Liz

[Guest guest]

Hi Liz,

I was the first one to apply for a scholorship at our AJAAW this afternoon.The estimated costs for just 3 was $1,570 for round trip flights,adding Shelby was over $2000.I am going to e-mail then call Monday.The 24th(July)

is s 6th b-day so we are going to ask for 1 small gift and a contribution to the A.F.Just Grandmas alone we are looking at $300-$400.

If our local AJAAW could have such a huge impact on my hubby and me I can't even imagine what a National conferance will have on us.I just loved your article,it was so moving.The next paige about Carlin was an extra bonus.I actualy know her and Carlin.

I apolagize for reading posts so rapidly.I am pretty sure about getting this scholarship but feal so guilty about their estimated airfare for just 3.Time is imperitive.Who do you recommend calling from the National office.We find out who goes May 12.You can apply every year for a scholarship but those that have never been get picked first.

I just feel very fortunate that the Nashville Chapter is wondeful.

Love and Hugs

Becki and 5 systemic

[Guest guest]

Hi Donna,

Thanks.I applied for a full scholorship minus 1 $160 a night fee and the $150 conferance fee.They have a guestimation of something like $2093 for RT tickets for 4.I will fax a more personal letter better explaining what others are paying and that instead of being spoiled with to many presants checks made out to the AF to help cover costs.

Love and Hugs

Becki

[Guest guest]

It motivates me - when I am failing - so I think you should every

day-=

If this person doesn't like it - they can either go to

digest -and get 1 big email a day - or drop the group -

your posts I KNOW helps and inspires MANY of us!!!!!

Take care Liz!!!!!

Love,. Laurie Delk

[Guest guest]

Hello ,

I don't think the lists will accept a file as big as the Reflexology booklet so

I will send it directly to your email address and you can print it out.

The most important points for your stomach are right in the mid section, on the

bottom of your feet. If your stomach is bothering you it may be very tender when

you push on that spot. It is important to take good deep breaths while pressing.

Doing at least 5 or 10 LifeLift breaths while pressing on the spot that is

tender is a good idea. You can often feel the tenderness and pain release in

minutes...

I hope you feel better very soon.

Take good care,

Rashelle

The Body You Have Always Wanted is Coming Soon!

What can changing the way you breathe do for you?

More than you can imagine!

Remember that it is oxygen that burns fat, tones muscle, reduces stress and

increases strength and endurance.

Learn to breathe in the most efficient way possible with Life Lift!

Click here to see why tens of thousands agree, Life Lift is the best!

http://www.oxygenlift.net Life Lift is the Original Aerobic Breathing.

Liz

Liz, you were talking about doing the reflexology breaths for your stomach. I

do the reflexology every day but I usually focus on my thyroid points more

than anything because I am hypothyroid.

The last 2 days I have had major problems with my stomach and digestion. I

have looked everywhere and can't find my chart to show where the points are

for

my stomach. Could you briefly tell me where you are pressing/rubbing?

Thanks a bunch,

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

[Guest guest]

Rashelle,

When I do the reflexology and LL I always rub in circles like you talk about

on your tape. Is it better to just press instead of rubbing when you are

really tartgeting a problem or does it matter?

That is where I thought the points for the stomach were but I couldn't quite

remember.

Also, you and I think Liz both said that breathing while pressing the stomach

points help keep your stomach flat. Do you think it has to do with helping

with bloating, etc.. from digestive problems?

Thanks again for sending the booklet to me.

<< The most important points for your stomach are right in the mid section,

on the bottom of your feet. If your stomach is bothering you it may be very

tender when you push on that spot. It is important to take good deep breaths

while pressing. Doing at least 5 or 10 LifeLift breaths while pressing on the

spot

that is tender is a good idea. You can often feel the tenderness and pain

release in minutes...

I hope you feel better very soon.

Take good care,

Rashelle >>

[Guest guest]

Yes, Liz, isn't she fabulous!!

Thanks,

<< I see that Sweet Rashelle already answered your ques.

Take care!!!

Love, Liz >>

[Guest guest]

Hi ,

Absolutely!!!! I have digestive problems and colon problems with bloating

etc. etc. etc. and reflexology helps tremendously. Reflexology is helping

my stomach get smaller, but it's not flat by any means, I wish it was.

:-)

I usually press my pressure points but my foot is often sore the next day

so I'm wandering if I'm pressing too hard. It doesn't hurt when I do it

however so I don't know.

Love, Liz

--

On Sun, 8 Aug 2004 17:16:22 EDT faytk@... writes:

Rashelle,

When I do the reflexology and LL I always rub in circles like you talk

about

on your tape. Is it better to just press instead of rubbing when you are

really tartgeting a problem or does it matter?

That is where I thought the points for the stomach were but I couldn't

quite

remember.

Also, you and I think Liz both said that breathing while pressing the

stomach

points help keep your stomach flat. Do you think it has to do with

helping

with bloating, etc.. from digestive problems?

Thanks again for sending the booklet to me.

[Guest guest]

Liz,

Mine doesn't hurt when I do it either, but I haven't noticed any soreness

later. I do press pretty firmly though.

I am going to really focus on my stomach area. I have had horrible digestion

problems for years. In fact, there are so many foods I won't touch because it

just isn't worth the pain and bloating and gas I experience for days.

Take care,

[Guest guest]

Hi ,

I normally do about 25 - 30 LL breaths per mile, I spread the breaths out

as I go along. Most of the walking workouts that I do is done with

weights, the stretchy band, or the ab belt and I can't do many LL breaths

while doing the resistance training part.

The way I count my LL breaths is I count 5 breaths on one hand using one

breath per finger, and then I put one finger up on the other hand,

representing 5 breaths for each finger. Then I continue the process until

my five-breaths-per-finger-hand reaches 25 and then I start again

remembering that 25 is already done, so that I can go up to 50 and so on.

Does this make sense?

Love, Liz

--

On Tue, 16 Nov 2004 18:33:05 EST faytk@... writes:

Hi Liz,

I have been doing my LL while doing 's walking videos. BUT, I have

some

questions about how you do this. LOL

I tend to have at least 40 breaths done by the end of the first mile. Do

you

spread them out more or do you do them all at first. Wow, it makes the

workout go by quickly.

I thought I would have a hard time counting while doing it but it wasn't

bad.

Do you actually count yours or do you know about how many you do?

Thanks,

[Guest guest]

Yes, Liz, that makes perfect sense. I also do the workouts with weights,

belts or stretchy band and cannot do it very much during that time. I think

maybe

I am doing it too fast. I can't hold the breath for as long as I normally do

when I am not walking along.

Boy, does it get my heart rate up quickly, though, in the beginning of the

workout.

Thanks for your response.

Take care,

[Guest guest]

Hi ,

It is great to hear from you.

I find that if I just relax and do my LifeLift breaths as I walk, without

bothering to count, it is much more enjoyable. You can usually know that each

breath is about a half minute. If you do 20 minutes of walking you have done

about 40 LifeLift breaths. Just enjoy it and you will get more out of it.

Take good care,

Rashelle

Harness the Powerful Benefits of Oxygen with LifeLift.

See why hundreds of thousands agree LifeLift is the best breathing program

available.

www.oxygenlift.net.

www.oxygenzoo.com. Family Fitness

Liz

Hi Liz,

I have been doing my LL while doing 's walking videos. BUT, I have some

questions about how you do this. LOL

I tend to have at least 40 breaths done by the end of the first mile. Do you

spread them out more or do you do them all at first. Wow, it makes the

workout go by quickly.

I thought I would have a hard time counting while doing it but it wasn't bad.

Do you actually count yours or do you know about how many you do?

Thanks,

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

[Guest guest]

Thanks, Rashelle.

I just love doing LL while walking. Boy, does it get my heart rate up!! The

other great thing it does is gives me tons of endurance and energy while doing

my other workouts.

Take care,

>

> I find that if I just relax and do my LifeLift breaths as I walk, without

> bothering to count, it is much more enjoyable. You can usually know that each

> breath is about a half minute. If you do 20 minutes of walking you have done

> about 40 LifeLift breaths. Just enjoy it and you will get more out of it.

>

[Guest guest]

Liz:

I am so glad to hear that has had some good results already with the

Remicade. May her good results increase and continue!!

and Rob 15 Spondy

[Guest guest]

Thank you Sweet Rashelle!!!!

Love ya!!!

Liz

---

Liz, you are always such an inspiration.

Rashelle

[Guest guest]

Thank you Sweet Rashelle!!!!

Liz

---

Hi Liz,

I hope you are feeling better. We miss you here, sweet girl.

Rashelle

[Guest guest]

thanks so much , you can't imagine how much I appreciate your

reply. I have heard good things about her and looked her up on the

net. A friend of mine used to work with her as well so I was leaning

towards contacting her. I would love her email address. Where is

Dr. Pierre?

thanks again

Liz

> Hi Liz,

>

>

>

> I was emailing surgeons in the Toronto area a month or so back.

From

> 75% of the ones I emailed, they reccommended Dr. Darling. The other

> reccommended Dr. Pierre. If you would like Dr. Darlings

email

> address I have it, and she did reply back. From what I've read

about

> her, she sounds good.

>

>

>

> Take care,

>

>

> in BC

>

>

>

> To Lorraine in Windsor

>

>

>

>

> Hi Lorraine,

> Hope you are continuing to do well after your surgery. I am in

> Cambridge, ON and wanted to ask your advice on something. I think

> you had mentioned once upon a time that you could have your

procedure

> done by Dr. Gail Darling in TO but opted not to since the wait was

so

> long. Can you tell me what you found out about her experience with

> achalasia and myotomies? Did you ever actually go and see her? I

> have seen a surgeon in Hamilton but am not feeling very confident

in

> him and a friend of mine can get me in to see Dr. Darling but I

don't

> want her to call in any favours until I know a little more about

> her. The wait is not a big issue for me, I can tolerate waiting a

> few months for the operation so long as it is with somebody I

trust.

>

> thanks so much for your help

>

> Liz

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Liz,

Her email address is Gail.Darling@...

Check out: http://www.ctsnet.org/home/gdarling

and

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=PureSearch & db=PubMed & details_term=(darling%20g%5Bau%5D%20AND%20notpubref%5Bsb%5D)

(btw, Sandy, you’d be

interested in knowing Dr. Darling has an interest in VATS)

There is a tonne of info on Dr. Darling on

the net. (All of which looked positive, I might add J ) She looks like a

keeper to me!!

Also, Dr. Pierre, just in case .Pierre@...

Here is an email I received from a Dr.

Pearson:

“I am no longer doing clinical

Thoracic Surgery - but have no hesitation in recommending one of my young

colleagues at the Toronto

General Hospital : Dr Pierre - Asst Professor, Division of Thoracic

Surgery , Toronto

General Hospital - tel 416 340 5354. His secretary is Ms Barko. Dr

Pierre has exceptional experience and skills in the minimally invasive (small

incisions) techniques for esophageal surgery - and this is certainly the

optimum clinical approach for the surgical management of achalasia. Dr Pierre

is already very experienced with both the condition and its surgical

management. You will note that I have copied him with this reply - so you now

have his e-mail address.

Yours

sincerely

F Griffith Pearson MD”

Also,

”Your friend can certainly contact Dr Gail Darling or Dr

Pierre at the Toronto General Hospital 416 340-4800 and extension 3121

or 5343, respectively. Both of them have a large experience with this surgery.

Best regards, Marc de Perrot”

Also Dr. reccommended her to me.

Let me know what you think! Her wait list for an

appointment I believe is a month and a half or so…so get going on those

phone calls!!

Take Care!

Chilliwack, BC

To Lorraine in Windsor

>

>

>

>

> Hi Lorraine,

> Hope you are continuing to do well after your

surgery. I am in

> Cambridge, ON and wanted to ask your advice

on something. I think

> you had mentioned once upon a time that you

could have your

procedure

> done by Dr. Gail Darling in TO but opted not

to since the wait was

so

> long. Can you tell me what you found

out about her experience with

> achalasia and myotomies? Did you ever

actually go and see her? I

> have seen a surgeon in Hamilton but am not

feeling very confident

in

> him and a friend of mine can get me in to see

Dr. Darling but I

don't

> want her to call in any favours until I know

a little more about

> her. The wait is not a big issue for

me, I can tolerate waiting a

> few months for the operation so long as it is

with somebody I

trust.

>

> thanks so much for your help

>

> Liz

>

>

>

>

>

>

>

>

>

[Guest guest]

>From: Bleasdale <ableasdale@...>

>Reply-achalasia

>achalasia

>Subject: Liz

>Date: Mon, 11 Apr 2005 12:09:58 -0700

>

>Hi Liz,

>

>

>

>Not a problem at all. I sure hope that Dr.Darling can give you some

>relief. Please keep me posted on how things go!

>

>

>

>Take care!

>

>

>

>

>

>

>

>

>

>

>

>

>

>Message: 12

>

> Date: Thu, 07 Apr 2005 17:39:32 -0000

>

> From: " lizzie2542 " <lsloan@...>

>

>Subject: Thanks for Dr. Darling's info.

>

>

>

>

>

>Hi ,

>

>I just wanted to thank you again for passing along Dr. Darling's

>

>information. I have e-mailed her and she has agreed to see me and

>

>my GP has sent the referral so just awaiting an appointment.

>

>I saw the thoracic surgeon in Hamilton last Friday as a follow up to

>

>the very discouraging gastroscopy I had a month ago and his

>

>conclusions are that I just wait and see what happens and at best he

>

>could maybe offer to consider doing a re-section (but it may not

>

>help) as the myotomy would not be possible since I have had 2

>

>previous surgeries on my stomach that are complicating the issue. I

>

>did not feel his advice really gave me the full scope of what my

>

>options are and had way too many " ifs " and " maybes " so I have

>

>pursued seeing Dr. Darling for another opinion who seems to have

>

>more experience in this area. As always, I would be at such a loss

>

>without the people in this group to turn to. Just the education of

>

>how to advocate for yourself has been amazing. Prior to this I was

>

>someone who went to the doctor maybe once in 5 years and only if I

>

>really had to so having to become a mini-expert of my own in a

>

>disease NOBODY has ever heard of is a challenge.

>

>Liz

>

>southern ontario

>

>

>

[Guest guest]

I would appreciate recommendations for a good doctor in the Los Angeles

area.

Thanks

>From: " Joanne Leinow " <joanneleinow@...>

>Reply-achalasia

>achalasia

>Subject: RE: Liz

>Date: Tue, 12 Apr 2005 15:34:19 +0000

>

>

>

> >From: Bleasdale <ableasdale@...>

> >Reply-achalasia

> >achalasia

> >Subject: Liz

> >Date: Mon, 11 Apr 2005 12:09:58 -0700

> >

> >Hi Liz,

> >

> >

> >

> >Not a problem at all. I sure hope that Dr.Darling can give you some

> >relief. Please keep me posted on how things go!

> >

> >

> >

> >Take care!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >Message: 12

> >

> > Date: Thu, 07 Apr 2005 17:39:32 -0000

> >

> > From: " lizzie2542 " <lsloan@...>

> >

> >Subject: Thanks for Dr. Darling's info.

> >

> >

> >

> >

> >

> >Hi ,

> >

> >I just wanted to thank you again for passing along Dr. Darling's

> >

> >information. I have e-mailed her and she has agreed to see me and

> >

> >my GP has sent the referral so just awaiting an appointment.

> >

> >I saw the thoracic surgeon in Hamilton last Friday as a follow up to

> >

> >the very discouraging gastroscopy I had a month ago and his

> >

> >conclusions are that I just wait and see what happens and at best he

> >

> >could maybe offer to consider doing a re-section (but it may not

> >

> >help) as the myotomy would not be possible since I have had 2

> >

> >previous surgeries on my stomach that are complicating the issue. I

> >

> >did not feel his advice really gave me the full scope of what my

> >

> >options are and had way too many " ifs " and " maybes " so I have

> >

> >pursued seeing Dr. Darling for another opinion who seems to have

> >

> >more experience in this area. As always, I would be at such a loss

> >

> >without the people in this group to turn to. Just the education of

> >

> >how to advocate for yourself has been amazing. Prior to this I was

> >

> >someone who went to the doctor maybe once in 5 years and only if I

> >

> >really had to so having to become a mini-expert of my own in a

> >

> >disease NOBODY has ever heard of is a challenge.

> >

> >Liz

> >

> >southern ontario

> >

> >

> >

>

>

[Guest guest]

Sorry Joanne, I live in Canada so won't be any help to you, many

others here from California that will help you.

Liz

> I would appreciate recommendations for a good doctor in the Los

Angeles

> area.

> Thanks

>

> >From: " Joanne Leinow " <joanneleinow@h...>

> >Reply-achalasia

> >achalasia

> >Subject: RE: Liz

> >Date: Tue, 12 Apr 2005 15:34:19 +0000

> >

> >

> >

> > >From: Bleasdale <ableasdale@c...>

> > >Reply-achalasia

> > >achalasia

> > >Subject: Liz

> > >Date: Mon, 11 Apr 2005 12:09:58 -0700

> > >

> > >Hi Liz,

> > >

> > >

> > >

> > >Not a problem at all. I sure hope that Dr.Darling can give you

some

> > >relief. Please keep me posted on how things go!

> > >

> > >

> > >

> > >Take care!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >Message: 12

> > >

> > > Date: Thu, 07 Apr 2005 17:39:32 -0000

> > >

> > > From: " lizzie2542 " <lsloan@c...>

> > >

> > >Subject: Thanks for Dr. Darling's info.

> > >

> > >

> > >

> > >

> > >

> > >Hi ,

> > >

> > >I just wanted to thank you again for passing along Dr. Darling's

> > >

> > >information. I have e-mailed her and she has agreed to see me

and

> > >

> > >my GP has sent the referral so just awaiting an appointment.

> > >

> > >I saw the thoracic surgeon in Hamilton last Friday as a follow

up to

> > >

> > >the very discouraging gastroscopy I had a month ago and his

> > >

> > >conclusions are that I just wait and see what happens and at

best he

> > >

> > >could maybe offer to consider doing a re-section (but it may not

> > >

> > >help) as the myotomy would not be possible since I have had 2

> > >

> > >previous surgeries on my stomach that are complicating the

issue. I

> > >

> > >did not feel his advice really gave me the full scope of what my

> > >

> > >options are and had way too many " ifs " and " maybes " so I have

> > >

> > >pursued seeing Dr. Darling for another opinion who seems to have

> > >

> > >more experience in this area. As always, I would be at such a

loss

> > >

> > >without the people in this group to turn to. Just the

education of

> > >

> > >how to advocate for yourself has been amazing. Prior to this I

was

> > >

> > >someone who went to the doctor maybe once in 5 years and only

if I

> > >

> > >really had to so having to become a mini-expert of my own in a

> > >

> > >disease NOBODY has ever heard of is a challenge.

> > >

> > >Liz

> > >

> > >southern ontario

> > >

> > >

> > >

> >

> >

[Guest guest]

Liz, I'm glad you finally had a special outing like that just you and Steve!

Love to you,

Melinda )

(no subject)

Good Morning LL Friends,

It is Monday and I have been a little lax with my " change of life the way I

am eating plan and my breaths " BUT today is Monday and I am recommitting

myself

to it again.

I love this affirmation, I have it taped to my computer " Create the kind of

self you will be happy to live with the rest of your life " And " Try to see

the

positive or humorous side of everything that happens today. " I am excited

about today! Love you! Connie :-)

[Guest guest]

Thanks , you connected me to her and I very much appreciate

it. I keep telling others how much becoming your own advocate

changes the course of your treatment. If I had remained the

passive, accepting patient I would be looking at years of botox

until it deteriorated to requiring an esophogectomy.

Liz

> Hi Liz,

>

> I'm sooo glad that you have had a good consult with Dr.Darling!

That is

> wonderful!!! (Penny, are you out there? ) I am glad that you

went for a

> second opion. As you have learned, they are worth it, especially

if you

> didn't like what the 1st doctor had to say. Good for you for

following your

> gut, and for looking elsewhere. Keep us posted and let us know

how things

> go!

>

> Hugs,

>

>

>

>

>

>

[Guest guest]

-I am glad you are feeling a little better. We do tend to cope though

don't we. I think it is a strain on our family too. I was starting to

think this is as good as it gets until I heard from this group. I

know my husband and girls are keen to get the surgery behind us and

maybe have some normalcy in the family again.( even though I don't

think I can define normal- I never tended to be normal I am sure

haha) They have been so supportive and understanding. We have an ad

on TV for a biscuit call riveta. Don't know if you have it there. In

each of the ads the mother eats the bisciuts and does zaney things

that kids would do like jump in all the puddles on a rainy day etc.

My kids firmly beleive that ad was me. Don't know where they get

these ideas, eh? I know I certainly am not like that these days. I

think you need a little of the kid in you and have fun.

I hope you have the same back up at home to help you through to

November. The count down is on for both of us.

So take it easy and I will be thinking of you.

-- In achalasia , " lizzie2542 " <lsloan@c...> wrote:

>

> Re: back onthe pincushion

>

> Thanks for the advice. Yes, it can take that long. I could

> maybe get in sooner with someone else but I really want this doctor

> so I chose to wait. I am not desparate. She is a thoracic surgeon

so

> does a lot of cancer surgeries and those take priority. I had

botox

> last december (I know, I know, cut my wrists now, it worked for me

> ok) so I had some borrowed time. Things are getting rapidly worse

> now but it is still not as bad as it has been and I can cope.

>

> I also know I could phone and beg for answers now but I am not

going

> to. I am curious and really want to know what has changed but I am

> very happy about another visit prior to surgery since I thought of

> lots of things I want to ask about since my last visit so I am

making

> a big list to ask when I see her. I was venting my anxiety

> immediately following the call to this group where is seems safe to

> do so but I have calmed down and can wait. She is very kind and

> quite compassionate so I know she is not being deliberately cruel

to

> make me wait and frankly I am thrilled she has taken the time to

> actually review my file again after we made the decisions as to

what

> to do.

>

> again, thanks for the support

> Liz

>

[Guest guest]

Thanks Girls!!! I just can't stay out of the bathroom today, it's about to drive

me nuts!!! I may ask the doctor to catheterize me at the doctor tomorrow to give

me some relief. I think I went 15x last night before finally sleeping the rest

of the night. :-o It's very annoying to say the least.

Love... the bathroom dweller.. Liz :-)

---

You'll stay in my Prayers, my LL Breaths & my thoughts throughout the

day as well....L & L ~Marleen

---

I'm praying for you to feel better soon, sweet Liz.

Love,

Melinda

[Guest guest]

Lizzy

That is terrible

I think that is not right or fair to you. when do you see the doctor again??

R

Re: Liz

Thanks Girls!!! I just can't stay out of the bathroom today, it's about to

drive me nuts!!! I may ask the doctor to catheterize me at the doctor tomorrow

to give me some relief. I think I went 15x last night before finally sleeping

the rest of the night. :-o It's very annoying to say the least.

Love... the bathroom dweller.. Liz :-)

---

You'll stay in my Prayers, my LL Breaths & my thoughts throughout the

day as well....L & L ~Marleen

---

I'm praying for you to feel better soon, sweet Liz.

Love,

Melinda

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com