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Re: Digest Number 90

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sensitivity to heat, light and cold are all symptoms of hep that are now

being recorded. don't know about the combo therapy though.

hope you do great!

talyne

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  • 4 months later...

KRIS,

Barbra Brabec has a great book about starting your own craft business and she

addresses soap too. She talks about taxes, forms, and lots of great info. i

think its called " How to make cash from crafts " I got mine at and

Noble.

Good luck I'm right behind you!!

Nanc

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Hi

I hope this won't get me in trouble.. BUT I am looking for soapers to make

me soap. I started a biz making glycerin soap and things are getting BIG! I

got a new client yesterday The tt at Newark air port. I am looking for

people that want to manufacture glycerin soap and ship to me. I do all

labeling and packaging myself. I want unusual bath products as well. If you

make the glycerin loaves with fun stuff inside when you slice it,, I wanna

hear from you.

This week has been UNREAL! 6 stores and a hotel,, I cannot make this all

myself..I am getting freaked out. Any help is greatly appreciated. E mail me

privately for further info and address to send me a catalog or brochure.

Thanks,,again sorry if this is not allowed but I have no idea where to turn

for help,, YIKES!

Ellen

www.sweetsoaps.com

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  • 5 months later...
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,

I used to live near Chicago (Round Lake), where do you live? We live in Hawaii

now (I know, big difference!). when we lived in Round Lake, I was divorced from

's dad (we remarried almost 2.5 years ago), and it was rough. That was

before started showing signs of autism (he was only 2-3 at the time). I

thought they did have a good early intervention program in Waukegan, though.

Loriann

Wife to Dewight (2nd time around)

Mom to , 9.10 years, DS-ASD, ADHD, ODD

and , 9 months

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Beth, This is (a.k.a. the Lurker) answering some of your questions

about my adult son . He lives on the campus of a large congregate care

facility. The campus is beautiful with housing ranging from independent

apartments and group homes to the appartment units lives in where there is

more intense suppervision. We chose this setting because we feel might have

more independence in a contained community with good supervision. Still, a large

facility is a large system and everyone knows what that is like, weather it's a

school system or whatever. goes to what they call a day program. He has

several jobs which he doesn't always do for various reasons. He has a very

caring instructor who struggles with the limitations of the system sometimes

very creatively. paints, swims, trains in self help skills. Some days I

feel he has a good life and some days I feel guilty that he is not at home or

elsewhere in the community. He communicates with one to three words, some signs,

alot of mime and expression. We use photo calendars and are starting Activity

Schedules. As I said before he has been on a lot of medications but is off

everything now and yes often the medications appeared to help at first but then

some times even seemed to aggravate him later. We still consider Risperdol

though at present we are working on developing Positive Behavior Support type

perspective with the staff as well as continuing education, work and

communication projects we keep working on. I work with families at the clinic

who tell stories that sound a lot like mine. Our children often have similar

problems to deal with concerning communication, behavior, etc.. So, it wouldn't

surpise me if autism or an element similar to it isn't part of the puzzle for

many of the adults who are struggling. I am always impressed with the challenges

my son faces daily. I call him the Budda because he is always teaching me but

never sees himself as the teacher. Thanks for the info on Medscape. I already

registered. If Margret is reading this, my last name is Cornell not the town I

live in. I actually live in Illinois, your home state, in a small town just

outside Chicago.

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In a message dated 3/27/00 1:21:17 PM Central Standard Time,

karen.cornell@... writes:

<< I actually live in Illinois, your home state, in a small town just

outside Chicago. >>

I am in Naperville -- where are you?

Maureen

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  • 6 months later...

I, too, received my last AICD in December, 1997. It was my third and it's still

going

strong. I also have a pacemaker. They both pace over 90% of the time. I

thought I

was " feeling " the pacing and it turns out that what I feel is NONpacing : o)

I

haven't asked lately how much more life they think it has. Guess I don't really

want

to know.

With the last implant the Dr. tried to place it in the upper right area of my

chest.

When he tested it, it didn't revive me and I had to have extreme external shocks

3x.

The next day they replaced the ICD in the abdonimal area and anchored wiring in

the

upper-right area of the chest. About 7-8 weeks later the wires pulled out of

where

they had been placed and I started receiving multiple shocks. Nine of them

occurred

simultaneously when I was in a small hospital where they had no idea what to

do--asked

them to use the magnet to stop them but they wouldn't. The Dr. who was caring

for me

there was not available and they finally transported to a larger teaching

hospital

where they determined what was the cause and repaired the work.

The happy ending to all of this is that I haven't had a shock since that work

was

done! Prior years I was being shocked on a pretty regular basis. (I really

lost

count on the number of times. I'm so thankful to be here, enjoying a good life

and

listening to others who have learned to cope and support one another. Stay

healthy,

everyone, and lets keep smilin'.

Sue

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  • 11 months later...

Thanks Diane! I went to digest mode so that the mail doesn't hit the 1000 emails that AOL allows. LOL Had to do it. Speaking of exhaustion, I just think about work and it makes me tired. Standing up for 6 hours a day, running back and forth between customers, is great exercise but way different than sitting on my fanny 8 hours a day. I got me some Rockport walking shoes and that does seem to help some. Hello everyone! I'll try to stay more current, at least for the few days I can. LOL

Always,

SJ

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  • 1 month later...

Hello Helen, my name is .My 10 year old daughter has this problem too and we live in England, and use the NHS.Everyone has given you good advice,this is a dangerous condition and surgery is the only option.With such minor symptoms you were really very lucky that the disease was discovered, because the cyst just grows and grows,eroding and infecting everything in its path.Ive read lots of histories, and it does seem that for many the problem is discovered and dealt with, but for others ,the problem recurs, or there are other pproblems.Mastoidectomy makes the ear cavity bigger,it is more susceptible to infection, and infection can be more difficult to clear.Altho surgery is unavoidable, alternative therapy might be useful in the treatment or prevention of infection.I would love to take to a homeopath, and I have heard from various sources that reflexology is effective with ear problems,but my husband and daughter are deeply sceptical..Recovery from the surgery depends on the procedure, and theextent of the cholesteatoma. has not experienced dizziness afterwards, but she has had infections.We were told to keep off school for 3 weeks, but American sufferers seem to get going nuch quicker.BEST OF LUCK p.s. hello everyone, still has pain and discharge and there is some concern that the graft has failed.She is going into hospital on monday so that her consultant can take a proper look under anaesthetic.HE SEEMS AS FRUSTRATED AS US BCOS THE OPERATION IN jULY WENT SO WELL, THAT HE WAS SURE IT WOULD BE AN ENDING.OOPS excuse capitals ,Im not shouting tho I feel like it.Please wish us luck ,.

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Hello everyone

Thanks for all your advice. I'm feeling a bit more positive today. I

think I've been in denial since being diagnosed on Monday. I was

adamant that I didn't want to go through the surgery. Now I have to

accept the fact that 2 surgeries are going to happen in the next 6

months. I now have to concentrate on keeping myself healthy and

balanced and to make sure that this awful disease is not going to

come back. Reflexology is something that I am going to try.

I see the private consultant on Thursday 8 Nov. Until then, I am

going to try and get on with my life and not dwell on this too much.

Take care everyone

Speak soon

Helen

x

> Hello Helen, my name is .My 10 year old daughter has this

problem too

> and we live in England, and use the NHS.Everyone has given you good

> advice,this is a dangerous condition and surgery is the only

option.With such

> minor symptoms you were really very lucky that the disease was

discovered,

> because the cyst just grows and grows,eroding and infecting

everything in its

> path.Ive read lots of histories, and it does seem that for many the

problem

> is discovered and dealt with, but for others ,the problem recurs,

or there

> are other pproblems.Mastoidectomy makes the ear cavity bigger,it is

more

> susceptible to infection, and infection can be more difficult to

clear.Altho

> surgery is unavoidable, alternative therapy might be useful in the

treatment

> or prevention of infection.I would love to take to a

homeopath, and I

> have heard from various sources that reflexology is effective with

ear

> problems,but my husband and daughter are deeply sceptical..Recovery

from the

> surgery depends on the procedure, and theextent of the

cholesteatoma.

> has not experienced dizziness afterwards, but she has had

infections.We were

> told to keep off school for 3 weeks, but American sufferers

seem to get

> going nuch quicker.BEST OF LUCK

> p.s. hello everyone, still has pain and discharge and there

is some

> concern that the graft has failed.She is going into hospital on

monday so

> that her consultant can take a proper look under anaesthetic.HE

SEEMS AS

> FRUSTRATED AS US BCOS THE OPERATION IN jULY WENT SO WELL, THAT HE

WAS SURE IT

> WOULD BE AN ENDING.OOPS excuse capitals ,Im not shouting tho I feel

like

> it.Please wish us luck ,.

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,

I'm so sorry to hear that is still having problems.Hopefully it

won't be anything serious. Good Luck and God Bless. Please keep us

posted.

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

> p.s. hello everyone, still has pain and discharge and there

is some concern that the graft has failed.She is going into hospital

on monday so that her consultant can take a proper look under

anaesthetic.HE SEEMS AS FRUSTRATED AS US BCOS THE OPERATION IN jULY

WENT SO WELL, THAT HE WAS SURE IT WOULD BE AN ENDING.OOPS excuse

capitals ,Im not shouting tho I feel like it.Please wish us

luck,.

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  • 6 months later...
Guest guest

Speaking of the Dr. R and Dr Fox connection. If your insurance company wants

an American doctor to do the billing, Could one go through Dr. Fox (billing)

but still get Dr. R to actually do the procedure? In other words it would be

like Dr R subcontracts the procedure from Dr Fox who actually bills the

insurance company. If not, Why is anyone paying Dr Fox the extra thousand

dollars or so when they could just as easily do it all on their own (with

help from the Bandster Community of course(:>)? Any thoughts?

Dave (pre band)

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