Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 This mam is supposed to be a doctor, but I believe his gods are greed and avarice, he certainly does not care about people suffering with Lyme Disease, because his mantra of over dianosed and over treatment has been taken too seriously, without scientific proof, just as an opinion, and thus prevented thousands of people world wide if not more from receiving necessary medical treatment. Now, he does have a vested financial interest in ght SKB vaccine and is no talking out of the other side of his mouth again about making sure people don't get Lyme so they will ask for the Lyme vaccine reluctantly approved by the FDA. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 1999 Report Share Posted October 24, 1999 >Subject: Re: STOP STEERE Hi, As a new person to lyme and Steere, I would like to know how Steere holds on to his power? Is it because of the backing of CDC? or does CDC use his criteria? And what other medical professionals support him and why? Dr. Steere can say what he wants, and he may have be instrumental in dx of lyme in 70's, but if research overturns the short-term treatment, why doesn't CDC take this into consideration? I do realize that tradional is too slow to change, but with so many suffering, but also getting relief from lyme documented by LLdocs, I am puzzled as to why there is so much strife in lyme community. As I said, Steere may say anything, but others have carried out his practices contributing to peoples misery, and therefore also bear responsibility. I always see patients from aids to cifds advocating for themselves (and in cfids community, cfids docs charge prohibitive prices and withhold services for those to financially strapped folks to ill to work!). But has anyone ever seen doctors come together to advocate for themselves and their patients? I haven't, and I wonder why this is? There would certainly be more strength in numbers as opposed to docs here and there helping people and being paid by having their licenses revoked. It is refreshing to see all the political spirit here! Too many times it is easier to complain rather than to attack the problem. Those who see Steere will have to have facts and data, as the attorney suggested in earlier post. And it was suggested to me that I also write to CDC and NIH, which I'm most willing to do, but I would like more hard facts. So, if anyone could suggest reputable research sites, I would really appreciate it! Although I have NO doubt that Steere is wrong in treatment approach, he will be well armed with answers and backup from tradition medicine - and that Goliath will only be brought down by hard facts perserverence. This soapbox is getting comfortable! Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 Steere holds on to his power the same way any other politician does - he kisses a lot of . . . people. This is a political world, the NIH and CDC. Sometimes very little science is actually involved. Robynn Re: STOP STEERE > > > Hi, > > As a new person to lyme and Steere, I would like to know how Steere holds > on to his power? Is it because of the backing of CDC? or does CDC use his > criteria? And what other medical professionals support him and why? > > Dr. Steere can say what he wants, and he may have be instrumental in dx of > lyme in 70's, but if research overturns the short-term treatment, why > doesn't CDC take this into consideration? I do realize that tradional is > too slow to change, but with so many suffering, but also getting relief > from lyme documented by LLdocs, I am puzzled as to why there is so much > strife in lyme community. As I said, Steere may say anything, but others > have carried out his practices contributing to peoples misery, and > therefore also bear responsibility. > > I always see patients from aids to cifds advocating for themselves (and in > cfids community, cfids docs charge prohibitive prices and withhold > services for those to financially strapped folks to ill to work!). But has > anyone ever seen doctors come together to advocate for themselves and their > patients? I haven't, and I wonder why this is? There would certainly be > more strength in numbers as opposed to docs here and there helping people > and being paid by having their licenses revoked. > > It is refreshing to see all the political spirit here! Too many times it > is easier to complain rather than to attack the problem. Those who see > Steere will have to have facts and data, as the attorney suggested in > earlier post. And it was suggested to me that I also write to CDC and NIH, > which I'm most willing to do, but I would like more hard facts. So, if > anyone could suggest reputable research sites, I would really appreciate > it! Although I have NO doubt that Steere is wrong in treatment approach, > he will be well armed with answers and backup from tradition medicine - and > that Goliath > will only be brought down by hard facts perserverence. > > This soapbox is getting comfortable! > > Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 I just wanted to give everyone the reaction to the NY Times article by my neighbors. He is a Ph.d. in Science and she has her Masters degree (bright well-read people). They feel that Steere must be right because where is the hard evidence (scientific) that substantiates the argument that lyme continues long-term. The NY Times writers are good at gathering data ... if there was data out there to retrieve, they would have put it in the article. I just wanted you to hear how some people are reacting to the article. If you have any scientific articles that might substantiate the continuity of lyme, I'd love to send it to them. Thanks, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 In a message dated 6/17/01 2:52:15 PM Eastern Daylight Time, renier1@... writes: > I just wanted to give everyone the reaction to the NY Times article by my > neighbors. He is a Ph.d. in Science and she has her Masters degree (bright > well-read people). They feel that Steere must be right because where is > the > hard evidence (scientific) that substantiates the argument that lyme > continues long-term. The NY Times writers are good at gathering data ... > if > there was data out there to retrieve, they would have put it in the > article. > > Thats a shame then so I guess to people like your neigbors then myself and the rest of us are exactly what Steer says. Not physically sick but we ALL have mentall illness Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Lyme bibliographies: http://www.geocities.com/HotSprings/Oasis/6455/bibliographies-links.html Ongoing study: http://www.columbia-lyme.org/dept/nyspi/flatp/NIHstud-n.html <<If you have any scientific articles that might substantiate the continuity of lyme, I'd love to send it to them. >> -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Irene, If you ask me these people can't be too smart if they believe everything they read in the paper......have they not heard of Yellow Journalism, or slanted and biased articles? try this link with articles on persistence of LD: http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html#persistence Although I think you are wasting your time with this pair, are you sure they are not insulting you and invalidating your illness with their comments? I would steer clear of this neighbor. Marta Re: [ ] Re: Steere > I just wanted to give everyone the reaction to the NY Times article by my > neighbors. He is a Ph.d. in Science and she has her Masters degree (bright > well-read people). They feel that Steere must be right because where is the > hard evidence (scientific) that substantiates the argument that lyme > continues long-term. The NY Times writers are good at gathering data ... if > there was data out there to retrieve, they would have put it in the article. > > I just wanted you to hear how some people are reacting to the article. If > you have any scientific articles that might substantiate the continuity of > lyme, I'd love to send it to them. > > Thanks, > Irene > > Welcome to > > Easy Reference: > Send a blank email message to: > > -Unsubscribe - Unsubscribe from the list > -Digest - Switch your subscription to a digest format > -Normal - Switch your subscription to normal > > Please send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic > > The archives can be accessed at > > The chat room is always open! > /chat > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 In a message dated 6/17/01 12:10:51 PM, LymeDizzy@... writes: << They feel that Steere must be right because where is > the > hard evidence (scientific) that substantiates the argument that lyme > continues long-term. >> I am the 'hard scientific data', so are my 5 kids, my husband, the other 41 people on my block in central NJ, how about the over 4,000 people that write to me???? How about the over 200 support groups in the US alone? How about the people writing to me from Australia, Hawaii, Alaska, Japan ????? If I DON " T have 'lyme long-term', than what the hell do we all have that seems to mimic the lyme symptoms???? sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Well gee maybe we ALL have " psychiatric illness " as that ass to eloquintly put it.. All Meaning the THOUSANDS of us in this country and others who all complaine of that SAME thing.. Gee Will the next excuse be MASS HYSTERIA???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 In a message dated 6/18/2001 10:09:21 AM Eastern Daylight Time, slmitch1@... writes: > > If we all have a mental illness then those of us trying to get SSd should be > able to for mental illness or brain damage easily. Right! LOL > Amazing part is I was reapproved for SSD for HAVING CHRONIC Lyme disease. Wonder what O self proclaimed lyme god Steere would say about that... I guess the SS administration has mentall illness too huh? Well ok bad analogy Im sure alot of them do after all they do work for the government.....lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Mass Insanity.......? Only kidding, just quoting that idiot Steere. I was thinking, I don't really want him dead, would really just love for him to get bit by an infected tick, and restrict his abx, that's all. Marta ----- Original Message ----- From: <Ssadlermas@...> > > I am the 'hard scientific data', so are my 5 kids, my husband, the other 41 > people on my block in central NJ, how about the over 4,000 people that write > to me???? How about the over 200 support groups in the US alone? How about > the people writing to me from Australia, Hawaii, Alaska, Japan ????? If I > DON " T have 'lyme long-term', than what the hell do we all have that seems to > mimic the lyme symptoms???? > sue in nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Yeah, a little dose of lyme, thats all he needs. Along with his recomended treatment, 3-4 weeks of antibiotics. Or we could just give him one dose of Doxycycline, that will cure him, LOL. Thats the only way this man would ever believe or begin to understand what we go through. And even then I doubt he would admit it. Hey, maybe he has it already, he sounds very irrashional (excuse my spelling). Has this man ever really recieved death threats? I know that lyme patients are angry (with just cause), but I would hardly call protesting death threats. This whole thing just makes me so mad. I live with constant pain, neurological problems, ect. FROM LYME. I have plenty of tests & documentation to prove it. It is just unbearable to have someone say that what WE have, does not exist. If I have fibromyalgia or CFS, then why did I improve with antibiotics & then get worse and have progression of this illness after being off antibiotics for 3 months? I was told that fibromyalgia was not life threatening or progressive. I'm rambling, sorry. I'm just so upset by that horrible article. Thanks for listening. KIm --- " M.McCoy " <mlmccoy@...> wrote: > Mass Insanity.......? Only kidding, just quoting > that idiot Steere. I was > thinking, I don't really want him dead, would really > just love for him to > get bit by an infected tick, and restrict his abx, > that's all. > Marta > ----- Original Message ----- > From: <Ssadlermas@...> > > > > I am the 'hard scientific data', so are my 5 kids, > my husband, the other > 41 > > people on my block in central NJ, how about the > over 4,000 people that > write > > to me???? How about the over 200 support groups in > the US alone? How about > > the people writing to me from Australia, Hawaii, > Alaska, Japan ????? If I > > DON " T have 'lyme long-term', than what the hell do > we all have that seems > to > > mimic the lyme symptoms???? > > sue in nj > > > > Welcome to > > Easy Reference: > Send a blank email message to: > > -Unsubscribe - Unsubscribe > from the list > -Digest - Switch your > subscription to a digest format > -Normal - Switch your > subscription to normal > > Please send messages not related to Lyme disease > (this includes humor and information about other > diseases) to -Offtopic > > The archives can be accessed at > > > The chat room is always open! > /chat > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 In a message dated 6/18/2001 10:37:12 AM Eastern Daylight Time, roe325@... writes: > Dizzy, I was approved for severe lyme disease, along with the organic brain > disorder thing. but just that they approved on lyme, just that it was in > the approval somewhere is a very good sign that they do understand that lyme > can be disabling. it wasn't always like this. > > roe > Very true... My original claim had to be for CFS because my lawyer said there was no way they would at that time approve for Lyme and that was in 1994 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Dizzy, I was approved for severe lyme disease, along with the organic brain disorder thing. but just that they approved on lyme, just that it was in the approval somewhere is a very good sign that they do understand that lyme can be disabling. it wasn't always like this. roe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 If we all have a mental illness then those of us trying to get SSd should be able to for mental illness or brain damage easily. Right! LOL Sheryl Re: [ ] Re: Steere > Well gee maybe we ALL have " psychiatric illness " as that ass to eloquintly > put it.. All Meaning the THOUSANDS of us in this country and others who all > complaine of that SAME thing.. Gee Will the next excuse be MASS HYSTERIA???? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Cute. I'd have mental illness too if I had to put up with all the general publics BS. LOL. Sheryl Re: [ ] Re: Steere > In a message dated 6/18/2001 10:09:21 AM Eastern Daylight Time, > slmitch1@... writes: > > > > > > If we all have a mental illness then those of us trying to get SSd should be > > able to for mental illness or brain damage easily. Right! LOL > > > > Amazing part is I was reapproved for SSD for HAVING CHRONIC Lyme disease. > Wonder what O self proclaimed lyme god Steere would say about that... I guess > the SS administration has mentall illness too huh? Well ok bad analogy Im > sure alot of them do after all they do work for the government.....lol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Hi Sue, I understand your living evidence and so do most of us. The problem is that we have to understand that others do not. We can't force people to understand unless we can provide some clear data in a concise manner ... not a bunch of reports that are scattered or ramble on and on. We need to market our cause clearly so we come off in a creditable manner. I wrote this feedback of my neighbors (who by the way, are two of the brightest individuals I have ever met) so that we can understand how some people react to these articles. My one neighbor had lyme, she believes she has gotten rid of it, but is still open to the idea that it still exists. Her husband, a Ph.D. has a very scientific approach and very factual. My point is, we need more facts, from creditable sources. Irene in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 In my house between myself, my husband, 5 of my 6 kids (#6 does not live at home), we have lyme, babesia, ehrlichia HGE/HME, bartonella, mycoplasma, EBV, HHV-6 SO FAR. Great, huh? and this could have been prevented had ALL of us just swallowed TWO doxycyline????????? BS!! I since have swallowed HUNDREDS of doxy and Ceftin, Vantin, Suprax, Zithromax, Bactrim, etc. sue in nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Kim, I do know that there is a jerk named on the newsgroup who constantly makes threats toward Steere in his posting. Other than that, in my five years of contact with Lyme patients I have heard of no other. Of course I am speaking only of people on-line. There are many who are infected with LD, not fortunate to have a computer and I have read some of their sad stories in Newsletters, like SpotLight on Lyme and the Lyme Times. These people are kept abreast of the situation we face by the newsletters they receive and they know that Steere is the culprit preventing us from having this disease taken seriously. Marta ----- Original Message ----- From: " Kim Sak " <kimsak2000@...> > Yeah, a little dose of lyme, thats all he needs. Along > with his recomended treatment, 3-4 weeks of > antibiotics. Or we could just give him one dose of > Doxycycline, that will cure him, LOL. Thats the only > way this man would ever believe or begin to understand > what we go through. And even then I doubt he would > admit it. Hey, maybe he has it already, he sounds very > irrashional (excuse my spelling). > > Has this man ever really recieved death threats Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 I lived a normal life for almost 2 years and now all the symptoms are back. The proof will be in the testing of course. What more can I say! Jeannie in North Carolina Re: [ ] Re: Steere In a message dated 6/17/01 12:10:51 PM, LymeDizzy@... writes: << They feel that Steere must be right because where is > the > hard evidence (scientific) that substantiates the argument that lyme > continues long-term. >> I am the 'hard scientific data', so are my 5 kids, my husband, the other 41 people on my block in central NJ, how about the over 4,000 people that write to me???? How about the over 200 support groups in the US alone? How about the people writing to me from Australia, Hawaii, Alaska, Japan ????? If I DON " T have 'lyme long-term', than what the hell do we all have that seems to mimic the lyme symptoms???? sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Don't forget to add some Bebesia just for the fun of it! Jeannie in North Carolina Re: [ ] Re: Steere Mass Insanity.......? Only kidding, just quoting that idiot Steere. I was thinking, I don't really want him dead, would really just love for him to get bit by an infected tick, and restrict his abx, that's all. Marta ----- Original Message ----- From: <Ssadlermas@...> > > I am the 'hard scientific data', so are my 5 kids, my husband, the other 41 > people on my block in central NJ, how about the over 4,000 people that write > to me???? How about the over 200 support groups in the US alone? How about > the people writing to me from Australia, Hawaii, Alaska, Japan ????? If I > DON " T have 'lyme long-term', than what the hell do we all have that seems to > mimic the lyme symptoms???? > sue in nj Quote Link to comment Share on other sites More sharing options...
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