Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Just to straighten out any misconceptions, Alison took part in the Connaught Labs vaccine study, and her case is against them. There may be some vaccine lawsuits against SKB, but if so, I don't know about them. I still would not vaccine my worst enemy with SKB or any on the market right now. Marta > From: A1M1BISHOP@... > > Alison, never feel guilty. You have been handed a raw deal by the vaccine co > and you deserve to be ugly and to moan. I want you to know that I gave the > smith klyne rep an ear full of bad news about their vaccine and told him > exactly what it did to you. I told him he needed to activly train the docs > he was pushing to give the vaccine about lyme and about the dangers of giving > this shot to someone with lyme for I know that they are not doing this. They > actually made it sound like lyme suffers would be good candidates in the > beginning, before the vaccine was made assessable. Thanks for sharing your > info with us. Hope you are feeling better. > > Hugs > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Marta, I was horrified and yet gratified to read Lynn Lane's story. I had seen it a long time ago but forgot that she had taken part in the SKB study and not the Connaught. Everyone asks me if the " vaccine on TV " is the one I had and as soon as I say no, they tune me out. They don't bother to hear me add that it is the same stuff! I know that there was at least one other lawsuit against SKB and that was a dentist but I also know he dropped his case. It took me almost 2 years (yes...2 years) to get legal representation. When you hear about people suing Mcs because the coffee was too hot, it sounds like getting a lawsuit going is something anyone can do for any reason but it soesn't work with that, unless, maybe, you are dealing with real slime that is independently wealthy (I am referring to the lawyer and not the plaintiff here). Since most of these lawsuits are contingency based, the circumstanes have to be just right before a reputable lawyer will consider investing the money and time it takes to go to court on behalf of someone. I had to meet a lot of conditions before my lawyer called me in t sign a retainer. I had to have a + test, a Lyme specialist, and recorded arthritic/joint changes before he would even speak with me. Prior to that, I sent him a load of medical documentation and info but nothing happened. And even after he finally took me on as a client, he waited for a report from one of our favorite Lyme specialists (I am going to play it safe and not name names) before he 100% committed to me. Anyone who knows my story also knows that the joint problems are not the only ones I have but they are the only ones documented to be vaccine related by Steere & co. Without them, I would not have a case. My mental symptoms....not specific enpugh. The neurological ones...not specific enpugh and this also applies to the blood/thyroid/ other problems I am experiencing. But from the beginning, my biggest complaint has been the joint deterioration and even the 2 synovectomies were not enough without the report from Dr. Lyme Specialist. I lost track of why I was writing this...oh yeah!!!! If we all know of at least 2 people damaged by the SKB vaccine, it stands to reason that there have to be MANY, MANY more. My mother was in her internist's office one day and there was an army major in the waiting room-I believe his name was - speaking to another patient and telling him his life was ruined by the experimental Lyme vaccine...could this be a huge coincidence? I doubt it. She told me the vaccine wasn't the " same one I had " so I assume it was SKB. (even she has a hard time conceding the vaccines ARE the same). The bottom line is, now that the drug companies are paying for advertising, Lyme is getting the press it needs so desperately, but for THE WRONG REASON!!!!!!!!!!!!!!!!!! I hope that all those out there who are not (un)lucky enough to meet the criteria for a lawsuit are at least reporting what happened to them to VAERS and also the Injured Vaccine Compensation Board (that is not the legit name but basically that is what the organization is) By virtue of the fact that such a place exists...it is apparent that the powers that be know that vaccines can be harmful!!!!!! A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 1999 Report Share Posted April 19, 1999 Alison, You are so right, innocent people can and will be hurt by the new vaccine. Before I read Lynn Lane's story, I was glad for all the publicity that LymeRix was bringing to our cause. I was being very selfish and looking at it as to how it would help me to explain the stigma of Lyme. How many of us have heard, " Lyme? Don't you just take some antibiotics and it goes away? " I loved it when the girl in the commercial told how it was too late for her, and now she had serious problems. Since that commercial has run, I seem to get new respect from just about everyone I know who knows I have Lyme. The power of TV, I guess. But, like I said, that was really selfish of me. I had not heard about SKB vaccine injuries or lawsuits, so I was half-hoping the damn thing would work. I rationalized in my mind that Alison's problems were from Connaught, not SKB. BOY was I stupid! Hope you can forgive my ignorance. I still was not recommending the vaccine to any of my loved ones, or even acquaintances, as it was too new. Alison, I am praying that your lawsuit amounts to something for your sake, you really have suffered and so needlessly. Art Doherty has some great information about the vaccine studies at his Lyme resource page, here is the URL for anyone interested: http://www.geocities.com/HotSprings/Spa/6772/vaccine.html Hugs, Marta - >Marta, I was horrified and yet gratified to read Lynn Lane's story. I >had seen it a long time ago but forgot that she had taken part in the >SKB study and not the Connaught. >Everyone asks me if the " vaccine on TV " is the one I had and as soon as >I say no, they tune me out. >They don't bother to hear me add that it is the same stuff! >I know that there was at least one other lawsuit against SKB and that >was a dentist but I also know he dropped his case. >It took me almost 2 years (yes...2 years) to get legal representation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 1999 Report Share Posted April 19, 1999 Hi Marta, I just got a call tonight asking me where they could take their family for their lyme vaccine shots. I returned their call and they weren't home. Hope I can educate them before they find someone! Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 1999 Report Share Posted April 19, 1999 Good Lord, hope you get in touch with them. No answering machine??? Keep us posted, Marta >From: Cslyme@... > >Hi Marta, >I just got a call tonight asking me where they could take their family for >their lyme vaccine shots. I returned their call and they weren't home. Hope >I can educate them before they find someone! >Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Marta and group. Just for your information, my new LLD is doing a study on the vaccine and said that it increases the risk of cancer also. I mentioned that my late husband was involved in the study and got cancer two years later. He wants me to get his records and pursue it;. I don't know if I can go through that....but take heed all those who might think its harmless. Regards, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Dearest Marta, I hope you didn't think I was in any way annoyed with you!!!!!!!!!!!!!! Nothing in life would make me happier than to think that " help " was on the way...unfortunately, the reality of the situation is, that it isn't, at least not with this wonderful vaccine. As I was trying to pull a tick that was busily burrowing its way into Carl's forearm yesterday morning without breaking its harmful head off in the process, all I was thinking was what a disgusting way to have to live this is! Maybe the SKB people were more dilligent than the Connaught people were...but their vaccine is essentially the same, with all the same pitfalls. AT LEAST...Lyme is now getting the attention it deserves. AT LEAST...now the rest of the world doesn't just think we are a bunch of psychos!!!!! As for the rest.....we just have to hope that someone out there will tell the true story before more people become worse off than they were while just taking their chances with their spouses removing the ticks intact and on time. The good news is Carl's doctor immediately put him on a month of Doxy so hopefully this latest episode will have no lingering effects! Hugs, A -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 How horrible, Gail! Did you ever hear about the vaccine compensation board? If you would like, I will forward you some info on them. I am so sorry about your husband. Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 Thanks for the information Gail. Do you mind if I ask what kind of cancer your husband died of? The reason I ask, I have a relative who had Lyme disease, he says " Had " anyway. Later went on to develop melanoma, and has undergone chemo, radiation etc.. He got fed up with all the meds and just said to heck with it all. Now he is back to work but I don't know think he is feeling real good. He won't listen to me about Lyme disease. What study was your husband involved in? As for your doctor getting copies of your husband's records, I think all it would involve is your signature on one piece of paper authorizing it. Hope these questions are not too invasive. Hugs, Marta - >From: IAMAVIPTWO@... > >Marta and group. Just for your information, my new LLD is doing a study on >the vaccine and said that it increases the risk of cancer also. I mentioned >that my late husband was involved in the study and got cancer two years >later. He wants me to get his records and pursue it;. I don't know if I can >go through that....but take heed all those who might think its harmless. >Regards, Gail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 Alison, I am glad you understood what I was trying to say, sometimes what I mean to say comes out garbled. Poor Carl, I can imagine how you must have felt while you were pulling out that tick. I have a dear friend Patty who lives in land, she is having an awful time on her property too. Her husband sprays every few weeks for them, but they keep coming back. I told her if it were me, I would have a For Sale sign up in a flash, but moving for her is not feasible. I told her to invite all the local politicians to a backyard barbecue, maybe that would help....LOL! Hugs, Marta >From: Alison E Schettini <alison7@...> > >As I was trying to pull a tick >that was busily burrowing its way into Carl's forearm yesterday morning >without breaking its harmful head off in the process, all I was thinking >was what a disgusting way to have to live this is! >Maybe the SKB people were more dilligent than the Connaught people >were...but their vaccine is essentially the same, with all the same >pitfalls. AT LEAST...Lyme is now getting the attention it deserves. AT >LEAST...now the rest of the world doesn't just think we are a bunch of >psychos!!!!! .. The good news is Carl's doctor immediately put him >on a month of Doxy so hopefully this latest episode will have no >lingering effects! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 alison......u r right in one respect.....we are finnally getting the word out that lyme can and is disabling......yesterday i worked the polling places at the school board election.......one of the few things i try to do during the yeqar to earn some$$$$ to supplement my ssd.....we were talking about lyme and i told my story....welll the whole place stopped and listened .....i then had many people come up and tell me of others they know who suffer from this illness.......they are all worried about getting it.....i gave them my opinion on the vaccine.....but it is amazung how people look at me differantly now and don't just blow me off like they did brfore the commercials.....now if only we can get a national " name " spokesperson.......whe can hopei guess........prayers to all on this list and to the families in colorado.......such a waste.....Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 Hi Marta, Sorry, I am a few days behind. AOL not working well and I had my support group meeting. It went well. Yes, I finally got a hold of that lady. Gave her a 5 minute lecture on Lyme and the vaccine and anything else I could tell her. she and her family are not going to take it. Thank God. Hugs, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 Hi Marta, I like the idea of a backyard BBQ. I am going to send out governor a jar full of ticks. I am so sick of him saying there is not lyme her except in the UP, that everyone that has it here gets it from out of state. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 Dear Connie, AMEN to that! Hey doesn't he live in the Upper? Isn't he surrounded by lymies every where? Ignorance is bliss I guess. When someone he loves gets it, and they will, then only then will he recognize this. What a governor we have. God Bless, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 What makes me crazy, Marta, is that both of our governors have this damn thing and they are not helping this fight!!!!! If we had known that moving to the " country " was going to ruin our lives, we would have stayed in the xity and taken our chances with the muggers!!! We are going to move after the lawsuit...but to where???? I at least want all my future pups to be healthy!!!!!!!! Hugs, Alison -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 Hey Reid, I was just talking about this yesterday to my friend Joe Burke, (Fine Print News website), I feel like a celebrity now. I went to the hairdresser's Monday, and while I was waiting my turn, the girl who does my hair announced to the whole place that I had Lyme disease, they all had questions, I answered best I could. The Power of that ad for the vaccine is truly amazing. Kind of scary too, that people will rely on that message, and not all the rabble rousing we have tried to do face to face for years now. My own family now realizes this disease is serious, while before they just kept waiting for me to get over this as if it were a cold or something. I really have mixed emotions about the whole thing, I would much rather have gained respect from some other avenue, not because some pretty girl in an ad says, " I now have serious health problems. " Marta - > >alison......u r right in one respect.....we are finnally getting the word out >that lyme can and is disabling......yesterday i worked the polling places at >the school board election.......one of the few things i try to do during the >yeqar to earn some$$$$ to supplement my ssd.....we were talking about lyme >and i told my story....welll the whole place stopped and listened Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 Boy are you right Alison, We'd have a better chance in the city against crime, at least we could use guns. Can't shoot a tick with a bullet....I'm not that good a shot....LOL! As for the governors, mine is running for the Senate, so she can't be too sick. I heard Pataki is sympathetic to Lyme, moreso than Whitman, have you ever written to him? Hugs, Marta - >From: Alison E Schettini <alison7@...> > >What makes me crazy, Marta, is that both of our governors have this >damn thing and they are not helping this fight!!!!! If we had known that >moving to the " country " was going to ruin our lives, we would have >stayed in the xity and taken our chances with the muggers!!! >We are going to move after the lawsuit...but to where???? I at least >want all my future pups to be healthy!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 Martha, That pretty girl used to be an actress on my soap!!! She was on As the World Turns. To bad an actress couldn't be a spokesperson for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 marta, i agree .....but this is how it happened i guess it goes to show the power of tv......even though i have had articles done on me in major NJ newspapers i have recieved more response since the vaccine commercials.......maybe they thought i was making al the bad things up before ....like i wanted to make a total change in lifestyle......went from being active to well......it took me till 4 pm today to get the energy to boot up the puter and check my mail today.......and then i had to force myself at that......my wife i a great planner....she is not happy in less things are planned in advance......with this disease i can't plan anything.......i need to tow our travel trailer to the pococnos where we have property .....it has been home since we had a new deck put on the property........she keeps bugging me .....i told her i have to feel up to it.......it will get done i just don't know when......i take life day by day.....this past month has been my worst ever in 11 years......i have felt like crap for 4 straight weeks now.......i relly believe it is weather changes......not only do my joints hurt along with other things but they burn....weird feeling....and the cold or damp well forget it......well......thats all from me for now......like i said maybe skb was a help...as people now listen and ask about our disease and our struggle.....i read on aol that a shoprite pharmacy has a nurse giving people vaccine shots and they are promoting it to even active lyme patients......hope they have good insurance and lawyers.....they will need it Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 Hi , How about that, well, she is making a fortune each and every time that commercial is aired, and boy is that a lot! I hear that Irene who used to be on the MTV show, Real World is becoming a spokesperson for Lyme. She will reach a lot of young people and that is a good thing too. Hugs, Marta >From: Prinny328@... > >Martha, >That pretty girl used to be an actress on my soap!!! She was on As the World >Turns. To bad an actress couldn't be a spokesperson for us. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 In a message dated 4/22/99 3:28:57 PM Eastern Daylight Time, mlmccoy@... writes: << ho used to be on the MTV show, Real World is becoming a spokesperson for Lyme. She will reach a lot of young people and that is a good thing too. Hugs, Marta >> That's great!! We need a person to speak up for us!!!! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 1999 Report Share Posted April 22, 1999 Marta, I have to agree, the one thing that the vacc commercial is doing for us is spreading the awareness. I also have to say that they are telling docs in my area that lyme disease is prevelant so they need to look at the vac, but the docs are not anxious to use it. I am a hairdresser my self and trust me my customers are constantly asking me more about lyme now that they are seeing the adds, plus they picc line always leads to conversation about it. Hugs Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 1999 Report Share Posted April 24, 1999 HI Amy, and everyone. I am jgoing back on IV again on Monday and I was wondering what kind you or anyone else is on. Five years ago I had an IV line put inand the medicine was in a little ball that slowly got smaller over an hour and than you threw it out. The infusion co. told me that they don't do that anymore because the ball types are too expensive and that now I have to have a bag with a poll. Is this true? Does any one out there use the little ball types They are so much more convienent. Please get back to me if you can anyone. Hope you all feel better as always-Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Dear Val, Annie has always used a little pump. The meds. are in syringes and she puts them in the pump, takes about 30 mins. and she can walk around or whatever. The pump can go in a fanny pack or just held. Meg >From: ValP74@... > > > >HI Amy, and everyone. I am jgoing back on IV again on Monday and I was >wondering what kind you or anyone else is on. Five years ago I had an IV line >put inand the medicine was in a little ball that slowly got smaller over an >hour and than you threw it out. The infusion co. told me that they don't do >that anymore because the ball types are too expensive and that now I have to >have a bag with a poll. Is this true? Does any one out there use the little >ball types They are so much more convienent. Please get back to me if you can >anyone. Hope you all feel better as always-Val > >------------------------------------------------------------------------ >Start a new hobby. Meet a new friend. >http://www.ONElist.com >ONElist: The leading provider of free e-mail list services! >------------------------------------------------------------------------ >Please send privately messages unrelated to lyme. >/archives.cgi/ >/archives.cgi/Lyme-Docs >Email: -subscribeonelist >You may substitute " unsubscribe " , " digest " , or " normal " for >the word " subscribe " ( " normal " is the opposite of " digest " ) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Hi Meg, Thanks fokrthe reply. Is the pump like a little ball that shrinks down or is it powered by electricity? -Val Quote Link to comment Share on other sites More sharing options...
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