Re: ligaments tear easy??

[Guest guest]

Diane,

My sons have both had chronic problems with ligament strains. The explanation

that made the most sense to me was that Lyme increases the inflamatory response.

When you combine that with my kids' sports activities (and they are doing well

enought to play sports) and growth, they have a propensity to be easily injured.

Your daughter's case seems much more complex than that, but it could be that the

Lyme is exacerbating but not causing the problem.

Best wishes,

>

> Thanks Annie - when you are done with one hurdle another comes along -

>

> Does anyone know if our ligaments muscles in the knee are easy to tear because

of lyme?  I know she has low muscles in her legs - family doc has never said

anything but it's easy to see - she tore a muscle in her knee yesterday and for

no reason - no injury at all - seems very weird to be - besides the large cyst

that takes up allot of the bone leg................. she was up in  pain most of

the night -

> thanks,

> Diane

>

>

>

>

> ________________________________

> From: Annie <akannielm@...>

>

> Sent: Wed, October 21, 2009 9:51:14 PM

> Subject: Re: [ ] cyst in bone? anyone else?

>

>  

> Sorry, Diane, I don't , but that would really scare me. I had a hospital a few

years ago say my daughter had an abnormality, but when the pediatrician looked

at the films, they said it was completely normal. I hope you get a clear answer

from someone.

> Annie

>

> ____________ _________ _________ __

> From: Diane <dkbmama (DOT) com>

>

> Sent: Wed, October 21, 2009 7:13:24 PM

> Subject: [ ] cyst in bone? anyone else?

>

>  

> Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

> thanks,

> Diane

>

>

[Guest guest]

Diane,

I'm so sorry you and your daughter are going through all this!

I don't necessarily know the answer to your question but it did ring a bell to

me that there was one med my LLMD was considering for my son last year for M.

Fermentans and he said if we had to resort to using this med that we should be

VERY careful to pay attention to any complaints my son had about pain around his

knee because there was a possible side effect that could cause damage.

Basically he seemed to say that if he complained of any soreness around the knee

while he was on this med then he would need to stop taking it immediately just

to be sure. We ended up not using that med so far and I can't remember the name

of it but if you tell me what meds your son is on, if I think one might possibly

be the one my LLMD was concerned about I can look through my records more and

see if I could find the name of it in my notes. Or maybe someone else on this

forum knows what med this might have been.

Sorry to be so vague, but I thought it was info worth throwing out there in case

there is any connection to the meds your daughter is taking.

Take care,

Patty

[ ] cyst in bone? anyone else?

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

thanks for the reply - she has recently been on cefdinir and now because of a

virus and sinus infection she is on Amox TR-K CLV 500-125 mg tab two times a

day..............

I will call the doc this morning and see if he has any idea's.............

I have to follow up with our regular doctor and she is so clueless about lyme I

dont even talk to her about it.

thanks for you info - sure is something to look into............

Diane

________________________________

From: Patty Belke <pbelke1@...>

Sent: Thu, October 22, 2009 7:54:36 AM

Subject: Re: [ ] ligaments tear easy??

 

Diane,

I'm so sorry you and your daughter are going through all this!

I don't necessarily know the answer to your question but it did ring a bell to

me that there was one med my LLMD was considering for my son last year for M.

Fermentans and he said if we had to resort to using this med that we should be

VERY careful to pay attention to any complaints my son had about pain around his

knee because there was a possible side effect that could cause damage. Basically

he seemed to say that if he complained of any soreness around the knee while he

was on this med then he would need to stop taking it immediately just to be

sure. We ended up not using that med so far and I can't remember the name of it

but if you tell me what meds your son is on, if I think one might possibly be

the one my LLMD was concerned about I can look through my records more and see

if I could find the name of it in my notes. Or maybe someone else on this forum

knows what med this might have been.

Sorry to be so vague, but I thought it was info worth throwing out there in case

there is any connection to the meds your daughter is taking.

Take care,

Patty

[ ] cyst in bone? anyone else?

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

Levaquin can cause weakening of ligaments but is usually prescribed to adults

for Lyme.  As far as the cyst, my nephew had 'something' removed from his leg

last year, I tried to get them to test for Lyme but the doctors insisted it

wasn't Lyme (you know the mantra) and wouldn't test him.  He was put on

antibiotics for over a year, 3x/day, after the surgery.  I'm sorry too that you

and your daughter are going through this, I will add you both to my prayers for

a full recovery! Barbara

PS You may all ready do this but every time we were put on a new med I would

google it and read all info I could find on side effects, etc. 

From: Diane Biel <dkbmama@...>

Subject: Re: [ ] ligaments tear easy??

Date: Thursday, October 22, 2009, 6:22 AM

 

thanks for the reply - she has recently been on cefdinir and

now because of a virus and sinus infection she is on Amox TR-K CLV 500-125 mg

tab two times a day......... .....

I will call the doc this morning and see if he has any idea's...... .......

I have to follow up with our regular doctor and she is so clueless about lyme I

dont even talk to her about it.

thanks for you info - sure is something to look into........ ....

Diane

____________ _________ _________ __

From: Patty Belke <pbelke1verizon (DOT) net>

Sent: Thu, October 22, 2009 7:54:36 AM

Subject: Re: [ ] ligaments tear easy??

 

Diane,

I'm so sorry you and your daughter are going through all this!

I don't necessarily know the answer to your question but it did ring a bell to

me that there was one med my LLMD was considering for my son last year for M.

Fermentans and he said if we had to resort to using this med that we should be

VERY careful to pay attention to any complaints my son had about pain around his

knee because there was a possible side effect that could cause damage. Basically

he seemed to say that if he complained of any soreness around the knee while he

was on this med then he would need to stop taking it immediately just to be

sure. We ended up not using that med so far and I can't remember the name of it

but if you tell me what meds your son is on, if I think one might possibly be

the one my LLMD was concerned about I can look through my records more and see

if I could find the name of it in my notes. Or maybe someone else on this forum

knows what med this might have been.

Sorry to be so vague, but I thought it was info worth throwing out there in case

there is any connection to the meds your daughter is taking.

Take care,

Patty

[ ] cyst in bone? anyone else?

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

THANKS - my 14 year old use to also have cysts removed before we realized this

was all due to lyme and they could grow back anyways..........but this is

something different it is in the leg bone itself - not outside - it's really

strange - going to see a doctor tomorrow about it - so we will see - i am sure

he will roll his eyes if I even bring up lyme..................when will the

times change?? 

thanks everyone!!

Diane

________________________________

From: Barbara Spaulding <barbspaulding@...>

Sent: Thu, October 22, 2009 11:54:14 AM

Subject: Re: [ ] ligaments tear easy??

 

Levaquin can cause weakening of ligaments but is usually prescribed to adults

for Lyme.  As far as the cyst, my nephew had 'something' removed from his leg

last year, I tried to get them to test for Lyme but the doctors insisted it

wasn't Lyme (you know the mantra) and wouldn't test him.  He was put on

antibiotics for over a year, 3x/day, after the surgery.  I'm sorry too that you

and your daughter are going through this, I will add you both to my prayers for

a full recovery! Barbara

PS You may all ready do this but every time we were put on a new med I would

google it and read all info I could find on side effects, etc. 

From: Diane Biel <dkbmama (DOT) com>

Subject: Re: [ ] ligaments tear easy??

Date: Thursday, October 22, 2009, 6:22 AM

 

thanks for the reply - she has recently been on cefdinir and now because of a

virus and sinus infection she is on Amox TR-K CLV 500-125 mg tab two times a

day......... .....

I will call the doc this morning and see if he has any idea's...... .......

I have to follow up with our regular doctor and she is so clueless about lyme I

dont even talk to her about it.

thanks for you info - sure is something to look into........ ....

Diane

____________ _________ _________ __

From: Patty Belke <pbelke1verizon (DOT) net>

Sent: Thu, October 22, 2009 7:54:36 AM

Subject: Re: [ ] ligaments tear easy??

 

Diane,

I'm so sorry you and your daughter are going through all this!

I don't necessarily know the answer to your question but it did ring a bell to

me that there was one med my LLMD was considering for my son last year for M.

Fermentans and he said if we had to resort to using this med that we should be

VERY careful to pay attention to any complaints my son had about pain around his

knee because there was a possible side effect that could cause damage. Basically

he seemed to say that if he complained of any soreness around the knee while he

was on this med then he would need to stop taking it immediately just to be

sure. We ended up not using that med so far and I can't remember the name of it

but if you tell me what meds your son is on, if I think one might possibly be

the one my LLMD was concerned about I can look through my records more and see

if I could find the name of it in my notes. Or maybe someone else on this forum

knows what med this might have been.

Sorry to be so vague, but I thought it was info worth throwing out there in case

there is any connection to the meds your daughter is taking.

Take care,

Patty

[ ] cyst in bone? anyone else?

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

This was 'in' his tibia, he was 14 and they thought it was a sports injury

" Osgood-Schlatters " because he played basketball and it was in the area where

the patellar tendon attaches.  It was a large growth in the bone that had to be

totally removed.  At that time Finette had great advice on having the piece of

bone tested when removed which I sent on to his parents but was ignored by the

doctors (If you look back in posts I think you could find that info).  And guess

what the diagnosis was?? No diagnosis!  They didn't know what it was so as I

said they put him on a year of antibiotics 'just in case'.  Unfortunately its

parents like us that have to fight the fight to get the right care and testing

for our children.  Barbara

From: Diane Biel <dkbmama (DOT) com>

Subject: Re: [ ] ligaments tear easy??

Date: Thursday, October 22, 2009, 6:22 AM

 

thanks for the reply - she has recently been on cefdinir and now because of a

virus and sinus infection she is on Amox TR-K CLV 500-125 mg tab two times a

day......... .....

I will call the doc this morning and see if he has any idea's...... .......

I have to follow up with our regular doctor and she is so clueless about lyme I

dont even talk to her about it.

thanks for you info - sure is something to look into........ ....

Diane

____________ _________ _________ __

From: Patty Belke <pbelke1verizon (DOT) net>

Sent: Thu, October 22, 2009 7:54:36 AM

Subject: Re: [ ] ligaments tear easy??

 

Diane,

I'm so sorry you and your daughter are going through all this!

I don't necessarily know the answer to your question but it did ring a bell to

me that there was one med my LLMD was considering for my son last year for M.

Fermentans and he said if we had to resort to using this med that we should be

VERY careful to pay attention to any complaints my son had about pain around his

knee because there was a possible side effect that could cause damage. Basically

he seemed to say that if he complained of any soreness around the knee while he

was on this med then he would need to stop taking it immediately just to be

sure. We ended up not using that med so far and I can't remember the name of it

but if you tell me what meds your son is on, if I think one might possibly be

the one my LLMD was concerned about I can look through my records more and see

if I could find the name of it in my notes. Or maybe someone else on this forum

knows what med this might have been.

Sorry to be so vague, but I thought it was info worth throwing out there in case

there is any connection to the meds your daughter is taking.

Take care,

Patty

[ ] cyst in bone? anyone else?

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

thanks for that info - yes you are right we have to fight..........

I will contact Finette - she truly helps me allot - it's scary isn't it -

because every time you turn a corner something else happens - cant even imagine

if they have to remove this - it will take most of her bone away - she goes in

tomorrow to start figuring this out but i know they will not know anything about

lyme........even with the kids teeth they are affected by the lyme - at least i

found a dentist that is open to it..........poor kids that have to suffer!!

bless you all that help your children everyday and understand what is truly

happening to them - I am sure there are many kids that have lyme and the parents

have no clue and have no compassion for the kids...........

Diane

________________________________

From: Barbara Spaulding <barbspaulding@...>

Sent: Thu, October 22, 2009 12:29:43 PM

Subject: Re: [ ] ligaments tear easy??

 

This was 'in' his tibia, he was 14 and they thought it was a sports injury

" Osgood-Schlatters " because he played basketball and it was in the area where

the patellar tendon attaches.  It was a large growth in the bone that had to be

totally removed.  At that time Finette had great advice on having the piece of

bone tested when removed which I sent on to his parents but was ignored by the

doctors (If you look back in posts I think you could find that info).  And guess

what the diagnosis was?? No diagnosis!  They didn't know what it was so as I

said they put him on a year of antibiotics 'just in case'.  Unfortunately its

parents like us that have to fight the fight to get the right care and testing

for our children.  Barbara

From: Diane Biel <dkbmama (DOT) com>

Subject: Re: [ ] ligaments tear easy??

Date: Thursday, October 22, 2009, 6:22 AM

 

thanks for the reply - she has recently been on cefdinir and now because of a

virus and sinus infection she is on Amox TR-K CLV 500-125 mg tab two times a

day......... .....

I will call the doc this morning and see if he has any idea's...... .......

I have to follow up with our regular doctor and she is so clueless about lyme I

dont even talk to her about it.

thanks for you info - sure is something to look into........ ....

Diane

____________ _________ _________ __

From: Patty Belke <pbelke1verizon (DOT) net>

Sent: Thu, October 22, 2009 7:54:36 AM

Subject: Re: [ ] ligaments tear easy??

 

Diane,

I'm so sorry you and your daughter are going through all this!

I don't necessarily know the answer to your question but it did ring a bell to

me that there was one med my LLMD was considering for my son last year for M.

Fermentans and he said if we had to resort to using this med that we should be

VERY careful to pay attention to any complaints my son had about pain around his

knee because there was a possible side effect that could cause damage. Basically

he seemed to say that if he complained of any soreness around the knee while he

was on this med then he would need to stop taking it immediately just to be

sure. We ended up not using that med so far and I can't remember the name of it

but if you tell me what meds your son is on, if I think one might possibly be

the one my LLMD was concerned about I can look through my records more and see

if I could find the name of it in my notes. Or maybe someone else on this forum

knows what med this might have been.

Sorry to be so vague, but I thought it was info worth throwing out there in case

there is any connection to the meds your daughter is taking.

Take care,

Patty

[ ] cyst in bone? anyone else?

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

Most people know this but for those that don't. One of the worst

things that Lymes does to almost everyone, children and adults is

" attack " the joint fluid, disc fluid, vertebra, cartilage, bone and

teeth. That's one reason so many Lymie's are sent to

Rheumatoidologists. So many expect arthritis and it's not there but

the pain is. I read once in an article about Lymes that, " a child's

hips are not suppose to ever hurt. " Every Lyme patient needs to find

a great dentist (good luck with that.) I know of one in Houston if

anyone wants to know. As a child around 13 I remember being in a lot

of pain with my Lymes, especially in my knees, hips and shins. Oh

well, just add my whole back to that list.

Suzanne

On Oct 22, 2009, at 12:29 PM, Barbara Spaulding wrote:

> This was 'in' his tibia, he was 14 and they thought it was a sports

> injury " Osgood-Schlatters " because he played basketball and it was

> in the area where the patellar tendon attaches. It was a large

> growth in the bone that had to be totally removed. At that time

> Finette had great advice on having the piece of bone tested when

> removed which I sent on to his parents but was ignored by the

> doctors (If you look back in posts I think you could find that

> info). And guess what the diagnosis was?? No diagnosis! They

> didn't know what it was so as I said they put him on a year of

> antibiotics 'just in case'. Unfortunately its parents like us that

> have to fight the fight to get the right care and testing for our

> children. Barbara

>

>

>

> From: Diane Biel <dkbmama (DOT) com>

>

> Subject: Re: [ ] ligaments tear easy??

>

>

>

> Date: Thursday, October 22, 2009, 6:22 AM

>

>

>

> thanks for the reply - she has recently been on cefdinir and now

> because of a virus and sinus infection she is on Amox TR-K CLV

> 500-125 mg tab two times a day......... .....

>

> I will call the doc this morning and see if he has any

> idea's...... .......

>

> I have to follow up with our regular doctor and she is so clueless

> about lyme I dont even talk to her about it.

>

> thanks for you info - sure is something to look into........ ....

>

> Diane

>

> ____________ _________ _________ __

>

> From: Patty Belke <pbelke1verizon (DOT) net>

>

>

>

> Sent: Thu, October 22, 2009 7:54:36 AM

>

> Subject: Re: [ ] ligaments tear easy??

>

>

>

> Diane,

>

> I'm so sorry you and your daughter are going through all this!

>

> I don't necessarily know the answer to your question but it did ring

> a bell to me that there was one med my LLMD was considering for my

> son last year for M. Fermentans and he said if we had to resort to

> using this med that we should be VERY careful to pay attention to

> any complaints my son had about pain around his knee because there

> was a possible side effect that could cause damage. Basically he

> seemed to say that if he complained of any soreness around the knee

> while he was on this med then he would need to stop taking it

> immediately just to be sure. We ended up not using that med so far

> and I can't remember the name of it but if you tell me what meds

> your son is on, if I think one might possibly be the one my LLMD was

> concerned about I can look through my records more and see if I

> could find the name of it in my notes. Or maybe someone else on this

> forum knows what med this might have been.

>

> Sorry to be so vague, but I thought it was info worth throwing out

> there in case there is any connection to the meds your daughter is

> taking.

>

> Take care,

>

> Patty

>

> [ ] cyst in bone? anyone else?

>

> Does anyone have any children with lyme that have a cyst in the leg

> bone? My daughter was exrayed tonight because of knee pain - she is

> on crutches and a knee brace but, becides that they seen a pretty

> good size over an inch maybe an inch 1/2 cyst in leg bone - they

> told me most of the time it is normal...... ..anyone have any

> experience with this?

>

> thanks,

>

> Diane

>

>

[Guest guest]

I would get her to a good orthapedist ASAP as well as calling your Lyme Doc.

________________________________

From: Diane Biel <dkbmama@...>

Sent: Thu, October 22, 2009 7:26:55 AM

Subject: [ ] ligaments tear easy??

 

Thanks Annie - when you are done with one hurdle another comes along -

Does anyone know if our ligaments muscles in the knee are easy to tear because

of lyme?  I know she has low muscles in her legs - family doc has never said

anything but it's easy to see - she tore a muscle in her knee yesterday and for

no reason - no injury at all - seems very weird to be - besides the large cyst

that takes up allot of the bone leg......... ........ she was up in  pain most

of the night -

thanks,

Diane

____________ _________ _________ __

From: Annie <akannielm (DOT) com>

Sent: Wed, October 21, 2009 9:51:14 PM

Subject: Re: [ ] cyst in bone? anyone else?

 

Sorry, Diane, I don't , but that would really scare me. I had a hospital a few

years ago say my daughter had an abnormality, but when the pediatrician looked

at the films, they said it was completely normal. I hope you get a clear answer

from someone.

Annie

____________ _________ _________ __

From: Diane <dkbmama (DOT) com>

Sent: Wed, October 21, 2009 7:13:24 PM

Subject: [ ] cyst in bone? anyone else?

 

Does anyone have any children with lyme that have a cyst in the leg bone? My

daughter was exrayed tonight because of knee pain - she is on crutches and a

knee brace but, becides that they seen a pretty good size over an inch maybe an

inch 1/2 cyst in leg bone - they told me most of the time it is normal......

...anyone have any experience with this?

thanks,

Diane

[Guest guest]

How does lyme affect teeth? I have never read about this. Thank you,Carol

On Thu, Oct 22, 2009 at 1:44 PM, Diane Biel <dkbmama@...> wrote:

>

>

> thanks for that info - yes you are right we have to fight..........

> I will contact Finette - she truly helps me allot - it's scary isn't it -

> because every time you turn a corner something else happens - cant even

> imagine if they have to remove this - it will take most of her bone away -

> she goes in tomorrow to start figuring this out but i know they will not

> know anything about lyme........even with the kids teeth they are affected

> by the lyme - at least i found a dentist that is open to it..........poor

> kids that have to suffer!!

> bless you all that help your children everyday and understand what is truly

> happening to them - I am sure there are many kids that have lyme and the

> parents have no clue and have no compassion for the kids...........

> Diane

>