Re: Back to good news/Rocephin IV Etc.

[Guest guest]

Dear & Lyme Aid Group,

I can understand your physician being very upset

that you were given the Rocephin in 50 ml of fluid

instead of 500 ml IV. I think that's the right term

for the fluid as it is the way it reads on my IV

infusions. The home health agency pharmacist

and my physician first tried 250 ml of fluid for the

2 grams of Rocephin but almost immediately upon

receiving the IV my symptoms escalated.

I have had documented supra ventricular tachycardia

since age 24 (possibly sooner since I know the feeling

but this was when first documented). This causes an

extra beat, but to me feels like a skipped beat and it

is scary and causes my anxiety level to skyrocket when

it happens, thus kind of creating a self-fulfilling kind of

deal. My anxiety makes the tachycardia worse, but also

the Rocephin causes it to worsen.

Also, receiving the 2 grams of Rocephin IV in 250 ml

of fluid caused me to have an escalation in symptoms

believed to be well controlled. I would get immediate

tightening of my chest wall muscles, the sternum, and my

ribs would go crazy with pain. After one treatment like

that, I called my Lyme doctor and the pharmacist at the

home health care agency and told them that I could not

take the Rocephin with the symptoms being made bad

by the infusion.

It was decided that I would receive the Rocephin in 500 ml

of fluid, with IV pump, and it would be measured and what

finally worked was 230 units per hour. However, I still had

some of the chest stuff in the sternum area but thought I could

deal with it as it was more uncomfortable than painful. I have

now been receiving the infusions for I believe 5 weeks and

will receive for 8 weeks. This past week, running out of

new veins to open (they could not get the line in my arm

and my Lyme doctor does not want me to have the chest

catheter or the Picc line) we ran into new problems.

Rocephin like many medications, antibiotics and others,

is caustic to the veins. My veins tired and in the last week

it seems that in the smaller veins they had to use, that the

veins would take only two infusions before going South.

However, yesterday it seems we found out more about

what's going on with my veins and the Rocephin. Everytime

the nurse goes to start new infusion the IV hookup into my

vein is flushed with saline (sp?) and Heparin, small amounts

to make sure the vein is open good before starting the

infusion. I would experience a burning and stinging almost

immediately upon the first flush of the saline and we almost

pulled the I.V. setup out, but since not swelling or a hard

place, we just continued with the flush VERY SLOWLY and

by the time the Heparin was put into the vein, I was not

having any burning or stinging pain. The vein took the

whole 500 ml of fluid with the Rocephin antibiotic and

when the nurse went to flush after IV with saline then Heparin

the same thing happened. So, once again since no visible

swelling or hardness indicating the fluid going under skin

instead of in vein, the nurse (with my permission) proceeded

slowly, and once again, once the saline was through the

vein and the Heparin too, the vein was okay and no pain.

It may be that the Rocephin is just so very caustic to

the smaller veins especially (as these in my hands are the

ones where I've had the most trouble or smaller veins in

left arm where veins are worse) just after receiving the

infusion. Once we manage to get past the first flush and I

understand it is to make sure that the Rocephin and the

Heparin do not get mixed on top of each other that the

saline must be used first, I am okay if the fluids are

put into the vein V E R Y S L O W L Y. I stress that

because the nurses are of course pressured to go on to

treat the next patient. However, you are the most

important person they are treating while it is your turn

and if you need the flushes done slowly you must TELL

the nurse and make sure it's not done any faster than you

can tolerate it, and if that means it takes 5 minutes or

longer, then that's the way it is!

Because I have a finite number of veins to be used, I am

especially careful of the ones that are being used at any

given time. The nurses have been very good to listen to me

and to proceed as I request. They don't want to have to

open a new vein either, because it's hard on me, and most

of them do really care or they would not be in the profession

they're in. I've been very blessed with the nurses giving me

the Rocephin treatments.

Because of the fact that the Rocephin affects my heart almost

immediately, it leads my Lyme doctor and myself to believe that

the Lyme may be alive and well in that muscle. And also due to

my immediate and extreme reaction, the doctor does not want me

to have the chest catheter or the Picc line, and I have to agree.

We are going to attempt to put the " med line " (hope that's right?)

into upper arm again on Tues. after I've had lots and lots of

fluids to give the nurse all the help I can in getting the catheter

threaded into a vein.

I have felt very " safe " in receiving the Rocephin IV at home

with the nurse there with me the whole time and since I am

receiving it via pump. Because of my tired veins, the delivery

has had to be taken down to 190 units per hour to keep me

from having localized pain from delivery. It's okay, and does

not take that much longer and is not painful at all this way. I

hope this information helps you and anyone else on IV

treatment.

The thing is that the nurses are there for us and if we are

having problems, we need to let them know. I know of

too many people who gave up too soon on the IV abx

treatments due to problems that could be fixed. One

woman told me that she just could not flush the IV on

her body for some reason as she was supposed to be

giving the IV's to herself. All she had to do was tell

her doctor and the home health care people that she

could not do it and they would have had the nurse stay

and do the whole IV for her. I feel much " better "

knowing I have the kind of reactions I do to the abx

having the nurse there while I am receiving the infusion.

I managed to read a book last week, something I have

been unable to do because I could not get past the first

couple of pages I would try to read. I would find myself

re-reading the same thing over and over and just had to

give up on trying to read. Since I started having chronic

all over body pain almost a decade ago, I've used reading

as a way to help cope with the pain by escaping for a

while between the pages of a book. Not being able to

read when I had been reading a book a day on average

and only 4 books in the last year, made it difficult as it

took away one of my coping measures to deal with the

chronic pain. I was so surprised to find that I could read

again, albeit much slower than I have read in the past, but

just a wonderful benefit from the IV Rocephin treatments.

It can't be from anything else because nothing else has

changed. My husband has shared with me that I am still

quite emotional, much more so than what is " normal "

whatever that is, for me. I don't like to hear these things

but know he's looking out for me and letting me know

things I am not necessarily aware of about myself while

taking medications trying to get a handle on this illness

and hoping to get to a point of the Lyme going into

remission.

I know this is long, but also wanted to share that some

few times after receiving the infusions I've had a real

appetite and found myself hungary which is rare for me.

I recognize it's taken me a long time to get this sick

(I've possibly had Lyme most of my life, but not

diagnosed until worsening neurological problems forced

me to find new physicians who would listen to me) and

that I'm not necessarily going to get well over night. I

try to take each step just one day at a time or else I

would be overwhelmed by the magnitude of the things

that need to be " fixed " for me to be able to return to

work I enjoyed or work at all, or to be able to do even

little things which would help take the load off my spouse.

It's very hard at times to be able to do so little and my

self worth suffers from my inability to do more, and I talk

about it to my spouse and my doctor so they will know

where I am mentally. I do have reactive depression due

to suffering first from all over unexplained joint pain for

20 years and then chronic pain added to the joint pain for

the last almost 10 years. Structural body damage added

to the picture from a wreck involving a drunk driver

before I turned 20 also factors in somewhere making it

difficult for me to do many things. I tried last week to

make the bed (I've suffered 2 acute lumbar sacral strains)

and that was a big mistake. I tried to do what I am

unable to do and was very very lucky that I did not

suffer injury from the effort. I was smart enough to turn

around and sit down immediately upon feeling the stress

to my lower back and possibly avoided more injury. It's

just so hard to accept at times how very little I can do

to help in the care taking of both of us and thus leaving

so much on my spouse to have to do for us. Yet, it would

do us no good if I caused injury to myself to the point I

could not care for my own personal hygiene. He could

not care for me and work and I would not like ending up

in a facility until my low back healed enough so I could

care for my own basic hygiene again. So, I am learning

the lessons all over again about patience, the ones I had

to learn recovering from a car wreck before I was 20

years old. It's not easy, but thank God I can do as much

as I can, it could indeed be worse.

Wishing us all health and freedom from pain,

both physical and emotional -

lc lott wrote:

> From: lc lott <lclott@...>

>

> Hi all-

> Just an update on the weeks events. Saw my LLD today and im back on the

> Rocephin. It was just too strong.

> Should have been in 500cc of fluid not 50. He was a little upset to say

> the least. Im off the steroids and the Benadryl unless i need to use it

> for the itching if it comes back. Did an EKG and should know the

> results on Monday. He is wondering about heart involvement and if the

> EKG is abnormal or if the pain is not gone after a week of moist heat

> and celebrex twice a day (possibly Costrochonritis) he will do an

> Echocardiogram. If that is abnormal its on to a myocardial biopsy to

> verify it. Also my blood cultures came back positive so thats the proof

> my lawyer was looking for.It has been a very satisfying day. The only

> thing that would have made it better would be if

> he would have told me this horrible disease is curable and we will all

> some day be our normal selves again.

> Guess that is a little much to ask for tho.

> Thanks for all your help and support thru this.

> L(MI)

>

> _____________________________________________________________

>

[Guest guest]

, that is so great to hear that you are off of those steroids and back on

the rocephin. I hope it works wonders for you. are you giving it to yourself

or does a nurse come everyday? Oh and by the way what blood cultures were you

referring to? Is this some new test or the regular blood tests ELISIA,

WESTERN BLOT? God Bless you! Feel better very soon-Val

[Guest guest]

In a message dated 5/15/99 7:33:04 PM Eastern Daylight Time, lclott@...

writes:

> Im glad to be off the steroids too. The mood swings are bad enough

> without enhancing them with steroids.

> I am doing the IV infusion myself. The nurse wants to come everyday but

> it really isnt necessary and costs 70.00 a day.

> The blood cultures are a seperate test from the ELISA and Western Blot.

> Ive had 5 of both and they are all positive. (But i dont have Lyme

> according to the other docs that saw me. These were all false

> positives) The cultures are done by putting samples of my blood into a

> sterile container and then after a period of time seeing what grows.

> How funny that my blood in fact contained the bacterium that causes

> Lyme. So much for the false positive theory. They can also determine

> the best drug to use to kill it off by doing a sensitivity test. For

> now we are sticking with the Rocephin because it seems to be working.

> Take care. Hope you are feeling well.

> L(

Hi

good luck with everything; do you know by chance how this test differs from

the one recently developed?

thank you

lea

[Guest guest]

--- ValP74@... wrote:

> From: ValP74@...

>

>

>

> , that is so great to hear that you are off of

> those steroids and back on

> the rocephin. I hope it works wonders for you. are

> you giving it to yourself

> or does a nurse come everyday? Oh and by the way

> what blood cultures were you

> referring to? Is this some new test or the regular

> blood tests ELISIA,

> WESTERN BLOT? God Bless you! Feel better very

> soon-Val

>

> Val-

Im glad to be off the steroids too. The mood swings are bad enough

without enhancing them with steroids.

I am doing the IV infusion myself. The nurse wants to come everyday but

it really isnt necessary and costs 70.00 a day.

The blood cultures are a seperate test from the ELISA and Western Blot.

Ive had 5 of both and they are all positive. (But i dont have Lyme

according to the other docs that saw me. These were all false

positives) The cultures are done by putting samples of my blood into a

sterile container and then after a period of time seeing what grows.

How funny that my blood in fact contained the bacterium that causes

Lyme. So much for the false positive theory. They can also determine

the best drug to use to kill it off by doing a sensitivity test. For

now we are sticking with the Rocephin because it seems to be working.

Take care. Hope you are feeling well.

L(MI)

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[Guest guest]

--- <swsftwtx@...> wrote:

> From: <swsftwtx@...>

>

> Dear & Lyme Aid Group,

>

> I can understand your physician being very upset

> that you were given the Rocephin in 50 ml of fluid

> instead of 500 ml IV. I think that's the right term

> for the fluid as it is the way it reads on my IV

> infusions. The home health agency pharmacist

> and my physician first tried 250 ml of fluid for the

> 2 grams of Rocephin but almost immediately upon

> receiving the IV my symptoms escalated.

>

>-

The problem was the concentration of the Rocephin.

I have done 2 infusions using the 500ml bag and was fine both times.

The chest pain is still there but does not get worse like it did. I am

doing the infusion myself as i am in the medical field and am probably

just being stubborn about being independant.

I know how to do it so there is really no need for a nurse to be here.

I never had a problem with the saline or the heparin as long as like

you said it goes in slow. I run my IV in over 21/2 to 3 hrs and that

seems to work well.

I think my mental status is better as well. At least im getting

treatment now and am on the right track.

Last month i was unable to even get that as the ins co i had refused to

pay for treatment. I am also fighting with disability to get paid while

im off work and as off Sep 1st i will lose 8 years of senority as well

as my job. When I think of how much we lose with this illness and the

time that is wasted getting it diagnosed and treated it just makes me

furious. If more docs were willing to listen to patients and rely on

our ability to know when there is something wrong

alot of us would not be in the position we are in right now. I hope all

is going well for you and the ivs help.Take care

L(MI)

_____________________________________________________________

[Guest guest]

In a message dated 99-05-15 19:32:59 EDT, you write:

<< he blood cultures are a seperate test from the ELISA and Western Blot.

Ive had 5 of both and they are all positive. (But i dont have Lyme

according to the other docs that saw me. These were all false

positives) The cultures are done by putting samples of my blood into a

sterile container and then after a period of time seeing what grows. >>

Hi , That blood culture tests sounds really interesting. Do you know if

they have a name for them or how I could get my Doctor to do that on me. I

always wanted to try and isolate this bug and I could never find a culture

test availabe to do this. How are you doing now on the more diluted solution.

Are you still feeling like your herxing. Do you still have a fever? Have you

ever been treated for co infections like babesia and erlichia. I amnow on

Mepron for the babesia which I just tested postive for last week. Please let

me know any info you have about the culture tests or e-mail me the name of

your Doctor who preformed them. Hope you are feeling better in no time. God

Bless You! -Val

[Guest guest]

--- Memyo@... wrote:

> From: Memyo@...

>

>

> Hi

> Please also let me know the name of the culture

> tests or e-mail me the name

> of the doctor who performed them.

> best,

> lea

>

>

> Please let me know any info you have about the

> culture tests or e-mail me

> the name of

> your Doctor who preformed them. Hope you are feeling

> better in no time. God

> Bless You! -Val

>

> Val and Lea-

The cultures my LLD did are just called blood cultures. I will ask him

if he specified any thing particular but i dont think so. What state

are you in?

Im in Michigan. There is only a few LLDs here and I am very lucky to

have found mine. He is not only a wonderful doc but also a very caring

patient person. Every appt we have spent no less than 45 mins

discussing my treatment concerns and anything else i feel i need to

talk about. In fact he wants to test my daughter the next time I go in

as she has a few suspicious symptoms. Will let you know after i call

tomorrow on what your doc needs to ask for.

L(MI)

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[Guest guest]

,

I've had the same level of fever on & off for about 2 years now. But I only

have it in the afternoons & evenings. Mornings, my temp is normal, 98.6 or

thereabouts. I also don't take anything to bring it down. It is annoying

though. Here in Florida it's hot enough without having a fever! And no

winter to look forward to.....LOL

The last few weeks I've been getting day sweats REALLY bad.....half an hour

after I take a shower I am DRIPPING...even after coating myself with half a

bottle of baby powder......and that's INSIDE the house with the A/C on!

Also, I've noticed that I have more cramping, muscle and joint stiffness/pain

than I had become accustomed to when I first get up. My husband thinks it's

because we recently got a puppy and taking him for his walks is more

(regular) exercise than I've done in a long time.

Could it be a herx (I've never had one that I know of) or just new/worsening

symptoms? How do you tell the difference?

In a message dated 5/17/99 9:40:40 AM Eastern Daylight Time, lclott@...

writes:

> I still have the fever. Runs between 99and 100 nonstop.

> Im not taking anything to bring it down because i know the little bugs

> dont like high temps. Not that that is high but compared to my normal

> of 97 its like a heat wave to them. I also am NOT tolerating heat at

> all. It was about 80 here yesterday and i felt like it was 180.

> Could be a long summer. That was one of my symptoms last summer too.

> Was glad when winter came and it got cold. LOL.

[Guest guest]

Thanks , I will try and ask my Doc if he could get this kind of test

done.

Aside from your fevers, how are your regular symptoms. I have been IV for

three weeks and for 15 days I have been worse with fevers of 99-100 as well.

My headaches are worse I am having tremeors in my arms and legs and my knee

pains are much worse. I am starting to freak out because I am still not

getting any better. I am on IV and also Mepron and Zithromax for babesia. Who

knows what is going on. This has never happened to me before and I was on IV

five years ago. I will see my Doctor today and let you know what happens. Let

me know how you are doing. Feel better-Val

[Guest guest]

--- ValP74@... wrote:

> From: ValP74@...

>

> In a message dated 99-05-15 19:32:59 EDT, you write:

>

> << he blood cultures are a seperate test from the

> ELISA and Western Blot.

> Ive had 5 of both and they are all positive. (But i

> dont have Lyme

> according to the other docs that saw me. These were

> all false

> positives) The cultures are done by putting samples

> of my blood into a

> sterile container and then after a period of time

> seeing what grows. >>

>

> Hi , That blood culture tests sounds really

> interesting. Do you know if

> they have a name for them or how I could get my

> Doctor to do that on me. I

> always wanted to try and isolate this bug and I

> could never find a culture

> test availabe to do this. How are you doing now on

> the more diluted solution.

> Are you still feeling like your herxing. Do you

> still have a fever? Have you

> ever been treated for co infections like babesia and

> erlichia. I amnow on

> Mepron for the babesia which I just tested postive

> for last week. Please let

> me know any info you have about the culture tests or

> e-mail me the name of

> your Doctor who preformed them. Hope you are feeling

> better in no time. God

> Bless You! -Val

>

> Val-

Sorry it has taken so long to answer. I dont think i responded to this

post but if i did sorry for the repeat. Im pretty foggy these days. As

far as the blood cultures mine were done at GynSys Inc. The phone

number is (630)906-0011. Maybe you or your doc can call and ask for the

specific name of the test. My doc just said it was blood cultures and

he specifically asked for them to check for B.burgdoferi. The paper i

have has a list of things on it and Babesiosis is one and it wasnt

checked so guess i am neg for that.

I still have the fever. Runs between 99and 100 nonstop.

Im not taking anything to bring it down because i know the little bugs

dont like high temps. Not that that is high but compared to my normal

of 97 its like a heat wave to them. I also am NOT tolerating heat at

all. It was about 80 here yesterday and i felt like it was 180.

Could be a long summer. That was one of my symptoms last summer too.

Was glad when winter came and it got cold. LOL.

Hope this helps. I know my doc is planning on doing the cultures every

4 weeks to see progress and says i will be on abx until i get 2 neg

ones 4 weeks apart and be without symptoms for that time as well.

Take care. L(MI)

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[Guest guest]

--- Memyo@... wrote:

> From: Memyo@...

>

> In a message dated 5/15/99 7:33:04 PM Eastern

> Daylight Time, lclott@...

> writes:

>

>

> Hi

> good luck with everything; do you know by chance how

> this test differs from

> the one recently developed?

> thank you

> lea

>

> Lea-

Guess Im not sure what test you are talking about. What is the name of

the one developed? Blood cultures themselves have been used

for years to determine what type of infection a person has. Alot of

times they will be done after surgery if an infection occurs. They are

called Culture and sensitivitys and will tell the type of bacteria as

well as the drugs that the bug is most sensitive to so that the best

antibiotic can be used to kill it. You can also culture samples of

tissue for the same information.

Hope this helps. Let me know about the test. I like to be

armed with all the info I can.

Take care L(MI)

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[Guest guest]

In a message dated 5/17/99 9:51:34 AM Eastern Daylight Time, FIG4159@...

writes:

<<

The last few weeks I've been getting day sweats REALLY bad.....half an hour

after I take a shower I am DRIPPING...even after coating myself with half a

bottle of baby powder......and that's INSIDE the house with the A/C on!

Also, I've noticed that I have more cramping, muscle and joint

stiffness/pain

than I had become accus >>

,

The say thing happend to me. After the shower I would get BAD sweats. So

bad I couldn't bare to blow drive me hair. Since I had 9 weeks of Mepron/

Zithromax It is 95% better. Have you ever been tested for babesia?

Take care,

[Guest guest]

sounds like the PCR test to me.....

Reid

[Guest guest]

, i just read your message about the sweating and stuff while on

Mepron and Zithro. I remember you saying that you herxed for like three weeks

on the Mepron and I was wondering what your symptoms were associated with

this herx. I have been on the Mepron/ zithro now for one week and since the

fourth day I have been getting fevers of 99-100 all the time. I get flushed

and sometimes have the chills for a few minutes but I have not had a fever in

5 years. Can you please let me know what your experiance was. Feel better -Val

[Guest guest]

:

I was tested for babesia and erlichiosis twice but I haven't gotten the

latest results yet. I was negative before, and I don't expect that to

change. I've been infected for a LONG time but I didn't get sick until

January '98. Don't have any hair to blow dry, LOL - it's REALLY short.

Jul

In a message dated 5/17/99 3:16:03 PM Eastern Daylight Time,

Prinny328@... writes:

> The say thing happend to me. After the shower I would get BAD sweats. So

> bad I couldn't bare to blow drive me hair. Since I had 9 weeks of Mepron/

> Zithromax It is 95% better. Have you ever been tested for babesia?

[Guest guest]

In a message dated 5/17/99 9:59:29 AM Eastern Daylight Time, lclott@...

writes:

> Guess Im not sure what test you are talking about. What is the name of

> the one developed? Blood cultures themselves have been used

> for years to determine what type of infection a person has. Alot of

> times they will be done after surgery if an infection occurs. They are

> called Culture and sensitivitys and will tell the type of bacteria as

> well as the drugs that the bug is most sensitive to so that the best

> antibiotic can be used to kill it. You can also culture samples of

> tissue for the same information.

> Hope this helps. Let me know about the test. I like to be

> armed with all the info I can.

> Take care L(MI)

> -----------------------------

Hi

It is the one that should be coming out this summer; don't know much about it

but you can try dejanews at sci.med.diseases.lyme phillips and hope you can

learn more about it. sorry can't be more help.

lea

[Guest guest]

In a message dated 5/17/99 4:00:57 PM Eastern Daylight Time, ValP74@...

writes:

<< ng and stuff while on

Mepron and Zithro. I remember you saying that you herxed for like three

weeks

on the Mepron and I was wondering what your symptoms were associated with

this herx. I have been on the Mepron/ zithro now for one week and since the

fourth day I have been getting fevers of 99-100 all the time. I get flushed

and sometimes have the chills for a few minutes but I have not had a fever

in

5 years. Can you please let me know what your experiance was. Feel better

-Val

------------------------------------------------------------------------ >>

Val,

The herx sounds very similar to mine. Actuallt almost identical. The

sweats, flushing, fevers, and chills inmproved dramancially after the

treatment.

[Guest guest]

--- Memyo@... wrote:

> From: Memyo@...

>

> In a message dated 5/17/99 9:59:29 AM Eastern

> Daylight Time, lclott@...

> writes:

>

>

> Hi

> It is the one that should be coming out this summer;

> don't know much about it

> but you can try dejanews at sci.med.diseases.lyme

> phillips and hope you can

> learn more about it. sorry can't be more help.

> lea

>

> Hi Lea-

Thanks for the site onfo. I will check it out when im done here. Will

let you know what i find out.

L(MI)

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[Guest guest]

--- ValP74@... wrote:

> From: ValP74@...

>

>

>

> Thanks , I will try and ask my Doc if he could

> get this kind of test

> done.

>

> Aside from your fevers, how are your regular

> symptoms. I have been IV for

> three weeks and for 15 days I have been worse with

> fevers of 99-100 as well.

> My headaches are worse I am having tremeors in my

> arms and legs and my knee

> pains are much worse. I am starting to freak out

> because I am still not

> getting any better. I am on IV and also Mepron and

> Zithromax for babesia. Who

> knows what is going on. This has never happened to

> me before and I was on IV

> five years ago. I will see my Doctor today and let

> you know what happens. Let

> me know how you are doing. Feel better-Val

>

> Hi Val-

The fevers are still with me. I am so hot and am not tolerating the

heat well just like last summer. My other symptoms are also starting to

get worse. The fogs and general aches are getting really bad. The only

thing i have noticed that is better is that im not having the severe

back pain that i was having on the Amoxicillin. The first dose of

Rocephin seemed to just melt that away. It was strange. I can almost

walk normally now. I am having the HOT burning feet and have had a

headache trying to hit for the last few days. Think it is about to get

the best of me. Starting to make me a little queasy now. I am also alot

more off balance than i was. That and the shakes and leg and arm

jumping is getting worse. Im sure this is the great HERX ive been

wanting to have for the last month. Took that long to get treatment

from the Ins. Co.

How are you doing? Hope you are feeling better. And I hope your doc

will do the cultures. My lawyer thinks it is enough to file suit

against the other docs so must be it holds some weight.

Take care.

L(MI)

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[Guest guest]

--- FIG4159@... wrote:

> From: FIG4159@...

>

>

> and joint stiffness/pain

> than I had become accustomed to when I first get up.

> My husband thinks it's

> because we recently got a puppy and taking him for

> his walks is more

> (regular) exercise than I've done in a long time.

>

> Could it be a herx (I've never had one that I know

> of) or just new/worsening

> symptoms? How do you tell the difference?

>

>

> -

I am assuming that im having a HERX and sounds like you are having the

same kind of symptoms so i would guess yours is to. My LLD thought it

was a HERX also with me. Guess all we can do is hope that that is what

we are having. I keep trying to think of it as being one step closer to

feeling better. Kind of like labor. Each contraction is one step closer

to delivery. LOL

I know i am making life rough for everyone around here. Im pretty

grumpy.

Take care Let me know how you are doing.

L(MI)

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[Guest guest]

In a message dated 5/17/99 10:07:48 PM, Prinny328@... writes:

<<Val,

The herx sounds very similar to mine. Actuallt almost identical. The

sweats, flushing, fevers, and chills inmproved dramancially after the

treatment.

>>

,

Thanks for the info. when you say after the treatment, do you mean after you

stopped it or sometime during it? sorry to be so technical and annoying.

Feel better -Val