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In a message dated 6/15/99 5:54:32 PM Central Daylight Time,

ksbreezy7@... writes:

<< ksbreezy7 >>

Hi KS!

All of your symptoms will wax and wane..They shouldn't get too much

worse now that you are on antibiotics.Lyme is a mysterious disease..very

annoying..any questions..please write.I'll try to answer them.Take it

easy.....Jeanne

[Guest guest]

In a message dated 6/15/99 10:56:56 PM Eastern Daylight Time,

lclott@... writes:

> > From: ksbreezy7@...

> >

> > Hi all - just wanted to say hi to everyone -- some

> > of you I've talked to in Better Health and through

> > the chats and now I've found my way to this site. I

> > guess I have probaby had Lyme for apprx 3 years, but

> > have been on tx for 5 months. I have a lot of late

> > stage symptoms and am real scared. I am currently

> > taking 750 mg of Zith. I thought I was doing real

> > good, but lately I have been having burning

> > sensations throughout my body, from the top of my

> > head to the bottom of my feet. I am real scared. I

> > don't know what to expect - Are these possibly signs

> > of worse things to come? Will I have an anuersism

> > (?spell) from these headaches. The muscles twitches,

> > the tremors, etc. will this go away???? Should I do

> > the IV? so many questions. I've been reading all the

> > posts I can lately. Thank you all for the wealth of

> > information. Sorry this is so long. Just wanted to

> > know if my days are numbered here. I am totally

> > confused and afraid of this disease. Take care to

> > all of you. Kim

> >

> > Kim-

HI Kim

how long have you been on Zithromax? I'm on it with mepron and am also

getting a type of burning that was not there before---maybe it is a herx

good luck

lea

[Guest guest]

--- ksbreezy7@... wrote:

> From: ksbreezy7@...

>

> Hi all - just wanted to say hi to everyone -- some

> of you I've talked to in Better Health and through

> the chats and now I've found my way to this site. I

> guess I have probaby had Lyme for apprx 3 years, but

> have been on tx for 5 months. I have a lot of late

> stage symptoms and am real scared. I am currently

> taking 750 mg of Zith. I thought I was doing real

> good, but lately I have been having burning

> sensations throughout my body, from the top of my

> head to the bottom of my feet. I am real scared. I

> don't know what to expect - Are these possibly signs

> of worse things to come? Will I have an anuersism

> (?spell) from these headaches. The muscles twitches,

> the tremors, etc. will this go away???? Should I do

> the IV? so many questions. I've been reading all the

> posts I can lately. Thank you all for the wealth of

> information. Sorry this is so long. Just wanted to

> know if my days are numbered here. I am totally

> confused and afraid of this disease. Take care to

> all of you. Kim

>

> Kim-

Does your doc want to do IV's? Are you seeing a LLD? I would guess that

you would benefit from IV abx. It is really something that you and your

doctor should discuss and come to the conclusion together. I think if

the pt is involved in treatment it helps with the fear and anxiety that

we all feel. Its hard not to be scared because there are so many

different opinions and theories on Lyme and how to treat it. Just

getting treatment is a major stress factor. Then there are the ins cos

and all the junk you have to hear from alot of people that dont have a

clue. The biggest thing is to have faith and trust in your doc. If you

question that my advice is to find another doc. Also its hard to say if

all the symptoms will go away or will be there for ever. It could be

that you are having a HERX and that is why you are feeling your

symptoms more right now.

Hope this helps. Please let us know how you are doing.

L

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[Guest guest]

In a message dated 6/16/99 2:56:47 AM !!!First Boot!!!, lclott@...

writes:

<< Does your doc want to do IV's? Are you seeing a LLD? I would guess that

you would benefit from IV abx. It is really something that you and your

doctor should discuss and come to the conclusion together. I think if

the pt is involved in treatment it helps with the fear and anxiety that

we all feel. Its hard not to be scared because there are so many

different opinions and theories on Lyme and how to treat it. >>

Thanks for replying. The doc that I am seeing does treat a lot of Lyme

patients, he himself has had to deal with Lyme disease. He does follow Dr.

B's protocol - so I do have faith in him. My next visit with him is on the

30th of this month. I have been seeing him every 3 weeks. At that time, I

will discuss switching over to the IV. Take care, Kim

[Guest guest]

In a message dated 6/16/99 3:20:47 AM !!!First Boot!!!, Memyo@... writes:

<< how long have you been on Zithromax? I'm on it with mepron and am also

getting a type of burning that was not there before---maybe it is a herx

good luck

lea >>

Lea -- thanks for replying. I've been on Zithromax for 5 months now @ 500 mg

per day, with an increase to 750 mg for the last month. I don't know if with

the increase -- if it's a herx -- or what. Kim

[Guest guest]

Hi Kim,

Welcome to the list, I hope you find what you need from this list, we

mostly offer solace, support and information. I have had Lyme for almost

three years, and I experienced the burning sensations about one year ago. I

was scared too, it felt to me like someone was holding a match to my skin.

My doctor told me these are neuropathies, caused from nerve damage from Lyme

disease. He gave me Neurontin, which really has helped a lot with the

burning sensations. Maybe you would want to ask your doctor about it.

Twitches and tremors are also part of the disease process, again they are

from nerve damage. Maybe the Zithromax is not working as well for you now,

and you should ask your doctor to add another drug. I am currently on 500mg

of Zith and 1500mg of Ceftin, it doesn't always help me, that's why I think

it is a good idea to switch to another combination once in awhile.

I doubt your days are numbered, Lyme disease is rarely fatal, and I am

sure you are seeing a good doctor who is keeping an eye on your bloodwork,

etc. Don't worry.

Hugs,

Marta

>From: ksbreezy7@...

>

>Hi all - just wanted to say hi to everyone -- some of you I've talked to in

Better Health and through the chats and now I've found my way to this site.

I guess I have probaby had Lyme for apprx 3 years, but have been on tx for 5

months. I have a lot of late stage symptoms and am real scared. I am

currently taking 750 mg of Zith. I thought I was doing real good, but lately

I have been having burning sensations throughout my body, from the top of my

head to the bottom of my feet. I am real scared. I don't know what to

expect - Are these possibly signs of worse things to come? Will I have an

anuersism (?spell) from these headaches. The muscles twitches, the tremors,

etc. will this go away???? Should I do the IV? so many questions. I've been

reading all the posts I can lately. Thank you all for the wealth of

information. Sorry this is so long. Just wanted to know if my days are

numbered here. I am totally confused and afraid of this disease. Take care

to all of you. Kim

>

[Guest guest]

--- Ksbreezy7@... wrote:

> From: Ksbreezy7@...

>

> In a message dated 6/16/99 2:56:47 AM !!!First

> Boot!!!, lclott@...

> writes:

>

> << Does your doc want to do IV's? Are you seeing a

> LLD? I would guess that

> you would benefit from IV abx. It is really

> something that you and your

> doctor should discuss and come to the conclusion

> together. I think if

> the pt is involved in treatment it helps with the

> fear and anxiety that

> we all feel. Its hard not to be scared because

> there are so many

> different opinions and theories on Lyme and how to

> treat it. >>

> Thanks for replying. The doc that I am seeing

> does treat a lot of Lyme

> patients, he himself has had to deal with Lyme

> disease. He does follow Dr.

> B's protocol - so I do have faith in him. My next

> visit with him is on the

> 30th of this month. I have been seeing him every 3

> weeks. At that time, I

> will discuss switching over to the IV. Take care,

> Kim

>

> Kim-

Im glad you are seeing someone that not only knows how to treat Lyme

but that can have compassion for your symptoms. At least he knows what

you are feeling and has been there. Hang on tight to him.

L

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>

------------------------------------------------------------------------

> Please send privately messages unrelated to lyme.

> /archives.cgi/

> /archives.cgi/Lyme-Docs

> Email: -subscribeonelist

> You may substitute " unsubscribe " , " digest " , or

> " normal " for

> the word " subscribe " ( " normal " is the opposite of

> " digest " )

>

_________________________________________________________

[Guest guest]

Hi Kim,

You may have a Herx reaction. I got them bad when I first started Zithromax.

Good luck and welcome to the group,

They are a great bunch of people.

I know bunch is for bananas, but we with lyme go bananas all the time,

Hugs and take care,

Connie, MI

[Guest guest]

>From: ksbreezy7@...

>

I have a lot of late stage symptoms and am real scared.

Kim

Hello Kim,

I can totally relate to being scared because of symptoms. I have many of

the same ones you do.

I can't wait to get on abx. And I hope these symptoms will abate.

Kiana M. Rossi

mailto:bornfree@...

I've been slimed with Lyme ...

And now it is time

To end this strife

And take back my life!

[Guest guest]

In a message dated 6/17/99 5:05:53 AM !!!First Boot!!!,

bornfree@... writes:

<< I can totally relate to being scared because of symptoms. I have many of

the same ones you do.

I can't wait to get on abx. And I hope these symptoms will abate.

Kiana M. Rossi >>

Hi Kiana : I hope you do get on your abx and fast -- what we're going

through is so scary because we are such the guinea pigs with this disease --

and no one can give us definite answers. Be well - take care -- Kim

[Guest guest]

I do the preventative cleansing using products from a company called First

Fitness.

Reneu is an internal cleanser and detoxifier that gets rid of parasites and

worms - especially Candida Albican.

Lipomax for cleansing and detox of the liver. Once I started using this I

lost an inch off my waist in about 1 and a half months - got the liver to

start metabolizing the stored fat like it's supposed too.

Fit to a Tea is an herbal tea that purifies and detoxes the blood.

Biomega is an aloe vera based muti-vitamin juice.

Has anyone ever used any of these products before?

Mike

RE: New to this site

Hi,

Welcome to the list. No, this is not a board for East Park, that is just

the thread of discussion yesterday. We discuss many things.

People ask questions, we get to discussing. There are lots and lots of

products on the market that help with these problems. Have you done a bowel

cleanse before? Do you have a specific problem you are trying to help by

bowel cleansing, or are you doing preventative cleansing?

~Karma

http://loaves-n-fishes.com <http://loaves-n-fishes.com>

http://www.karma.awarenesshealth.com <http://www.karma.awarenesshealth.com>

I'm new to this site. Is this site a message board for East Park

products? Or are those the only products on the market that help

these conitions?

[Guest guest]

Hi Mike,

Sounds like you have found a program that works for you. That is wonderful.

Are these products that you liked, so you became a distributor to get them

cheaper? I have quite a few that I did that with and still use too. Do you

have a website to read more on your products?

I haven't used them, but have some that work great for me. I am using Dr.

Cabot's product (http://www.liverdoctor.com) to cleanse my liver as

well as Dr. 's liver cleanse. I know the importance of cleansing the

liver.

Another thing..., when you joined the list, you were sent a list of

guidelines for posting... please remember to trim your posts, it helps the

digest people to make sense of the conversation threads. Edit out the reply

and only include that which is necessary for people to understand what you

are replying to and take out all the advertisements is what I am

referring to.

Thanks,

~Karma

One of the list moderators

http://loaves-n-fishes.com

http://www.karma.awarenesshealth.com

I do the preventative cleansing using products from a company called First

Fitness.

Reneu is an internal cleanser and detoxifier that gets rid of parasites and

worms - especially Candida Albican.

Lipomax for cleansing and detox of the liver. Once I started using this I

lost an inch off my waist in about 1 and a half months - got the liver to

start metabolizing the stored fat like it's supposed too.

Fit to a Tea is an herbal tea that purifies and detoxes the blood.

Biomega is an aloe vera based muti-vitamin juice.

Has anyone ever used any of these products before?

Mike

[Guest guest]

I started using 2 of the products, the Reneu and Slim N Up and lost about 45

pounds and have kept it off for 6 years. I was skeptical about becoming a

distributor but to get the stuff cheaper, it really is the smartest thing to

do.

The name of our website is www.healthymission.com

<http://www.healthymission.com> and you can click on " Our Products " for

descriptions. I've tried a lot of different products but have had the most

success with these. But I like to see what other products people are using

too.

To show you how important cleansing is, I have a small story: my mom has

tried almost every product and every system (Weight Watcher, Craig,

Slim Fast, Nutrisystems, ect. . . ) and even some of the First Fitness

products with no success. Then I got her to try the Reneu (the internal

cleanser - which is in a 10 day plan called Suddenly Slim) and she has lost

over 45 pounds. The key to weight loss is cleansing. I tell that to my

clients I train (I'm also a person trainer). You can eat great and get a

lot of exercise, but if your body is not in the right state of health,

you'll never get the results you want.

Mike

RE: New to this site

Hi Mike,

Sounds like you have found a program that works for you. That is wonderful.

Are these products that you liked, so you became a distributor to get them

cheaper? I have quite a few that I did that with and still use too. Do you

have a website to read more on your products?

...

Thanks,

~Karma

[Guest guest]

I know that cleansing is the key to losing weight. I personally lost 30

pounds in a month doing a cleanse, so as far fetched as this sounds to

people who haven't done it, I know for a fact from my own personal cleansing

experience that it CAN happen. I also know from helping other people

cleanse that it doesn't happen to everyone. :-)

From your post, it seems you are saying your mom lost 45 pounds in ten days.

Is that what you meant to imply?

~Karma

http://loaves-n-fishes.com

http://www.karma.awarenesshealth.com

To show you how important cleansing is, I have a small story: my mom has

tried almost every product and every system (Weight Watcher, Craig,

Slim Fast, Nutrisystems, ect. . . ) and even some of the First Fitness

products with no success. Then I got her to try the Reneu (the internal

cleanser - which is in a 10 day plan called Suddenly Slim) and she has lost

over 45 pounds. The key to weight loss is cleansing. I tell that to my

clients I train (I'm also a person trainer). You can eat great and get a

lot of exercise, but if your body is not in the right state of health,

you'll never get the results you want.

Mike

[Guest guest]

No, she had lost 13 pounds in 10 days and then went on to lose a total of 45

pounds. But I did meet a man that lost 30 pounds in 10 days. It is amazing

how we store in our bodies.

I agree with you that people don't believe how successful and needed

cleansing is.

RE: New to this site

I know that cleansing is the key to losing weight. I personally lost 30

pounds in a month doing a cleanse, so as far fetched as this sounds to

people who haven't done it, I know for a fact from my own personal cleansing

experience that it CAN happen. I also know from helping other people

cleanse that it doesn't happen to everyone. :-)

From your post, it seems you are saying your mom lost 45 pounds in ten days.

Is that what you meant to imply?

[Guest guest]

Hello, welcome, but you fogot to say your name................mine is , and I had my tx. 12-12-03.

[Guest guest]

Hi .....................so it looks like we are about a year apart in our tx's. I am doing okay, its the meds that make me feel badly. BUT I try and think of that in a different light. Glad to be here. Nice to meet you.

[Guest guest]

Welcome and I am glad all is well for you.

I live in Wv and have had AIH for over 6yrs.

Again welcome

[Guest guest]

Hi , sorry i forgot my name its hope your keeping wellteapot@... wrote:

Hello, welcome, but you fogot to say your name................mine is , and I had my tx. 12-12-03.

[Guest guest]

Welcome and congratulations on feeling so great! Glad to have you on board!!!

Debby

[ ] New to

This Site

hi everyone Im new to this site ive been diagonsed the

past 8 years

but had been quite ill for 5 - 6 years previously,

I underwent my

Liver transplant on 23rd Dec 2004 and I am feeling

great since, I just

wanted to say hi to everyone.

[Guest guest]

I have an 8 year old child. Doctors believe that he has ADHD. He is a great at

school, but at home is a different story. We have tried concerta, adderall, the

patch, strattera and zoloft. My family doctor believes he has anxiety and

possible OCD. After trying all these meds she referred us to a psychiatrist who

diagnosed as ADHD & ODD. All he did was ask a lot of questions (which maybe how

they determine). Put him on abilify and Benztropine. This was 2 days ago and

he has having side effects of that now. yesturday he ran a fever for a little

while and is really tired. He states that his legs feel like he is about to

collapse. Today he says he is still really tired, dizzy a little and now is

throat is hurting. I have gave him a charcoal tablet to hopefully run this junk

out of his system. Which the psychiatrist told me the worse side affect was

high blood sugar and cholestrol. Then I looked it up last night and became very

upset and worried. I have been trying omegas, probiotics and grapefruit seed

extract for the last couple months. We seem to have built his immune system up

for not getting sick but the behavior has become worse. I need for someone to

lead me in the path to help my child naturally and which test I need to have

done. For Example: the hair analysis do I need to have this done

Thank you for all of your help and hope to hear from any of you soon!! God

Bless

[Guest guest]

Hello Christiana,

Am very sorry for your pain and in balance of your leg length.

My name is and 40yrs old like you and am getting THR

too early next year but am really scared and confused.

I wish it could be surface hippy but the doctor said am not a

candidate for that,  since  my hip is really bad.

Thank you

***************************************************************** 

From: AZMormonGal <AZLDSGal@...>

Joint Replacement

Sent: Thu, November 19, 2009 6:05:06 PM

Subject: New to this site

 

Hello All,

I wanted to get some opinions so here goes...I am 40 years old and I just had a

total hip replacement on Sept 1st. I was born with hip displaysia and it got so

bad where I was in pain everyday and couldn't sleep at night anymore. I was

scared and excited to have this done because I didn't want to be in pain

anymore. My doctor didn't want me to go to physical therapy and I guess he

thought I would just get all better and everything would be great. After my 1

month check-up he said that I was not where I needed to be and that I was not

walking correctly. He suggested I start seeing a physical therapist which I

have. I go every Wed. night and every other Sat. They have helped a bit but I

still walk off and I am still in a lot of pain. It's seems like nothing has

really changed. Has anyone had a total hip replacement and how long did it take

for the pain to go away? Do you have to wear something in your shoe to balance

you out? My P.T. thinks I might have

Bursitus and/or Sciatic Nerve problems also. He said they can work with me but

it will be baby steps. I am so frustrated and it is just wearing me out. I work

all day and by the time I get home I am exhausted. Thanks for letting me

vent..

[Guest guest]

Hi! I had my second hip replacement back in June and I was born with hip

displaysia as well and they fused my hip when I was 14. But yes it does

take a little longer to heal or seems to be when hip displaysia is

involved in my case the cavity where the ball socket of the hip goes

became mishapen and deeper over time so sometimes there is a little

extra work. My balance has always been off as well my legs had a length

difference for all my life and with each surgery they add a little more

length to the point that both legs are the same now. The nerve has never

been stretched to this point and it is going to take me up to a year to

heal from it. Does your leg feel leg your mouth after a dentist freezes

it? That is what I got lol really uncomfortable, I can walk with it but

can't stand anyone brushing it or anything it actually feels like it is

being cut then so much to the point that I actually check to make sure

it isn't.

I have quickly learned over the years that it just takes a lot of

patience and grinding your teeth to heal but once it does it is worth it

in the end.

~Contessica

>

> Hello All,

> I wanted to get some opinions so here goes...I am 40 years old and I

just had a total hip replacement on Sept 1st. I was born with hip

displaysia and it got so bad where I was in pain everyday and couldn't

sleep at night anymore. I was scared and excited to have this done

because I didn't want to be in pain anymore. My doctor didn't want me to

go to physical therapy and I guess he thought I would just get all

better and everything would be great. After my 1 month check-up he said

that I was not where I needed to be and that I was not walking

correctly. He suggested I start seeing a physical therapist which I

have. I go every Wed. night and every other Sat. They have helped a bit

but I still walk off and I am still in a lot of pain. It's seems like

nothing has really changed. Has anyone had a total hip replacement and

how long did it take for the pain to go away? Do you have to wear

something in your shoe to balance you out? My P.T. thinks I might have

Bursitus and/or Sciatic Nerve problems also. He said they can work with

me but it will be baby steps. I am so frustrated and it is just wearing

me out. I work all day and by the time I get home I am exhausted. Thanks

for letting me vent..

>