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Re: What can be done?

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Hi ,

Well, at least we all have eachother. We all know that we're not crazy.

How about showing your Mom some of the info on this list when she

visits? We can all tell her that we've had the same experiences!

Take Care, Joan

P.S I wonder what Dr.S would do if one of his family members came down

with LD?

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--- Starkman <Namkrats3@...> wrote:

> From: Namkrats3@... ( Starkman)

>

> Hi ,

>

> Well, at least we all have eachother. We all know

> that we're not crazy.

> How about showing your Mom some of the info on this

> list when she

> visits? We can all tell her that we've had the same

> experiences!

>

> Take Care, Joan

>

> P.S I wonder what Dr.S would do if one of his family

> members came down

> with LD?

>

> Hi Joan-

You are right about that. We do have each other and that means alot to

me.

I will show my mom all the info on this post that I can. In fact I will

have her sitting right here when I check my mail everyday. I really

dont think she realizes how many people actually have this disease.

To be honest I never realized it myself until I found this post and

started doing my own research on Lyme.

I was like the general public and thought it was a few and far between

illness that could be cured and life went on. Boy have my eyes be

opened. Amazing what education will do for you.

Im sure that if one of the S's or their family members got this they

would be on our side of the fence. There would be some great revelation

and they all of a sudden have " medical documentation and scientific

research " to justify the change of heart.

So much for professionalism and ethics.

Take care.

L(MI)

>

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Subject: Re: [Lyme-aid] What can be done?

From: Namkrats3@... ( Starkman)

<<P.S I wonder what Dr.S would do if one of his family members came down

with LD?>>

He would tell them they had fibromyalgia...this guy is much too arrogant

to admit that someone would have chronic Lyme disease, even his own flesh

and blood. He would treat them for fibro, and write a paper on it,

disparaging Lyme disease.

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>From: lc lott <lclott@...>

>Im sure that if one of the S's or their family members got this they

>would be on our side of the fence. There would be some great revelation

>and they all of a sudden have " medical documentation and scientific

>research " to justify the change of heart.

>So much for professionalism and ethics.

>Take care.

> L(MI)

Hi ,

Maybe I am way too cynical, but I disagree, I think this guy is too

deeply entrenched in the stance he has taken against chronic Lyme.

He will deny there is any such thing till his dying day, he just can't admit

he made a mistake. I sure hope I am wrong.

Hugs,

Marta

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ha, he would seek the best of medical help and still say, " well, this was a

different situation ... ya da ya da ya da "

>From: Namkrats3@... ( Starkman)

>

>Hi ,

>

>Well, at least we all have eachother. We all know that we're not crazy.

>How about showing your Mom some of the info on this list when she

>visits? We can all tell her that we've had the same experiences!

>

> Take Care, Joan

>

>P.S I wonder what Dr.S would do if one of his family members came down

>with LD?

>

>

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>

MimiAnne's Specialty Coffee

(540) 980-6464

93 W. Main Street

Pulaski, VA 24301

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if i ever, ever, feel better i am going to the REPORTERS!!! i work w/them

often on downtown stuff and have my own business, etc. i want all to know

that it has almost sunk my business, and KILLED me, and that NO MD " S in VA

know what they are dealing with!!!!!! give the symptoms and quotes from

" good publications " . give this listserv and other web sites for info. i

also want all the quacks i have seen to get a full report from my LLMD (if i

ever find one that is!) LLMD's should really be mad at these non-LLMD's

which attempt to treat lyme, when they have never ever DONE IT BEFORE!

>From: Namkrats3@... ( Starkman)

>

>Hi All,

> What can we do about all the people who have been told that they

>don't have LD and go untreated because their MDs have told them that

>either they have not tested positive or didn't have the rash? I am

>ashamed to say that I accepted that BS for too many years. I had

>multiple deer tick bites and symptoms since 1989, but because I tested

>neg on , I was told that I couldn't possibly have LD.Luckily(?), my

>daughter tested borderline-pos and she was treated.

>What can we do to help all the other people who are walking around with

>this spirochete and who are told they are fine? I was lucky enough to

>find enough info from LymeNet org. and this list to INSIST on treatment,

>but I feel terrible for others who don't have access to this info.

>Sorry this is so long-I'm just feeling frustrated today.

>My best to all, Joan

>

>

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>

MimiAnne's Specialty Coffee

(540) 980-6464

93 W. Main Street

Pulaski, VA 24301

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we need to nbe as educated as we can .....and willing to fight and educate

the uneducated....especially drs who do not know any better and listen to the

" s " boys......believe me lisa....more and more i hear of people being

dx'ed.....and many are sent to me by people that know i am educated about

this disease after 11 years......i try to help them as well as i can......and

the other thing to learn is we MUST be responsable for our own treatment

......not the docs....a GOOD LLMD will include u in the planning of ur

treatment i have found out......

Reid

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--- J & M McCoy <mlmccoy@...> wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> >From: lc lott <lclott@...>

>

> >Im sure that if one of the S's or their family

> members got this they

> >would be on our side of the fence. There would be

> some great revelation

> >and they all of a sudden have " medical

> documentation and scientific

> >research " to justify the change of heart.

> >So much for professionalism and ethics.

> >Take care.

> > L(MI)

>

>

> Hi ,

> Maybe I am way too cynical, but I disagree, I

> think this guy is too

> deeply entrenched in the stance he has taken against

> chronic Lyme.

> He will deny there is any such thing till his dying

> day, he just can't admit

> he made a mistake. I sure hope I am wrong.

> Hugs,

> Marta

>

> Marta-

Guess I am trying to give him the benefit of the doubt. One of my

faults. I tend to try to find a good side to everyone. I just cant

imagine anyone selling out his family for money and ego. I know it

happens all the time but how can anyone be that heartless and selfish.

Guess it is my trusting nature showing again.

L

>

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,

You have the right attitude, I am one bitter girl since I read that long

article about researchers selling out Lyme patients, I need a few days to

get over it. I know for a fact there are terrific people in this world,

especially on this list.

Hugs,

Marta

>From: lc lott <lclott@...>

>

>

>> Marta-

>Guess I am trying to give him the benefit of the doubt. One of my

>faults. I tend to try to find a good side to everyone. I just cant

>imagine anyone selling out his family for money and ego. I know it

>happens all the time but how can anyone be that heartless and selfish.

>Guess it is my trusting nature showing again.

> L

>

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Hi, Sorry to hear about your insomnia problems. When my husband was having

problems, our doctor recommended an herbal remedy called (believe it or not)

" Insomnia " . Manufacturer is Hyland's. Their 800 # is (800)624-9659. Check

it out. Good luck.

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Marta,

I wanted to ask you if you found info. on the Oxygen therapy and how it

makes babesias worse. I am very concerned and I am scheduled for next week.

I was also told that I would get one of the worst herks's ever... I am

beginning to get alot of anxiety about going. I am also having insomnia. I

am up at 3:00 am. on. This has been for About 2 Weeks. I have Ambien to

take for sleep. This is not doing the trick......Then I am tired which

makes me irritable which makes me depressed and.......cry.........Maybe I

should call my Phys. and tell her I am not sleeping and she can prescribe

something differrent.....Love

Re: [Lyme-aid] What can be done?

>From: " J & M McCoy " <mlmccoy@...>

>

>,

> You have the right attitude, I am one bitter girl since I read that long

>article about researchers selling out Lyme patients, I need a few days to

>get over it. I know for a fact there are terrific people in this world,

>especially on this list.

>Hugs,

>Marta

>

>

>>From: lc lott <lclott@...>

>>

>>

>>> Marta-

>>Guess I am trying to give him the benefit of the doubt. One of my

>>faults. I tend to try to find a good side to everyone. I just cant

>>imagine anyone selling out his family for money and ego. I know it

>>happens all the time but how can anyone be that heartless and selfish.

>>Guess it is my trusting nature showing again.

>> L

>>

>

>

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lisa.....

i have found that it takes family especially moms along time to fathom what

this illness is really like.......actually for anyone to realize......when

the people at work said " ur giving up a 17 year carreer?.....why don't u just

come back to work.....u look fine " i wanted to strangle them......if i could

work i would work.....every so often i get this big idea ion my head that i

will look for a new job......cause i have a few decent days....then reality

and lyme set back in.....my body and especially my mind are not up to

it.....it like the people who tell me push urself u will feel

better.......guess what? NOT i have learned to listen to my body......if it

says turn over and go back to sleep ....thats what i do......my mom did not

know what fatigue i was going to till she was dx'ed with cancer(she is clean

now) and underwent chemo.....she never could understand me not being able to

get out of bed till she couldn't.........i challenge the people who look down

their noses at us and do not understand to step into our shoes for just 4

hours .......they would not be able to handle it.....as for moms .....i think

a lot of it is misinformation and the rest is denial.....another problem is

that we blame ourselves .....hey i did not want this disease my life was

cruising along very well ( like my wstory on the lyme quilt says i was living

the american dream till " the nightmare hit " and i blamed myself at

first......plus the male ego thing ....supporting ur family and such.......it

was hard still is sometimes......but i have a great place like this to come

and restore my sanity.........

Reid

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lisa.....i agree alot of days washing and personal hygene is a victory for

me......other days i lose the war......most days i try to take care of one

little task.....i have a routine.....get up.....whenever.....go a block to

get the papers....i keep sirections in my truck as i have forgotten how to

get home from there sometimes...... i use to love driving now it is such a

chore.....i get lost and i tires me to have to force myself to concentrate so

much.....when its me and trhe family i now let my wife drive.....(thats

something new) i am being treated for depression.....caused by lyme and

haveing a chronic illness....had a real bad bout for the last 2

months.....but am doing somewhat better now........everything for me is now

day to day.....keep getting stuff off the web for mom......she will be

reading the whole time shes with u......than she'll be smarter than most

docs.......and angrier to by what we are being put thru..... but our day is

coming i am sure of it.......

Reid

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--- J & M McCoy <mlmccoy@...> wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> ,

> You have the right attitude, I am one bitter girl

> since I read that long

> article about researchers selling out Lyme patients,

> I need a few days to

> get over it. I know for a fact there are terrific

> people in this world,

> especially on this list.

> Hugs,

> Marta

>

>

> Marta-

I am still fuming over it. In fact everyhting is setting me off today.

Just got off the phone with mom and dad and the minute she brought up

the article again I went off on her. She got the brunt of my anger.

I of course aplogized to her and told her not to mention it again until

she got here next month and read our side of the story which is much

longer nad more informed than the 2 paragraph article in the newspaper.

I pretty much told her that if I thought there was nothing wrong I

wouldnt go thru all the hassel of getting the IV line and the fight

over that with the ins.Co. Nor would I even consider filing a lawsuit.

After all when we are in court we are all under oath and she knows Im

not a lawsuit kind of person in the first place.

Hugs to all,

L(the grumpy one)

>

>

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>

> Discuss your thoughts; get informed at ONElist. See

> our homepage.

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> /archives.cgi/Lyme-Docs

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--- RMcmur3194@... wrote:

> From: RMcmur3194@...

>

> lisa.....

> i have found that it takes family especially moms

> along time to fathom what

> this illness is really like.......actually for

> anyone to realize......when

> the people at work said " ur giving up a 17 year

> carreer?.....why don't u just

> come back to work.....u look fine " i wanted to

> strangle them......if i could

> work i would work.....every so often i get this big

> idea ion my head that i

> will look for a new job......cause i have a few

> decent days....then reality

> and lyme set back in.....my body and especially my

> mind are not up to

> it.....it like the people who tell me push urself u

> will feel

> better.......guess what? NOT i have learned to

> listen to my body......if it

> says turn over and go back to sleep ....thats what i

> do......my mom did not

> know what fatigue i was going to till she was dx'ed

> with cancer(she is clean

> now) and underwent chemo.....she never could

> understand me not being able to

> get out of bed till she couldn't.........i challenge

> the people who look down

> their noses at us and do not understand to step into

> our shoes for just 4

> hours .......they would not be able to handle

> it.....as for moms .....i think

> a lot of it is misinformation and the rest is

> denial.....another problem is

> that we blame ourselves .....hey i did not want this

> disease my life was

> cruising along very well ( like my wstory on the

> lyme quilt says i was living

> the american dream till " the nightmare hit " and i

> blamed myself at

> first......plus the male ego thing ....supporting ur

> family and such.......it

> was hard still is sometimes......but i have a great

> place like this to come

> and restore my sanity.........

> Reid

>

> Reid-

I talked to mom and dad tonite and they got an earful when they brought

up the article again. I went off on mom and told her there was no point

in discussing this issue long distance and she was going to get a full

Lyme course when she got here in June. I am having one of those ugly

days and between the fatigue and the anger and the noise sensitivity I

have managed to make every one around me think im a lunatic. The kids

know that tomorrow will probably be a better day and just steer clear

when i get like this. I put it to my parents this way:If I had

pneumonia and needed IV antibiotics you would never question it but

because I have something that is so hard to understand you think its

worth questioning. They are just having a hard time knowing that im so

sick and have had such a hard time getting help and they are so far

away. Things will get better once they get here and i can show them the

proof that what we have does exist and is a serious problem. I know

what you mean about people telling you to push yourself and you will be

better. Alot of my well meaning friends kept telling me it was just

depression and I needed to get out of the house more and exercise and

try to come back to work to get my mind off of it. Gee if that were

possible I would let my mind and my body be cleared of the whole thing

and happily go back to work. And you are right, until someone feels the

amount of fatigue and fog we feel they dont have a clue. That is one of

the best things about this group. Everyone ca relate to the feelings

and understand why we can go to bed at 8:00 and not get up till 2:00

the next day and then go back to bed by 4:00. Alot of days I do good

just to take a shower and get dressed.

Hope you are feeling as well as possible. Thanks for all the support.

Hugs,

L

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--- RMcmur3194@... wrote:

> From: RMcmur3194@...

>

> lisa.....i agree alot of days washing and personal

> hygene is a victory for

> me......other days i lose the war......most days i

> try to take care of one

> little task.....i have a routine.....get

> up.....whenever.....go a block to

> get the papers....i keep sirections in my truck as i

> have forgotten how to

> get home from there sometimes...... i use to love

> driving now it is such a

> chore.....i get lost and i tires me to have to force

> myself to concentrate so

> much.....when its me and trhe family i now let my

> wife drive.....(thats

> something new) i am being treated for

> depression.....caused by lyme and

> haveing a chronic illness....had a real bad bout for

> the last 2

> months.....but am doing somewhat better

> now........everything for me is now

> day to day.....keep getting stuff off the web for

> mom......she will be

> reading the whole time shes with u......than she'll

> be smarter than most

> docs.......and angrier to by what we are being put

> thru..... but our day is

> coming i am sure of it.......

> Reid

>

> Reid-

You must have been at your computer when I posted. Had time to do one

more post and had your answer. LOL

You can bet mom is going to be reading while she is here. I know what

you mean about getting lost. I never have been much of a navigator but

getting lost 2 blocks from home is a little much. That happened last

summer when my parents were visiting and i had mom in the car with me.

It was early on in the game and i was still in denial myself about

anything being wrong so of course we both blew it off. This year they

will be driving if we go somewhere because i dont trust myself to drive

anywhere but in town. And thats only because i can stop in a hurry if i

need to and let things pass or figure out where i am.

L

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Hi ,

I really, really understand what you are going through. My Mom hates my

Lyme doctor, she used to know his partner, he came in often to a diner where

she was a Hostess. Because they had legal problems ending their

partnership, she is prejudiced against my doctor. That of course is only

one part of it, she worries about what all the antibiotics are doing to my

liver, etc. I have learned just not to talk to her about Lyme, when she and

I speak on the phone, which is twice daily (I am a Momma's girl, I know), I

rarely if ever tell her I am feeling bad. I did subscribe to the Lyme

Alliance newsletter for her, so at least once a month she gets an education

on Lyme disease and it is free!

Best to you,

Marta

>From: lc lott <lclott@...>

>

>>>

>> Marta-

>I am still fuming over it. In fact everyhting is setting me off today.

>Just got off the phone with mom and dad and the minute she brought up

>the article again I went off on her. She got the brunt of my anger.

>I of course aplogized to her and told her not to mention it again until

>she got here next month and read our side of the story which is much

>longer nad more informed than the 2 paragraph article in the newspaper.

>I pretty much told her that if I thought there was nothing wrong I

>wouldnt go thru all the hassel of getting the IV line and the fight

>over that with the ins.Co. Nor would I even consider filing a lawsuit.

>After all when we are in court we are all under oath and she knows Im

>not a lawsuit kind of person in the first place.

>Hugs to all,

> L(the grumpy one)

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Reid,

I tell anyone who says that I look fine to " READ THE BOOK'....It makes

me furious when they say, I " You .look good! Yet try to explain it to

someone who is not really interested. Again, I say " READ THE BOOK!.......I

guess you can tell that I am not having a good day......God Bless

Re: [Lyme-aid] What can be done?

>From: lc lott <lclott@...>

>

>

>

>--- RMcmur3194@... wrote:

>> From: RMcmur3194@...

>>

>> lisa.....

>> i have found that it takes family especially moms

>> along time to fathom what

>> this illness is really like.......actually for

>> anyone to realize......when

>> the people at work said " ur giving up a 17 year

>> carreer?.....why don't u just

>> come back to work.....u look fine " i wanted to

>> strangle them......if i could

>> work i would work.....every so often i get this big

>> idea ion my head that i

>> will look for a new job......cause i have a few

>> decent days....then reality

>> and lyme set back in.....my body and especially my

>> mind are not up to

>> it.....it like the people who tell me push urself u

>> will feel

>> better.......guess what? NOT i have learned to

>> listen to my body......if it

>> says turn over and go back to sleep ....thats what i

>> do......my mom did not

>> know what fatigue i was going to till she was dx'ed

>> with cancer(she is clean

>> now) and underwent chemo.....she never could

>> understand me not being able to

>> get out of bed till she couldn't.........i challenge

>> the people who look down

>> their noses at us and do not understand to step into

>> our shoes for just 4

>> hours .......they would not be able to handle

>> it.....as for moms .....i think

>> a lot of it is misinformation and the rest is

>> denial.....another problem is

>> that we blame ourselves .....hey i did not want this

>> disease my life was

>> cruising along very well ( like my wstory on the

>> lyme quilt says i was living

>> the american dream till " the nightmare hit " and i

>> blamed myself at

>> first......plus the male ego thing ....supporting ur

>> family and such.......it

>> was hard still is sometimes......but i have a great

>> place like this to come

>> and restore my sanity.........

>> Reid

>>

>> Reid-

>I talked to mom and dad tonite and they got an earful when they brought

>up the article again. I went off on mom and told her there was no point

>in discussing this issue long distance and she was going to get a full

>Lyme course when she got here in June. I am having one of those ugly

>days and between the fatigue and the anger and the noise sensitivity I

>have managed to make every one around me think im a lunatic. The kids

>know that tomorrow will probably be a better day and just steer clear

>when i get like this. I put it to my parents this way:If I had

>pneumonia and needed IV antibiotics you would never question it but

>because I have something that is so hard to understand you think its

>worth questioning. They are just having a hard time knowing that im so

>sick and have had such a hard time getting help and they are so far

>away. Things will get better once they get here and i can show them the

>proof that what we have does exist and is a serious problem. I know

>what you mean about people telling you to push yourself and you will be

>better. Alot of my well meaning friends kept telling me it was just

>depression and I needed to get out of the house more and exercise and

>try to come back to work to get my mind off of it. Gee if that were

>possible I would let my mind and my body be cleared of the whole thing

>and happily go back to work. And you are right, until someone feels the

>amount of fatigue and fog we feel they dont have a clue. That is one of

>the best things about this group. Everyone ca relate to the feelings

>and understand why we can go to bed at 8:00 and not get up till 2:00

>the next day and then go back to bed by 4:00. Alot of days I do good

>just to take a shower and get dressed.

>Hope you are feeling as well as possible. Thanks for all the support.

>Hugs,

> L

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Guest guest

EPearl16@... wrote:

> From: EPearl16@...

>

> Hi, Sorry to hear about your insomnia problems. When my husband was having

> problems, our doctor recommended an herbal remedy called (believe it or not)

> " Insomnia " . Manufacturer is Hyland's. Their 800 # is (800)624-9659. Check

> it out. Good luck.

I've used Hyland's products for years. They are one of the oldest producers of

homeopathic remedies. I've never used their insomnia remedy but I've used others

for hayfever, teething (for my daughter), bronchitis and headcolds. They are

very gentle and effective.

Jean

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--- J & M McCoy <mlmccoy@...> wrote:

> From: " J & M McCoy " <mlmccoy@...>

>

> Hi ,

> I really, really understand what you are going

> through. My Mom hates my

> Lyme doctor, she used to know his partner, he came

> in often to a diner where

> she was a Hostess. Because they had legal problems

> ending their

> partnership, she is prejudiced against my doctor.

> That of course is only

> one part of it, she worries about what all the

> antibiotics are doing to my

> liver, etc. I have learned just not to talk to her

> about Lyme, when she and

> I speak on the phone, which is twice daily (I am a

> Momma's girl, I know), I

> rarely if ever tell her I am feeling bad. I did

> subscribe to the Lyme

> Alliance newsletter for her, so at least once a

> month she gets an education

> on Lyme disease and it is free!

> Best to you,

> Marta

>

> Marta-

Mom sent me an email and apologized for saying the things she said. She

is just worried about me and knows that all the stress right now isnt

helping. She admitted that it her way of reacting to the way we are

being treated. (or not treated in our case). She will be much better

once she gets here and can take care of her baby for awhile. I think

she feels guilty that im dealing with this without her and she feels so

helpless being 1200 miles away. You know how we mothers are.She really

wants to be here to take care of me but that isnt a possibility because

of her health.She is a severe asthmatic and the MI humidity just really

makes her sick. Im a little concerened about her coming next month just

to visit but it will be nice to see her. I told her I have a great

support system with all of you and that I am certainly not alone in

this. I think that made her feel a little better.

Hope all is well with you.

Hugs,

L

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Hi ,

That's great that you could mend fences with your Mom, I guess if my son

had this disease, I would be just as concerned as she is. I hope her visit

with you next month is not too stressful to her health. Keep the air

conditioner turned up to high for her.

Hugs,

Marta

>From: lc lott <lclott@...>

>> Marta-

>Mom sent me an email and apologized for saying the things she said. She

>is just worried about me and knows that all the stress right now isnt

>helping. She admitted that it her way of reacting to the way we are

>being treated. (or not treated in our case). She will be much better

>once she gets here and can take care of her baby for awhile. I think

>she feels guilty that im dealing with this without her and she feels so

>helpless being 1200 miles away. You know how we mothers are.She really

>wants to be here to take care of me but that isnt a possibility because

>of her health.

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Guest guest

Hi, My teenage son with Lyme also had problems with insomnia. Not being able

to get to sleep, which is typical for teenagers anyway. The doctor said it

was because the Melatonin levels in a teenagers body decrease. So I started

giving him 1/4 of a 300mg. tablet. This also helped, somewhat, with the

problem of waking and not being able to get back to sleep.Melatonin can be

purchased at the drug store, and is also available in liquid for which may be

easier to regulate the amount.

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