Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 I posted this on another group and I think I see some same names here so I thought I should explain why it's at both places. But it is acurate for both groups. If I remember correctly when I joined here the board was very slow and everyone seemed to know on another rather well and I didn't really feel llike I fit in. So now I'm back, sounding pretty silly to myself......... I keep telling the Dr.s etc that I'm not thinking like I used to, but they don't seem concerned, of course they didn't know me before. I was hoping ot meet others who can relate to what I'm feeling or to at least see if it's me being an annonaly or if this is typical. Has anyone else seemed to suffer from their thinking processes being slowed? Or have I just become stupid all on my own? >G> Kay Hi, I haven't been deeping up with the posts on here for a quite a while. Actually, I can't even remember the last time I checked it out here. Sooooo, please excuse me if you've all had this up for conversation before but I really need some advice I can only get from other Peg users. The only support group anywhere near me is really too far for me to get to at night (when they meet). So here goes........I spoke to the RN in charge of my case several days before Christmas and he told me that I could skip a few shots to give myself a break. The fatique and all is just too depressing. While on the phone he pulled out my last blood work and said he had really good news for me, that the virus was not being picked up on the last test. But then he said something to the effect that I needed another test done that looks more closely for the virus. Anyone know what that would be? And, I never did the Ribavarin (sp?), and now that I'm going to stop the Peg at least for a month, can anyone tell me how long it would take for me to feel the effects of NOT having Peg in my system? I am stage 4 Dr Child's level B or C, they have been very hazy on this point with me, whicn of course makes me suspicious. After the first few weeks on Peg the side effects changed to things like hair loss instead of that wicked flu type stuck in bed for 2 days crap. And my last big question is something that's been bothering me for some time now, really bothering me a lot!. Years ago I had a Dr who said I had auto immune and hep c, he had me on steroids and Immuran for 17 1/2 years. He used to look at my finger tips all the time and told me that they would blunt out when the diease progressed to the no reversal stage. I switched Dr.s since that first one had some personal crisis and seemed to me to be going off his rocker (me and many hospital staff), anyway my finger tips are now blunting and I'm really getting scared. Was he right? Do I still have some other hep? like auto immune - or whatever they're calling it these days? I would so appreciate if someone could please help me out with these questions. I'm not in a very good state of mind of late. My mail is jetticus@y... and I will check this board daily for awhile. Kay Quote Link to comment Share on other sites More sharing options...
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