hypothyroidism

[Guest guest]

Aunt Joan,

My understanding is that the immune system functions by producing antibodies to

protect the health of the body. In autoimmune diseases the immune system ends

up attacking healthy tissues instead of foreign (for lack of a better word)

germs/tissues/whatever. The system that regulates/keeps the antibodies from

attacking healthy tissue/organs does not work properly. Thus allowing healthy

tissues/organs to be attacked for no reason ~ causing damage or malfunction of

that tissue or organ. That is what I was referring to as a defect.

With graves I have TSI (thyroid stimulating immunoglobulin). Healthy people do

not have any TSI. If my body produced it once. It can do it again. It has

that ability.

On the other hand, if hyperthyroidism was not caused by the presence of TSI ab,

then there would be no autoimmune involvement in recovery or relapse

possibilities.

At least, that is how its been explained to me.

Kim

Re: Hypothyroidism

In a message dated 11/29/2006 2:57:15 P.M. Eastern Standard Time,

kkmwn@... writes:

One differing thought though. I do believe graves the autoimmune disease is

for life. Our autoimmune system has already proven to be defective.

Dear Kim,

I don't believe (or maybe refuse to believe), that my autoimmune system is

" defective. " Rather, I choose to believe that it was going through a " stage, "

(like being a teenager or something), and was just acting out, maybe due to

hormones, or some other underlying imbalance.

Maybe Graves can have different causes in different people, some being more

hard to treat than others. I do agree that, the longer you have it, the

harder it is to treat. I got sick in March 1998, and was diagnosed around June

1998, so I wasn't ill for that long.

AntJoan

[Guest guest]

Hi Everyone,

I think people are doing themselves a misservice by believing that it's

impossible to cure autoimmune thyroid disease through nutritional

supplementation. The immune system is like any other physiological system in the

body: when

there are nutritional deficiencies, it malfunctions. When those deficiencies

are corrected, and the toxic metals which contributed to those deficiencies

are removed, the immune system goes back to normal functioning.

Many people have fully recovered from autoimmune thyroid disease, both

Graves' and Hashimoto's. Copper is a critical nutrient to stop the immune sytem

from overfunctioning and creating an autoimmune disease condition. Other

nutrients are important for copper assimilation and utilization.

If you want to recover fully, the first step is believing that you can do

it. It is possible, you just have to believe that it's possible and then take

the necessary steps to get and apply the right information.

Be well,

[Guest guest]

Hi

The light bulb is slowly coming on. Although I took RAI I still suffer from

many symptoms of autoimmune disease. Are you suggesting that increasing copper

might actually help this as well?

Kate

Re: Hypothyroidism

Hi Everyone,

I think people are doing themselves a misservice by believing that it's

impossible to cure autoimmune thyroid disease through nutritional

supplementation. The immune system is like any other physiological system in

the body: when

there are nutritional deficiencies, it malfunctions. When those deficiencies

are corrected, and the toxic metals which contributed to those deficiencies

are removed, the immune system goes back to normal functioning.

Many people have fully recovered from autoimmune thyroid disease, both

Graves' and Hashimoto's. Copper is a critical nutrient to stop the immune

sytem

from overfunctioning and creating an autoimmune disease condition. Other

nutrients are important for copper assimilation and utilization.

If you want to recover fully, the first step is believing that you can do

it. It is possible, you just have to believe that it's possible and then take

the necessary steps to get and apply the right information.

Be well,

[Guest guest]

Hi Kate,

Sorry for the delay. Yes, copper is probably very beneficial in all types of

autoimmune diseases because it controls the immune system, preventing it from

attacking the body.

In a message dated 1/9/2007 8:16:44 A.M. Pacific Standard Time,

Fraserk@... writes:

Hi

The light bulb is slowly coming on. Although I took RAI I still suffer from

many symptoms of autoimmune disease. Are you suggesting that increasing

copper might actually help this as well?

Kate

[Guest guest]

Thanks . I find I still have confusion a lot of times. The docs where I

live don't really care as long as my numbers are 'in range' . But sometimes I

have a moment of real clarity and there it is!

K

Re: Hypothyroidism

Hi Kate,

Sorry for the delay. Yes, copper is probably very beneficial in all types of

autoimmune diseases because it controls the immune system, preventing it from

attacking the body.

In a message dated 1/9/2007 8:16:44 A.M. Pacific Standard Time,

Fraserk@... writes:

Hi

The light bulb is slowly coming on. Although I took RAI I still suffer from

many symptoms of autoimmune disease. Are you suggesting that increasing

copper might actually help this as well?

Kate

[Guest guest]

Hi!

Try looking into a cleanse. Also, it is due to autoimmune disease? You can

try balancing the body with cleansing....also, look into www.thedoctorwithin.com

Blessings!!

hcp4uicare <hcp4uicare@...> wrote:

I would like to know is there anyone out there that can tell me more

about hypothyroidism. My mom was just diagnosed a couple of weeks ago

and they gave her an option of surgery to remove the over-active gland

or take a pill that has radioactive iodine in it. And I am trying to

help her to make the decision that will best benefit her. I am also

wondering is there any other treatment that her doctor hasn't mention

that we are not aware of, that is better than the other 2 treatments

that are mentioned. My mom and I will appreciate any info on this matter.

Thank You

[Guest guest]

I am not sure if you got a response yet, but you need to go to

www.stopthethyroidmadness.com and read read read. There is tons of

info there.

Crystal

>

> Hello everyone....i am new to the group and would very much like to

> have any and all info pertaining to this frustrating disease. I was

> diagnosed a year and a half ago and I am currently on Synthryoid

> 100mcg. daily, but, i do not see any changes. I know the first thing I

> have to do is go have blood work done again, but, i would really love

> your feedback on this issue and if other people didn't find Synthyroid

> to work for them as well. My stomach keeps getting bigger while the

> rest of me stays the same. I don't even want to leave the house, i am

> sooo embarasssed! Well, hope to talk to you all soon! Thank you~

>

[Guest guest]

thank you soooo much.....i went to the site and have found it very

knowledgeable.

sweetenloe1 <sweetnwright@...> wrote: I am not sure if you got a

response yet, but you need to go to

www.stopthethyroidmadness.com and read read read. There is tons of

info there.

Crystal

>

> Hello everyone....i am new to the group and would very much like to

> have any and all info pertaining to this frustrating disease. I was

> diagnosed a year and a half ago and I am currently on Synthryoid

> 100mcg. daily, but, i do not see any changes. I know the first thing I

> have to do is go have blood work done again, but, i would really love

> your feedback on this issue and if other people didn't find Synthyroid

> to work for them as well. My stomach keeps getting bigger while the

> rest of me stays the same. I don't even want to leave the house, i am

> sooo embarasssed! Well, hope to talk to you all soon! Thank you~

>

---------------------------------

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[Guest guest]

I gained a pound a week on synthroid and did not gain on cytomel alone. IT

DOESN " T WORK!

Joan

Hey why are posting from weeks ago showing up just now???

[Guest guest]

you can GAIN WEIGHT on Synthroid??????? OMG- that is what i take and couldn't

figure out why i couldn't get rid of even ONE lb.....

<danjoanryan@...> wrote: I gained a pound a week

on synthroid and did not gain on cytomel alone. IT DOESN " T WORK!

Joan

Hey why are posting from weeks ago showing up just now???

[Guest guest]

As I'm sure many other people will say, I suggest you switch to Armour.? It has

Free?T4, T3, and while I think the purposes are still uncertain, T2, and T1 in

it (but?a normal functioning thyroid produces the T2 and T1 so it must do

something). Also, make it a?priority of yours to find a seriously good doctor in

terms of thyroid care.

hypothyroidism

Hello everyone....i am new to the group and would very much like to

have any and all info pertaining to this frustrating disease. I was

diagnosed a year and a half ago and I am currently on Synthryoid

100mcg. daily, but, i do not see any changes. I know the first thing I

have to do is go have blood work done again, but, i would really love

your feedback on this issue and if other people didn't find Synthyroid

to work for them as well. My stomach keeps getting bigger while the

rest of me stays the same. I don't even want to leave the house, i am

sooo embarasssed! Well, hope to talk to you all soon! Thank you~

________________________________________________________________________

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[Guest guest]

Hi

Your temps certainly give the indication that you may be hypothyroid and your T4 is on the low side too BUT with a TSH like yours I doubt wether a doc would say you are hypothyroid, you TSH is pretty good. I really dont know what you could do to raise your T4 apart from taking thyroid meds, but I really dont think you will be given a diagnosis with those results, do you feel hypothyroid?

Hi everyone.I posted a question some time ago entitled 'Am I suffering from Hypothyroidism? '. Unfortunately I'm no computer wizard and got a bit lost with it al

[Guest guest]

Hi The av daily temps are look unstable as per www.drrind.com as

they are more than 1c centrigrade apart from day to day.

Have you had an adrenal 24 hour saliva test done?

You will also need a fuller testing for your thyroid as you need the

Free T3 done and antibody testing as this will give you important

information that is not available with just the TSH and the Free T4.

It is not always easy to get a Free T3 on the NHS and if your GP is

reluctant) often it is the lab that refuses to do the test and not

the GP by the way, then you could ask your practice to draw the blood

for you and send it to a private lab to have this done.

Mo

>

> I posted a question some time ago entitled 'Am I suffering from

> Hypothyroidism?'. Unfortunately I'm no computer wizard and got a

bit

> lost with it all.

>

> Anyway, many thanks for all your advice and here's the information

> from my blood test which some of you advised me to post:

>

> serum free t4 level = 13.9

> pmol/l 10.0 - 25.0

> serum tsh level = 0.9 mu/l

> range = 0.3 - 6.0

>

> I've also monitored my morning basal temperature over three days

with

> the following results:

>

> 35.2, 34.9, 35.5.

>

> Once again many thanks for your support and I hope these figures

make

> sense to you. I look forward to any further advice somebody can

offer.

>

>

>

[Guest guest]

~ Should have said the Free T4 that you do have is showing

low in the range which is an indication that you are not producing

enough thyroid hormone.

Mo

>

> I posted a question some time ago entitled 'Am I suffering from

> Hypothyroidism?'. Unfortunately I'm no computer wizard and got a

bit

> lost with it all.

>

> Anyway, many thanks for all your advice and here's the information

> from my blood test which some of you advised me to post:

>

> serum free t4 level = 13.9

> pmol/l 10.0 - 25.0

> serum tsh level = 0.9 mu/l

> range = 0.3 - 6.0

>

> I've also monitored my morning basal temperature over three days

with

> the following results:

>

> 35.2, 34.9, 35.5.

>

> Once again many thanks for your support and I hope these figures

make

> sense to you. I look forward to any further advice somebody can

offer.

>

>

>

[Guest guest]

Hi ,

How do you feel? My guess is not too well, hence the question you

posed? My blood results are also in range, but I've felt unwell and

hypo symptomatic for over a year. Sadly, no diagnosis, despite a long

history involving partial thyroid removal. Dr's hang on to those

blood tests as the only indicator of hypothyroidism. Your basal temps

appear to tell the story of your metabolism.

Take care, you've come to a good place. Lots of info and helpful

people.

x

>

> Hi everyone.

>

> I posted a question some time ago entitled 'Am I suffering from

> Hypothyroidism?'.

>

> serum free t4 level = 13.9

> pmol/l 10.0 - 25.0

> serum tsh level = 0.9 mu/l

> range = 0.3 - 6.0

>

> I've also monitored my morning basal temperature over three days

with

> the following results:

>

> 35.2, 34.9, 35.5.

>

[Guest guest]

Hi

Never mind that your thyroid function tests

appear within the normal reference range, your basal temperature certainly is NOT

normal and is showing that your metabolism certainly is not working and this

could be due to low thyroid hormone production. Have you been tested to

see whether you have antibodies to your thyroid - if not, ask your GP to check

this out and also to test your ferritin (stored iron) level, your Vitamin B12,

Vitamin D and Zinc and copper levels. I would be tempted to send a letter

with this request to your GP and a copy to the practice manager setting out all

of your symptoms and signs (go to our website www.tpa-uk.org.uk

and click on Hypothyroidism' and then on 'Symptoms and Signs' to check yours

against these). Then write your basal temperature for say, 5 days. If you have

members in your family who have a thyroid disorder or autoimmune disease, write

this down also. Having a normal thyroid function test does NOT mean you do not

have a thyroid disorder. You should ask to be referred to a specialist in

thyroid disease (not an endocrinologist who specialises in diabetes as they

know little about thyroid disease). You need a thorough physical examination

and your symptoms/signs/basal temperature should be taken into account and your

GP should NOT decide you do not have hypothyroidism on blood test results

alone. If your GP will not refer you, as you still have all of the symptoms and

signs, ask your doctor to test to investigate the cause of your symptoms. You

must not allow her/him to put you on antidepressants and tell you 'it's all in

your head' as many doctors do.

When sending the letter (if this is what you

choose to do) ask that the letter be placed in your medical notes so that it

can be referred to at a later date if you are eventually found to be

hypothyroid and you have been left suffering without further investigation by

your doctor.

Luv - Sheila

Hi everyone.

I posted a question some time ago entitled 'Am I suffering from

Hypothyroidism?'. Unfortunately I'm no computer wizard and got a bit

lost with it all.

Anyway, many thanks for all your advice and here's the information

from my blood test which some of you advised me to post:

serum free t4 level = 13.9

pmol/l 10.0 - 25.0

serum tsh level = 0.9 mu/l

range = 0.3 - 6.0

I've also monitored my morning basal temperature over three days with

the following results:

35.2, 34.9, 35.5.

Once again many thanks for your support and I hope these figures make

sense to you. I look forward to any further advice somebody can offer.

[Guest guest]

Hi ,

Have you had your adrenalin level measured?

They might use the ACTH stim test to see what your adrenals put out.

The hearing problem (tinnitus) seems to be excess adrenalin or excess

response to adrenalin.

Have they ruled out an adenoma causing autonomous adrenalin output?

Surely someone must have a clue if they've all had a go at it?

I suggest you request a referral to a teaching hospital for an

opinion; you can't really let this drag on, and the medical

profession should be raising alarm bells that it has taken so long to

get nowhere.....

I think they paint themselves a rosy picture of NHS medicine, but

they don't like to rock the boat if nothing is achieved over such a

long time.

Good luck,

Bob

>

> Thanks to , Mo, and Sheila for your advice.

> A few of you asked some more questions of me and I hope the

> following will give you a fuller picture of what I've been putting

> up with for nearly two years now.

[Guest guest]

Poor you (also my son's name)

You are clearly unwell! And there are thyroid problems within your

family, particularly down the male side, which I believe is a little

more unusual. I too, am unwell, with 'normal' bloods, went to a

private emdo, who more or less did the same. Summarised our

discussion, and wrote it back to the GP who had referred me! How

about that for £220! Also, he did reassure me, lots of people feel

like me, it's common! Such a help! Didn't even examine me fully.

So, you're getting the picture a bit more now, if the bloods are

normal, no diagnosis, which rules out support for a huge group of us.

I am a keen exerciser also, and long to get back into it.

, I experimented with self treating earlier this year, with

some success. Adrenals first and then Armour, building up slowly. Why

don't you have a good read up of the files on hypo and associated

conditions. You may feel able to take some proactive steps when you

have researched and made sense of it all in relation to you. None of

us are the same.

I've given up with the system that has given up with me and am off to

see Dr P next week, who comes highly recommended. His book is a great

read too, very accessible and informative. I recognised myself in

there. He advocates treating the person, not the blood results.

Take lots of care, I'm sure those little ones are getting mega

exctied as Christmas approaches.

Lots of luck and good health wishes to you.

Keep talking, tpa is a great place, full of supportive folk. They

have saved my sanity this year.

x

>

> Thanks to , Mo, and Sheila for your advice.

>

> A few of you asked some more questions of me and I hope the

> following will give you a fuller picture of what I've been putting

> up with for nearly two years now.

> The main problems that affect me particularly bad on a daily basis

> are:

[Guest guest]

Hi , you could still be hypothyroid/adrenal, as the tests for hypo often come back in the normal range. ask your doctor for auto-antibody tests and if it were me get your adrenal`stested privately details in our files. this last one is more accurate than that done by your GP.have you got the results of your last test? your doctor will let you have these, also the range.post these on line so we can help you . angel.

[Guest guest]

Hi

Although

you have not mentioned this, have you considered being referred to an thyroid

specialist. Not an endocrinologist with a specialty in diabetes, but one with a

specialty in thyroid. I do have a list of 'good' doctors in this field if you

would like me to send it to you.

I

think you first need to write to your GP setting out all of your symptoms and

signs 9you can check yours against our list in our web site www.tpa-uk.org.uk . Click on

'Hypothyroidism, and then on 'Symptoms and Signs'. Write all of these down.

Take your temperature for 5 days before you get out of bed in a morning. Normal

temperature is 98.6, but if your temperature is 97.8 or lower, this could be an

indication you are hypothyroid. Write down the members of your family who have

a thyroid disease and also any others who have an autoimmune problem. Ask in

writing for a FULL thyroid function test that includes TSH, Free T4, Free T3, a

test to see whether you have antibodies to your thyroid, a test to see whether

you have low ferritin (stored iron), low B12, low Vitamin D. Ask your GP

to put your written request to be referred to a thyroid specialist into

your medical notes and send a copy to your practice Manager. Be assertive so

your GP knows you are no longer prepared to put up with your ill health and that

if it is not a thyroid related problem you are suffering, then you need to find

out what it is that is causing you all of these symptoms. Thyroid Function

Tests are insufficient in giving you a diagnosis. You should have a full

clinical examination, and all your symptoms and signs should be taken into

account, together with your family history of thyroid or autoimmune problems

and the blood tests. This is your health and you must not be fobbed off with

your GP giving you antidepressants and sleeping tablets. That is an easy way

out and your GP must take the responsibility tol help you regain your normal

health.

I

believe your goosebumps could be caused through your body temperature not

regulating properly which is indicative of hypothyroidism.

On

our website, do look at the associated conditions that go along with being

hypothyroid and check out whether these could be adding to your problems. You

can read about these associated conditions (Adrenal, systemic candidiasis, low

ferritin, low vitamin D etc in our FILES on this forum too. Do the Adrenal and

Candida Questionnaire to see how you score.

Can

you get your previous thyroid function blood test results and post them here on

the forum, together with the reference ranges as many doctors do not know how

to interpret them.

Luv -

Sheila

My GP has discounted thyroid problems based on the many blood test

results carried out. I have been at the end of my tether for a long

time now and have resorted to self-diagnosis.

I have a history of chest infections, pleuracy, pneumonia,

bronchitis from a young age. There is a history of Thyroid disorders

in my family – my paternal grandfather and my father's brother both

suffered/suffer with such problems.

[Guest guest]

it is easy to think if we were thinner we would feel better but not so as we

have thin and large hypo people. Therefore..

I would hope that the main concern is how you feel and not the weight

particularly although I know the excess weight can require more fitness to carry

around. It is a symptom of the disease as you will well know, but so is the

problem with your mood and your energy levels, which when put right may also be

the answer to your losing the weight too.

I know that prolactin levels and hypothyroidism are closesly linked, I am not

familiar with the particular condition that you mention. But I hope when you

post your results that someone will be able to relate to your situation and give

some advise with regards what might be best to talk to your Dr about.

Good luck hon

lotsa luv

Dawnx

[Guest guest]

I could live with the extra weight if I didn't have to put up with the ignorant

comments of doctors, dieticians, endoprats and nurses at my GP's surgery!!

Glynis

>

> it is easy to think if we were thinner we would feel better............

>

[Guest guest]

Oh isnt that the truth - I can make allowances for people who are ignorant and

uneducated - but that Professionals behave in such a way is shameful on their

part.

F

>

> I could live with the extra weight if I didn't have to put up with the

ignorant comments of doctors, dieticians, endoprats and nurses at my GP's

surgery!!

> Glynis

> .

> >

>

[Guest guest]

Hello Bridget and welcome to our forum where I hope you get the

support you need. Can you get your thyroid function test results from your

doctor and post them on the forum together with the reference range for each of

the tests done. Many people are hypothyroid even though their blood results are

within the normal reference range, for some of us, we can wait years for them

to go outside the range and still be under active. If you have a low

metabolism, you cannot burn off the calories, so it will be difficult to slim

until you get onto the right dose of thyroid hormone replacement.

Luv - Sheila

..I have been monitoring what i eat, and exercise too i have

been told by the specialist i see that my blood results are normal but what is

normal i still feel sluggish and weepy all the time. Many thanks bridget.

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[Guest guest]

Hello,

We are currently using LDN for our daughter's crohns. I posted in December that

she was beginning LDN and I am happy to report she is doing well.

My question today is who is on LDN for hypothyroidism and where do you get the

LDD prescribed from? The Drs. I called prescribe LDN for crohns and MS. My

husband would like to try it for his hypothyroidism and I would like to use it

because of all the cancer and heart disease in my family. Can someone please

reach out and let me know. I have looked at the LDN database and there are a

number of people using LDN for thyroid but I do not have a way to get in touch

with them personally it seems. Any help would be greatly appreciated.

Kathy D