Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Thanks am sure you are right I need a lot of explaining re what my kid can and can¹t do while chelating or I know he will spin out. I appreciate your honesty and really need things laid out strongly so I get it and don¹t waste anyone¹s time, especially my kids. In your opinion when it comes to diet and chelation I know that sulphury type products/foods need to be eliminated or kept really low or using ala becomes an issue with yeast etc now why does that happen? Also re cabbage I make a keifer cabbage juice (sounds delightful not!) which I have given him to build up good bacteria etc etc now is cabbage considered sulphury and would you take it out? - along the same lines with homemade sauerkraut? We will do anything to make chelation work, just need to know how to do this without the yeasty or sulphury type issues. Can you expand on this I have read the Culter books, maybe I am missing it somewhere or give me some spelt out guidelines re diet etc. Regards On 4/3/09 6:24 PM, " Reynolds " <peter@...> wrote: > > > > Hi , > > Welcome to the minfield of ASD recovery. > > Certainly diet/nutrition is essential for the body to heal itself. > > However if the heavy metal burden is significant, I wouldn't be leaving > it to diet and nutrition alone. > > The only kids I have seen do really well without chelators have been the > very mild ASD kids. > > Most of the kids I have seen that have major issues and are not > chelating as per cutler protocol are struggling to make even the most > basic improvements. And a few years into it, I can tell some of these > parents are nearly ready to throw in the towel. > > How can a body repair itself and thrive, if the damaging elements are > still in the body? Processes like methylation help us detoxify. But > one of the first things that a significant quantity of mercury will do > is damage methylation. Mercury in the brain that damages certain areas > of the limbic brain, has effectively wiped out certain functions of the > brain that control particular functions in the GI tract. This is just > the tip of the iceberg as far as biochemical problems for ASD kids. So > those people thinking they can " heal the gut " without paying any > attention to what is happening in the brain have set themselves an > impossible task. > > I've seen some of the " natural solutions " camp use badly misread hair > tests to try and imply they are making a difference to the heavy metals > in the child they are treating. But three years on, you look at the > progress of the child, and its not much at all. The poor parents keep > following the same road because they have been mislead by some lab > results that keep getting thrust in their face, and they forget to look > at the progress of the patient. Numbers and graphs from lab results are > impressive, but are often misleading. > > And some of these kids are so bad (like my daughter once was), that even > the slightest improvements seem like you have moved a mountain. And > some parents become content with any improvement, so they don't even > realise a full recovery may be possible for their child, because they > get on the " ineffectual ASD treatment merry go round " . > > > > wrote: >> > >> > I guess some of us also fear that this protocol is also going to end up in >> > issues that are non repairable for some kids? >> > Do you know if people using this protocol cannot be harmed by it >> > have read >> > the books and am doing the protocol but must say am of course scared >> > that we >> > are going to end up with more issues etc. >> > Some groups like the GAPs group don¹t recommend using chelators at all but >> > use diet to heal the body so it can do its own excretion do you know >> > anything about this. >> > I am simply curious I am not worried about who is right or wrong just >> > wanting to know the facts so can make a good judgement call with our >> > child. >> > Regards >> > >> > On 4/3/09 5:38 PM, " Reynolds " <peter@... >> <mailto:peter%40alkamy.com> >> > <mailto:peter%40alkamy.com>> wrote: >> > >>> > > >>> > > >>> > > >>> > > Extreme? I don't think so. >>> > > >>> > > And I'll say it again. >>> > > >>> > > I personally know of a child who has used DMSA, DMPS and ALA all given >>> > > on a bad protocol and the child is SO much worse, I don't think they >>> > > will ever recover. >>> > > >>> > > They are having seizures now on a daily basis, which didn't start until >>> > > the poor timing/dosing chelation started. They can no longer even use >>> > > their eyes to focus on things the poor childs eye's literally roll >>> > > around in his head. With diet and supplements, the child was at least >>> > > making some attempts at language, that is all gone now thanks to >>> > > inappropriate chelation. Their digestive issues have become much >>> > > worse. Toileting is worse, sleep is worse, screaming like in agony for >>> > > extended periods has started. >>> > > >>> > > From what I can tell the only thing this child now experiences is fear >>> > > and pain. So why don't you give this child's parents some comfort by >>> > > telling them that an inappropriate chelation protocol seems to have >>> > > worked for some other people, so it must be safe? Somehow I don't think >>> > > they'd take much comfort in that. And this is a family who I very >>> > > softly suggested they should look into Cutler protocol and NOT take the >>> > > risk. See how well my calm, caring and supportive, guiding and gentle >>> > > approach worked? Maybe if I had of used a dramatic example I would have >>> > > got through. There sure as hell isn't any comfort in saying " I told you >>> > > so... " >>> > > >>> > > And by the way, the worst of the regressions came from the ALA. Given >>> > > it can cross the blood brain barrier, this is not surprising. >>> > > >>> > > RoseGvr@... <mailto:RoseGvr%40aol.com> <mailto:RoseGvr%40aol.com> >> > <mailto:RoseGvr%40aol.com> wrote: >>>>> > >> > >>>>> > >> > I think most here would agree that every three hours is safest but to >>>>> > >> > state >>>>> > >> > that it's like holding a gun to your child's head to chelate 3 >> > times a >>>>> > >> > day >>>>> > >> > seems extreme. >>>>> > >> > >>>>> > >> > We have a Mom here who has chelated FOUR (4) of her children on ALA 3 >>>>> > >> > times >>>>> > >> > a day and had good results (not necessarily as good as those who >> > do it 8 >>>>> > >> > times a day or ever 3 or 4 hours). How does your science explain that >>>>> > >> > 4 of her >>>>> > >> > children have been helped? >>>>> > >> > >>>>> > >> > Again, I agree that every three hours is best but there are >> > people who >>>>> > >> > have >>>>> > >> > had good results in ways that aren't always popular or 'safest.' >>>>> > >> > >>>>> > >> > Rosegvr/ >>>>> > >> > **************A Good Credit Score is 700 or Above. 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