Possible Lyme in 3 yr old???

[Guest guest]

Hello - I was just wondering if I can get some help. Back in 2008 I had 2 ring

rashes on my stomach. Thought it was ring worm - did nothing. Then the weird

Lyme symptoms started. I am positive for lyme. My question is about my 3 yr old.

He was 2 at the time and shortly after my infection - he developed fevers back

to back for 4 months straight. Now that he is 3 - he complains of " black spots

in his eyes " he has heart palpitations (7000 in one day - check with a holter)

and no other irregularities with his heart. Now after 3 yrs of good speech - he

stutters. He DOES not sleep through the night - tosses and turns. He has asthma,

irregular heart beat and allergies. Could this be lyme? I never noticed a rash

on him due to eczema. I am scared. Any thoughts?

[Guest guest]

He does not need to have had a rash to have Lymes. You need to test

him " properly " for it. With a Lyme Literate Doctor that uses a Lyme

Literate Lab like IGENEX in CA. (igenex.com)

Suzanne

On Jul 29, 2010, at 9:55 PM, glenshire78 wrote:

> Hello - I was just wondering if I can get some help. Back in 2008 I

> had 2 ring rashes on my stomach. Thought it was ring worm - did

> nothing. Then the weird Lyme symptoms started. I am positive for

> lyme. My question is about my 3 yr old. He was 2 at the time and

> shortly after my infection - he developed fevers back to back for 4

> months straight. Now that he is 3 - he complains of " black spots in

> his eyes " he has heart palpitations (7000 in one day - check with a

> holter) and no other irregularities with his heart. Now after 3 yrs

> of good speech - he stutters. He DOES not sleep through the night -

> tosses and turns. He has asthma, irregular heart beat and allergies.

> Could this be lyme? I never noticed a rash on him due to eczema. I

> am scared. Any thoughts?

>

>

>

[Guest guest]

yes indeed, it could be and probably is Lyme. Get his an IgeneX test stat! I

am so sorry you are going through this, but as we did not diagnose my daughters

until ages 12 and 11, I can tell you I wish we had known what we were seeing and

dealt with it much sooner so that they could have had more of a childhood.

Natasha

________________________________

From: glenshire78 <glenshire78@...>

Sent: Thu, July 29, 2010 7:55:19 PM

Subject: [ ] Possible Lyme in 3 yr old???

Hello - I was just wondering if I can get some help. Back in 2008 I had 2 ring

rashes on my stomach. Thought it was ring worm - did nothing. Then the weird

Lyme symptoms started. I am positive for lyme. My question is about my 3 yr old.

He was 2 at the time and shortly after my infection - he developed fevers back

to back for 4 months straight. Now that he is 3 - he complains of " black spots

in his eyes " he has heart palpitations (7000 in one day - check with a holter)

and no other irregularities with his heart. Now after 3 yrs of good speech - he

stutters. He DOES not sleep through the night - tosses and turns. He has asthma,

irregular heart beat and allergies. Could this be lyme? I never noticed a rash

on him due to eczema. I am scared. Any thoughts?

[Guest guest]

It definitely could be Lyme.

You can start with your primary care doctor. Many of them will start

testing and treatment, and can be seen sooner than LLMDs. If they are

dismissive or don't follow through, don't give up - seek another doctor

to support you. You should at least consult with an LLMD: if your son

has Lyme he has had it for a while, and it is unlikely that your PCP

will feel comfortable providing adequate treatment.

Suzanne wrote:

> He does not need to have had a rash to have Lymes. You need to test

> him " properly " for it. With a Lyme Literate Doctor that uses a Lyme

> Literate Lab like IGENEX in CA. (igenex.com)

>

> Suzanne

>

> On Jul 29, 2010, at 9:55 PM, glenshire78 wrote:

>

>

>> Hello - I was just wondering if I can get some help. Back in 2008 I

>> had 2 ring rashes on my stomach. Thought it was ring worm - did

>> nothing. Then the weird Lyme symptoms started. I am positive for

>> lyme. My question is about my 3 yr old. He was 2 at the time and

>> shortly after my infection - he developed fevers back to back for 4

>> months straight. Now that he is 3 - he complains of " black spots in

>> his eyes " he has heart palpitations (7000 in one day - check with a

>> holter) and no other irregularities with his heart. Now after 3 yrs

>> of good speech - he stutters. He DOES not sleep through the night -

>> tosses and turns. He has asthma, irregular heart beat and allergies.

>> Could this be lyme? I never noticed a rash on him due to eczema. I

>> am scared. Any thoughts?

>>

[Guest guest]

My daughter is 16 and she was diagnosed last November with Lyme and 3 co

infections. She started showing symptoms at 6yrs when my husband pulled three

ticks off of her. After 10 yrs of going to drs. s began having seizures last

year and I heard about Lyme. Do not wait for more symptoms til u have her

tested. If we only knew about this horrible disease earlier. She has a page on

facebook fightforlaura. Its to educate others and give encouragement for her to

continue to fight.

Thank you, Libby

Sent via BlackBerry by AT & T

Re: [ ] Possible Lyme in 3 yr old???

It definitely could be Lyme.

You can start with your primary care doctor. Many of them will start

testing and treatment, and can be seen sooner than LLMDs. If they are

dismissive or don't follow through, don't give up - seek another doctor

to support you. You should at least consult with an LLMD: if your son

has Lyme he has had it for a while, and it is unlikely that your PCP

will feel comfortable providing adequate treatment.

Suzanne wrote:

> He does not need to have had a rash to have Lymes. You need to test

> him " properly " for it. With a Lyme Literate Doctor that uses a Lyme

> Literate Lab like IGENEX in CA. (igenex.com)

>

> Suzanne

>

> On Jul 29, 2010, at 9:55 PM, glenshire78 wrote:

>

>

>> Hello - I was just wondering if I can get some help. Back in 2008 I

>> had 2 ring rashes on my stomach. Thought it was ring worm - did

>> nothing. Then the weird Lyme symptoms started. I am positive for

>> lyme. My question is about my 3 yr old. He was 2 at the time and

>> shortly after my infection - he developed fevers back to back for 4

>> months straight. Now that he is 3 - he complains of " black spots in

>> his eyes " he has heart palpitations (7000 in one day - check with a

>> holter) and no other irregularities with his heart. Now after 3 yrs

>> of good speech - he stutters. He DOES not sleep through the night -

>> tosses and turns. He has asthma, irregular heart beat and allergies.

>> Could this be lyme? I never noticed a rash on him due to eczema. I

>> am scared. Any thoughts?

>>

[Guest guest]

Sounds like it. My 5 year old daughter contracted lyme from me in utero. She

had a very high fever at 2 and was diagnosed with Autism which was induced

by the Lyme. She's been treated since 2 by the best pediatrician LLMD in the

US and really is no longer autistic at all for the most part. No physical

symptoms.. hers were all neurological/developmental mostly. Autism happens

sometimes but developmental / cognitive problems are a typical symptom. Get

him treated ASAP. Don't wait for a positive test but you need to see a LLMD.

Jen

On Thu, Jul 29, 2010 at 10:55 PM, glenshire78 <glenshire78@...> wrote:

>

>

> Hello - I was just wondering if I can get some help. Back in 2008 I had 2

> ring rashes on my stomach. Thought it was ring worm - did nothing. Then the

> weird Lyme symptoms started. I am positive for lyme. My question is about my

> 3 yr old. He was 2 at the time and shortly after my infection - he developed

> fevers back to back for 4 months straight. Now that he is 3 - he complains

> of " black spots in his eyes " he has heart palpitations (7000 in one day -

> check with a holter) and no other irregularities with his heart. Now after 3

> yrs of good speech - he stutters. He DOES not sleep through the night -

> tosses and turns. He has asthma, irregular heart beat and allergies. Could

> this be lyme? I never noticed a rash on him due to eczema. I am scared. Any

> thoughts?

>

>

>

--

***The Will Of God Will Never Take You ...

Where the Grace Of God Will Not Protect You***

[Guest guest]

I agree-- sounds very likely that he has Lyme. I also passed it to my two sons

in utero. Keep pursuing it.

Best wishes.

Elaine

________________________________

From: <lnelson@...>

Sent: Fri, July 30, 2010 6:35:41 AM

Subject: Re: [ ] Possible Lyme in 3 yr old???

It definitely could be Lyme.

You can start with your primary care doctor. Many of them will start

testing and treatment, and can be seen sooner than LLMDs. If they are

dismissive or don't follow through, don't give up - seek another doctor

to support you. You should at least consult with an LLMD: if your son

has Lyme he has had it for a while, and it is unlikely that your PCP

will feel comfortable providing adequate treatment.

Suzanne wrote:

> He does not need to have had a rash to have Lymes. You need to test

> him " properly " for it. With a Lyme Literate Doctor that uses a Lyme

> Literate Lab like IGENEX in CA. (igenex.com)

>

> Suzanne

>

> On Jul 29, 2010, at 9:55 PM, glenshire78 wrote:

>

>

>> Hello - I was just wondering if I can get some help. Back in 2008 I

>> had 2 ring rashes on my stomach. Thought it was ring worm - did

>> nothing. Then the weird Lyme symptoms started. I am positive for

>> lyme. My question is about my 3 yr old. He was 2 at the time and

>> shortly after my infection - he developed fevers back to back for 4

>> months straight. Now that he is 3 - he complains of " black spots in

>> his eyes " he has heart palpitations (7000 in one day - check with a

>> holter) and no other irregularities with his heart. Now after 3 yrs

>> of good speech - he stutters. He DOES not sleep through the night -

>> tosses and turns. He has asthma, irregular heart beat and allergies.

>> Could this be lyme? I never noticed a rash on him due to eczema. I

>> am scared. Any thoughts?

>>

[Guest guest]

Thank you all for the posts. The pediatric infections disease dr that I saw

Friday is saying that he does not believe it is Lyme. He did give me a req for a

lyme blood drawl for the Western Blot and the Reflex. I am just concerned

because he seems to be getting worse. Does anyone know a GOOD Lyme dr in Ohio?

THANKS!

>

> Hello - I was just wondering if I can get some help. Back in 2008 I had 2 ring

rashes on my stomach. Thought it was ring worm - did nothing. Then the weird

Lyme symptoms started. I am positive for lyme. My question is about my 3 yr old.

He was 2 at the time and shortly after my infection - he developed fevers back

to back for 4 months straight. Now that he is 3 - he complains of " black spots

in his eyes " he has heart palpitations (7000 in one day - check with a holter)

and no other irregularities with his heart. Now after 3 yrs of good speech - he

stutters. He DOES not sleep through the night - tosses and turns. He has asthma,

irregular heart beat and allergies. Could this be lyme? I never noticed a rash

on him due to eczema. I am scared. Any thoughts?

>

[Guest guest]

We to saw a Infec. Disease doc, ours was Children's Hospital in Columbus, also

one at Cleveland Clinic. Just to warn you they do not believe there is Lyme in

Ohio. My son had been to every doc at Children's and Cleveland Clinic for

almost 5 years and tons of docs, we didn’t get any help until we went to see

Dr. J in Conn. My daughter tested positive (western blot) and even showing the

infec. disease. doc at children's, he said the lab we used (Igenex) was know for

positive results. I sent him the papers that show where Igenex is a Medicare

approved lab which means they are inspected and have to meet very high

standards. Yet my daughter had been tested once before and was neg. It

wasn’t till after tx was over for several several months and she started

getting sick again that she tested positive. We haven’t heard from him since.

Regardless you must get him to a " lyme specialist " . We drive to Conn. and are

sch to go the end of this month. If you need help with $ go to

www.lymediseaseassociation.org, click on Grants and go to Lyme Aid for Kids.

This was the only way we were able to afford to go see a doc.

My children were so sick that we had to homeschool them. Our school even came

after us legally because of the amount of school they missed.

Keep your head up and keep fighting for what you know is right.

--

R. Wood

michellerwood@...

Happiness keeps you sweet, Trials keep you strong, Sorrows Keep you Human,

Failures keep you humble, Success keeps you glowing, but only GOD keeps you

Going!

---- glenshire78 <glenshire78@...> wrote:

> Thank you all for the posts. The pediatric infections disease dr that I saw

Friday is saying that he does not believe it is Lyme. He did give me a req for a

lyme blood drawl for the Western Blot and the Reflex. I am just concerned

because he seems to be getting worse. Does anyone know a GOOD Lyme dr in Ohio?

THANKS!

>

>

> >

> > Hello - I was just wondering if I can get some help. Back in 2008 I had 2

ring rashes on my stomach. Thought it was ring worm - did nothing. Then the

weird Lyme symptoms started. I am positive for lyme. My question is about my 3

yr old. He was 2 at the time and shortly after my infection - he developed

fevers back to back for 4 months straight. Now that he is 3 - he complains of

" black spots in his eyes " he has heart palpitations (7000 in one day - check

with a holter) and no other irregularities with his heart. Now after 3 yrs of

good speech - he stutters. He DOES not sleep through the night - tosses and

turns. He has asthma, irregular heart beat and allergies. Could this be lyme? I

never noticed a rash on him due to eczema. I am scared. Any thoughts?

> >

>

>