Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 brookes, i dont know about the " law " in your state, but here in CA, i am my PA's boss (Even though the state pays them) they do what i want, and even though the in home support agency has their little rules--such as im only sapposed to use my attendant in my house---the agency wont cut my hrs or cut me off if i use them for school, going out etc (and the agency doesnt have to know specifics). do you think part of the reason is that you live at home, your family is very protective, and since these nurses have been w/ you for awhile then they feel they need to " hover " over you to please your family?..does your state allow you to have regular PA's--or do they have to be " nurses " ?---maybe a regular PA thats well trained could still help you with your needs but not be so caught up in the medical aspect of your disability.....i think if you were able to live in a dorm or in your own place, it might be easier to set your own rules---the nurses arent your parents and your over 18. maybe hire a new set, and " Re-train " how youd like. lauren MsBYGthoughts@... wrote: Hey Everybody, I've had nursing going on six yrs, and for reason I'm wanting a different source of caregivers. Since I turned 18 (I'm 19 now) I'm like a butterfly who needs to spread her wings! Yes the nurses r convenient to have but I feel like I'm restricted. The agency won't let them drive me anywhere due to liability, so we have to call the handy bus the day before. They also can't leave me alone that long, like I'm gonna die if they do. There's just to many damn rules and regulations, I hate it! I want to be free spirited, do what I want, when I want. How do u yall deal w/ this ? ~s, GRADUATE of Class 2002~ " Challenges are what make life interesting; overcoming them is what makes l ife meaningful. " - J. Marine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 On 22 May 2002, at 19:17, MsBYGthoughts@... wrote: > Hey Everybody, > I've had nursing going on six yrs, and for reason I'm wanting a different > source of caregivers. Since I turned 18 (I'm 19 now) I'm like a butterfly > who needs to spread her wings! Yes the nurses r convenient to have but I > feel like I'm restricted. The agency won't let them drive me anywhere due to > liability, so we have to call the handy bus the day before. They also can't > leave me alone that long, like I'm gonna die if they do. There's just to > many damn rules and regulations, I hate it! I want to be free spirited, do > what I want, when I want. How do u yall deal w/ this ? Hi s We briefly talked about this a while ago, sorry to hear things haven't got any better I totally understand why you want to spread your wings, you're a young woman, you need to start experiencing the world. Do you know why you have nurses rather than PA's? If the money's there to pay for care then I can't see why you can't change. TuftySue Wanna E Me? sue@... Wanna See Me? http://www.tuftysue.co.uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 In a message dated 5/24/02 11:20:58 AM Eastern Daylight Time, tuftyone@... writes: > Do you know why you have nurses rather than PA's? If the > money's there to pay for care then I can't see why you can't > change. > Well Medicaid pays for my nursing, they get $16-$18 hr. I wish I could get some of that money for a caregiver. I asked my dr about switching, and he said he'd rather my caregivers be over qualified then under qualified. Then I'm thinking, I have nurses ask me " If I had to do CPR on u, how would I do it w/ ur chest the way it is? " ~s, GRADUATE of Class 2002~ " Challenges are what make life interesting; overcoming them is what makes l ife meaningful. " - J. Marine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi, : What an idiot! And what the hell does a weight issue have to do with hep C? Yeah, we'd all be healthier if we could lose excess weight, but that has nothing to do with hep C treatment! And, in any case, 500 calories a day is truly a starvation diet. I'd like to see Dr. Worthless stay on THAT for a week! Regards, [ ] Alternative help Hi to all: I wanted to share with all that are interested. The first doctor that was supposed to be a specialist in the field of Hep C turned out to be a jerk. He first told me that I was "Morbidly Obese," and that he wouldnt consider treatments until I went on a 500 calorie diet. Little does he know that we need all the energy we can get. I went back to my regular medical doctor and told him what he said. He was kind enough to write the RX for treatments for me. I expect to get my ID number by the end of the month. Until then, there are some things that you can do to help stay as healthy as possible. One thing I do is take Milkthistle. It really makes a difference in your liver functions. I take B12 for energy, Lecithin, and selenium. It all helps to live as normal as possible. I dont eat red meat because it is hard for the liver to break down. Added Iron is a no no and so is vitamin A. Vitamin C is hard for me to find that doesnt have oranges in it and I am allergic. Any doctor that says milkthistle doesnt work is whacky. I was diagnosed in 1994 and milkthistle has kept me from developing cirrosis. This was confirmed via biopsy. I dont drink alcohol or soda or coffee, but I love my tea. Vegetables and most fruits are good too. I hope this helps anyone that had questions. DONT trust any online quick fixes. Love in Christ Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Well being a "fatty" myself - the weight COULD impact the Hep C because usually if you're very much overweight (talking about myself here) you're eating too much high-fat, fried food, and we all know that's not good for us Hep Cats! But still the doctor's attitude sucks! [ ] Alternative help Hi to all: I wanted to share with all that are interested. The first doctor that was supposed to be a specialist in the field of Hep C turned out to be a jerk. He first told me that I was "Morbidly Obese," and that he wouldnt consider treatments until I went on a 500 calorie diet. Little does he know that we need all the energy we can get. I went back to my regular medical doctor and told him what he said. He was kind enough to write the RX for treatments for me. I expect to get my ID number by the end of the month. Until then, there are some things that you can do to help stay as healthy as possible. One thing I do is take Milkthistle. It really makes a difference in your liver functions. I take B12 for energy, Lecithin, and selenium. It all helps to live as normal as possible. I dont eat red meat because it is hard for the liver to break down. Added Iron is a no no and so is vitamin A. Vitamin C is hard for me to find that doesnt have oranges in it and I am allergic. Any doctor that says milkthistle doesnt work is whacky. I was diagnosed in 1994 and milkthistle has kept me from developing cirrosis. This was confirmed via biopsy. I dont drink alcohol or soda or coffee, but I love my tea. Vegetables and most fruits are good too. I hope this helps anyone that had questions. DONT trust any online quick fixes. Love in Christ Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Natural foods?? Exercise?? Not me..I feel I do enough already and don't want to exercise I get tired watching someone exercise.. Quote Link to comment Share on other sites More sharing options...
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