Re: Ready to give up

[Guest guest]

In a message dated 9/10/99 3:39:05 PM Eastern Daylight Time, Dabret22@...

writes:

<<

So right now i am at the end of my rope.I feel guilty for not getting

better, I am beginning to wonder if it is all in my mind and I somehow dont

want to get well ( ??) I had some hope when I thought the meds were

working and EVENTUALLY I would get better. Now I am just crying all the time

and have really lost hope.

I am curious about the rocephin....anyone else ever have to stop it for

awhile?? >>

Dabs,

Don't give up. Rocephin just might not be your " magic bullet " . There are

many other goodies you can try. I also have alot of headaces and dizziness.

Since I've had some treatment for babesia these symtoms are better. So maybe

you have babesia? Dr. Bur says in his guidelines that we must treat the

other co infections first. My LLMD said that the lyme will never get under

control unless the co infections are taking care of. Let me know how your

tests comes out. PLEASE don't lose hope....

[Guest guest]

Dabret22@... wrote:

>

> From: Dabret22@...

>

> I saw my LLMD yesterday and he confirmed what I already knew...after 14 weeks

> of IV rocephin I am NO better. In fact, I have more dizziness and nausea than

> ever.

>

> I am bedridden with headaches, wavey blurred double vision,a terrible

> spinning dizziness and absolutely no energy or stamina. I cant get through a

> day without codeine (headache) antivert (dizziness) vistaril ( dizziness and

> nausea).

>

> I could tell Dr W was frustrated, and app. the visiting nurses have been

> contacting him freq. because they felt my condition has been worsening.

>

> Although he never said this, I feel like it is MY fault for not getting

> better.

> He put the rocephin on hold, saying maybe I was " toxic " from it, but

> continued the 400mg doxy/day and the plaquenil. He ordered IM compazine for

> RN to give if/when i get terribly sick, and told me to make an appt. with my

> neurologist to eval me for (new) symptoms of episodes of numbness in hands

> and legs as well as poss MS or some other neuro thing concurrent with lyme

>

> Eriloch(sic) neg and still waiting for malaria and babs.

> He said his guess is that I have a secondary tick born infection that he

> might not even be able to test for.

>

> I asked him if he thought my being sick was all in my mind. He said " no " but

> his frustration with me not getting better was palpable

>

>

> So right now i am at the end of my rope.I feel guilty for not getting

> better, I am beginning to wonder if it is all in my mind and I somehow dont

> want to get well ( ??) I had some hope when I thought the meds were

> working and EVENTUALLY I would get better. Now I am just crying all the time

> and have really lost hope.

>

> I am curious about the rocephin....anyone else ever have to stop it for

> awhile??

> I feel very isolated and alone . You guys are the only people I feel

> comfortable turning to. What is happening to me??????????? Dabs

> conn

Dear Dabs: ROCEPHIN DID NOTHING FOR ME EXCEPT MAKE ME SICK!!!! I was

on it for six weeks and the only thing it did was sludge my gall

bladder. Forget the Rocephin and go to another IV antibiotic. I went

on Zithromax IV and I've been doing much better [within the context

of " lymeworld! " ]. Remember, there are at least 139 different types of

lyme disease that have been identified out there. It's not a one-size

fits all situation. Now, my 14 year old son did great on Rocephin for

10 days, but then had an allergic reaction and had to go on Zithro IV,

which did nothing for him. There are lots to choose from so don't

panic!!

Lovette

[Guest guest]

Oh Dabs,

Don't blame yourself for not getting better. It is

not your fault that the meds are not taking affect. I

am sorry, however, that you are feeling worse.

This maybe a long shot, but how is your diet. I've

been doing a lot of reading on diet and illness and

was wondering if something (or some things) you are

eating is having an adverse effect?

You'd be surprised at how something simple can cause

your meds to not work properly.

I don't know what I can do on line but here is a

((((((HUG)))))) for you, and to let you know that I am

here.

===

Liz Laucella

**Powered by Jesus**

__________________________________________________

[Guest guest]

In a message dated 9/10/99 8:39:09 PM, Dabret22@... writes:

<<

So right now i am at the end of my rope.I feel guilty for not getting

better, I am beginning to wonder if it is all in my mind and I somehow dont

want to get well ( ??) I had some hope when I thought the meds were

working and EVENTUALLY I would get better. Now I am just crying all the time

and have really lost hope.

I am curious about the rocephin....anyone else ever have to stop it for

awhile??

I feel very isolated and alone . You guys are the only people I feel

comfortable turning to. What is happening to me??????????? Dabs

conn

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Dear Dabs

Don't feel guilty about not getting better! It is not your fault!

It is possible that Rocephin is NOT the right abx for you! In fact,

I had such a worsening of symptoms on Ceftin, I wouldn't go near

Rocephin! Some abx can actually cause the Lyme bacteria to

stress out and " bleb " , making the Lyme Flare. That is what Dr. P

told me. I think it is a good idea to see the neurologist. She is

very kind and knowledgeable.

I am here for you if you need support! I wish I was stronger so I

could visit you! Soon! I will make it my business to get better so

we can sit out on your deck!

{{{hugs}}}

Jane

[Guest guest]

<!doctype html public " -//w3c//dtd html 4.0 transitional//en " >

<html>

Hi,

<p>I am curious ..... Were you ever tested for any of the other tcik borne

illness' ?

<p>Wes

<br> & nbsp;

<br> & nbsp;

<p>Dabret22@... wrote:

<blockquote TYPE=CITE>From: Dabret22@...

<p>I saw my LLMD yesterday and he confirmed what I already knew...after

14 weeks

<br>of IV rocephin I am NO better. In fact, I have more dizziness and nausea

than

<br>ever.

<p>I am bedridden with headaches, wavey blurred double vision,a terrible

<br>spinning dizziness and absolutely no energy or stamina. I cant get

through a

<br>day without codeine (headache) antivert (dizziness) vistaril ( dizziness

and

<br>nausea).

<p>I could tell Dr W was frustrated, and app. the visiting nurses have

been

<br>contacting him freq. because they felt my condition has been worsening.

<p>Although he never said this, I feel like it is MY fault for not getting

<br>better.

<br>He put the rocephin on hold, saying maybe I was " toxic " from it, but

<br>continued the 400mg doxy/day and the plaquenil. He ordered IM compazine

for

<br>RN to give if/when i get terribly sick, and told me to make an appt.

with my

<br>neurologist to eval me for (new) symptoms of episodes of numbness in

hands

<br>and legs as well as poss MS or some other neuro thing concurrent with

lyme

<p>Eriloch(sic) neg & nbsp; and still waiting for malaria and babs.

<br>He said his guess is that I have a secondary tick born infection that

he

<br>might not even be able to test for.

<p>I asked him if he thought my being sick was all in my mind. He said

" no " but

<br>his frustration with me not getting better was palpable

<br> & nbsp;

<p> & nbsp;So & nbsp; right now i am at the end of my rope.I feel guilty for

not getting

<br>better, I am beginning to wonder if it is all in my mind and I somehow

dont

<br>want to get well ( ??) & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; I had some hope

when I thought the meds were

<br>working and EVENTUALLY I would get better. Now I am just crying all

the time

<br>and have really lost hope.

<p>I am curious about the rocephin....anyone else ever have to stop it

for

<br>awhile??

<br>I feel very isolated and alone . You guys are the only people I feel

<br>comfortable turning to. What is happening to

me??????????? & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

Dabs

<br> & nbsp; & nbsp; & nbsp; conn

<p>---------------------------

[Guest guest]

In a message dated 9/10/99 5:48:31 PM, raindance@... writes:

<<

Hi,

I am curious ..... Were you ever tested for any of the other tcik borne

illness' ? >>

Hi Wes, in the 1970s I was treated for tick bite fever and rec, my llmd

tested me for erlich, babs and malaria. I have a pos WB for lyme. Dabs

[Guest guest]

Hi Dabs,

I feel so bad for you, I know exactly how you feel. Please know that

you are not alone in these guilt feelings, but it most definitely is not

your fault that you remain ill. I sincerely doubt your doctor was angry at

you for not responding to his treatment, most likely it was only his

frustration coming through at not being able to make you feel better. It

sure sounds like you are on an aggressive treatment, and these neurological

symptoms could be part of herxing. None of these sensations or symptoms are

in your head, it is part of the disease process. I recall vividly when I

started having the numbness and burning, I was alarmed too. Truth is there

are so many strains of Lyme, and other tick diseases, it is very hard to

find the right combination of meds that will combat them. Don't ever give

up, are you taking any antidepressants? They help to take the edge off, I

know in my own battle with this disease, that it has been a roller coaster

ride. There were times I thought I had this disease beat, only to have it

come back ten-fold.

Many people I know, have had to stop Rocephin treatment for awhile, the

body can only take so much, it needs a break. The IV doxy in the meantime

sure makes sense to me, especially should you have co-infections.

I am glad you will see a neurologist, I just hope he is Lyme literate.

He will do an EMG to determine the extent of nerve damage, possibly he will

rx Neurontin, or something similar to help deal with this. You are in my

prayers, please don't give up, a good attitude they say is half the battle.

Just keep telling yourself over and over that this will not beat you and

keep uppermost in your mind, you are not alone, we are here to hold your

hand.

Hugs,

Marta NJ

>From: Dabret22@...

>

>I saw my LLMD yesterday and he confirmed what I already knew...after 14

weeks

>of IV rocephin I am NO better. In fact, I have more dizziness and nausea

than

>ever.

>

>I am bedridden with headaches, wavey blurred double vision,a terrible

>spinning dizziness and absolutely no energy or stamina. I cant get through

a

>day without codeine (headache) antivert (dizziness) vistaril ( dizziness

and

>nausea).

>

>I could tell Dr W was frustrated, and app. the visiting nurses have been

>contacting him freq. because they felt my condition has been worsening.

>

>Although he never said this, I feel like it is MY fault for not getting

>better.

>He put the rocephin on hold, saying maybe I was " toxic " from it, but

>continued the 400mg doxy/day and the plaquenil. He ordered IM compazine for

>RN to give if/when i get terribly sick, and told me to make an appt. with

my

>neurologist to eval me for (new) symptoms of episodes of numbness in hands

>and legs as well as poss MS or some other neuro thing concurrent with lyme

>

>Eriloch(sic) neg and still waiting for malaria and babs.

>He said his guess is that I have a secondary tick born infection that he

>might not even be able to test for.

>

>I asked him if he thought my being sick was all in my mind. He said " no "

but

>his frustration with me not getting better was palpable

>

>

>

> So right now i am at the end of my rope.I feel guilty for not getting

>better, I am beginning to wonder if it is all in my mind and I somehow dont

>want to get well ( ??) I had some hope when I thought the meds were

>working and EVENTUALLY I would get better. Now I am just crying all the

time

>and have really lost hope.

>

>I am curious about the rocephin....anyone else ever have to stop it for

>awhile??

>I feel very isolated and alone . You guys are the only people I feel

>comfortable turning to. What is happening to me??????????? Dabs

> conn

>

[Guest guest]

whats happening ??? well u are living the life of a lymie.....no it is not in

ur head it is all thru ur body....at one time i felt like u maybe i was

dwepressed so bad that i did not want to get better.....maybe i was just

lazy( after being a workaholic all my life) this is where the support of

other lymies comes in.....u find u are not alone and not crazy.....try to

explain to a " human " that ur whole body aches.....that u are

exausted(totally).....or other dilemas we live with and they look at u like u

have 3 heads......have a friend that caled me a week or so ago......was dx'ed

last june has been out of work since november...when people were talking

behind my back and sometimes to my face about " what do u mean u can't

work......u look so good....ect " he sometimes sided with them......he

appoligized as he now knows what it feels like

just today my wife and i were suppose to take the kids adopted grandma and pa

to dinner to thank them( the ones in the pocono's) woke up feeling so bad i

had to call and cancel.......with this disease it is so hard to plan anything

till the last minute.....

dabs hang in there.....what i live for is the " good days " they do not come to

often anymore but when they do i savor them....plus i usaully get some big

idea and overdo things or look for a job or something till reality hits

again.....n ot only does our own mind make us think we are nuts.....the

stares and comments of others helps to reflect that sentiment.....i would

never wish lyme on anyone but.....wish all that say alot could have just one

day in my body to know how it feels.....

Reid...nnj

[Guest guest]

In a message dated 9/11/1999 1:26:08 PM Eastern Daylight Time,

raindance@... writes:

<<

I have called several Doctors to see if they will take me and after

they hear the words tick bite and State Health Dept. they just can't see

me. So for another month now this remains untreated.

Perhaps Tularemia exists in your area? Some people also call it rabbit

fever.

Wes >>

Dear Wes, I too am ready to give up, these doctors make us feel like this is

all in our heads, and untill we find the right dr, we have to wait for

proper treatment and our symptoms get much worse. They have also told me

that Lyme is not prominent in my state- Virginia, so of course it cant be

Lyme. Tell that to the little monsters in my body!

Deb

[Guest guest]

<!doctype html public " -//w3c//dtd html 4.0 transitional//en " >

<html>

Hi Dabs,

<p>A doctor called me from the Oklahoma State Dept. of Health and gave

me a 17 page telephone questionaire that was very detailed. During the

conversation she told me I had the symptoms of Tularemia and I needed different

antibiotics. My primary Dr. blew this info off with a wave of his hand

saying there is no Lyme in Oklahoma and certainly no Tularemia either.

<p>I have called several Doctors to see if they will take me and after

they hear the words tick bite and State Health Dept. they just can't see

me. So for another month now this remains untreated.

<p>Perhaps Tularemia exists in your area? Some people also call it rabbit

fever.

<p>Wes

<br> & nbsp;

<br> & nbsp;

<p>Dabret22@... wrote:

<blockquote TYPE=CITE>From: Dabret22@...

<p>In a message dated 9/10/99 5:48:31 PM, raindance@... writes:

<p> & lt; & lt;

<br>Hi,

<br>I am curious ..... Were you ever tested for any of the other tcik borne

<br>illness' ? >>

<p>Hi Wes, & nbsp; & nbsp; in the 1970s I was treated for tick bite fever and

rec, my llmd

<br>tested me for erlich, babs and malaria. I have a pos WB for

lyme. & nbsp; & nbsp; & nbsp;

Dabs

<p>---------------------------

[Guest guest]

Oh I know just how you feel, and you said it so well. I've often wished my

Saint of a husband could feel it just one day! Then I feel guilty for

thinking that. On good days I feel so guilty because I think, wow maybe I

should be working, then of course it hits me again, and I don't feel guilty

because I know I'm sick again.What a mind game this Lyme stuff does to us.

Sometimes I wish I had some huge visible sign so people would stop telling

me I look to good to be sick. Everyone Hang in there, all we can do is live

for the good days, and keep on praying.

Vicki

Re: [Lyme-aid] Ready to give up

>From: RMcmur3194@...

>

>whats happening ??? well u are living the life of a lymie.....no it is not

in

>ur head it is all thru ur body....at one time i felt like u maybe i was

>dwepressed so bad that i did not want to get better.....maybe i was just

>lazy( after being a workaholic all my life) this is where the support of

>other lymies comes in.....u find u are not alone and not crazy.....try to

>explain to a " human " that ur whole body aches.....that u are

>exausted(totally).....or other dilemas we live with and they look at u like

u

>have 3 heads......have a friend that caled me a week or so ago......was

dx'ed

>last june has been out of work since november...when people were talking

>behind my back and sometimes to my face about " what do u mean u can't

>work......u look so good....ect " he sometimes sided with them......he

>appoligized as he now knows what it feels like

>just today my wife and i were suppose to take the kids adopted grandma and

pa

>to dinner to thank them( the ones in the pocono's) woke up feeling so bad i

>had to call and cancel.......with this disease it is so hard to plan

anything

>till the last minute.....

>dabs hang in there.....what i live for is the " good days " they do not come

to

>often anymore but when they do i savor them....plus i usaully get some big

>idea and overdo things or look for a job or something till reality hits

>again.....n ot only does our own mind make us think we are nuts.....the

>stares and comments of others helps to reflect that sentiment.....i would

>never wish lyme on anyone but.....wish all that say alot could have just

one

>day in my body to know how it feels.....

>Reid...nnj

>

>---------------------------

[Guest guest]

Wes,

I live in Southern land, not to far from VA, your doctor is crazy! what

part of VA are you in. My doctor is in Waldorf only about 45 min from the

Bridge (Northern VA). He has patients that travel from other states

(PA, NJ,and Eastern Shore of MD). It took my five years to finally find him

and get diagnosed. Of course in the mean time, I got worse by the day. Keep

looking until you find the right doctor, maybe you can call mine for a

referral if he is too far for you. His name is Dr. Leon -

301-645-9552 Good Luck

Vicki

Re: [Lyme-aid] Ready to give up

>From: DJinMECH@...

>

>In a message dated 9/11/1999 1:26:08 PM Eastern Daylight Time,

>raindance@... writes:

>

><<

>I have called several Doctors to see if they will take me and after

> they hear the words tick bite and State Health Dept. they just can't see

> me. So for another month now this remains untreated.

>

>Perhaps Tularemia exists in your area? Some people also call it rabbit

> fever.

>

>Wes >>

>Dear Wes, I too am ready to give up, these doctors make us feel like this

is

>all in our heads, and untill we find the right dr, we have to wait for

>proper treatment and our symptoms get much worse. They have also told me

>that Lyme is not prominent in my state- Virginia, so of course it cant be

>Lyme. Tell that to the little monsters in my body!

>Deb

>

>---------------------------

[Guest guest]

<!doctype html public " -//w3c//dtd html 4.0 transitional//en " >

<html>

Hi Vicki,

<p>I'm not in VA ! I'm in Oklahoma. I have a brochure published by the

Oklahoma State Dept. of Health that describes 5 tick borne diseases you

can get in the state of Oklahoma. When I pulled the tick off me I froze

it. A few days later I got sick and turned it in to the State Health Dept.

The Center for Disease Control is paying state health depts to conduct

a survey of tick borne illness at this time. The survey is very detailed

and has something like 17 pages. A doctor from the OK state dept of health

called me at home and asked all those questions for an hour. That was when

she told me I had Tularemia and was on the wrong antibiotics. So far I

have had no luck in finding a LLMD in the Oklahoma City Area.

<p>If you know of any please let me & nbsp; know!

<p>Thanks,

<p>Wes

<br> & nbsp;

<br> & nbsp;

<br> & nbsp;

<p> " Vicki & amp; Ferraro (home) " wrote:

<blockquote TYPE=CITE>From: " Vicki & amp; Ferraro (home) "

& lt;ferraroa@...>

<p>Wes,

<br>I live in Southern land, not to far from VA, your doctor is crazy!

what

<br>part of VA are you in. My doctor is in Waldorf only about 45 min from

the

<br> Bridge (Northern VA). He has patients that travel from other

states

<br>(PA, NJ,and Eastern Shore of MD). It took my five years to finally

find him

<br>and get diagnosed. Of course in the mean time, I got worse by the day.

Keep

<br>looking until you find the right doctor, maybe you can call mine for

a

<br>referral if he is too far for you. His name is Dr. Leon -

<br>301-645-9552 Good Luck

<br>Vicki

<br> Re: [Lyme-aid] Ready to give up

<p>>From: DJinMECH@...

<br>>

<br>>In a message dated 9/11/1999 1:26:08 PM Eastern Daylight Time,

<br>>raindance@... writes:

<br>>

<br>> & lt; & lt;

<br>>I have called several Doctors to see if they will take me and after

<br>> they hear the words tick bite and State Health Dept. they just can't

see

<br>> me. So for another month now this remains untreated.

<br>>

<br>>Perhaps Tularemia exists in your area? Some people also call it rabbit

<br>> fever.

<br>>

<br>>Wes >>

<br>>Dear Wes, I too am ready to give up, these doctors make us feel like

this

<br>is

<br>>all in our heads, and & nbsp; untill we find the right dr, we have to

wait for

<br>>proper treatment and our symptoms get much worse. & nbsp; They have

also told me

<br>>that Lyme is not prominent in my state- Virginia, so of course it

cant be

<br>>Lyme. & nbsp; Tell that to the little monsters in my body!

<br>>Deb

<br>>

<br>>---------------------------

[Guest guest]

[This message contained attachments]

[Guest guest]

Poor Wes,

I can't believe you are getting the run-around like this from your doctor.

I thought you were on some sort of abx, whether it is Lyme or Tularemia, it

still requires treatment of some sort. I know you have found Art Doherty's web

pages about Lyme in Oklahoma, have you tried to convince your doctor using those

stats? Can you change doctors? I just went to Art's pages, unfortunately no

Lyme support groups in the state, but here are names of people with Lyme that

may be able to help you find another doctor.

Carolyn Milner cmilner42@... Del City, OK

Janis Dowd sinaj101@... OK

Mark Shives mshives@... OK

I hope something good comes of contact with one of these people. If not you may

want to try Texas resources, I know that there are some good doctors near Ft

Worth.

Hugs,

Marta

-----

Hi Dabs,

A doctor called me from the Oklahoma State Dept. of Health and gave me a 17

page telephone questionaire that was very detailed. During the conversation she

told me I had the symptoms of Tularemia and I needed different antibiotics. My

primary Dr. blew this info off with a wave of his hand saying there is no Lyme

in Oklahoma and certainly no Tularemia either.

I have called several Doctors to see if they will take me and after they

hear the words tick bite and State Health Dept. they just can't see me. So for

another month now this remains untreated.

Perhaps Tularemia exists in your area? Some people also call it rabbit

fever.

Wes

Dabret22@... wrote:

From: Dabret22@...

In a message dated 9/10/99 5:48:31 PM, raindance@... writes:

<<

Hi,

I am curious ..... Were you ever tested for any of the other tcik borne

illness' ? >>

Hi Wes, in the 1970s I was treated for tick bite fever and rec, my

llmd

tested me for erlich, babs and malaria. I have a pos WB for lyme.

Dabs

---------------------------

[Guest guest]

Jenn -

Don't give up. Try the Tea Tree Oil and Extra Virgin Oil mixture.

Mix together

2 Tablespoons EVO to 10 or more drops of Tea Tree oil. Then apply.

It helps me with the yeast rash.

Are you doing Salt Flushes and taking Vit C and Magnesium?

Terry

>

> I have been doing the Iodoral for almost 3 months now.

>

> Between the itching and the headaches I am ready to give up. I felt

> better before I started. I am starting to lose hair again and the

itch

> is unbearable. I felt bad before but now I look like a skeletan

> walking around. My face is gaunt, skin looks awful and the itch is

too

> much. This has been going on for two weeks now. I am embarrassed to

> elave the house

>

> I read about all these symptoms and I wonder how we can be really

sure

> they are die off symptoms and not a toxic reaction to the iodine?

>

> I guess I am looking for some reaSSurance so I know this will end

and

> how long it takes. Is it life long that I will ave to deal with

> die-off symptoms? Will I ever look and feel better?

>

> Sorry to be so needy folks but I just feel so crappy and look even

worse

>

[Guest guest]

I know you have been getting a lot of responses. But I think you need to look into the gluten free diet. Also think to add protein and fat to your diet.

Marcie

Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson.com 360-292-2569

http://threeboysandglutenfree.blogspot.com/ Check out my monkey's

From: jennkramer1974 <jennkramer1974@...>Subject: Ready to give upiodine Date: Wednesday, December 24, 2008, 9:10 AM

I have been doing the Iodoral for almost 3 months now.Between the itching and the headaches I am ready to give up. I feltbetter before I started. I am starting to lose hair again and the itchis unbearable. I felt bad before but now I look like a skeletanwalking around. My face is gaunt, skin looks awful and the itch is toomuch. This has been going on for two weeks now. I am embarrassed toelave the houseI read about all these symptoms and I wonder how we can be really surethey are die off symptoms and not a toxic reaction to the iodine?I guess I am looking for some reaSSurance so I know this will end andhow long it takes. Is it life long that I will ave to deal withdie-off symptoms? Will I ever look and feel better?Sorry to be so needy folks but I just feel so crappy and look even worse

[Guest guest]

Marcie-

Thanks for your response. As I stated previously, I have Celiac

disease so I have been on a gluten free diet for about 5 years now,

ever since I was diagnosed. So gluten is not my problem anymore. The

diet soda and pots of decaf coffee a day I'm sure contributed to my

bad health.

I am eating healthy now, drinking only mineral water or herbal tea. I

was on a practically no fat high protein diet for years and got way

too thin. I am 5'6 and 112 lbs. Trying to gain about 10 lbs now but

don't want to do it eating junk. I find that if I eat healthy, maybe

1500-2000 calories a day I don't gain weight. if I eat ice cream and

cookies, same amount of calories I will but don't want to do it that

way. I'm sure the lack of fat in my diet also contributed but now I

eat lots of protein, fat included, 1-2 avocadoes a day, lots of

veggies, some cheese and Balance bars when I need something sweet. I

started juicing today (carrot, brocolli, spinach, apple, orange and

ginger). I take 1 Iodoral a day and may stop. I am also doing the sea

salt in warm water twice a day and just started apple cider vinegar as

well. I unfortunately am not working and cannot afford to add

supplements. I am not a big advocate of synthetic supplements anyway

as I think the body sees them as drugs and doesn't really know what to

do with them. That's just my personal opinion

I figure I am detoxing bromide and probably lots of fungus. I don't

know why my hair has started to fall out again. I guess I look like

death because I am detoxing. I am trying to just eat healthy and stay

positive but it's really hard lately. I wonder if the detox is making

me depressed as well. I sure have reason to be every time I look in

the mirror

>

> From: jennkramer1974 <jennkramer1974@...>

> Subject: Ready to give up

> iodine

> Date: Wednesday, December 24, 2008, 9:10 AM

>

>

>

>

>

>

> I have been doing the Iodoral for almost 3 months now.

>

> Between the itching and the headaches I am ready to give up. I felt

> better before I started. I am starting to lose hair again and the itch

> is unbearable. I felt bad before but now I look like a skeletan

> walking around. My face is gaunt, skin looks awful and the itch is too

> much. This has been going on for two weeks now. I am embarrassed to

> elave the house

>

> I read about all these symptoms and I wonder how we can be really sure

> they are die off symptoms and not a toxic reaction to the iodine?

>

> I guess I am looking for some reaSSurance so I know this will end and

> how long it takes. Is it life long that I will ave to deal with

> die-off symptoms? Will I ever look and feel better?

>

> Sorry to be so needy folks but I just feel so crappy and look even worse

>

[Guest guest]

Sorry I can't keep everyone straight. It is hard being on a few boards. But looking at your list you might think about dairy or soy free? If other things don't work out?

Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson.com 360-292-2569

http://threeboysandglutenfree.blogspot.com/ Check out my monkey's

From: jennkramer1974 <jennkramer1974@...>Subject: Re: Ready to give upiodine Date: Wednesday, December 24, 2008, 7:06 PM

Marcie-Thanks for your response. As I stated previously, I have Celiacdisease so I have been on a gluten free diet for about 5 years now,ever since I was diagnosed. So gluten is not my problem anymore. Thediet soda and pots of decaf coffee a day I'm sure contributed to mybad health. I am eating healthy now, drinking only mineral water or herbal tea. Iwas on a practically no fat high protein diet for years and got waytoo thin. I am 5'6 and 112 lbs. Trying to gain about 10 lbs now butdon't want to do it eating junk. I find that if I eat healthy, maybe1500-2000 calories a day I don't gain weight. if I eat ice cream andcookies, same amount of calories I will but don't want to do it thatway. I'm sure the lack of fat in my diet also contributed but now Ieat lots of protein, fat included, 1-2 avocadoes a day, lots ofveggies, some cheese and Balance bars when I need something sweet.

Istarted juicing today (carrot, brocolli, spinach, apple, orange andginger). I take 1 Iodoral a day and may stop. I am also doing the seasalt in warm water twice a day and just started apple cider vinegar aswell. I unfortunately am not working and cannot afford to addsupplements. I am not a big advocate of synthetic supplements anywayas I think the body sees them as drugs and doesn't really know what todo with them. That's just my personal opinionI figure I am detoxing bromide and probably lots of fungus. I don'tknow why my hair has started to fall out again. I guess I look likedeath because I am detoxing. I am trying to just eat healthy and staypositive but it's really hard lately. I wonder if the detox is makingme depressed as well. I sure have reason to be every time I look inthe mirror>> I know you have been getting a lot of responses. But I think you

Recent Activity

25

New MembersVisit Your Group

Health

Early Detection

Know the symptoms

of breast cancer.

New web site?

Drive traffic now.

Get your business

on search.

Sitebuilder

Build a web site

quickly & easily

with Sitebuilder.

..

[Guest guest]

Your issues do not sound like they are iodine related. I suspect there is something else going on here. You are only 12.5 mgs of Iodoral and that is a small amount. You can try stopping it but I would suggest you see a doctor for a blood workup to make sure everything is OK. This should include a thyroid panel of TSH, Free T3, Free T4 and Tg Ab and TPO Ab to rule out an autoimmune thyroid condition since they are tied closely to Celiac as well.

Steph

Ready to give up> iodine > Date: Wednesday, December 24, 2008, 9:10 AM> > > > > > > I have been doing the Iodoral for almost 3 months now.> > Between the itching and the headaches I am ready to give up. I felt> better before I started. I am starting to lose hair again and the itch> is unbearable. I felt bad before but now I look like a skeletan> walking around. My face is gaunt, skin looks awful and the itch is too> much. This has been going on for two weeks now. I am embarrassed to> elave the house> > I read about all these symptoms and I wonder how we can be really sure> they are die off symptoms and not a toxic reaction to the iodine?> > I guess I am looking for some reaSSurance so I know this will end and> how long it takes. Is it life long that I will ave to deal with> die-off symptoms? Will I ever look and feel better?> > Sorry to be so needy folks but I just feel so crappy and look even worse>

[Guest guest]

Jenn,

Toxins usually are stored in fat. But if you don't have much body

fat, I think they get stored in your glands and brain. If you are

that thin and have been on a low fat diet for any length of time, you

are probably in a similar situation to mine. I think it's more

difficult to get better when the toxins are stored in your glands.

You might have to eat a lot more animal fat to get the toxins out. I

don't know if you've ever heard of the book It's all in Your Head, by

Hal Huggins. It's about getting the amalgams out of your mouth and

the mercury out of your body. He says to eat something like one or

two sticks of butter a day. Personally, I don't think avocados will

do it. (Ray Peat articles) I don't like supplements, either, but in

a case like this, food usually won't do it. Niacin is very good at

getting your blood to where it needs to go and helping to get toxins

out. Blood and lymph are what are needed to provide a means of exit

for the toxins. But first you have to get the toxins into them.

Clear Body Clear Mind by Ron Hubbard is a very good book about

getting toxins out, too, although he uses a different type of oil.

Also, were ever subjected to a large dose of radiation?

I would never give up on the iodine, if I were you, because it's the

only thing that I know of that causes your body to not only detox

heavy metals, but also kills the microbes that love to live on them.

Also, I started to take a thyroid glandular along with the iodine,

and it seems to be really making a positive difference. I think the

synergy of the two really helps your thyroid.

Are you trying to stick to 1500-2000 calories? That is like keeping

your body in starvation mode. For awhile, at least, you might feel

and look better if you up the calories. If your thyroid starts to

work, but doesn't have enough to work with, yes, you will have a hard

time. It would be similar to a car engine overheating because it's

forced to run without sufficient fuel or lubrication.

I hope you feel better. I'm not better yet, either. I thought that

as soon as I got over the bromine detox that I would go straight to

feeling better, but now I can see it's not going to be that easy.

Last night the itching started. It can actually keep you awake! I

think it might be in the nervous system, so I took a nervous system

homeopathic remedy and that helped. This morning I have a headache

again, too. Miserable headache!!! On Christmas!! It's not fair!

Take care,

Betsy

- In iodine , " jennkramer1974 " <jennkramer1974@...>

wrote:

>

> Marcie-

>

> Thanks for your response. As I stated previously, I have Celiac

> disease so I have been on a gluten free diet for about 5 years now,

> ever since I was diagnosed. So gluten is not my problem anymore. The

> diet soda and pots of decaf coffee a day I'm sure contributed to my

> bad health.

>

> I am eating healthy now, drinking only mineral water or herbal tea.

I

> was on a practically no fat high protein diet for years and got way

> too thin. I am 5'6 and 112 lbs. Trying to gain about 10 lbs now but

> don't want to do it eating junk. I find that if I eat healthy, maybe

> 1500-2000 calories a day I don't gain weight. if I eat ice cream and

> cookies, same amount of calories I will but don't want to do it that

> way. I'm sure the lack of fat in my diet also contributed but now I

> eat lots of protein, fat included, 1-2 avocadoes a day, lots of

> veggies, some cheese and Balance bars when I need something sweet. I

> started juicing today (carrot, brocolli, spinach, apple, orange and

> ginger). I take 1 Iodoral a day and may stop. I am also doing the

sea

> salt in warm water twice a day and just started apple cider vinegar

as

> well. I unfortunately am not working and cannot afford to add

> supplements. I am not a big advocate of synthetic supplements anyway

> as I think the body sees them as drugs and doesn't really know what

to

> do with them. That's just my personal opinion

>

> I figure I am detoxing bromide and probably lots of fungus. I don't

> know why my hair has started to fall out again. I guess I look like

> death because I am detoxing. I am trying to just eat healthy and

stay

> positive but it's really hard lately. I wonder if the detox is

making

> me depressed as well. I sure have reason to be every time I look in

> the mirror

>

>

> >

> > From: jennkramer1974 <jennkramer1974@>

> > Subject: Ready to give up

> > iodine

> > Date: Wednesday, December 24, 2008, 9:10 AM

> >

> >

> >

> >

> >

> >

> > I have been doing the Iodoral for almost 3 months now.

> >

> > Between the itching and the headaches I am ready to give up. I

felt

> > better before I started. I am starting to lose hair again and the

itch

> > is unbearable. I felt bad before but now I look like a skeletan

> > walking around. My face is gaunt, skin looks awful and the itch

is too

> > much. This has been going on for two weeks now. I am embarrassed

to

> > elave the house

> >

> > I read about all these symptoms and I wonder how we can be really

sure

> > they are die off symptoms and not a toxic reaction to the iodine?

> >

> > I guess I am looking for some reaSSurance so I know this will end

and

> > how long it takes. Is it life long that I will ave to deal with

> > die-off symptoms? Will I ever look and feel better?

> >

> > Sorry to be so needy folks but I just feel so crappy and look

even worse

> >

>

[Guest guest]

Sounds crazt,but I find that the morefat I eat, the less I have to worry about weight.  Our ancestors knew something that we forgot...fat fills you up so you don't have room for all that ersatz food..

BarbF

I'm sure the lack of fat in my diet also contributed but now I

eat lots of protein, fat included, 1-2 avocadoes a day

Ready to give up

> iodine

> Date: Wednesday, December 24, 2008, 9:10 AM

>

>

>

>

>

>

> I have been doing the Iodoral for almost 3 months now.

>

> Between the itching and the headaches I am ready to give up. I felt

> better before I started. I am starting to lose hair again and the itch

> is unbearable. I felt bad before but now I look like a skeletan

> walking around. My face is gaunt, skin looks awful and the itch is too

> much. This has been going on for two weeks now. I am embarrassed to

> elave the house

>

> I read about all these symptoms and I wonder how we can be really sur

e

> they are die off symptoms and not a toxic reaction to the iodine?

>

> I guess I am looking for some reaSSurance so I know this will end and

> how long it takes. Is it life long that I will ave to deal with

> die-off symptoms? Will I ever look and feel better?

>

> Sorry to be so needy folks but I just feel so crappy and look even worse

>

Listen to 350+ music, sports, news radio stations including songs for the holidays FREE while you browse. Start Listening Now!

[Guest guest]

Hi,

I have just joined this forum and have a lot to learn about the use of iodine in its different forms. But you sounded so pitiful I had to offer this info from Dr. . I use this when I have toxins in the skin. Take Bragg's vinegar full strength and use a cotton ball and rub it on the places that itch. If you are dealing with toxins it is a life saver and it does not take long to work either - for me it was like a minute or a little more. It slowly fades away and just keep it up daily until no longer needed. says the bacteria or yeast leave trash and this deals with it. Hope this helps you as it did me.

Carole

On Wed, Dec 24, 2008 at 9:10 AM, jennkramer1974 <jennkramer1974@...> wrote:

I have been doing the Iodoral for almost 3 months now.Between the itching and the headaches I am ready to give up. I feltbetter before I started. I am starting to lose hair again and the itchis unbearable. I felt bad before but now I look like a skeletan

walking around. My face is gaunt, skin looks awful and the itch is toomuch. This has been going on for two weeks now. I am embarrassed toelave the houseI read about all these symptoms and I wonder how we can be really sure

they are die off symptoms and not a toxic reaction to the iodine?I guess I am looking for some reaSSurance so I know this will end andhow long it takes. Is it life long that I will ave to deal withdie-off symptoms? Will I ever look and feel better?

Sorry to be so needy folks but I just feel so crappy and look even worse

[Guest guest]



That is very true, I am reading Dr Atkins book again, and we need good fats, not only do they make us feel satisfied so we don’t overeat, they also do not raise blood sugar, as carbs and proteins do.

Ready to give up> iodine > Date: Wednesday, December 24, 2008, 9:10 AM> > > > > > > I have been doing the Iodoral for almost 3 months now.> > Between the itching and the headaches I am ready to give up. I felt> better before I started. I am starting to lose hair again and the itch> is unbearable. I felt bad before but now I look like a skeletan> walking around. My face is gaunt, skin looks awful and the itch is too> much. This has been going on for two weeks now. I am embarrassed to> elave the house> > I read about all these symptoms and I wonder how we can be really sur e> they are die off symptoms and not a toxic reaction to the iodine?> > I guess I am looking for some reaSSurance so I know this will end and> how long it takes. Is it life long that I will ave to deal with> die-off symptoms? Will I ever look and feel better?> > Sorry to be so needy folks but I just feel so crappy and look even worse>

Listen to 350+ music, sports, news radio stations – including songs for the holidays – FREE while you browse. Start Listening Now!

[Guest guest]

Sounds like you are hypothyroid and have adrenal problems. Have you

seen www.stopthethyroidmadness.com and the natural thyroid group here

on ?

Dorothy

> > Between the itching and the headaches I am ready to give up. I felt

> > better before I started. I am starting to lose hair again and the itch

> > is unbearable. I felt bad before but now I look like a skeletan

> > walking around. My face is gaunt, skin looks awful and the itch is too

> > much. This has been going on for two weeks now. I am embarrassed to

> > elave the house