Re: Affording DAN doctor bills

[Guest guest]

Which supps are they that you can only get from the doc?

S S

Re: Affording DAN doctor bills

Posted by: " florence george " ethelgeorge@... worogbe

Tue Dec 29, 2009 12:04 pm (PST)

What is on hold is getting more supplements from the doc. We are also

considering chelating and that is expensive too.

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[Guest guest]

Something called calmPRT.I haven't seen it anywhere. It costs $116  a bottle. 

What is on hold is getting more supplements from the doc. We are also

considering chelating and that is expensive too.

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[Guest guest]

Dosing DMSA twice a day is a bad idea. It needs to be dosed every 4 hours day

and night based on the half-life of DMSA. You don't mention how many mgs per

capsule. I suspect it's too high as well as too infrequent.

S S

Re: Affording DAN doctor bills

Posted by: " ASimon " asimon100@... asimon100

Thu Dec 31, 2009 4:24 pm (PST)

Hi,

I appreciate every one that is trying to help us. We had treat yeast issues

before start chelation. We had use PureKids when we were treating yeast with no

problems. Now his DAN told us to try chelating . We start for 5 days he took two

capsules of DMSA pills at morning and two capsules DMSA pills at night. Took 5

five days off DMSA.

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[Guest guest]

Thank you . I'm looking into start again every 4hours  now.

Thanks!! 

A.Simon,  

" I know God promises not to give me more than I can handle.

 I just wish he didn't trust me so much. " -Mother

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Affording DAN doctor bills

autism treatment

Date: Sunday, January 3, 2010, 2:39 PM

 

Dosing DMSA twice a day is a bad idea. It needs to be dosed every 4 hours day

and night based on the half-life of DMSA. You don't mention how many mgs per

capsule. I suspect it's too high as well as too infrequent.

S S

Re: Affording DAN doctor bills

Posted by: " ASimon " asimon100 (DOT) com asimon100

Thu Dec 31, 2009 4:24 pm (PST)

Hi,

I appreciate every one that is trying to help us. We had treat yeast issues

before start chelation. We had use PureKids when we were treating yeast with no

problems. Now his DAN told us to try chelating . We start for 5 days he took two

capsules of DMSA pills at morning and two capsules DMSA pills at night. Took 5

five days off DMSA.

------------ --------- --------- --------- --------- --------- -

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[Guest guest]

Well It's got Rhodiola rosea and phosphatidylserine. From my understanding, it

helps to reduce stress and help with brain function. I did not see much

difference with my daughter though. She's only done a bottle. Did anyone

experience any differences with their child?

From: Mum231ASD@... <Mum231ASD@...>

Subject: Re: [ ] Re: Affording DAN doctor bills

Date: Sunday, January 3, 2010, 9:22 PM

In a message dated 03/01/2010 19:15:51 GMT Standard Time, 

ethelgeorge@... writes:

Something called calmPRT.I haven't seen it anywhere. It costs  $116  a

bottle.

>>Cripes  - I'd expect goldust for that price! - can you tell us  what in

it and we may know alternative

Mandi in UK

[Guest guest]

This supplement really seems geared for treating adrenal fatigue.

rhodiola is used for adrenal fatigue. It's an adaptogen. Usually when one's

adrenals are low, they have problems with stress and mood. Phosphatidylserine

also helps with that.

Taurine is calming, helps liver, helps brain. I think I paid $7 for a bottle of

taurine powder.

My daughter takes the rhodiola for her adrenals, works good, doesn't cost much.

If you didn't see much...no point in paying $116 for this.

Cause for $116 my kid should be all fixed!

>

> Well It's got Rhodiola rosea and phosphatidylserine. From my understanding, it

helps to reduce stress and help with brain function. I did not see much

difference with my daughter though. She's only done a bottle. Did anyone

experience any differences with their child?

>

>

[Guest guest]

This one?

http://www.healthdesigns.com/neuroscience/calm-prt-60c.html?gdftrk=gdfV2379_a_7c\

448_a_7c1361_a_7cNS_d_2046

What positive things have you seen from using this?

S S

Re: Affording DAN doctor bills

Posted by: " florence george " ethelgeorge@... worogbe

Sun Jan 3, 2010 11:11 am (PST)

Something called calmPRT.I haven't seen it anywhere. It costs $116 a

bottle.

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[Guest guest]

I am not sure about anyone else...but I think I would rather start my kiddo out

on the ingredients one at a time...my kids have allergies and intolerances...and

before I start complex things...I like to know that the individual things will

be tolerated...You can get the aminos and the phosphadylserine at the places you

buy your reg supps like vitacost or something...and then if those go ok...I

would try the herb. In small doses...and if those go ok..then the complex med.

just our way.

Ronni

>

> What is on hold is getting more supplements from the doc. We are also

considering chelating and that is expensive too.

>

> ------------------------------------------------------------

> Click here to light up your life with a love spell!

> Love Spell

>

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>

>

[Guest guest]

My daughter takes other supplements so I cannot tell if any changes are

attributed to calm prt. She still does have some yeast issues - stimming,

gigling and crying for no reason sometimes. I'm trying to get those under

control - will start her on GSE and Biotin. But other than that no. Either I

have to keep on using it or I may have to purchase the ingredients seperately

and see what happens. The most important thing for me right now is that she

learns to communicate she's still stuck on one and two words. So whatever

supplements can help, I am interested in.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Re: Affording DAN doctor bills

autism treatment

Date: Sunday, January 3, 2010, 11:45 PM

This one? 

http://www.healthdesigns.com/neuroscience/calm-prt-60c.html?gdftrk=gdfV2379_a_7c\

448_a_7c1361_a_7cNS_d_2046

What positive things have you seen from using this?

S S

    Re: Affording DAN doctor bills

    Posted by: " florence george " ethelgeorge@...   worogbe

    Sun Jan 3, 2010 11:11 am (PST)

    Something called calmPRT.I haven't seen it anywhere. It costs $116  a

bottle.

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[Guest guest]

Completely agree with this.

> >

> > What is on hold is getting more supplements from the doc. We are also

considering chelating and that is expensive too.

> >

> > ------------------------------------------------------------

> > Click here to light up your life with a love spell!

> > Love Spell

> >

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> >

> >

[Guest guest]

I use a DAN Dr that takes my children's insurance. If yours doesn't, find one

who does. There is alot of debate on here as to if you should use a DAN Dr, Dr

at all, or if you should do it yourself. Alot of people on here have replied to

you that you should take the do it yourelf approach, so I'm going to put in my

opinion on that too. After 3 years of trying to do it alone, researching the on

the net, talking to other moms, trying to figure out symtoms, what suppliments

and chelation dosages to give, trying to guess what foods she couldn't tolerate,

& what stim or symptom was caused by what.I came to the conclusion that all

that, along with the stress & worry of if I was messing her up worse wasn't

worth it. It's a full time job having a child like ours as it is, without trying

to be a doctor 24/7. I realized that it was costing too much of my time, which

was worth thousands of dollars a year in the working world, not to mention what

it was costing in time away from my family.

For us using a DAN Dr was the best thing I could have EVER done for our child.

Our Dr works with us. He takes our insurance which he gets to cover most all of

the test she needs. And he doesn't force expensive unneeded tests, or tell us

what to do and charge a arm and a leg for it. He's open to my opinion and

understands that all we can afford right now is all we can afford. So we work

together to keep the costs down as much as possible.

If your doctor isn't like ours then you need to find another doctor. Keep

looking untill you do. Look on Generation rescue for one. Talk to other parents

on there. If you have to drive to another state to get there, then do it. Most

doctors will do email & phone for free or a small fee after they've seen your

child. As far as paying for what your child needs if you don't have insurance,

brainstorm ideas to make money for it. We've found money from the goverment, as

well as private companies who help special needs kids. Other parents I know have

done fundraisers, had yard sales and sold things on the internet. Right now you

could call the autism society in your area & ask if they know of any services

that might help you. We use a service called family support here in Tennessee.

They help with funds for our diet and tests. It's not alot but every little bit

helps. You can do it. Just keep looking for ways & people who can help you.

You'll find you can get what you need for your child without doing it all

yourself. I hope this is helpful to you. Remember too that recovery is most

times a long road, but you'll get your child doing better by every step you

take.

Cristy

>

> Does anyone have any ideas on how else I can pay for all my

daughter's doctor's visits. Waht else can I do to cover her costs. Everything is

on hold because of overdue bills. I wish I could afford everything ,my daughter

would have recovered by now.

>  

> Thanks.

>

>

>

>

>

[Guest guest]

I think this is a very individual thing. In our area there is one DAN

doc. We have never considered taking our son to him. He does not take

insurance, is very expensive, and we have been having good results on

our own. At 13 we continue to take our son to his pediatrician who

does not do alternative medicine of any kind but is supportive and

respects our family's efforts.

Marty

At 01:32 PM 1/11/2010, spiritfinder@... wrote:

>I use a DAN Dr that takes my children's insurance. If yours doesn't,

>find one who does. There is alot of debate on here as to if you

>should use a DAN Dr, Dr at all, or if you should do it yourself.

>Alot of people on here have replied to you that you should take the

>do it yourelf approach, so I'm going to put in my opinion on that

>too. After 3 years of trying to do it alone, researching the on the

>net, talking to other moms, trying to figure out symtoms, what

>suppliments and chelation dosages to give, trying to guess what

>foods she couldn't tolerate, & what stim or symptom was caused by

>what.I came to the conclusion that all that, along with the stress &

>worry of if I was messing her up worse wasn't worth it. It's a full

>time job having a child like ours as it is, without trying to be a

>doctor 24/7. I realized that it was costing too much of my time,

>which was worth thousands of dollars a year in the working world,

>not to mention what it was costing in time away from my family.

>For us using a DAN Dr was the best thing I could have EVER done for

>our child. Our Dr works with us. He takes our insurance which he

>gets to cover most all of the test she needs. And he doesn't force

>expensive unneeded tests, or tell us what to do and charge a arm and

>a leg for it. He's open to my opinion and understands that all we

>can afford right now is all we can afford. So we work together to

>keep the costs down as much as possible.

>If your doctor isn't like ours then you need to find another doctor.

>Keep looking untill you do. Look on Generation rescue for one. Talk

>to other parents on there. If you have to drive to another state to

>get there, then do it. Most doctors will do email & phone for free

>or a small fee after they've seen your child. As far as paying for

>what your child needs if you don't have insurance, brainstorm ideas

>to make money for it. We've found money from the goverment, as well

>as private companies who help special needs kids. Other parents I

>know have done fundraisers, had yard sales and sold things on the

>internet. Right now you could call the autism society in your area &

>ask if they know of any services that might help you. We use a

>service called family support here in Tennessee. They help with

>funds for our diet and tests. It's not alot but every little bit

>helps. You can do it. Just keep looking for ways & people who can

>help you. You'll find you can get what you need for your child

>without doing it all yourself. I hope this is helpful to you.

>Remember too that recovery is most times a long road, but you'll get

>your child doing better by every step you take.

>Cristy

>

>

> >

> > Does anyone have any ideas on how else I can pay for all my

> daughter's doctor's visits. Waht else can I do to cover her costs.

> Everything is on hold because of overdue bills. I wish I could

> afford everything ,my daughter would have recovered by now.

> >

> > Thanks.

> >

[Guest guest]

> What do you do after you've been seeing a DAN! a while,the autism is almost

gone,and you or your child still have severe GI,or autoimmune problems that

aren't going away ?

Try to identify specifically what are the problems. Are certain foods causing

problems? Certain viruses? What are the specific symptoms? There were certain

issues with my son that required very specific supplements to eliminate.

Dana

[Guest guest]

,

You go to a Nutritionist or a Naturopath that will put together the rest of the

puzzle nutritionally and emotionally. Doctors are allowed to take these courses

as electives, but they usually don't.

Regards,

Summer McFarland

1.22 HEAL KIDS

1.224.325.5437

--------------------------------------------------------------------------------\

-------------------------------------

Over fourteen years of organic search engine optimization, marketing and design.

>

>

> Here's a question.

>

> What do you do after you've been seeing a DAN! a while,the autism is almost

gone,and you or your child still have severe GI,or autoimmune problems that

aren't going away ?

>

>

>

[Guest guest]

What has been done or tried to address the GI or autoimmune issues?

S S

Re: Affording DAN doctor bills

Posted by: " " thorenstd124@... thorenstd124

Mon Jan 11, 2010 1:21 pm (PST)

Here's a question.

What do you do after you've been seeing a DAN! a while,the autism is almost

gone,and you or your child still have severe GI,or autoimmune problems that

aren't going away ?

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[Guest guest]

Avoiding the wrong food did away with food reactions,it did nothing for my

malabsorption,and inflammatory GI pain.My rheumatic heart and joint disease is

getting worse.

> > What do you do after you've been seeing a DAN! a while,the autism is almost

gone,and you or your child still have severe GI,or autoimmune problems that

aren't going away ?

>

>

> Try to identify specifically what are the problems. Are certain foods causing

problems? Certain viruses? What are the specific symptoms? There were certain

issues with my son that required very specific supplements to eliminate.

>

> Dana

>

[Guest guest]

Nothing.I am seeing a DAN! who seems to think food,diet,metals,and yeast are the

answer to everything,and he is stumped as to why my other problems are not

getting better.

I don't have yeast,and the other problems have been dealt with,and I am

recovering from myautism,but I still have a lot of problems.There really is

nowhere else I can go.I don't have to tell anybody here that GI disease,and

autoimmune problems in autism are different from somebody who does not have it.

>

> What has been done or tried to address the GI or autoimmune issues?

> S S

>

> Re: Affording DAN doctor bills

> Posted by: " " thorenstd124@... thorenstd124

> Mon Jan 11, 2010 1:21 pm (PST)

>

> Here's a question.

>

> What do you do after you've been seeing a DAN! a while,the autism is almost

gone,and you or your child still have severe GI,or autoimmune problems that

aren't going away ?

>

>

>

> ------------------------------------------------------------

> Best Weight Loss Program - Click Here!

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>

>

[Guest guest]

Can you tolerate any calcium yet ? What about blueberry and spinach

smoothies, with banana to thicken? That might help. You should be getting a

lot of magnesium, are you getting enough? Epsom salt baths, etc. I'm sorry you

are getting worse, I can tell you from my son's experience that it gets worse

before it gets better. It has to come out. Maybe slow down a bit, but keep

your spirits high.

Liz

> > > What do you do after you've been seeing a DAN! a while,the autism is

almost gone,and you or your child still have severe GI,or autoimmune problems

that aren't going away ?

> >

> >

> > Try to identify specifically what are the problems. Are certain foods

causing problems? Certain viruses? What are the specific symptoms? There were

certain issues with my son that required very specific supplements to eliminate.

> >

> > Dana

> >

>

[Guest guest]

Hi, ,

I don't know your religious affiliations, but my ND found that with some people,

all treatments reached a standstill and she found that there was a

spiritual/emotional component that needed resolution. She wrote a great

workbook that covers many, many issues which may or may not pertain to you. For

the cost of $2.00, it is well worth the look and download - you can read some of

it for free online:

http://www.scribd.com/doc/18777167/Spiritual-Disciplines-for-Physical-and-Emotio\

nal-Healing

We (with my daughter) addressed the gut issues first with the help of a

Naturopath. It is sometimes very difficult to find what is going on... you can

email your diet and supplements and I am sure everyone will try their best to

give you suggestions.

I would also try giving the Nutritional Consultant, Ted, at Quantum Nutrition a

call. His consults are free and he is very good. He may recommend that you

find a QRA practitioner, which is a health professional (some are MDs, NDs,

homeopaths, etc.) that will look at the emotional, nutritional, physical and

bioenergetics of your body and treat the whole body rather than just the

symptoms. It is well worth the call.

http://www.qncenter.com

I hope that may help you in some way.

Regards,

Summer McFarland

1.22 HEAL KIDS

1.224.325.5437

--------------------------------------------------------------------------------\

-------------------------------------

Over fourteen years of organic search engine optimization, marketing and design.

[Guest guest]

One extremely critical component to manage inflammatory response and the immune

system is to have the correct levels of Vitamin D3, the activated version, and

be sure the cells are absorbing it. Most doctors test for the wrong thing. You

need to test for the 25 OH(D) levels in the body and shoot for a level around 70

(check me on that by reading up on the latest).

We evolved on the sun and most of us are deficient despite what standard doctors

might tell you. Go to the Vitamin D Council website for more info and good luck.

> > > What do you do after you've been seeing a DAN! a while,the autism is

almost gone,and you or your child still have severe GI,or autoimmune problems

that aren't going away ?

> >

> >

> > Try to identify specifically what are the problems. Are certain foods

causing problems? Certain viruses? What are the specific symptoms? There were

certain issues with my son that required very specific supplements to eliminate.

> >

> > Dana

> >

>

[Guest guest]

> Avoiding the wrong food did away with food reactions,it did nothing for my

malabsorption,and inflammatory GI pain.

My son needed enzymes, B vitamins, and a few other supplements for those issues.

Do you know which foods are the worst?

>>My rheumatic heart and joint disease is getting worse.

Joint problems here were mostly caused by viruses and yeast.

Dana

[Guest guest]

My dh suffered rheumatic fever as a child and has lingering rheumatic

heart/joint issues. CoQ10, fish oil, acupuncture, pH alkalinity, and NAET for

nightshades and other inflammatory foods, really helped SIGNIFICANTLY.

> > > What do you do after you've been seeing a DAN! a while,the autism is

almost gone,and you or your child still have severe GI,or autoimmune problems

that aren't going away ?

> >

> >

> > Try to identify specifically what are the problems. Are certain foods

causing problems? Certain viruses? What are the specific symptoms? There were

certain issues with my son that required very specific supplements to eliminate.

> >

> > Dana

> >

>

[Guest guest]

Hi ,

Have you tried digestive enzymes to help with the malabsorption? Consider

Houston Enzymes, many here use them.

www.houston-enzymes.com/

S S

Re: Affording DAN doctor bills

>

> Avoiding the wrong food did away with food reactions,it did nothing for my

malabsorption,and inflammatory GI pain.My rheumatic heart and joint disease is

getting worse.

>

>

------------------------------------------------------------

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[Guest guest]

It's still a guessing game other than dairy and corn.

> > Avoiding the wrong food did away with food reactions,it did nothing for my

malabsorption,and inflammatory GI pain.

>

>

> My son needed enzymes, B vitamins, and a few other supplements for those

issues. Do you know which foods are the worst?

>

>

> >>My rheumatic heart and joint disease is getting worse.

>

>

> Joint problems here were mostly caused by viruses and yeast.

>

> Dana

>

[Guest guest]

This is anutoimmune reaction from recurring and acute strep.My DAN! believes in

PANDAS,but he says no doctor will diagnose ortreat me for it,so I sholudn't

bother looking into it.

He is a MAJOR disappointment as far as my immune and GI problems.He is one of

those DAN!s who has no clue about what to do when the autism is going away,and

you are still sick.

> > Avoiding the wrong food did away with food reactions,it did nothing for my

malabsorption,and inflammatory GI pain.

>

>

> My son needed enzymes, B vitamins, and a few other supplements for those

issues. Do you know which foods are the worst?

>

>

> >>My rheumatic heart and joint disease is getting worse.

>

>

> Joint problems here were mostly caused by viruses and yeast.

>

> Dana

>