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In a message dated 11/14/2002 7:25:28 AM Pacific Standard Time,

juliette@... writes:

> never had trouble before at

> all...ever.. with missing....

Oh honey, that isn't trouble...that is cause for celebration!

Actually, call the OB/GYN and ask if you ought to be concerned... I was told

I could miss for a year before they would be concerned at all. But then, I

am not on the meds you are on.

K

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So you think I should just go ahead with it tomorrow?

I am just so exhausted lately and that usually indicated an elevated liver

enzyme level.. though there could be other things. I've missed my period

for three months now and they are n't sure what is causing THAT either..

On Thu, 14 Nov 2002, Connie wrote:

> Liz,

>

> This will give you about eight weeks to decide what to do, scheldue any new

appointments you may need etc. etc. With the holiday season coming up it can be

hard to try and get new appointments.

Liz

~~~

" I've learned that people will forget what you said, people will forget

what you did, but people will never forget how you made them feel. "

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **ICQ 49746198** MSN & AIM LizKP1952**

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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Connie, I'm 50, and so I had thought it was the Big " M " but lab work shows

that i'm not in menopause yet. I've never had trouble before at

all...ever.. with missing.... and i've been on metho for years..... maybe

it changed when the remicade was added.

Liz ~~~

" I've learned that people will forget what you said, people will forget

what you did, but people will never forget how you made them feel. "

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **ICQ 49746198** MSN & AIM LizKP1952**

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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I actually don't mind having periods at all.. they are just a part of me

and I know the estrogen protects me from stuff. I never have had cramps or

anything..just a little misty PMS's.... It will be so strange without

them.

I can't call an OB-Gyn cus my pcp is in control of all that and she says i

don't need an ob-gyn for menopause.. that she can do this stuff. I

disagree....

>

> > never had trouble before at

> > all...ever.. with missing....

>

> Oh honey, that isn't trouble...that is cause for celebration!

> Actually, call the OB/GYN and ask if you ought to be concerned... I was told

Liz

~~~

" I've learned that people will forget what you said, people will forget

what you did, but people will never forget how you made them feel. "

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **ICQ 49746198** MSN & AIM LizKP1952**

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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  • 1 month later...

me too Darlene, but will not be able to report in everday. I will be out of

town some of Jan. but will continue to pray each day for everyone.

Love,

Click here:

http://www.lifelift.net/cgi-bin/affiliates/clickthru.cgi?id=rdclem

To learn how Lifelift has helped me to lose weight and gain good health

Liz

> Ok, Liz!

>

> Smiles,

> Darlene

> ---------------

>

>

> > Hi Darlene,

> >

> > I'll do it again.

> >

> > Thanks!!!

> > Love, Liz

> > ---

>

>

> What can changing the way you breathe do for you? Everything!

> See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

>

>

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Hi Becki

It's good to hear that is doing so well. What joy that adds to life!

We were warned about the possibility of infection and 's pediatrician has made clear that can and will be seen any time we have a concern, so we're in good hands. But I appreciate the reminder.

is polyarticular and the methotrexate did a good job of keeping things in check for several years. But the last few years we have been on the roller coaster ride-- up the mtx for the joints then lower it due to elevated liver enzymes. Most of the joints remained stable even on the lowered dose of mtx, but not all of them, which is why the enbrel was added. I know a lot of poly kids end up on little or no methotrexate if the enbrel works its wonders, and I am hoping that will be the case for . She's a trooper, but one less injection would not bother her at all!

Take care,

Liz

Re: Liz

Hi Liz, GREAT NEWS!!!! is systemic and joined a 3 yr safety study for Enbrel back in September.Go figure in Nov we received our official letter saying Enbrel was available.We promiced the rheumy in cincy if they made our baby better we would stay the 3 full years. seemed to respond within 2 weeks,no more morning stiffness.The MTX controled everything but his left ankle,which has been drained and injected twice within 1 month.No more joint involvement and he may be off the steroids by early March.They say it doesn't work as well with systemic kids due to Interluken 6 being the main culprit,I guess has alot of TNF running around. got his first uncontrled infection after starting Enbrel.It started as a minor case of croup then post viral cough for a few weeks,then the croup again then the cough and after 6-7 weeks finally went away.Keep an eye out for prolonged infections but ENJOY the differance Enbrel makes. Hugs Becki and 4systemic

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  • 3 weeks later...

Thanks Sweet Rashelle I needed that hug. :-)

Love ya!!!!

Liz

----

On Wed, 22 Jan 2003 11:27:16 -0800 " Rashelle Haines "

<rashelle@...> writes:

>

>

> Hello Sweet Liz,

> I am so sorry to hear you have not been feeling well. Of course

> you know you have my prayers, each and every day.

> You take such good care of yourself. You deserve to be healthy and

> strong every day of your life.

>

> You are precious. Consider yourself hugged by me.

>

> Thanks for letting us know Kista is ok. Tell her I send my love to

> her too.

>

> Rashelle

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

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If you put gel in his hair just mist over his hair after you are done

styling it, and instead of combing though, let it dry naturally. It

should do the trick. :)

Liz

> > > > > In a message dated 1/24/2003 11:27:34 AM Central Standard

> Time,

> > > > > LILSTEPPER@Y... writes:

> > > > >

> > > > >

> > > > > > And saturday is when all

> > > > > > the makeup girls come in,

> > > > >

> > > > > What's a makeup girl? Cuz, if it means ya do your hair and

> put

> > > on

> > > > makeup

> > > > > before a workout.........I am GUILTY as charged! My

> daughters

> > > > think I'm

> > > > > insane to primp before..........hmmmmmmm - maybe they're

> right?

> > > > > cynthy

> > > > >

> > > > >

> > > > >

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Thank you Liz,

Very very valuable information you just gave me. That is like telling

someone who can't stand spiders how to repel them. (spiders don't

really bug me I guess) Maybe if they were known to be in hair they

would. Thanks alot. What do you think of the paul mitchell tea tree

shampoo?

Kathi

> > > > > > In a message dated 1/24/2003 11:27:34 AM Central Standard

> > Time,

> > > > > > LILSTEPPER@Y... writes:

> > > > > >

> > > > > >

> > > > > > > And saturday is when all

> > > > > > > the makeup girls come in,

> > > > > >

> > > > > > What's a makeup girl? Cuz, if it means ya do your hair

and

> > put

> > > > on

> > > > > makeup

> > > > > > before a workout.........I am GUILTY as charged! My

> > daughters

> > > > > think I'm

> > > > > > insane to primp before..........hmmmmmmm - maybe they're

> > right?

> > > > > > cynthy

> > > > > >

> > > > > >

> > > > > >

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I actually didn't even know they made a tea tree shampoo. I try to

stick to natural shampoos and soaps. My skin is very sensitive and

the sls that is in shampoos to make them bubble and foam irritates my

skin. I'll have to get someone else to try it and see what they

think.

Liz

> > > > > > > In a message dated 1/24/2003 11:27:34 AM Central

Standard

> > > Time,

> > > > > > > LILSTEPPER@Y... writes:

> > > > > > >

> > > > > > >

> > > > > > > > And saturday is when all

> > > > > > > > the makeup girls come in,

> > > > > > >

> > > > > > > What's a makeup girl? Cuz, if it means ya do your hair

> and

> > > put

> > > > > on

> > > > > > makeup

> > > > > > > before a workout.........I am GUILTY as charged! My

> > > daughters

> > > > > > think I'm

> > > > > > > insane to primp before..........hmmmmmmm - maybe

they're

> > > right?

> > > > > > > cynthy

> > > > > > >

> > > > > > >

> > > > > > >

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Tree,

Thank you for the input. I will certainly check in to this and also ask 's rheumatologist about it. One of the resons I'd like to get her off the methotrexate, though, is that we have played the yo-yo game with her dose for years. Up to get the joints in check, then down because of the liver, then up again because of the joints. But maybe keeping her on a very low dose will be the way to go.

We had to send the computer out to a specialist to get it cleaned up. The stuff that came up when we signed on to the internet was awful. There were words there that I had never heard before. And I certainly didn't want my kids to "improve" their vocabulary with those words!

Take care,

Liz

Liz

Hi Liz,

Glad you got your computer problems straightened out. I think this computer is like having another kid sometimes LOL That's so great that is doing so well on Embrel. But it concerned me to hear that you would eventually like her to be off of the methotrexate. For years I took methotrexate (like 14 ) then when Embrel was out I was one of the first to go on it and at that point They weren't using metho. with it...or at least it wasn't prescribed for me. I went into remission for the first time in my life, other than a pregnancy remission, but it only lasted for six weeks. apparently at that point my body had made antibodies to counteract the Embrel. I then went back on methotreaxte with the Embrel to slow the building of the antibodies but pretty much the damage was done and I then wound up with liver damage due to all the increases in methotrexate. I then spent november to march with no meds other than my thyroid medication to allow my liver to repair itself. Believe me I never want to ever do another winter without any medications again LOL So I'm not telling you what to do but please research metho. being given with the Embrel. I know it is so the metho can slow the immune system of producing these antibodies that will then make the Embrel, a great drug given the chance, unable to do its job.

I hope this will help you and ! Glad your back and take care !!!:):):)Tree:):):)

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  • 2 months later...
Guest guest

Thanks Sweet Rashelle!!!!!

Love ya!!!!!

Liz

---

On Tue, 08 Apr 2003 22:32:54 -0700 Rashelle Haines

<rashelle@...> writes:

Amazing Liz! That is your new name!

You really are something and you deserve every compliment you receive.

Love,

Rashelle

Hi Friends,

Today I did 100 LL breaths with Walk Away The Pounds and 25 more with

Pilates. I also did a Pilates tape.

I was at a ladies meeting tonight and someone said: " Liz, you look like

your losing weight " . She sure made my night. :-)

Love, Liz

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  • 2 weeks later...
Guest guest

Kim,

I don't remember which hotels they were~~~ we left Texas nearly 5 years ago.

But there were several near the hospital that advertised doscount rates for

patients. Check with the hospital. They should have that information

somewhere.

I don't know too much about reactive arthritis, but I do think that, based

on the info you have shared, you are wise to seek another opinion. Please

let us know what you learn.

Liz

Liz

> Liz,

> Thanks for the info on Tx Childrens in Houston. I think that is going

> to have to be something we will look into,soon. Logan does go to a ped

> rheumy at ish Rite in Dallas. I can't figure out why they are being

> so stubborn. They think that Logan has reactive arthritis,,so they just

> aren't being that aggressive. I disagree with the reactive dx,,I think he

> might have started out as reactive,,but I'm suspecting that he has

> JAS,now.(He has had this for over a year,now,,and everything I have read

> says that reactive goes away in 6-8 weeks) One of the websites,that I

> read,said that JAS could start out as reactive. It is a small

> percentage,,but still it is there.

> Anyway,,thanks for the info,,,You said that some of the hotels give a

> discount,,Do you know which ones?

>

> Kim and Logan 5 poly

> **********************************************

>

> About the trip to Houston~~ We used to live in Corpus Christi and it

> took me just over 4 hours to get to Houston. I can tell you that it was

> well

> worth the time spent traveling. The care at Texas Children's is

> outstanding!

> We saw Dr Barry Myones. Dr also came highly recommended. From

> your note I am gathering that Logan's current rheumatologist is not a

> pediatric specialist. Is that correct? If so, that is all the more reason

> to

> reconsider that trip to Houston. Having a board certified pediatric

> rheumatologist can make all the difference in the world!

>

>

> Kim mom to ~~Meaghan-13~~Katelyn 10,Bipolar,OCD~~Logan 5

> Aspergers/PDD,SID,Juvenile Rheumatoid Arthritis~~Ethan 3,,,100% BOY

>

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

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>

>

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>

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  • 1 month later...
Guest guest

Hi Teri,

She did the same thing on the same message in another group I'm in. I am sorry if I offended her in anyway but this was a plea for help for someone with the same disease as all of us. I'm not worried about it just kinda' wonderin'.

I would love to be put on your joke list. We all need a laugh to keep our sanity.

Good Morning to you and everyone.

later,

Liz

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Guest guest

Well I sure will add you to the list. Just figured if you wanted to find out what the problem was, that's one way to do it.

Love,Teri

Re: Liz

Hi Teri,She did the same thing on the same message in another group I'm in. I am sorry if I offended her in anyway but this was a plea for help for someone with the same disease as all of us. I'm not worried about it just kinda' wonderin'. I would love to be put on your joke list. We all need a laugh to keep our sanity. Good Morning to you and everyone.later,Liz

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  • 2 weeks later...
Guest guest

Hi Darlene,

Kista's doing fine. She had the procedure done a few years ago and hasn't

had any problems that I'm aware of since then. My mom's sister also had

that problem. It's so weird!

I know she drinks a lot of water and I know that it's certain types of

food that aggravate the problem but I'll mention to her about chewing

things up better and see if that helps.

Thank you!!!!

Love, Liz

---

On Sat, 21 Jun 2003 08:02:09 -0500 Darlene <tw1853@...>

writes:

> I'm glad your mom was able to come home. I think I've heard of

> someone at

> work who had to have their throat opened more. Not very pleasant,

> but it

> really helped. Is Kista still doing ok with it?

>

> At least if your mom goes to the heart specialist, they can rule out

> what is

> not going on. That information could be really good. Does your mom

> drink

> enough water? Maybe if she takes smaller bites of food and chews

> 20-30

> times before she swallows it would help? She may already be doing

> these

> things, but I don't know.

>

> Give her a hug from us!

> Darlene

>

>

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  • 4 weeks later...
Guest guest

Thanks for the happy dance. We were all happy dancing, we were all very

scared about this. But God came through again. :-)

Love, Liz

---

On Wed, 16 Jul 2003 18:35:32 -0500 " Virginia Hutton "

<vhutton54@...> writes:

> Liz,

> That is wonderful news! Happy dance till mom is able.

>

> Virginia

----

> Hi Friends,

>

> My Mom had an angiogram and they only found one small blockage. They

> didn't have to do an angioplasty. Praise the Lord!!!!!! The doc called

me

> and said that her arteries looked pretty good and they want her to

focus

> on dieting and losing some weight. She's probably going home tonight.

>

> Thank you, thank you, thank you for all of your prayers!!!!

> God is soooo good!!!!!

> Love, Liz

>

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  • 3 months later...

Thank you Sweet Rashelle!!!!!

Love, Liz

--

On Tue, 28 Oct 2003 17:15:30 -0800 " Rashelle Haines "

<rashelle@...> writes:

Liz, you never cease to amaze me.

I never, never get tired of hearing abut your success.

Rashelle

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  • 5 weeks later...

I try. :-) I got my sister Kista hooked on exercising 5 or so?? years ago

and now she's addicted.

, my 5 yr. old, told me yesterday that she never was going to get

married, she was going to live with me forever, and she was going to

start " the " walking. :-) Oh by the way, 's my 10 yr. just incase

you didn't know. :-)

Love, Liz

---

On Thu, 27 Nov 2003 14:01:41 -0500 jag14 <jag14@...> writes:

>Hi Friends,

>Today I did 75 LL breaths with a 3 mile walk, walked with me.

>

>Love, Liz

So you've found someone else to have a good influence on....

~~ Jocelyne

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What a great inspiration to pass on to your kids

Health!!

R

Re: Liz

I try. :-) I got my sister Kista hooked on exercising 5 or so?? years ago

and now she's addicted.

, my 5 yr. old, told me yesterday that she never was going to get

married, she was going to live with me forever, and she was going to

start " the " walking. :-) Oh by the way, 's my 10 yr. just incase

you didn't know. :-)

Love, Liz

---

On Thu, 27 Nov 2003 14:01:41 -0500 jag14 <jag14@...> writes:

>Hi Friends,

>Today I did 75 LL breaths with a 3 mile walk, walked with me.

>

>Love, Liz

So you've found someone else to have a good influence on....

~~ Jocelyne

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double from me Liz! Connie :-)

Liz

Hello Sweet Liz

Thanks for the smile. You are such an amazing woman.

Regardless of what is going on in your life you always find ways to make

yourself and others feel good.

You are precious.

Love,

Rashelle

The Body You Have Always Wanted is Coming Soon!

What can changing the way you breathe do for you?

More than you can imagine!

Remember that it is oxygen that burns fat, tones muscle, reduces stress

and

increases strength and endurance.

Learn to breathe in the most efficient way possible with Life Lift!

Click here to see why tens of thousands agree, Life Lift is the best!

http://www.oxygenlift.net Life Lift is the Original Aerobic Breathing.

Re: Helpful hints, I hope

Fionna,

That's is so great!!!! I wore my baggy brown pants to church last

night,

when I got home I was walking around the house singing, " they call me

Mrs. Baggy Pants " , no one really calls me that, my kids and I just get

a

kick when I sing it and the only time I sing is if one of us are

wearing

baggy pants. :-) We're crazy, but it's fun!!!!!

Love, Liz

---

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I so agree !

R

Re: Helpful hints, I hope

Fionna,

That's is so great!!!! I wore my baggy brown pants to church last night,

when I got home I was walking around the house singing, " they call me

Mrs. Baggy Pants " , no one really calls me that, my kids and I just get a

kick when I sing it and the only time I sing is if one of us are wearing

baggy pants. :-) We're crazy, but it's fun!!!!!

Love, Liz

---

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  • 2 months later...

Hello Sweet Liz,

What a great woman you are and you deserve each and every compliment you get.

Thanks for always being here to motivate and inspire everyone.

You are a treasure.

Rashelle

The Body You Have Always Wanted is Coming Soon!

What can changing the way you breathe do for you?

More than you can imagine!

Remember that it is oxygen that burns fat, tones muscle, reduces stress and

increases strength and endurance.

Learn to breathe in the most efficient way possible with Life Lift!

Click here to see why tens of thousands agree, Life Lift is the best!

oxygenlift.net Life Lift is the Original Aerobic Breathing.

Re: (unknown)

Hi

Just stay consistent and do your LL breaths 5 to 6 days a week and drink

the water and you'll be very happy with the results. I don't normally

measure because I'm afraid of not measuring in the same spot each time.

So I'd rather go by the way my clothes are fitting me, my mirror, and the

compliments that I receive.

Keep breathing, it works!!!!

Love, Liz

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