Guest guest Posted October 16, 1999 Report Share Posted October 16, 1999 In a message dated 10/16/99 9:30:51 AM Eastern Daylight Time, freckles@... writes: << or the fact that I have been forgeting to take my medication and have been very irregular with it.) >> Thank you so much for your encouragement and advice. I'm going to try to get my new primary care doctor (who is a DO) to try this again. Now for you! Of course, forgetting your meds WILL cause the puffiness and other symptoms to come back. It's absolute proof that you do have this disorder! Get back to taking those meds, my friend! Thank you again, Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 1999 Report Share Posted October 16, 1999 > Hi Joyce, and everyone, My name is Tres and I am also new to the list .I am just like you Joyce, I am showing all the symptoms of hypothyroidism, but my test came back neg.. The only difference is , is I did some research and took it to my doc and showed her that many times nothing shows in the blood work, so I asked If she would try me on thyroid meds anyway and see how I do. She agreed, and I am now on my 3rd weed of synthroid. So far, I do seem to have a slight increase in energy, and I have also had very severe swelling for years mostly in my legs, but not limit to them , that for the first time in years, went down quite a bit. ( With the exception of the past four days, I puffed back up, and I am not sure if it is allergies, the heat, or the fact that I have been forgeting to take my medication and have been very irregular with it.) In the past ten years I have gained over 100 lbs., have severe pitting edema, oily dry flakey skin, stomach and digestive problems, brittle nailes, dry hair, pain over my whole body,( sometimes so bad I can hardly get out of bed or get out of the chair to walk across the room ), muscle spasms, pain in my muscles and joints, blurred vision, deppression, bad tempered, weakness, throat in the area of thyriod sore to touch, sick often, fatige, sleeplessness, then other times can't get enough sleep, and the list goes on. Over the years I have tried all kinds of home remidies thinking I have had other things wrong. I have tried vit. and min., and juicing. ( I am still very convinced that juicing is something that will help with all kinds of illness. That along with nutrition.) None of these things helped , athough the juicing made me feel a bit better. I hope I have finally found what is wrong with me. If you can't get your doc to listen to you maybe you can get him to refer you to a thyriod doc. He would be more knowledgable about it not showing in your bloodwork. I hope everything works out for you Joyce. I know how hopeless it can feel when you can't do anything about it or get anyone else to do anything either. I'm glad to get to know everyone. Gods blessings on you all, Tres > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 2 > Date: Fri, 15 Oct 1999 17:27:23 EDT > From: WycheQueen@... > Subject: Re: Welcome to hypothyroidismonelist > > Hello list members, > I just subscribed to this list today. I have hypothyroidism but cannot seem > to get the doctors to acknowledge it. I exhibit all the signs and symptoms > but when the simple blood test is done, I'm told my thyroid is " normal. " > Years ago it was discovered that the problem I have is the failure of T3 in > my body to convert to T4, but the doctors still don't want to do anything to > treat it. I keep getting copies of diets shoved at me....... like I > couldn't teach a class on diets already!! > > I look forward to reading and posting on this list. > > Joyce > > _______________________________________________________________________________ > _______________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 I like to have about 1/3 or 1/4 a sweet potato for a snack in the late afternoon. It's very satisfying. I don't get hungry on the way home from work. I just bake the potato and cut it into three or four pieces which I can bring along in a plastic bag. Aikya Digest Number 84 > From: Randall Bowles <104031.3067@...> > > Enjoyed your comments, Carol! > > How wonderful that your husband is truly interested in nutrition - that has > to be a big help. > Yes, I forgot to mention that sweet potatoes are also very good. I've also > found sweet potato chips at the HFS and they aren't bad. Forgot the brand > name. Next time I go in (It's about a 35-40 minute drive) I'll check it out > and share with everyone. > > > Aikya, thanks for the info. on raw cane sugar. Every little bit of > information helps - If I can just remember it all! > > Also, whoever wrote yesterday or the day before about certain fruits and > veggies blocking iodine - very useful stuff there. > > Thanks, > Becky. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 The book The Soapmaker's Companion by Cavitch has a lot of information on natural colorants. There are numerous things you can use including annatto, paprika, tumeric, cinnamon, cocoa powder, and even brewed coffee and tea. Debbie S. > >Message: 6 > Date: Wed, 12 Jan 2000 18:38:41 -0500 > From: " Virginialee Snider " <colors@...> >Subject: Re: Soap Coloring > > >I am interested in coloring soap too, naturally. ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Joan: Don't know why, but I had to download Dig. No. 84 and then it was in this strange Greek lettering........figures.....there were over 15 posts..a really big one, too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Dear Doc: Had a computer crash, and lost the info we had discussed. Could you E-mail privately, from your's. I have a question that I do not believe the group would be interested in, but, I would like to pick your expertise about it. Thanks, Marty byteme@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Dear Doc: Had a computer crash, and lost the info we had discussed. Could you E-mail privately, from your's. I have a question that I do not believe the group would be interested in, but, I would like to pick your expertise about it. Thanks, Marty byteme@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Janet, You are not full of self pity. You have been told you have a rare disease, that it is serious, and yet the doctor really couldn't tell you much about it. You are being referred to a specialist, so more waiting, tests, and insurance cr*p, etc. This is incredibly scary, stressful and serious. I do not know alot about it, but I do know a little bit. My birth grandmother had both Raynaud's Syndrome and Scleroderma. After many years, her heart and lungs hardened and it did cause her to have a stroke and die. Now, she passed away in 1982, and I'm sure alot has been done in research since then. I found out about all this 6 years ago when I was contacted by my birth mother, and did some researching on it. I also have some of the Raynaud's symptoms, and have had them since I was a child. My hands and feet would get so cold, they would turn different colors and become splotchy looking, and tingly. I could only warm them up by putting them in warm water. I could have 5 pairs of socks on, and my feet would be sweating, but still ice-cold and blue-looking. I now have Fibromylagia, which seems to be another type of autoimmune syndrome, disease, whatever. I have no idea if they are really related or not, but it does make me kind of wonder. Tho the info said that Scleroderma is not usually hereditary. Janet, I will be thinking of you. The regular exercise does help alot it said on one of the sites that Barb provided. Please take care, and make sure you have a lot of support. Also have someone go with you to your appointment with the specialist so that they can help you remember and write down things. Sometimes this stuff is so upsetting that it is too difficult to try and remember everything. I don't know how many times I have had to call doctors back asking them, " Now what did you say about so and so? " ! {{{{Hugs}}}}! I will be sending you lots of positive vibes and prayers! Regards, in Texas > > > Message: 3 > Date: Wed, 19 Apr 2000 14:43:00 -0000 > From: " JBunny " <bunnykinsfan@...> > Subject: Scleroderma(OT)and a MOAN > > Hi all, > I hope you don't mind my posting about this,But! I need to Get it > out--I have Visualised Telling my Mum-and Sister,But To be > honest-They > would turn it around and Bring up something the matter with them,so I > don't want to.. > > You wouldn't know-But! about 2 years ago-I started with " white Finger " > For a long time-It was Highly amusing to see mY fingers go Multi > Coloured- > It didn't hurt and At the worst just felt tingly! so! I didn't " do > anything " about it-In fact the Cases were so few and far Between,It > must have taken me till Last Summer to realise I Had a > CONDITION,when it started occuring in hot weather too. > At the gym-I would get Numb Toes-And so Changed My Trainers 3 > Times-Before I realised it wasn't The Training shoe But Me! > > I realised things Had Got FAR WORSE When Whilst Cutting raw chicken > at > Work-I could no longer feel either hands,they were so numb with cold > and that they were starting to go blue now. > I Had Read about Raynauds and so Trooted off to the Doctors-Just to > let him Know! > This was about 1 month ago-and he Put me on Tablets for Angina,that > Block the Amounts of Calcium in the Blood vessels and so Allow a > Higher Pressure of blood flow..Then Said He wanted to run some blood > Tests as He felt the occurances were far more Linked to a Secondary > Raynauds than A Primary > In Short-He felt my Raynauds was a Symptom of an Underlying illness > and Not an illness on its Own! > I thought otherwise,and so Haven't been at all worried about the > results-in fact i should have gone back 1 week ago-But didn't go till > today-I WAS SO very Confident that they would all be 100% in my > favour! > Since doing tae-bo I have felt Wonderful-I even Bounded in there all > smiles and joking how " Coming here is great Birth control you know! " > as there was a Mother and Child Session on! LOL > he seems rather solemn but I dismissed it! > The Only Thing I can say about myself lately is that I HAVE Been > tiring alot quicker-But Initially have more energy-i.e-Can Do the > advanced-But Be tired by Noon-But Then can FIND The energy to Tae-bo > after Tea once I had had a Rest! also! I have been Getting alot of > pain in my hip--put that down to Pre-menstrual Pain ,and since I was > Menstruation free for so Many years Due to Endometriosis,HAD To think > along those lines! > I am sorry--all this Is Probably Irrelavent and You are Probably > Bored > alreday > > so! I walked into his Office,and Smiled and Had a Joke-and He said he > Hadn't Got all The Results in the PC-And Nipped out! > When he got back-I said-Its all Okay then? Everythings All right? > he Told me my Urea was Very Low! I Looked at him Puzzled and so He > explained that My Kidneys were Good-GREAT ! > The Lupas Result was Good--I breathed a Sigh of relief > He said something else was Good-Blood Count Great considering I don't > eat Red Meat-LOL-I asked about Rhumetoid Artharitus(sp)nad mentioned > my Hip and Finger Joints and then He Dropped it-- > My Anti-nuclea Results were Something > I said-So! Its all Okay Then? Dim Or what? > and he said-No! Janet! Its Not okay-But I need to refer you to a > Specialist in the area--I Had Obviously Missed something..and then He > said I had The 1st Stages of Scleroderma > I said-I am Going to get Red and Scabby? > I am sorry if Anyone has This-But I have only Ever seem Old People > with skin like this-and seen Photos on the web > He Couldn't tell me-How This May affect me,When it will flare up! > what > I can do to Prevent it as He says there are only about 3,000 People > diagnosed with it in the UK And so it is Quite Rare. > I am So Angry everyone-I quit Smoking,Came off the Contraceptive > Pill-even Gave up The St s Wort so that I only took in Food and > water --and Every now and then I take a Course Of Vitamnins > My diet Is GREAT-Even if I do say So myself..AND I exercise and do > Tae-bo,I suppose If I didn't do all this It could be worse and I may > Have lost Some Fingers By Now!? I don't know- > I even Told the Doctor I Felt- " pissed off " about It! > He has NEVER Heard me swear before-and I don't know what He Thought > I know My Problem Is NOTHING Compared to s-But I feel so > Annoyed! > i keep getting all weepy,But Have only had a Good Cry over it > once,Because I keep thinking-Oh! well! This is what I have,I have > toMake The Most Of My Life Now-and Work WITH It! > I don't know! > Maybe I am Feeling sorry for Myself-I Know so little of this > condition. > Maybe If I can Find out More I will feel Better--Like--Is it because > I > Moisterise Morning and Night that My Face isn't like the DOCTOR > Thought it Would be--dry and Scaly and Inflamed? > Anyway! At least It explains why I have been so VERY Weary and easily > tired in the last 2 months..Apparantly That is a Sympton(I Found One > site That is the Raynauds and Scleroderma Society in the UK) > Ok! I will finish Now > If ANYONE Has any Info on this I Would REALLY Appriciate Them letting > me Know. > Sorry to moan on so Much-God! I am so Full of self pity Hey? > Or is that My Mother Talking? > Thanks all > Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 In tae-bo_onegroups, K <susan@a...> wrote: > Janet,I now have Fibromylagia, which seems to be another type of autoimmune syndrome, disease,whatever. I have no idea if they are really related or not, but it does make me kind of wonder. Hi . Thanks for responding. My Mum has Fibromylagia...Strange??? However! due to this-when ever I have anything wrong with me-And I mention it-she Just Diverts the Attention back to her-sad Ey? This time-I am Not even going to let her know... The last time,I was diagnosed with anything-endometriosis...after Keyhole surgery,her reponse was- " Well! you will go having ops won't you? what do you expect? " LOL Needless to say-I can do without that Now,can't I? Thank heavens for you all here! I will carry On regardless--Hey! Thats A Song isn't it? By??? Duh! can't think now-I can SEE Them But!!!! they are from Sheffield ! DUH! Anyway! I will carry on,as if They haven't told me-concentrating on Getting to an OPTIMUM Level of fitness,Ensuring My Diet is as Good and wholesome as it has Been lately,and Tae-bo'ing.. My Hips ache so now--But I will learn to Modify! So! There! Thanks and Hugs to you too. Janet )))))) > You are not full of self pity. You have been told you have a rare disease, that it is serious, and yet the doctor really couldn't tell you much about it. You are being referred to a specialist, so more waiting, tests, and insurance cr*p, etc. This is incredibly scary, stressful and serious. > > I do not know alot about it, but I do know a little bit. My birth grandmother had both Raynaud's Syndrome and Scleroderma. After many years, her heart and lungs hardened and it did cause her to have a stroke and die. Now, she passed away in 1982, and I'm sure alot has been done in research since then. I found out about all this 6 years ago when I was contacted by my birth mother, and did some researching on it. I also have some of the Raynaud's symptoms, and have had them since I was a child. My hands and feet would get so cold, they would turn different colors and become splotchy looking, and tingly. I could only warm them up by putting them in warm water. I could have 5 pairs of socks on, and my feet would be sweating, but still ice-cold and blue-looking. I now have Fibromylagia, which seems to be another type of autoimmune syndrome, disease, whatever. I have no idea if they are really related or not, but it does make me kind of wonder. Tho the info said that Scleroderma is > not usually hereditary. > > Janet, I will be thinking of you. The regular exercise does help alot it said on one of the sites that Barb provided. Please take care, and make sure you have a lot of support. Also have someone go with you to your appointment with the specialist so that they can help you remember and write down things. Sometimes this stuff is so upsetting that it is too difficult to try and remember everything. I don't know how many times I have had to call doctors back asking them, " Now what did you say about so and so? " ! > > {{{{Hugs}}}}! I will be sending you lots of positive vibes and prayers! > Regards, > in Texas > > > > > > > Message: 3 > > Date: Wed, 19 Apr 2000 14:43:00 -0000 > > From: " JBunny " <bunnykinsfan@d...> > > Subject: Scleroderma(OT)and a MOAN > > > > Hi all, > > I hope you don't mind my posting about this,But! I need to Get it > > out--I have Visualised Telling my Mum-and Sister,But To be > > honest-They > > would turn it around and Bring up something the matter with them,so I > > don't want to.. > > > > You wouldn't know-But! about 2 years ago-I started with " white Finger " > > For a long time-It was Highly amusing to see mY fingers go Multi > > Coloured- > > It didn't hurt and At the worst just felt tingly! so! I didn't " do > > anything " about it-In fact the Cases were so few and far Between,It > > must have taken me till Last Summer to realise I Had a > > CONDITION,when it started occuring in hot weather too. > > At the gym-I would get Numb Toes-And so Changed My Trainers 3 > > Times-Before I realised it wasn't The Training shoe But Me! > > > > I realised things Had Got FAR WORSE When Whilst Cutting raw chicken > > at > > Work-I could no longer feel either hands,they were so numb with cold > > and that they were starting to go blue now. > > I Had Read about Raynauds and so Trooted off to the Doctors-Just to > > let him Know! > > This was about 1 month ago-and he Put me on Tablets for Angina,that > > Block the Amounts of Calcium in the Blood vessels and so Allow a > > Higher Pressure of blood flow..Then Said He wanted to run some blood > > Tests as He felt the occurances were far more Linked to a Secondary > > Raynauds than A Primary > > In Short-He felt my Raynauds was a Symptom of an Underlying illness > > and Not an illness on its Own! > > I thought otherwise,and so Haven't been at all worried about the > > results-in fact i should have gone back 1 week ago-But didn't go till > > today-I WAS SO very Confident that they would all be 100% in my > > favour! > > Since doing tae-bo I have felt Wonderful-I even Bounded in there all > > smiles and joking how " Coming here is great Birth control you know! " > > as there was a Mother and Child Session on! LOL > > he seems rather solemn but I dismissed it! > > The Only Thing I can say about myself lately is that I HAVE Been > > tiring alot quicker-But Initially have more energy-i.e-Can Do the > > advanced-But Be tired by Noon-But Then can FIND The energy to Tae-bo > > after Tea once I had had a Rest! also! I have been Getting alot of > > pain in my hip--put that down to Pre-menstrual Pain ,and since I was > > Menstruation free for so Many years Due to Endometriosis,HAD To think > > along those lines! > > I am sorry--all this Is Probably Irrelavent and You are Probably > > Bored > > alreday > > > > so! I walked into his Office,and Smiled and Had a Joke-and He said he > > Hadn't Got all The Results in the PC-And Nipped out! > > When he got back-I said-Its all Okay then? Everythings All right? > > he Told me my Urea was Very Low! I Looked at him Puzzled and so He > > explained that My Kidneys were Good-GREAT ! > > The Lupas Result was Good--I breathed a Sigh of relief > > He said something else was Good-Blood Count Great considering I don't > > eat Red Meat-LOL-I asked about Rhumetoid Artharitus(sp)nad mentioned > > my Hip and Finger Joints and then He Dropped it-- > > My Anti-nuclea Results were Something > > I said-So! Its all Okay Then? Dim Or what? > > and he said-No! Janet! Its Not okay-But I need to refer you to a > > Specialist in the area--I Had Obviously Missed something..and then He > > said I had The 1st Stages of Scleroderma > > I said-I am Going to get Red and Scabby? > > I am sorry if Anyone has This-But I have only Ever seem Old People > > with skin like this-and seen Photos on the web > > He Couldn't tell me-How This May affect me,When it will flare up! > > what > > I can do to Prevent it as He says there are only about 3,000 People > > diagnosed with it in the UK And so it is Quite Rare. > > I am So Angry everyone-I quit Smoking,Came off the Contraceptive > > Pill-even Gave up The St s Wort so that I only took in Food and > > water --and Every now and then I take a Course Of Vitamnins > > My diet Is GREAT-Even if I do say So myself..AND I exercise and do > > Tae-bo,I suppose If I didn't do all this It could be worse and I may > > Have lost Some Fingers By Now!? I don't know- > > I even Told the Doctor I Felt- " pissed off " about It! > > He has NEVER Heard me swear before-and I don't know what He Thought > > I know My Problem Is NOTHING Compared to s-But I feel so > > Annoyed! > > i keep getting all weepy,But Have only had a Good Cry over it > > once,Because I keep thinking-Oh! well! This is what I have,I have > > toMake The Most Of My Life Now-and Work WITH It! > > I don't know! > > Maybe I am Feeling sorry for Myself-I Know so little of this > > condition. > > Maybe If I can Find out More I will feel Better--Like--Is it because > > I > > Moisterise Morning and Night that My Face isn't like the DOCTOR > > Thought it Would be--dry and Scaly and Inflamed? > > Anyway! At least It explains why I have been so VERY Weary and easily > > tired in the last 2 months..Apparantly That is a Sympton(I Found One > > site That is the Raynauds and Scleroderma Society in the UK) > > Ok! I will finish Now > > If ANYONE Has any Info on this I Would REALLY Appriciate Them letting > > me Know. > > Sorry to moan on so Much-God! I am so Full of self pity Hey? > > Or is that My Mother Talking? > > Thanks all > > Janet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 > I have anything wrong with me-And I > mention it-she Just Diverts the Attention back to her-sad Ey? > This time-I am Not even going to let her know... > The last time,I was diagnosed with anything-endometriosis...after > Keyhole surgery,her reponse was- " Well! you will go having ops won't > you? what do you expect? " LOL > Needless to say-I can do without that Now,can't I? > Thank heavens for you all here! > I will carry On regardless--Hey! Thats A Song isn't it? By??? Duh! > can't think now-I can SEE Them But!!!! they are from Sheffield ! DUH! > Anyway! I will carry on,as if They haven't told me-concentrating on > Getting to an OPTIMUM Level of fitness,Ensuring My Diet is as Good > and > wholesome as it has Been lately,and Tae-bo'ing.. My Hips ache so > now--But I will learn to Modify! > So! There! > Thanks and Hugs to you too. > Janet )))))) > > Janet, I just wanted to say that you have the greatest attitude. I so admire your bravery and ability to add humor to this difficult situation. When is your specialist appointment? I am sorry that your sister and mother are so insensitive about your health problems. They don't need to know about your condition unless you want to share it with them. Elena, who is thinking of Janet often. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 Janet, I just wanted to say that you have the greatest attitude. I so admire your bravery and ability to add humor to this difficult > situation. When is your specialist appointment? I am sorry that > your > sister and mother are so insensitive about your health problems. > They > don't need to know about your condition unless you want to share it > with them. > > Elena, who is thinking of Janet often. Hello Elena, Thanks! I do not know when the appointment will be-I never thought to ask. Over here The GP(Doctor) writes to the Specialist,who then Assess's your Case( I would hope) and then you Usually go on a List! Our Doctor is very good though-So I am Hoping for a quick Referral..I may Pop in and see him tomorrow and ask Him about This! As for being Brave! Well! Today I was well dazed in Tesco's--only went in for Organic Flour and wash Powder and ended up Spending 40 pounds! LOL Broke some eggs-Told a Till Operator off and Had a Crate Of Onions(luckily in Nets) fall On Me....all this Because I feel so weird about it all..anbd weepy! I got home,Sat with and suddenly Cried... We pay a Loan Off Next Month and will be 100 pounds a week better off then...suddenly! I realised I would rather Keep paying that forever than Have An illness! It Puts Things into Priority! doesn't it? We were Re-posessed some 6 years ago--I always felt God had Given us the Oportunity to Purchase a Nice House with gardens and Garage,and a Private Drive,Only to lose it only 18 Months later(due to Rise in interest rates,resession, Short time at work) ,as a way Of Humbling us to Realise What Things are Important in life...It did! and through illness and stress and I stayed together and GREW! In a While-i really believe a reason for all this will become apparent too.. anyway! Thanks-I am Going on and on again! LOL I think I will have to Write an e.mail to an Imaginary Friend--Get it all Out-write down Everything I feel and think--Yes! Good Idea! BTW! My sister rang today and actually asked me had I had The Results-I told he They weren't so Good-and when I finished telling her,and Said that It explained why I had Felt so Tired as Of late-she said!-Humph! MY Doctor Didn't test me for that when I complained of being tired! LOL I ask You? Kids eh? No! she is actually Older than Me! LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 Are you sure we don't have the same mother???? Everything my mother has gone > through is ten times more painful than the worst I can imagine...or so she > tells me. > LOL ! Maybe ALL Mums are like this? All I know is--I REALLY Try to LISTEN To my 2 girls--But! I tend to Be Rather Overly supportive-LOL I am ALWAYS Saying-BUT! How does this/that/the other make you FEEL???? Oh! Dear! do you wnat to Talk about It? I bet When such and such did/said that you felt really Hurt! and so on! They get soooooo stressed with me sometimes! I am Hoping it pays off later and they can relate to Their Inner self-and Me of course! Love Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 In a message dated 4/21/00 3:57:24 AM Central Daylight Time, bunnykinsfan@... writes: << Are you sure we don't have the same mother???? Everything my mother has gone > through is ten times more painful than the worst I can imagine...or so she > tells me. > LOL ! Maybe ALL Mums are like this? All I know is--I REALLY Try to LISTEN To my 2 girls--But! I tend to Be Rather Overly supportive-LOL I am ALWAYS Saying-BUT! How does this/that/the other make you FEEL???? Oh! Dear! do you wnat to Talk about It? I bet When such and such did/said that you felt really Hurt! and so on! They get soooooo stressed with me sometimes! I am Hoping it pays off later and they can relate to Their Inner self-and Me of course! Love Janet >> NO NOT ALL MUMS ARE THE SAME MY MOM SUFFERED IN SILENCE FOR MANY YEARS ...... IT WASNT TILL I WAS OLDER THAT SHE LET ME IN ON A SECRET ...SHE HAD SOJOURN DIESEASE (NOT SURE ON THE SPELLING) WHICH IS ALOT LIKE LUPUS SO MANY SIMILAR SYMPTOMS AND NOW WE SUFFER TOGATHER ,..AND ITS GREAT CUZ SHE STILL CALLS ME IF I DONT CALL AND SHE KNOWS WHEN I AM HAVING A BAD DAY TOO BUT SHE NEVER COMPLAINS ABOUT HER HURTS UNTIL I ASK HOW IS SHE ..... ROMIE WHO HAS THE WORLDS BEST MUM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 JBunny wrote: > > I do not know when the appointment will be-I never thought to ask. > Over here The GP(Doctor) writes to the Specialist,who then Assess's > your Case( I would hope) and then you Usually go on a List! > Our Doctor is very good though-So I am Hoping for a quick Referral..I > may Pop in and see him tomorrow and ask Him about This! > As for being Brave! Well! Today I was well dazed in Tesco's--only > went > in for Organic Flour and wash Powder and ended up Spending 40 pounds! > LOL > Broke some eggs-Told a Till Operator off and Had a Crate Of > Onions(luckily in Nets) fall On Me....all this Because I feel so > weird > about it all..anbd weepy! > I got home,Sat with and suddenly Cried... > We pay a Loan Off Next Month and will be 100 pounds a week better off > then...suddenly! I realised I would rather Keep paying that forever > than Have An illness! > It Puts Things into Priority! doesn't it? > We were Re-posessed some 6 years ago--I always felt God had Given us > the Oportunity to Purchase a Nice House with gardens and Garage,and a > Private Drive,Only to lose it only 18 Months later(due to Rise in > interest rates,resession, Short time at work) ,as a way Of Humbling > us > to Realise What Things are Important in life...It did! and through > illness and stress and I stayed together and GREW! > In a While-i really believe a reason for all this will become > apparent too.. > anyway! Thanks-I am Going on and on again! LOL > I think I will have to Write an e.mail to an Imaginary Friend--Get it > all Out-write down Everything I feel and think--Yes! Good Idea! > > BTW! My sister rang today and actually asked me had I had The > Results-I told he They weren't so Good-and when I finished telling > her,and Said that It explained why I had Felt so Tired as Of late-she > said!-Humph! MY Doctor Didn't test me for that when I complained of > being tired! > LOL > I ask You? > Kids eh? No! she is actually Older than Me! LOL I wish you lived here. We would get you in to see a specialist today (but for a price of course). The waiting must be terrible. You can send that imaginary email here if you like. We are here for you. You are not a burden and we love your posts. I'm glad you have been able to cry. Be alert about depression creaping back in. Times like these everyone is prone to depression and with your history it wouldn't surprise me. My MIL is like your sister. Every conversation has to be about her, no matter what the subject. She is a nice person, but a poor conversationalist. The result, however, is I don't share anything personal with her. I am so sorry you have to be going through all of this. I'm very glad that you are posting here, however, for your's and our sake. Elena, who still thinks you are brave even if a crate of onions fell on you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 In a message dated 4/21/00 1:57:23 AM Pacific Daylight Time, bunnykinsfan@... writes: << LOL ! Maybe ALL Mums are like this? >> The other thing I hated when I was a kid...and we've all experienced it. when you said " Mom my ------ hurts when I do this " and mom would say " well don't do that then " urgh..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 In a message dated 4/22/00 11:13:53 PM Central Daylight Time, galofgop@... writes: << The other thing I hated when I was a kid...and we've all experienced it. when you said " Mom my ------ hurts when I do this " and mom would say " well don't do that then " urgh..... >> WELL WASNT SHE RIGHT IF YOU DONT DO THAT IT WONT HURT ..RIGHT ?????? I DO THAT TO MY KIDS AND THEY NOW SAY BUT EVEN IF I DONT DO THAT IT STILL HURTS SO I SAY HMMM LET ME SEE ...OH OK I SEE WHATS HAPPENING ITS GETTING READY TO FALL OFF DONT WORRY IF IT STILL BUGS YOU TOMORROW WE CAN ALWAYS CUT IT OFF .... OK ?? WELL MOMMY MAYBE ITS JUST GROING PAINS RIGHT I THINK SO THAT MEANS IT WILL STOP WHEN IM GROIN RIGHT ???? THAT WAS NOT A TYPO THEY CALL THEM GROIN PAINS .. AND A PAJAMA IS A PAGINA...LOL.... KIDS HUH ROMIE WHO LEARNED AN ELEPHANT WAS A HACO FROM HER OLDEST Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 Hi all, I just got back from GI doctor. My biopsy shows that i do have cirrhosis but at this time my liver is still functioning well. I will be starting treatment as soon as peg and ribavirin can be used together. The Dr told me to be on the lookout for jaundice, brain fog ( how will i know i'm already dingy)! I have to have a colonoscopy tomorrow because i am high risk for colon cancer, my mom and her sister both died from it. yuck oh well when it rains it pours!! My pcr is still 711,000 which is great so my doc thnks that i may respond well to tx. Diane, what happened with you today? Terri Sig Maker || Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 Hey Terri, I know what you mean about dingy...... Hand in the air waving..... I wonder why he told you to be on the lookout for jaundice....... I got my pcr back also. It is almost 6 million...... Jumped a million in 4 months..... They have to come up with a way to eradicate this virus.... There are so many people infected, that it makes you wonder what the hell they are doing to find something to slow it down.... We are the Dragonslayers...... We will come out on top one way or another..... we are a strong group of people and united we ca take on he world.... Well maybe not the whole world but a big chunk of it... ;o Angel Hugs, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 Terri, Sorry to hear about the cirrossis.... Glad to hear your Liver is functioning well.... Hang tough girl..... Love ya (((TERRI))) Angel Hugs, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 DZ aren't you suppose to be at work? Hummm seems like you too busy to work. That's it since Labor Day was your BD too you decided to make today Labor Day for yourself huh?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 I won't say a word!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 On Koop's website he calls it the silent killer. Unfortunately the public is still largely ignorant of the impact of this disease, partly because most of us have it for 20 years or so before we know it. I read somewhere that it will soon pass up aids in annual deaths, partly because aids patients are living longer, but also more and more of us are coming out of the woodwork. Hopefully somebody with sit up and take notice. On the website http://www.hepatitis-central.com there is a link that allows you to email your senators & congressman of your concerns about doing more to help find a cure for this disease. -dz- --- diane214@... wrote: > Hey Terri, > I know what you mean about dingy...... Hand in > the air waving..... I > wonder why he told you to be on the lookout for > jaundice....... I got my > pcr back also. It is almost 6 million...... Jumped a > million in 4 > months..... They have to come up with a way to > eradicate this virus.... > There are so many people infected, that it makes you > wonder what the > hell they are doing to find something to slow it > down.... We are the > Dragonslayers...... We will come out on top one way > or another..... we > are a strong group of people and united we ca take > on he world.... Well > maybe not the whole world but a big chunk of it... > ;o > > > > Angel Hugs, > > Diane > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 That doesn't sound too bad. I know mine was over 1million when I started. The test I took only would measure up to 1 million, so I don't know how high it was. I am responding to the tx, pcr now shows undetectable, now I just have to finish and pray I don't relapse after I stop the tx. Good luck. -dz- --- WTM4@... wrote: > Hi all, > I just got back from GI doctor. My biopsy shows > that i do have > cirrhosis but at this time my liver is still > functioning well. I will be > starting treatment as soon as peg and ribavirin can > be used together. > The Dr told me to be on the lookout for jaundice, > brain fog ( how will i > know i'm already dingy)! I have to have a > colonoscopy tomorrow because i > am high risk for colon cancer, my mom and her sister > both died from it. > yuck oh well when it rains it pours!! My pcr is > still 711,000 which is > great so my doc thnks that i may respond well to tx. > Diane, what happened with you today? > Terri > > <HR> <html> <body bgcolor= " #f0f8ff " text= " #000000 " background= " http://wtv-zone.com/siggies/A/bgs/angels/7.jpg " > <center> <br><br><br> <table cellpadding= " 3 " border= " 6 " > <tr><td align= " center " bgcolor= " #000000 " > <font size= " 2 " color= " #ddeeff " > <clock> </font> </table> <spacer type= " vertical " height= " 100 " > <a href= " http://ultra1.hypermart.net/toolz/sig.cgi " nocolor> <font size= " 6 " color= " #bfa93c " effect= " shadow " > Sig Maker ||</font></a> </center> <br><br><br> </body> </html> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 I am at work. Don't tell anybody. -dz- --- Jannewilms42@... wrote: > DZ aren't you suppose to be at work? Hummm seems > like you too busy to work. > That's it since Labor Day was your BD too you > decided to make today Labor Day > for yourself huh?? > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 My lips are sealed that he's AT WORK !!!!!!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.