Re: my viral load

[Guest guest]

I am sure Dave or Dennis can help you with that one as I am pretty new to all this also.Have had Hep C for quite sometime but don't know that much about it...I only found out 2 yrs. ago I had it......Just wanted to say hi to ya!!!

[Guest guest]

Dear . Your Viral load is not an indicator of the level of liver

damage. A biopsy is the best way to tell that. There really isn't

anything you can do to what you call, " activate " the virus. Except

alcohol etc. Although a proper diet, low stress and certain supplements

and vitamins along with exercise can help you maintain a good quality of

life. Personally 2 years ago I had a viral load of 5 million. I have had

hep c for 37 years and am still only stage 1 with minimal liver

fibrosis. I know others with low viral loads that have endstage

cirrhosis. So don't put too much emphasis on the viral load aspect. The

same is true with LFTs. Stay positive. I personally chose not to take

IFN. I have lowered my viral load to 120,000. I take certain supplements

and herbs,much to the consternation of my DRs.I wont take their IFN.

They keep pushing it and I keep telling them there's a better way. Dont

get me wrong I still listen to my Drs. I just dont always take their

advice. I have seen them proven misinformed or even flat wrong too many

times. You've got to do your homework and not think they that everything

they say is correct. They are very unfamiliar with alternatives. But.

They do tell me that whatever I'm doing to keep doing it. Everybody is

different with this disease. There are lots of variables. I have the

genptype 1A. The most resistant to treatment. Yet here I am, 56 years

old and going strong. I plan on dying of old age before the hep gets me.

Hang in there and be well and heal! Bob

[Guest guest]

Thanks Bob,

I sure appreciate all the info. That is why I joined this group. I

agree about the doctors not knowing much about the alternative

treatments for any disease or disorder.

My liver function tests are fine too. I don't think I need a biopsy

since they are within normal limits. I will take care of myself. I

don't drink and never did, so my diet is the main thing to change I

guess.

Thanks again.

> Dear . Your Viral load is not an indicator of the level of

liver

> damage. A biopsy is the best way to tell that. There really isn't

> anything you can do to what you call, " activate " the virus. Except

> alcohol etc. Although a proper diet, low stress and certain

supplements

> and vitamins along with exercise can help you maintain a good

quality of

> life. Personally 2 years ago I had a viral load of 5 million. I

have had

> hep c for 37 years and am still only stage 1 with minimal liver

> fibrosis. I know others with low viral loads that have endstage

> cirrhosis. So don't put too much emphasis on the viral load aspect.

The

> same is true with LFTs. Stay positive. I personally chose not to

take

> IFN. I have lowered my viral load to 120,000. I take certain

supplements

> and herbs,much to the consternation of my DRs.I wont take their IFN.

> They keep pushing it and I keep telling them there's a better way.

Dont

> get me wrong I still listen to my Drs. I just dont always take their

> advice. I have seen them proven misinformed or even flat wrong too

many

> times. You've got to do your homework and not think they that

everything

> they say is correct. They are very unfamiliar with alternatives.

But.

> They do tell me that whatever I'm doing to keep doing it. Everybody

is

> different with this disease. There are lots of variables. I have the

> genptype 1A. The most resistant to treatment. Yet here I am, 56

years

> old and going strong. I plan on dying of old age before the hep

gets me.

> Hang in there and be well and heal! Bob

[Guest guest]

Ok group I took ,yself off my Tx....Maybe I was wrong but with all this BS going on with my family and the struggles we are going through my nerves were shot beyond repair!!!!!! I figure I will try something else down the road but until then it is better I try to get off and keep my sanity than to have a breakdown especially now that Kristy is here.If any of you want to chew me out go right ahead but I honestly didn't know what else to do.......I have been just so confused about all this mess...Well get in touch ok...I'll be here.

[Guest guest]

DZ.....How much longer left on treatment??? I know it isn't that much longer is it???? Keeping ya in my prayers ok!!!!

[Guest guest]

That's great news! I think that is another way of

saying it is undetectable. My test said something

similar to that. I still need to finish my tx and then

hope that I remain undetectable. Good luck! -dz-

--- quarles@... wrote:

> Hi,

> Got the results from the dr. about my viral load.

> Good news too.

>

> " This specimen can only be determined as having less

> that 600 IU of

> HCV RNA per one mL of serum/plasma. "

>

> So, now I must take care not to do anything to make

> it active,

> correct?

>

>

>

>

__________________________________________________

[Guest guest]

Hi Bob. I think we have all learned not to blindly

trust our dr's, there are many stories of ignorance

out there. I studied as much as I could after finding

out I had it. I talked to 3 doctors before I found one

who knew more than I did about hcv. -dz-

--- bobti@... wrote:

> Dear . Your Viral load is not an indicator of

> the level of liver

> damage. A biopsy is the best way to tell that. There

> really isn't

> anything you can do to what you call, " activate " the

> virus. Except

> alcohol etc. Although a proper diet, low stress and

> certain supplements

> and vitamins along with exercise can help you

> maintain a good quality of

> life. Personally 2 years ago I had a viral load of 5

> million. I have had

> hep c for 37 years and am still only stage 1 with

> minimal liver

> fibrosis. I know others with low viral loads that

> have endstage

> cirrhosis. So don't put too much emphasis on the

> viral load aspect. The

> same is true with LFTs. Stay positive. I personally

> chose not to take

> IFN. I have lowered my viral load to 120,000. I take

> certain supplements

> and herbs,much to the consternation of my DRs.I wont

> take their IFN.

> They keep pushing it and I keep telling them there's

> a better way. Dont

> get me wrong I still listen to my Drs. I just dont

> always take their

> advice. I have seen them proven misinformed or even

> flat wrong too many

> times. You've got to do your homework and not think

> they that everything

> they say is correct. They are very unfamiliar with

> alternatives. But.

> They do tell me that whatever I'm doing to keep

> doing it. Everybody is

> different with this disease. There are lots of

> variables. I have the

> genptype 1A. The most resistant to treatment. Yet

> here I am, 56 years

> old and going strong. I plan on dying of old age

> before the hep gets me.

> Hang in there and be well and heal! Bob

>

>

__________________________________________________

[Guest guest]

dz thanks so much for your support and info...I really appreciate it.I know in this group I do have support and that is so important right now......I wish all this was so much easier but as they(the Dr.) say the liver feels no pain....Well why is it my right side has been very uncomfortable and I have no appendix???? Does anyone else's do this too?/ Let me know ok!!!!

[Guest guest]

dz that is great you are feeling so much better.... My problem is mostly fatigue and both my daughter and son were both sick this weekend...Hope I don't get it......Stay in touch....Thanks for not getting on my behind!!!!!! I appreciate not getting looked down on.......

[Guest guest]

No I know when it's that.....the discomfort is where it has always been for a long time........ It's the liver no matter what Docs say about it feeling no pain....They don't know everything.Like they say the meds are out of your system in 24 hours....BS!! if that is true why do the side effects stay for so long?? Sorry to sound so fussy today but I guess it's a real "Let it all out day" for me......Once you have been here a little while you'll see we do vent our emotions at times good or bad.......That is one of the reasons we stay together...We all understand...Have you met Diane yet?? She is great..SJ is a wonderful person too....Dennis just gets passed around the group..hahaha....Oops Dennis did I say that??? Dave is wanting to honeymoon with his wife....Hope he gets to,,,,

[Guest guest]

last night my stomach was even kinda hard...I would have liked to to have been tight but oh no.......hahaha......it stays a little swollen on the right side all the time..They don't feel pain cause they can just wwrite themselves a script and click their fingers and say pain be gone..If only it were so easy huh?????

[Guest guest]

Tx is a personal choice, many people opt against it.

There are alternatives such as milk thistle and other

herbs. If you are considering retrying the tx at a

later date, I know before I started tx, milk thistle

reduced my alt counts by itself and may be a good

" maintenance " while you are waiting for the right time

to try again. Hopefully they continue to improve on

the available tx. I wish you the best of luck whatever

your decision. You know what's best for you and your

family. -dz-

--- Jannewilms42@... wrote:

> Ok group I took ,yself off my Tx....Maybe I was

> wrong but with all this BS

> going on with my family and the struggles we are

> going through my nerves were

> shot beyond repair!!!!!! I figure I will try

> something else down the road but

> until then it is better I try to get off and keep my

> sanity than to have a

> breakdown especially now that Kristy is here.If any

> of you want to chew me

> out go right ahead but I honestly didn't know what

> else to do.......I have

> been just so confused about all this mess...Well get

> in touch ok...I'll be

> here.

>

__________________________________________________

[Guest guest]

In 67 days I expect to take my last shot. Not that I'm

counting... I go through the whole battery of tests

again towards the end of November see if I'm still

undetectable and I'll see my dr on 12/13 and hear his

recommendation. I don't know if this is a passing

phase, but I'm feeling much better than I have for a

long time. I went to the gym and had a mild workout

this morning for the first time in months. -dz-

--- Jannewilms42@... wrote:

> DZ.....How much longer left on treatment??? I know

> it isn't that much longer

> is it???? Keeping ya in my prayers ok!!!!

>

__________________________________________________

[Guest guest]

That is great news. I'm glad to hear you are feeling better.

> > DZ.....How much longer left on treatment??? I know

> > it isn't that much longer

> > is it???? Keeping ya in my prayers ok!!!!

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi,

Sounds like you are having such a rough time of it. Sorry to hear

it. Right side?......maybe it's your gallbladder you are feeling

instead. I don't know.

Hang in there.

> dz thanks so much for your support and info...I really appreciate

it.I know

> in this group I do have support and that is so important right

now......I

> wish all this was so much easier but as they(the Dr.) say the liver

feels no

> pain....Well why is it my right side has been very uncomfortable

and I have

> no appendix???? Does anyone else's do this too?/ Let me know ok!!!!

[Guest guest]

The drs just say that because THEY don't feel any

pain... Actually, I think that because the liver

becomes inflamed and enlarged it may be the cause of

pain in the surrounding area. I get shooting pains in

that area too every now and then. -dz-

--- Jannewilms42@... wrote:

> dz thanks so much for your support and info...I

> really appreciate it.I know

> in this group I do have support and that is so

> important right now......I

> wish all this was so much easier but as they(the

> Dr.) say the liver feels no

> pain....Well why is it my right side has been very

> uncomfortable and I have

> no appendix???? Does anyone else's do this too?/ Let

> me know ok!!!!

>

__________________________________________________

[Guest guest]

DZ........hahahaha....I bet Dennis is worn out...Hey we got new members...We need to pass him around....Have a great day!!!

[Guest guest]

thanks for your understanding..I hope later when things have settled down for us I will be able to try again but I was told by the Dr. that some just can't handle it at all..I am probably one of them..As usual my hubby was REALLY aggrevating me this morning and besides getting "THE LOOK" I told him and I thought it was the meds making me crazy!! It's you afterall!!! He just laughed.....Hummmmmm makes me wonder!!!!!!

[Guest guest]

I just want to thank everyone for understanding my decision to get off Tx for now..The main reason I joined this group was for the support and you guys and gals have shown it to me more than once!!!! Thanx again for being here for me when I have needed you!!!

[Guest guest]

You guys are still passing Dennis around? And I

thought I had fatigue.... -dz-

--- Jannewilms42@... wrote:

Once you have been here a

> little while you'll see we do

> vent our emotions at times good or bad.......That is

> one of the reasons we

> stay together...We all understand...Have you met

> Diane yet?? She is great..SJ

> is a wonderful person too....Dennis just gets passed

> around the

> group..hahaha....Oops Dennis did I say that??? Dave

> is wanting to honeymoon

> with his wife....Hope he gets to,,,,

>

__________________________________________________

[Guest guest]

No kidding. If I take the medication to help me sleep

I wake up groggy, if I don't I'm up half the night.

Either way I start out the day tired. But this too

will pass... -dz-

--- Jannewilms42@... wrote:

> last night my stomach was even kinda hard...I would

> have liked to to have

> been tight but oh no.......hahaha......it stays a

> little swollen on the right

> side all the time..They don't feel pain cause they

> can just wwrite themselves

> a script and click their fingers and say pain be

> gone..If only it were so

> easy huh?????

>

__________________________________________________

[Guest guest]

Hi Jan

Some people have a hard time coping with the treatment. If you feel ok with stopping then maybe it is the right thing to do. Maybe later you will be able to resume treatment without as much trouble. I'll be sure and keep you in my prayers.

Re: [ ] my viral load

Ok group I took ,yself off my Tx....Maybe I was wrong but with all this BS going on with my family and the struggles we are going through my nerves were shot beyond repair!!!!!! I figure I will try something else down the road but until then it is better I try to get off and keep my sanity than to have a breakdown especially now that Kristy is here.If any of you want to chew me out go right ahead but I honestly didn't know what else to do.......I have been just so confused about all this mess...Well get in touch ok...I'll be here.

[Guest guest]

Glad to hear that you are feeling better.

Re: [ ] my viral load

> In 67 days I expect to take my last shot. Not that I'm

> counting... I go through the whole battery of tests

> again towards the end of November see if I'm still

> undetectable and I'll see my dr on 12/13 and hear his

> recommendation. I don't know if this is a passing

> phase, but I'm feeling much better than I have for a

> long time. I went to the gym and had a mild workout

> this morning for the first time in months. -dz-

>

>

> --- Jannewilms42@... wrote:

> > DZ.....How much longer left on treatment??? I know

> > it isn't that much longer

> > is it???? Keeping ya in my prayers ok!!!!

> >

>

>

> __________________________________________________

>

[Guest guest]

For those of you new to the group, we were in a

previous group which had grown intolerant of people

using the traditional combo tx as opposed to some of

the alternative txs. When took the initiative

to start this group it was made clear that we are here

for people suffering from hcv and their loved ones.

Whether you choose the traditional tx or an

alternative or no tx at all, we can only choose our

own path, not yours. -dz-

> From: Jannewilms42@...

>

> Sent: Monday, October 15, 2001 11:05 AM

> Subject: Re: [ ] my viral load

>

>

> Ok group I took ,yself off my Tx....Maybe I was

> wrong but with all this BS going on with my family

> and the struggles we are going through my nerves

> were shot beyond repair!!!!!! I figure I will try

> something else down the road but until then it is

> better I try to get off and keep my sanity than to

> have a breakdown especially now that Kristy is

> here.If any of you want to chew me out go right

> ahead but I honestly didn't know what else to

> do.......I have been just so confused about all this

> mess...Well get in touch ok...I'll be here.

>

[Guest guest]

Hey - isn't it someone else's turn? That's ok I don't mind.

I spent today in a class on the identification and control of non-native

invasive plant species. Actually it was very interesting (and scary). We

could lose many valuable plants due to the aggressiveness of some of the

invasives which have no value.

I worked on a trail crew cutting brush last Saturday and I'm still

recovering. Had a good time though. I've been wanting to contribute to the

maintenance of the trails I use and enjoy. The trail was at a reservoir

that I fished in as a boy 45 years ago. Maybe I already told about this - I

can't remember. Oh well.

We will be going up to Bar Harbor, Maine this weekend for a wedding. It is

a beautiful place but over 6 hours drive. Maybe I'll have a few steamers up

there :-)

Be Well

Dennis

Re: [ ] Re: my viral load

> You guys are still passing Dennis around? And I

> thought I had fatigue.... -dz-

>

> --- Jannewilms42@... wrote:

> Once you have been here a

> > little while you'll see we do

> > vent our emotions at times good or bad.......That is

> > one of the reasons we

> > stay together...We all understand...Have you met

> > Diane yet?? She is great..SJ

> > is a wonderful person too....Dennis just gets passed

> > around the

> > group..hahaha....Oops Dennis did I say that??? Dave

> > is wanting to honeymoon

> > with his wife....Hope he gets to,,,,

> >

>

>

> __________________________________________________

>