Intro and question on behavior

July 13, 2006

Hi.I'm Kim and my ds(3 1/2 yo.) was diagnosed with Lyme back in

November.He was treated with amox. for 6 weeks and got better.Then in

Jan. he didn't feel well again and was put back on Amox for another

6weeks,though that didn't help at any point. Maybe he got a little

better for awhile,though I can't quite recall. He has been getting

steadily worse since May.It's been a long road for me to sort through

all the contradictions in both diagnosing and treating this disease.

Ds has been tested twice for Lyme since Nov. Both times it came back

negative.The first time I didn't understand about that test. The

second time(just last week) I did,but i took my son for that test

because the ped. wanted to check that plus other things. I thought it

was a good idea to rule out some other stuff.Of course,the ped.

doesn't really beleive in chronic lyme.But it seems to me that he has

most of the same symptoms he had in the fall,then it probably is the

same thing.

I am very lucky,in that we live in Ct. I called Dr. j's office and

was able to get an appt. for Sept.(this was several weeks ago.) Then

I called back and asked if there had been any cancellations for an

earlier appt. and the receptionist suggested we see Dr. Marra(Dr. j's

asst.) So we took that appt.Well,things have been rapidly detiorating

here so I called to see if there was an earlier appt. cancellation.

WE've got one this SAt. with Dr. . I feel like we won the

lottery.lol. I just hope he can help......

So,my question to all of you is have you noticed any connection

between lyme and difficult behavior.What about inability to

listen.Okay,ds is 3 and I try to factor that in,but this seems way

beyond normal 3yo stuff. Sometimes he gets up and just incessantly

bothers his 6yo brother(who can't handle this at all). Some days he

just keeps bumping his head against him. On the days when he's

behaving the most difficult,he'll tell me later he doesn't feel

well.Then i'm like " Oh! duh! " That would explain it. One day after

all this he said " I feel like my stomach is splitting open! " Eeek!

How else is a 3 yo supposed to deal with this? It can get pretty

chaotic/aggressive/rough around here and I am at my wits end with

it.It just seems nothing is getting through to him.My talking is

useless.And discipline methods don't work and seem unfair.Like i'm

punishing him for being sick. HOwever,it's also not fair to my other

ds or me or dh. Any thoughts,suggestions?

Thanks,Kim

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