Guest guest Posted November 23, 1999 Report Share Posted November 23, 1999 Vicki, I couldn't help but feel overwhelming compassion when I read your post. I know it probably doesn't matter much, but you are not alone in the way you feel. I too, am very frightened having this horrible disease. Just the other day, I was talking to a lyme friend. I told her that when I looked in the mirror, that I did not see myself any more. I feel like I have bcome lost somewhere inside myself. I know I do not have all the answers but one thing I do know is.........God is in control. We all need to pick a certain time a day to agree in prayer. Unity can move mountians. We can pray protection for our doctors and for a Wake up call in Washington. God says we receive not because we ask not.....I will join with you in prayer for these things and a comeplete healing for all of us. Faith is a weapon that has been given to us by God. So let us put our faith in Him and hang in there to the very end.......Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 1999 Report Share Posted November 23, 1999 - thank you, thank you, thank you. This is a horrible nightmare and I also realize that for me God is the only one who has got me this far. I have witnessed the strength of prayer in many situations. Let's set that time and get things going. I'm with you also. Write me again and we'll devise something.. I know only too well about looking in the mirror - it is not me - it hasn;t been me for so long - I pray that you too will find your answers - soon. Love Vicki S, NJ [ ] re:My story Vicki, I couldn't help but feel overwhelming compassion when I read your post. I know it probably doesn't matter much, but you are not alone in the way you feel. I too, am very frightened having this horrible disease. Just the other day, I was talking to a lyme friend. I told her that when I looked in the mirror, that I did not see myself any more. I feel like I have bcome lost somewhere inside myself. I know I do not have all the answers but one thing I do know is.........God is in control. We all need to pick a certain time a day to agree in prayer. Unity can move mountians. We can pray protection for our doctors and for a Wake up call in Washington. God says we receive not because we ask not.....I will join with you in prayer for these things and a comeplete healing for all of us. Faith is a weapon that has been given to us by God. So let us put our faith in Him and hang in there to the very end.......Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Hi nne, Welcome to our group, I live in NJ, not too far from PA. Sounds as if you got bit in Mexico, never met anyone with a bite from there, but I know plenty of Lyme disease is there. Your search for treatment is so familiar, many of us see 5 or more doctors before we get a firm diagnosis. What a shame that you knew so little about LD and the bullseye rash when you were bitten, we really need to inform the public more about the signs of this disease, sadly because you did not receive immediate treatment for your tick bite, you are one of us. I am so happy your PCR's turned up positive, I never had one yet, after almost four years with this disease. I guess all the abx I have taken through the years, don't know for sure why, but I vividly remember removing my tick, and all my problems began there. Sorry about your argument with your HMO, Lyme disease is not considered a specialty and if the doctor you are seeing is not on your list of approved doctors you are pretty much out of luck. Any chance of changing insurers??? I had to do that to see my LLMD, took me six months to see him as I had to wait to change the insurance, but fortunately I had found a very understanding primary who did give me abx (antibiotics) in the meantime. Unfortunately they were not the right kind, turns out I had Human Monocytic Ehrlichiosis, and doxy is the drug for that, I could have died, and believe me I felt like I was, yet one of the idiot infectious disease doctors I saw in the meantime, said I needed psychiatric care. Good for you writing to your elected officials, we need them to understand how severe this disease is. Yesterday about 100 people with Lyme went to Washington to try to educate some of them, I hope it helped. Again, welcome to our group, I hope you like us, we are a pretty good group, very supportive. Hugs, Marta From: Bianca <bigpapa@...> >Hi everyone! > >I recently joined lyme-aid and figured out it was time to introduce >myself and my story. I am from Pennsylvania. Almost a year ago, while >in Mexico, I noticed a bulls-eye rash on my left forearm. I was >uneducated on lyme at the time, so I dismissed it. I went on with the >trip. A week of returning I had a flu like illness, swollen glands, >stiff neck light sensitiveity etc. I did not remember the rash and it >was gone now. > >Months passed. I kept having sore throats, swollen glands etc. My >doctor sent me to everyone. I have seen 9 different doctors. I live in >an area with a teaching hospital. I was told that we did not have lyme >here and that it is overdiagnosed. I have been told I had chronic >fatigue, lymphoma, fibro, anxiety disorder, you know the story. >Finally, I began to do research on my own. I have family members with >Lyme. I had a few WB " s and . Both came back negative, numerous >times. I kept researching, lyme net etc. I finally posted a note and >someone gave me the name of a LLMD. I went to him. I did a LYME PCR >and a test for babesiosis. Guess what I have both. I have finally >started treatment and am feeling a little better. I think the protocol >my doctor is using for the babesiosis has worked. Praise the lord! I >can turn my head. I am so grateful for the woman who gave me that >doctors name. > >So now I sit and wait to feel " whole " again. I have written to every >political official I could and anyone else that would listen. I am >currently fighting with my HMO to get them to cover my LLMD. They are >denying it! Anyone, have any ideas! Anyway, I wrote enough. Thank you >for creating such a resource. I would never had been able to get the >help that I did without places like this! Thank you! > >nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 Hi nne, Welcome to our group, I live in NJ, not too far from PA. Sounds as if you got bit in Mexico, never met anyone with a bite from there, but I know plenty of Lyme disease is there. Your search for treatment is so familiar, many of us see 5 or more doctors before we get a firm diagnosis. What a shame that you knew so little about LD and the bullseye rash when you were bitten, we really need to inform the public more about the signs of this disease, sadly because you did not receive immediate treatment for your tick bite, you are one of us. I am so happy your PCR's turned up positive, I never had one yet, after almost four years with this disease. I guess all the abx I have taken through the years, don't know for sure why, but I vividly remember removing my tick, and all my problems began there. Sorry about your argument with your HMO, Lyme disease is not considered a specialty and if the doctor you are seeing is not on your list of approved doctors you are pretty much out of luck. Any chance of changing insurers??? I had to do that to see my LLMD, took me six months to see him as I had to wait to change the insurance, but fortunately I had found a very understanding primary who did give me abx (antibiotics) in the meantime. Unfortunately they were not the right kind, turns out I had Human Monocytic Ehrlichiosis, and doxy is the drug for that, I could have died, and believe me I felt like I was, yet one of the idiot infectious disease doctors I saw in the meantime, said I needed psychiatric care. Good for you writing to your elected officials, we need them to understand how severe this disease is. Yesterday about 100 people with Lyme went to Washington to try to educate some of them, I hope it helped. Again, welcome to our group, I hope you like us, we are a pretty good group, very supportive. Hugs, Marta From: Bianca <bigpapa@...> >Hi everyone! > >I recently joined lyme-aid and figured out it was time to introduce >myself and my story. I am from Pennsylvania. Almost a year ago, while >in Mexico, I noticed a bulls-eye rash on my left forearm. I was >uneducated on lyme at the time, so I dismissed it. I went on with the >trip. A week of returning I had a flu like illness, swollen glands, >stiff neck light sensitiveity etc. I did not remember the rash and it >was gone now. > >Months passed. I kept having sore throats, swollen glands etc. My >doctor sent me to everyone. I have seen 9 different doctors. I live in >an area with a teaching hospital. I was told that we did not have lyme >here and that it is overdiagnosed. I have been told I had chronic >fatigue, lymphoma, fibro, anxiety disorder, you know the story. >Finally, I began to do research on my own. I have family members with >Lyme. I had a few WB " s and . Both came back negative, numerous >times. I kept researching, lyme net etc. I finally posted a note and >someone gave me the name of a LLMD. I went to him. I did a LYME PCR >and a test for babesiosis. Guess what I have both. I have finally >started treatment and am feeling a little better. I think the protocol >my doctor is using for the babesiosis has worked. Praise the lord! I >can turn my head. I am so grateful for the woman who gave me that >doctors name. > >So now I sit and wait to feel " whole " again. I have written to every >political official I could and anyone else that would listen. I am >currently fighting with my HMO to get them to cover my LLMD. They are >denying it! Anyone, have any ideas! Anyway, I wrote enough. Thank you >for creating such a resource. I would never had been able to get the >help that I did without places like this! Thank you! > >nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Marta, Thank you so much for the warm welcome. It is comforting to know that there are people who do understand. This disease can be so trying! I look forward in getting to know all of you! As we all know, together we can make a difference! Wishing you all a good day tomorrow! Good night all. nne Marta McCoy wrote: > Hi nne, > Welcome to our group, I live in NJ, not too far from PA. Sounds as if > you got bit in Mexico, never met anyone with a bite from there, but I know > plenty of Lyme disease is there. Your search for treatment is so familiar, > many of us see 5 or more doctors before we get a firm diagnosis. What a > shame that you knew so little about LD and the bullseye rash when you were > bitten, we really need to inform the public more about the signs of this > disease, sadly because you did not receive immediate treatment for your tick > bite, you are one of us. I am so happy your PCR's turned up positive, I > never had one yet, after almost four years with this disease. I guess all > the abx I have taken through the years, don't know for sure why, but I > vividly remember removing my tick, and all my problems began there. > Sorry about your argument with your HMO, Lyme disease is not considered a > specialty and if the doctor you are seeing is not on your list of approved > doctors you are pretty much out of luck. Any chance of changing insurers??? > I had to do that to see my LLMD, took me six months to see him as I had to > wait to change the insurance, but fortunately I had found a very > understanding primary who did give me abx (antibiotics) in the meantime. > Unfortunately they were not the right kind, turns out I had Human Monocytic > Ehrlichiosis, and doxy is the drug for that, I could have died, and believe > me I felt like I was, yet one of the idiot infectious disease doctors I saw > in the meantime, said I needed psychiatric care. > Good for you writing to your elected officials, we need them to understand > how severe this disease is. Yesterday about 100 people with Lyme went to > Washington to try to educate some of them, I hope it helped. > Again, welcome to our group, I hope you like us, we are a pretty good group, > very supportive. > Hugs, > Marta > > From: Bianca <bigpapa@...> > > >Hi everyone! > > > >I recently joined lyme-aid and figured out it was time to introduce > >myself and my story. I am from Pennsylvania. Almost a year ago, while > >in Mexico, I noticed a bulls-eye rash on my left forearm. I was > >uneducated on lyme at the time, so I dismissed it. I went on with the > >trip. A week of returning I had a flu like illness, swollen glands, > >stiff neck light sensitiveity etc. I did not remember the rash and it > >was gone now. > > > >Months passed. I kept having sore throats, swollen glands etc. My > >doctor sent me to everyone. I have seen 9 different doctors. I live in > >an area with a teaching hospital. I was told that we did not have lyme > >here and that it is overdiagnosed. I have been told I had chronic > >fatigue, lymphoma, fibro, anxiety disorder, you know the story. > >Finally, I began to do research on my own. I have family members with > >Lyme. I had a few WB " s and . Both came back negative, numerous > >times. I kept researching, lyme net etc. I finally posted a note and > >someone gave me the name of a LLMD. I went to him. I did a LYME PCR > >and a test for babesiosis. Guess what I have both. I have finally > >started treatment and am feeling a little better. I think the protocol > >my doctor is using for the babesiosis has worked. Praise the lord! I > >can turn my head. I am so grateful for the woman who gave me that > >doctors name. > > > >So now I sit and wait to feel " whole " again. I have written to every > >political official I could and anyone else that would listen. I am > >currently fighting with my HMO to get them to cover my LLMD. They are > >denying it! Anyone, have any ideas! Anyway, I wrote enough. Thank you > >for creating such a resource. I would never had been able to get the > >help that I did without places like this! Thank you! > > > >nne > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > 1/2567/5/_/484634/_/957472769/ > ------------------------------------------------------------------------ > > Send to -Offtopiconelist messages unrelated to Lyme, please. > Archives can be found at: > /group/lyme-aid. > They are filed by month, pick a month and search those archives for subjects you are interested. > Lyme chat, go to this URL: > /chat/lyme-aid > Should you have trouble opening the page, go back to / and make sure you are registered with a password. You can ask ONELIST to remember you, and will only have to do this one time. > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Hi! You are on the right track, and there is light at the other end of the tunnel. I have used ParaGone, and I do have to say that it works. Do be prepared for a die-off, which for some of us is long and painful. Mine lasted for three weeks, and I had all the symptoms that I have suffered since a little girl (mostly upper respiratory problems). This happens when the dead and live toxins are being excreted from the body. Our body reacts to them in order to preserve itself, and therefore the mucus, body odor, symptoms of infections, etc. etc, etc. At the end of the treatment, I have continued with the anti-fungals, supplements and diet. This way I am sure I am building up a healthier system. Sandy. - My Story Hi...this is my story. I am 25 years and have been diagnosed with interstitial cystitis this year. In short it is a very painful bladder disease in which the bladder is consistantly inflammed(It is like having a UTI all the time, althought unlike a UTI, interstitial cystitis is not caused by bacteria.) It is not known how you get IC and there is no known cure. It is considered possibly a autoimmune disease or a symptom of an autoimmune disease. With IC....to minimize the pain....you must follow a strict diet of low acid food and beverages, such as no fruit, no fruit juices, no tomatoes, onions etc. About a couple of months ago, my mother suggested maybe I should go to a herbalist. I had a consultation with her and she said many of my symptoms....fatigue, being in a fog, forgetfullness, constipation, weight gain, blurred vision etc. seemed like the symptoms of yeast overgrowth. At first I really thought I was wasting my time and money when she told me this....but I thought I might as well try it....I have nothing to lose. I got the herbs and the first couple of days I was sooooo tired, more tired than I usually was anyway. On the third day it was soooooooo amazing.....I woke up feeling like a completely different person. I had energy and I was no longer in that fog. In the meantime, my husband and I were selling our house and my diet was not very good at the time, a lot of stress, and one night out on the town drinking did not agree with me....and I found myself back to feeling so bad again. I had a taste of life for a week and here I was back to feeling trapped in a body that did not want me to live. I continued taking the herbs for the rest of the month hoping for the best, but to no avail. That is when I decided to do some research and find out what natural anitfungal medications to take. In the meantime I knew garlic was an antifungal so I decided until I can finish my research I stuck with the garlic for about 5 days....and I noticed the fog was coming and going...so I knew I was on the right track. A week ago, I found Paragone....an antifungal and parisite internal cleansing system in a health food store. I have been a a complete diet consisting of no dairy, no sweets, no complex carbs, all organic foods, I have found everything I needed at a local health food store. For instance....instead of sandwiches.....I will have sliced turkey or chicken rolled up in lettuce with a dressing I found at a health food store that contains no vinegar and no sugar. It is very hard to change a lifestyle where everything you eat has sugar, but it can be done with perseverance....and I will do it for my health. I have noticed that my pain has decreased in my bladder, I have more energy, since I have not had any sugar, and watched my diet along the cleansing system. I have been getting up early in the morning with no problems......and if you knew me.....you would know that is a miracle. Has anyone ever taken Paragone? Please let me know your comments on it...and how it worked for you....Thanks ------------------------------------------------------------------------ fnCentral.com cuts the cable. Come see how to be free! Use the web's first fully integrated personal finance manager from any PC, Palm, phone. OPEN A FREE ACCOUNT NOW. 1/4624/9/_/469673/_/959921806/ ------------------------------------------------------------------------ Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Hi! You are on the right track, and there is light at the other end of the tunnel. I have used ParaGone, and I do have to say that it works. Do be prepared for a die-off, which for some of us is long and painful. Mine lasted for three weeks, and I had all the symptoms that I have suffered since a little girl (mostly upper respiratory problems). This happens when the dead and live toxins are being excreted from the body. Our body reacts to them in order to preserve itself, and therefore the mucus, body odor, symptoms of infections, etc. etc, etc. At the end of the treatment, I have continued with the anti-fungals, supplements and diet. This way I am sure I am building up a healthier system. Sandy. - My Story Hi...this is my story. I am 25 years and have been diagnosed with interstitial cystitis this year. In short it is a very painful bladder disease in which the bladder is consistantly inflammed(It is like having a UTI all the time, althought unlike a UTI, interstitial cystitis is not caused by bacteria.) It is not known how you get IC and there is no known cure. It is considered possibly a autoimmune disease or a symptom of an autoimmune disease. With IC....to minimize the pain....you must follow a strict diet of low acid food and beverages, such as no fruit, no fruit juices, no tomatoes, onions etc. About a couple of months ago, my mother suggested maybe I should go to a herbalist. I had a consultation with her and she said many of my symptoms....fatigue, being in a fog, forgetfullness, constipation, weight gain, blurred vision etc. seemed like the symptoms of yeast overgrowth. At first I really thought I was wasting my time and money when she told me this....but I thought I might as well try it....I have nothing to lose. I got the herbs and the first couple of days I was sooooo tired, more tired than I usually was anyway. On the third day it was soooooooo amazing.....I woke up feeling like a completely different person. I had energy and I was no longer in that fog. In the meantime, my husband and I were selling our house and my diet was not very good at the time, a lot of stress, and one night out on the town drinking did not agree with me....and I found myself back to feeling so bad again. I had a taste of life for a week and here I was back to feeling trapped in a body that did not want me to live. I continued taking the herbs for the rest of the month hoping for the best, but to no avail. That is when I decided to do some research and find out what natural anitfungal medications to take. In the meantime I knew garlic was an antifungal so I decided until I can finish my research I stuck with the garlic for about 5 days....and I noticed the fog was coming and going...so I knew I was on the right track. A week ago, I found Paragone....an antifungal and parisite internal cleansing system in a health food store. I have been a a complete diet consisting of no dairy, no sweets, no complex carbs, all organic foods, I have found everything I needed at a local health food store. For instance....instead of sandwiches.....I will have sliced turkey or chicken rolled up in lettuce with a dressing I found at a health food store that contains no vinegar and no sugar. It is very hard to change a lifestyle where everything you eat has sugar, but it can be done with perseverance....and I will do it for my health. I have noticed that my pain has decreased in my bladder, I have more energy, since I have not had any sugar, and watched my diet along the cleansing system. I have been getting up early in the morning with no problems......and if you knew me.....you would know that is a miracle. Has anyone ever taken Paragone? Please let me know your comments on it...and how it worked for you....Thanks ------------------------------------------------------------------------ fnCentral.com cuts the cable. Come see how to be free! Use the web's first fully integrated personal finance manager from any PC, Palm, phone. OPEN A FREE ACCOUNT NOW. 1/4624/9/_/469673/_/959921806/ ------------------------------------------------------------------------ Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Hi! You are on the right track, and there is light at the other end of the tunnel. I have used ParaGone, and I do have to say that it works. Do be prepared for a die-off, which for some of us is long and painful. Mine lasted for three weeks, and I had all the symptoms that I have suffered since a little girl (mostly upper respiratory problems). This happens when the dead and live toxins are being excreted from the body. Our body reacts to them in order to preserve itself, and therefore the mucus, body odor, symptoms of infections, etc. etc, etc. At the end of the treatment, I have continued with the anti-fungals, supplements and diet. This way I am sure I am building up a healthier system. Sandy. - My Story Hi...this is my story. I am 25 years and have been diagnosed with interstitial cystitis this year. In short it is a very painful bladder disease in which the bladder is consistantly inflammed(It is like having a UTI all the time, althought unlike a UTI, interstitial cystitis is not caused by bacteria.) It is not known how you get IC and there is no known cure. It is considered possibly a autoimmune disease or a symptom of an autoimmune disease. With IC....to minimize the pain....you must follow a strict diet of low acid food and beverages, such as no fruit, no fruit juices, no tomatoes, onions etc. About a couple of months ago, my mother suggested maybe I should go to a herbalist. I had a consultation with her and she said many of my symptoms....fatigue, being in a fog, forgetfullness, constipation, weight gain, blurred vision etc. seemed like the symptoms of yeast overgrowth. At first I really thought I was wasting my time and money when she told me this....but I thought I might as well try it....I have nothing to lose. I got the herbs and the first couple of days I was sooooo tired, more tired than I usually was anyway. On the third day it was soooooooo amazing.....I woke up feeling like a completely different person. I had energy and I was no longer in that fog. In the meantime, my husband and I were selling our house and my diet was not very good at the time, a lot of stress, and one night out on the town drinking did not agree with me....and I found myself back to feeling so bad again. I had a taste of life for a week and here I was back to feeling trapped in a body that did not want me to live. I continued taking the herbs for the rest of the month hoping for the best, but to no avail. That is when I decided to do some research and find out what natural anitfungal medications to take. In the meantime I knew garlic was an antifungal so I decided until I can finish my research I stuck with the garlic for about 5 days....and I noticed the fog was coming and going...so I knew I was on the right track. A week ago, I found Paragone....an antifungal and parisite internal cleansing system in a health food store. I have been a a complete diet consisting of no dairy, no sweets, no complex carbs, all organic foods, I have found everything I needed at a local health food store. For instance....instead of sandwiches.....I will have sliced turkey or chicken rolled up in lettuce with a dressing I found at a health food store that contains no vinegar and no sugar. It is very hard to change a lifestyle where everything you eat has sugar, but it can be done with perseverance....and I will do it for my health. I have noticed that my pain has decreased in my bladder, I have more energy, since I have not had any sugar, and watched my diet along the cleansing system. I have been getting up early in the morning with no problems......and if you knew me.....you would know that is a miracle. Has anyone ever taken Paragone? Please let me know your comments on it...and how it worked for you....Thanks ------------------------------------------------------------------------ fnCentral.com cuts the cable. Come see how to be free! Use the web's first fully integrated personal finance manager from any PC, Palm, phone. OPEN A FREE ACCOUNT NOW. 1/4624/9/_/469673/_/959921806/ ------------------------------------------------------------------------ Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Hi! You are on the right track, and there is light at the other end of the tunnel. I have used ParaGone, and I do have to say that it works. Do be prepared for a die-off, which for some of us is long and painful. Mine lasted for three weeks, and I had all the symptoms that I have suffered since a little girl (mostly upper respiratory problems). This happens when the dead and live toxins are being excreted from the body. Our body reacts to them in order to preserve itself, and therefore the mucus, body odor, symptoms of infections, etc. etc, etc. At the end of the treatment, I have continued with the anti-fungals, supplements and diet. This way I am sure I am building up a healthier system. Sandy. - My Story Hi...this is my story. I am 25 years and have been diagnosed with interstitial cystitis this year. In short it is a very painful bladder disease in which the bladder is consistantly inflammed(It is like having a UTI all the time, althought unlike a UTI, interstitial cystitis is not caused by bacteria.) It is not known how you get IC and there is no known cure. It is considered possibly a autoimmune disease or a symptom of an autoimmune disease. With IC....to minimize the pain....you must follow a strict diet of low acid food and beverages, such as no fruit, no fruit juices, no tomatoes, onions etc. About a couple of months ago, my mother suggested maybe I should go to a herbalist. I had a consultation with her and she said many of my symptoms....fatigue, being in a fog, forgetfullness, constipation, weight gain, blurred vision etc. seemed like the symptoms of yeast overgrowth. At first I really thought I was wasting my time and money when she told me this....but I thought I might as well try it....I have nothing to lose. I got the herbs and the first couple of days I was sooooo tired, more tired than I usually was anyway. On the third day it was soooooooo amazing.....I woke up feeling like a completely different person. I had energy and I was no longer in that fog. In the meantime, my husband and I were selling our house and my diet was not very good at the time, a lot of stress, and one night out on the town drinking did not agree with me....and I found myself back to feeling so bad again. I had a taste of life for a week and here I was back to feeling trapped in a body that did not want me to live. I continued taking the herbs for the rest of the month hoping for the best, but to no avail. That is when I decided to do some research and find out what natural anitfungal medications to take. In the meantime I knew garlic was an antifungal so I decided until I can finish my research I stuck with the garlic for about 5 days....and I noticed the fog was coming and going...so I knew I was on the right track. A week ago, I found Paragone....an antifungal and parisite internal cleansing system in a health food store. I have been a a complete diet consisting of no dairy, no sweets, no complex carbs, all organic foods, I have found everything I needed at a local health food store. For instance....instead of sandwiches.....I will have sliced turkey or chicken rolled up in lettuce with a dressing I found at a health food store that contains no vinegar and no sugar. It is very hard to change a lifestyle where everything you eat has sugar, but it can be done with perseverance....and I will do it for my health. I have noticed that my pain has decreased in my bladder, I have more energy, since I have not had any sugar, and watched my diet along the cleansing system. I have been getting up early in the morning with no problems......and if you knew me.....you would know that is a miracle. Has anyone ever taken Paragone? Please let me know your comments on it...and how it worked for you....Thanks ------------------------------------------------------------------------ fnCentral.com cuts the cable. Come see how to be free! Use the web's first fully integrated personal finance manager from any PC, Palm, phone. OPEN A FREE ACCOUNT NOW. 1/4624/9/_/469673/_/959921806/ ------------------------------------------------------------------------ Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Hi! You are on the right track, and there is light at the other end of the tunnel. I have used ParaGone, and I do have to say that it works. Do be prepared for a die-off, which for some of us is long and painful. Mine lasted for three weeks, and I had all the symptoms that I have suffered since a little girl (mostly upper respiratory problems). This happens when the dead and live toxins are being excreted from the body. Our body reacts to them in order to preserve itself, and therefore the mucus, body odor, symptoms of infections, etc. etc, etc. At the end of the treatment, I have continued with the anti-fungals, supplements and diet. This way I am sure I am building up a healthier system. Sandy. - My Story Hi...this is my story. I am 25 years and have been diagnosed with interstitial cystitis this year. In short it is a very painful bladder disease in which the bladder is consistantly inflammed(It is like having a UTI all the time, althought unlike a UTI, interstitial cystitis is not caused by bacteria.) It is not known how you get IC and there is no known cure. It is considered possibly a autoimmune disease or a symptom of an autoimmune disease. With IC....to minimize the pain....you must follow a strict diet of low acid food and beverages, such as no fruit, no fruit juices, no tomatoes, onions etc. About a couple of months ago, my mother suggested maybe I should go to a herbalist. I had a consultation with her and she said many of my symptoms....fatigue, being in a fog, forgetfullness, constipation, weight gain, blurred vision etc. seemed like the symptoms of yeast overgrowth. At first I really thought I was wasting my time and money when she told me this....but I thought I might as well try it....I have nothing to lose. I got the herbs and the first couple of days I was sooooo tired, more tired than I usually was anyway. On the third day it was soooooooo amazing.....I woke up feeling like a completely different person. I had energy and I was no longer in that fog. In the meantime, my husband and I were selling our house and my diet was not very good at the time, a lot of stress, and one night out on the town drinking did not agree with me....and I found myself back to feeling so bad again. I had a taste of life for a week and here I was back to feeling trapped in a body that did not want me to live. I continued taking the herbs for the rest of the month hoping for the best, but to no avail. That is when I decided to do some research and find out what natural anitfungal medications to take. In the meantime I knew garlic was an antifungal so I decided until I can finish my research I stuck with the garlic for about 5 days....and I noticed the fog was coming and going...so I knew I was on the right track. A week ago, I found Paragone....an antifungal and parisite internal cleansing system in a health food store. I have been a a complete diet consisting of no dairy, no sweets, no complex carbs, all organic foods, I have found everything I needed at a local health food store. For instance....instead of sandwiches.....I will have sliced turkey or chicken rolled up in lettuce with a dressing I found at a health food store that contains no vinegar and no sugar. It is very hard to change a lifestyle where everything you eat has sugar, but it can be done with perseverance....and I will do it for my health. I have noticed that my pain has decreased in my bladder, I have more energy, since I have not had any sugar, and watched my diet along the cleansing system. I have been getting up early in the morning with no problems......and if you knew me.....you would know that is a miracle. Has anyone ever taken Paragone? Please let me know your comments on it...and how it worked for you....Thanks ------------------------------------------------------------------------ fnCentral.com cuts the cable. Come see how to be free! Use the web's first fully integrated personal finance manager from any PC, Palm, phone. OPEN A FREE ACCOUNT NOW. 1/4624/9/_/469673/_/959921806/ ------------------------------------------------------------------------ Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Thanks for your reply....I have been getting a bronchial cough, headache, and flulike......but despite all of that, I still feel better, like I can feel my body is getting healthier everyday It feels great Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Kay, as you probably know quite well, the chances of winning the Lotto and the chances of an abusive relationship improving are just about equal. Figure out ANY way to be on your own and GO. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Kay, Here's a hug for you. I know you've probably already heard it, but you should get out of the abusive relationship NOW. Chances of winning the Lotto really aren't in your favor. As far as loved ones not asking, I got upset because my mother never called to find out how Tommy's endo and colonoscopy went. When I confronted her about it, she apologized. She didn't realize how important these tests are and how serious the disease is. I find that when you look healthy, people don't take your illness seriously. It's not that they don't love you. Maybe it's time to have a talk with them to let them know how sick you really are and what they can do to help you. Anyway, just my two cents worth. Debbie (Tommy's Mom) > [Original Message] > From: <Kaytarot@...> > < > > Date: 2/25/01 4:37:32 AM > Subject: [ ] my story > > That was a great link Gayle, > Thanks. I printed it and read all 22 > pages of it. > I came to the conclusion that what it all boils down to, was > I am malnurished, poor diet, and I drank alot two yrs ago. > When my daughter got molested, I wanted to die. I tried to, > I prayed to die. When I couldnt, I dealt with my pain, forgave > myself (hard hard) and the healing began..I no longer have to hide > the pain, I just blow it off to the wind. (thats why Jerry I stopped > > drinking so easy).. Now..nutrition, I dont know what to eat. > I hate veggies. I eat now to feed me, I could live without food. > Im in another abusive relationship, and wishing to win the lotto > so I can leave. My mother, sisters, best fiend and boyfriend, not > once > asked about my doctors visit, or the labs..Ive been in a living hell > for about 10 years now but Im strong and optimistic. No man is worth > > me drinking again. > My quest is to be healthy, live alone and be the most beautiful > person I can be. > THANKYOU ALL FOR BEING HERE FOR ME. > Kay > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Kay, I am happy that I could help. Never realized it was 22 pages. I keep it in my favorites as reference. This link was also the easiest to understand. As for family and friends asking how your doctors visits were. My family most of the time don't really know when I go. I have doctors appointments so often I get sick of it myself. My family will never take the time to understand my problems. Use to have me in tears. So now I remind them shortly before my appointments in case I have to be admitted or they find something new wrong with me and the docs always do and it is always something major. Being sick can be lonely. It is an adjustment you have to make within yourself. I look at it as my new way of life and it will not beat me. I recommend you eliminate as much stress as you can being sick is a monster. And any irritation makes you feel bad. I am just now putting things back into my life I had to let go of since transplant. I bought a new professional 35 mm camera, I am way into photography and video. I want things I love to do and live in my life and letting go all the rest. Hope you can find your way. You really need to see what you really want in your life. gayle trans/6-99 ^oo^ galye@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Moses, that sounds really good! Where did you go to see this? Mog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi, I'm , I go to a live and dried blood spot analysis naturopath using a dark-field microscope. This allowed me to see the bud-form candida in my blood, which initially was rated a 4 in a scale of 1 to 4. About 3 months later after diet modification and herbal tablets, the candida had completely gone. It is very motivating to see, for yourself, the level of this stuff on a video screen decrease as you do the right thing. Moses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Dear Amy, Your story sounds in so many ways to me, and I am sure others here familiar. Some doctors may sneer at the mention of candida, but trust me, it exists. If you ll remember correctly there have been a whole multitude of diseases that were at first ignored or shot down by the mainstream medical community. As to what your next steps should be, I would see a herbologist, or a naturopath. And DEFINITELY stick to a really strict diet. Its hard I know, but it really is worth it in the end. As to antibiotics, again try to get away from them as much as possible. You need to have some tests really, to let you know to what extent the candida has developed, but in the mean time there are a number of things you can take that can only do good. 1) Gratefruit seed extract - horrible taste but very good 2) Aloe Vera caps 3) Olive leaf extract - build immune system 4) Acidophilous pills - Replenish the good bacteria - Primal defense is a good brand but is pricey. also there may be someother things to get, I am on about 3 times that, but its a personal thing. Also buy a couple of books on candida, and a recipe book form amazon, these will help you One thing to note though is that there are a wide variety of opinions on this subject, and so I tend to err on the side of caution, and stick to the most harsh diet I can, but your doctor will tell you more! But from what you say it really sounds like you have found the problem! Good luck and I hope this helps! Alistair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Mog : I live in Australia ( Adelaide ), and other than this city I cannot help. I can only suggest hunting around for live and dried blood analysis and darkfield microscope. Moses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Amy, Get the books THE YEAST CONNECTION by Dr. Cook and THE MISSING DIAGNOSIS by Dr. Truss you 'll find yourself in these pages just like the rest of us. I can't help you with a local Dr. But check out www.ghtdirect.com/20002 The Hydroxygen + get rid of Candida.EVERYONE who becomes a member gets a free web site. I am regaining my health my strength and my life back . It's been answer to prayer ,If you send me you address I'll send you and anyone else a free sample just like my sister-in law did to me!!! In Jesus name , Ruth Amy Oliver <aeo3506@...> wrote: Jesus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2001 Report Share Posted August 20, 2001 Hi Carla, Thanx for writing again.I'm guessing if you sent your story off to the group yesterday it should've been there by now. I didn't recieve any notification of any new message till this one. I'm sorry to say, but it might not have worked. Usually by the time, you click send and check 2 minutes later it should be there. Anyways I hope things go well with the ENT and the audiogram. I haven't gone for one yet, and not sure if I will. It's been almost 5 months since my surgery but I can already tell that my hearing is about the same or even a little better then before. The doctor thinks that is wonderful. I do have to try and get in sometime this week as I've been in a lot of pain, but it has not been so bad today. Hope things are well with you. And talk to you soon. Kim lawcarla@... wrote: I sent my story off yesterday. I don't know when it will be posted. How long does it take usually? I went to the doctors today and got the number for our ENT here. I need to schedule a followup and cleaning. I also have to get and audiogram, and I have to go to a different town to do that because the navy base hospital here doesn't have the stuff. It will be a month at least. The doctor told me they are pretty booked. That's it. I wonder if my hearing has gotten worse or not. guess I'll find out soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Kathy, Thanks for sharing you story. You know, often we feel like we are the only ones enduring hardship and for someone to open up and tell there story, let's us know, WE ARE NOT ALONE. I am glad you have the strenght to fight, as a matter of fact, maybe God placed this upon you because He knew you are not a quiter. My prayers are with you, God Bless, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Kathy, By the way, I totally agree with you that children are predisposition for autism and seizures. Some thing either genetically or an enviromental influence that makes these children have adverse reactions to the vaccines, if it were not so why doesn't every child have these reactions? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Sorry that you had to find us by getting ReActive Arthritis (Reiters Syndrome). Your symptoms and history sound much like many of us have shared previously. As to which foods are the safest? Make sure that meats and hot meals are throuroughly cooked. Err on the side of caution when considering whether a food in the refrigerator may be past its prime. It is better to waste some food than come down with another food poisoning situation. Yes, bowel infections, i.e., food poisoning, can trigger another flare-up, at least that is what I have experienced. What causes RS to flare, or to go into a remission-like period is not fully understood. It is impossible to predict when either will occur. I am glad to read that you are experiencing a remission-like period of time. Good luck. Ray, moderator RS/ReA, HLA-B27 negative, symptoms since childhood, age 52, male, Sjogrens Syndrome, Raynauds Phenomena, Fibromyalgia, CHronic Fatigue SYndrome, Asthma, Migraines Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Post where you are and that you are looking for a llmd (lyme literate doctor). He should be able to help you. best, lea >From: " elsagenevieve " <elsagenevieve@...> >Reply- > >Subject: [ ] My Story >Date: Sun, 02 Jun 2002 16:01:00 -0000 > >Hi, > >As a teenager I got Lymes. I was sick for a long time and mom >thought it was a flu or something. Lucky for me mom was an R.N. and >the community educator(sp) at the local hospital and had recently >started the first Lymes support group in Sonoma county. Although she >didn't recognize it immediately once I got a really wierd rash it >clicked. She took me to our family doctor. Unfortunatly he felt >Lymes was like chronic fatigue syndrome, unknown and probably not >real. He wouldn't even document my rash. He definitely refused to >give me any antibiotics. My mom made an appointment with a local >dermatologist. He listened, documented and treated me aggressivly >with minicycline, doxicycline, and tricycline. > >I did eventually feel better but I was warned this may not be the end. >Now 11 years later I suffer from arthritus, mood swings, insomnia, >pain, etc... Its finally time for me to seek more treatment. I >called a doctor and he said bring proof, bring your files. Guess >what!!! My doctor destroys medical records after 7 years, and mine >are gone. Rash, treatment and all. > >What do I do? Cancel and not waste my money. Are there any better >tests out there I should submit to? Are they accurate this late in >the game? My appt. is Tuesday and I'm getting all those feelings >about doctors not believing me etc... > > Any advice appreciated, > >Elsa > > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 You might ask the derm doc if he reported your case to the state and CDC, like they are supposed to do, under penalty of law for failure to report. You could then obtain the reported case number, which will be all the proof the other doc needs. Since Lyme is a clinical diagnosis, print, then fill out the Lyme symptom check list (see http://www.angelfire.com/biz/romarkaraoke/Lymekjr.html) Also, you might print out " When To Suspect Lyme " (see http://www.angelfire.com/biz/romarkaraoke/whento.htm) and take it to the doc. , in Euless, Texas > Hi, > > As a teenager I got Lymes. I was sick for a long time and mom > thought it was a flu or something. Lucky for me mom was an R.N. and > the community educator(sp) at the local hospital and had recently > started the first Lymes support group in Sonoma county. Although she > didn't recognize it immediately once I got a really wierd rash it > clicked. She took me to our family doctor. Unfortunatly he felt > Lymes was like chronic fatigue syndrome, unknown and probably not > real. He wouldn't even document my rash. He definitely refused to > give me any antibiotics. My mom made an appointment with a local > dermatologist. He listened, documented and treated me aggressivly > with minicycline, doxicycline, and tricycline. > > I did eventually feel better but I was warned this may not be the end. > Now 11 years later I suffer from arthritus, mood swings, insomnia, > pain, etc... Its finally time for me to seek more treatment. I > called a doctor and he said bring proof, bring your files. Guess > what!!! My doctor destroys medical records after 7 years, and mine > are gone. Rash, treatment and all. > > What do I do? Cancel and not waste my money. Are there any better > tests out there I should submit to? Are they accurate this late in > the game? My appt. is Tuesday and I'm getting all those feelings > about doctors not believing me etc... > > Any advice appreciated, > > Elsa Quote Link to comment Share on other sites More sharing options...
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