Re: Re: Mepron/Lemon water for herx?

[Guest guest]

Haven't heard of lemon water for herx. What symptoms does it help? any

guess as to why?

Thanks,

Kelley

[ ] Re: Mepron - side effects?

> My experience with Mepron is from when I took it. I don't know if it

> reacts differently in kids. I had Lyme for about 26 years before I

> received my treatment. The first time I took it was fairly early in my

> treatment. I reacted very badly. I experienced extreme outbursts of

> rage. The docs took me off it for quite a while until I was stronger.

> When they put me on it again, it was fantastik! My neurological stuff,

> the dizziness, brain fog, confusion etc. and my body pain decreased

> dramatically. There were still times I needed to drink the lemon water

> for the herx's but it was great!

> I was really afraid to take it because I had read so much doom and

> gloom on the internet about it, but when my body was ready it was a God

> send!

> Good Luck!

> Annie

[Guest guest]

I hesitate to get in the middle of this, but as a list owner for over 10

years and no sign of a list moderator, can I interject here please?

This list should be about sharing. Sharing Lyme experiences, struggles,

and ideas, as well as what has worked and what has not. Open sharing

requires that when someone posts to the list they are not blasted for

what they share. On all of my lists, members are required to be kind,

gentle and respectful. We don't criticize others for their choices or

ideas. We can offer alternative ideas, or gentle and courteous input,

but always with respectful verbage such as: " I would like to share my

own experience with ___________, if you don't mind. " or " That is great

that ________ has worked so well for you. " " I am so glad that _______

has worked for you. It is one of the mysteries of life as their are no

double blind studies to back up your experience. "

Anectodal information is not inconsequential or invalid. That is what

makes lists like this so important. I share what has worked for me. I

try to guess why it worked, or offer opinions. What I share just might

be what someone needs. I never expect to be accepted as an expert or

scientist. I am a mom who has Lyme disease with a daughter who has Lyme

disease. I research a lot, hours every week, but do not have a

biomedical degree. Does that make my input invalid? Absolutely not.

This list needs to be about open sharing. I do not blindly accept what

anyone says on any list. I always research what I read and hear, even

from my doctors. That is my responsibility. I am responsible for my

own health and the health of my children.

Please, please let this list be about open sharing, kind and gentle,

among a group of people who are hurting for their kids.

Thank you,

Michele in CT