Re: Recovery stories and parents no longer on this list

[Guest guest]

>

> Hi everyone,

>

> Keep in mind, there are undoubtedly many parents who initially joined this

> list many years ago who may have dropped off once their kids began

> improving. (And how old is this listserv? I know I've been on it close to

maybe

> 7 or 8 years!). So there are probably a LOT of kids out there who did

> chelation, supplements, etc., got a LOT better, and the parents moved on.

And

> we don't know their 'recovery' stories, if any, or where those kids are

> today.

>

Also, if your goal was to get your life back and have a normal life, it is not

in your best interest to go around telling people " I recovered my child " .

I get told I am a liar for stating that I have Cystic Fibrosis and am getting

myself well. Everyone believes that is not possible and all the experts say it

is not possible. I have seriously considered taking down my health website and

shutting up. It gets me attacked a lot, contrary to what some of my attackers

suggest it is *not* making me gobs of money (though it does at least support

it's own costs these days, something my websites didn't do for many years), and

there is just a huge social downside to claiming I have accomplished something

that the entire world believes to be impossible.

So there is very strong motivation for people who are recovered to not admit to

it. Admitting to it can directly deny you the thing you worked so hard to

achieve: A " normal " life and social acceptance. If you aren't admitting to it

so you can have the normal life you wanted, you may not belong to any lists like

this one anymore.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

[Guest guest]

I think that if my son recovered I would drop off the lists and enjoy having a

normal life for a change. Sometimes I wish this was all just a bad dream.

I do appreciate the help and suggestions from the parents of the children that

recovered. Maybe someday, their kids will speak about it. That is if they can

remember what it was like to be autistic.

> >

> > Hi everyone,

> >

> > Keep in mind, there are undoubtedly many parents who initially joined this

> > list many years ago who may have dropped off once their kids began

> > improving. (And how old is this listserv? I know I've been on it close to

maybe

> > 7 or 8 years!). So there are probably a LOT of kids out there who did

> > chelation, supplements, etc., got a LOT better, and the parents moved on.

And

> > we don't know their 'recovery' stories, if any, or where those kids are

> > today.

> >

>

>

> Also, if your goal was to get your life back and have a normal life, it is not

in your best interest to go around telling people " I recovered my child " .

>

> I get told I am a liar for stating that I have Cystic Fibrosis and am getting

myself well. Everyone believes that is not possible and all the experts say it

is not possible. I have seriously considered taking down my health website and

shutting up. It gets me attacked a lot, contrary to what some of my attackers

suggest it is *not* making me gobs of money (though it does at least support

it's own costs these days, something my websites didn't do for many years), and

there is just a huge social downside to claiming I have accomplished something

that the entire world believes to be impossible.

>

> So there is very strong motivation for people who are recovered to not admit

to it. Admitting to it can directly deny you the thing you worked so hard to

achieve: A " normal " life and social acceptance. If you aren't admitting to it

so you can have the normal life you wanted, you may not belong to any lists like

this one anymore.

>

> Michele

> http://www.healthgazelle.com

> http://www.kidslikemine.com

> http://www.solanorail.com

>