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Re: Digest Number 3192

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Hi Kathleen,

Thank you so much for your kind words. My Mom's visit went well. While I

was there I accompanied both my folks to Dr. apps. My Mom has PA but does

not have the HLA-B27 gene. My Dad has the gene, along with ankylosing

spondylitis. So my siblings and I got hit from both sides; we all 3 have

one or both diseases. It was good to be able to go with them and ask

questions. My Mom is too far advanced and has too many other health

problems for the Dr. to even consider the newer meds. At this point they

are trying to make her as comfortable as possible. My Dad has some

issues, but for 77 he is doing well!

God bless you!

n

Message: 13

Date: Sun, 23 Apr 2006 23:33:12 -0700 (PDT)

From: Kathleen Bellomy <gods_mercy2u@...>

Subject: Re: Hi everyone - lurker coming out of the shadows!!

n,

I know it has been a couple of months since your posting but how did

your mother come out when you took her for her first Rhuemy visit. Were

they able to help her at all? How is she now? I am also a luker in the

showdows but just had to find out how it turned out. Ya'll are in my

thoughts and prayers!

Kathleen

marion_tex <m-schaefer1@...> wrote:

I've been a member for a couple of months now and have enjoyed

reading the messages everyday. Even though I've only officially been

diagnosed with PsA for 6 months, I've lived with it for 12 years and

have watched my Mother deteriorate with it for many years. At my

urging she is going for her first Rhuemy visit next month. She is

totally disabled now - so I'm not sure if they will be able to help

her or not. It's actually more for closure for her at this point.

For us - it's like finally seeing the face of your enemy.

I'm on MTX and Humira now - am feeling better than I have in a long

time. Long term use of NSAIDS (given by Specialists that missed some

of the key symptoms) have left me with a nasty Acid Reflux problem -

but we are working that too....

I live outside of Dallas and have found a wonderful Rhuemy! If

anybody out there needs a referral - just let me know. She has

turned my life around.

Thanks for the opportunity to participate!

n

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