYME (WOBEZYME)

> >during period.Sometimes my lyme symptoms are better after the period

> >but not always.

>

> >RHONDA

>

>

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

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