Group

[Guest guest]

Larry-

Yes, I did have a short fuse, and I felt bad about it, that is why I

sent the second e-mail. I just think when we are posting to a back

pain group, it should have something to do with back pain. I have no

problem with people' religious beliefs, but I don't want junk chain

letters, of any kind, particularly religous, sent to me in a back

pain support group.

Kris

> wow!!, kris and the ones!!, who must have read between the

lines on

> that one, it was not spam intended, sorry for you taking it that

way. i

> just merely sent it out to read, wow you must have a very short

fuse.

> again i just sent it out to read and here you show everyone how its

so

> called spam related!, but yet!!, you choose an option of 1 or 2.

and i

> just sent it to read. and yes i totally agree with you on this

being a

> spinal disorder site. as matter of fact i my self have learned alot

from

> this site & still learning !!. so it was only an e-mail to read,

so if

> you carried it farther than that!, kris all you would had to have

done

> was hit...............DELETE. and to the rest of the group i want

to say

> im sorry!, i WAS NOT , AM NOT trying to push religious subjects, or

> sermons , just an e-mail i read from my niece so if the owner

chooses

> to ban me . thats ok with me. but as far as my religion i am very

proud

> to say I LOVE JESUS!!. and yes i am a Christian. and no i didn't

try to

> preach. i have a love for everyone out here and think of all as

my own

> family. considering this site is what most of us basically live

for and

> thats support!, not to mention i find most of my answers out

here for

> my skeletal problems.!!.

>

> Larry

[Guest guest]

I agree that yes this is a site for spine problems. But you also

need to remember alot of people have made internet friends on here

and dont see any reason why other things besides spine problems

shouldnt be posted. Sometimes we have something to share with those

that we do consider at least friends. Religion is indeed a touchy

subject with alot of people, but if you remember what it is you

believe in and dont worry alot about what someone else may send or

say then all is good for the day.

With that said guess what all ..... I just found out I am going to be

a grandma a 2nd time Hoping for a grand daughter. Have a great

one all.

> wow!!, kris and the ones!!, who must have read between the

lines on

> that one, it was not spam intended, sorry for you taking it that

way. i

> just merely sent it out to read, wow you must have a very short

fuse.

> again i just sent it out to read and here you show everyone how its

so

> called spam related!, but yet!!, you choose an option of 1 or 2.

and i

> just sent it to read. and yes i totally agree with you on this

being a

> spinal disorder site. as matter of fact i my self have learned alot

from

> this site & still learning !!. so it was only an e-mail to read,

so if

> you carried it farther than that!, kris all you would had to have

done

> was hit...............DELETE. and to the rest of the group i want

to say

> im sorry!, i WAS NOT , AM NOT trying to push religious subjects, or

> sermons , just an e-mail i read from my niece so if the owner

chooses

> to ban me . thats ok with me. but as far as my religion i am very

proud

> to say I LOVE JESUS!!. and yes i am a Christian. and no i didn't

try to

> preach. i have a love for everyone out here and think of all as

my own

> family. considering this site is what most of us basically live

for and

> thats support!, not to mention i find most of my answers out

here for

> my skeletal problems.!!.

>

> Larry

[Guest guest]

Well, guess we can't drop it, despite the fact that I even tried to

apologize to you...For the record, I do recite the pledge, at public

hearings several times a week, with god in the pledge...you are

assuming because I question the reasonability of posting religious

messages on this site, I am not religious. I belong site because I

beleive people here have relevent information about back issues, and

perhaps I have information that may be relevent to them. It is what

we all have in common.

I could start posting information on many issues I am interested in

and believe in, but guess what, it is not related to back pain. And

once again, I said, many, many people on the site I am sure are

deeply religious, and I have no issue with that in relation to back

pain. What you posted was a blatant chain letter on religion, it had

absolutely nothing to do with back pain....wait, wait, maybe we cam

relate it, maybe the professer hurt his back when he picked up the

chalk !!! Then, maybe it might be related to what I thought I joined

this group for.

Come on, get over it.

> Larry here,

>

> ya know i sent that e-mail out for reading material, thats all but

some

> of you took it totally the wrong way. so its like this they took

the

> pledge of allegiance out why!?, because it had GOD in it " one

nation

> under god " they stopped our children and kids from praying in

school,

> and at one time in the past they wanted our children to

eat " CATSUP " for

> there vegetables. and when Jesus was here on earth he him self was

> rejected by his own people,,,, and Jesus clearly states that in the

> bible. and as i have said before i love my Jesus and lord god!. and

who

> ever does not want Jesus sure doesn't want me!!!. so you go ahead

and

> keep your site with no Jesus in it, and i will keep my LORD

JESUS !!, but

> rest assured JESUS is far better than any site!!.

>

> Larry...

[Guest guest]

Hi, Vonnie.

I'm still waiting to hear back from Dr. Rand's office regarding additional

tests that will probably be needed. He's had my MRI for nearly 4 weeks, and

I'm starting to wonder if I've been forgotten. My case is pretty

complicated, so I don't want to rush him, but it could be that they got put

in the wrong pile or something. I'm concerned that by the time I'm ready to

schedule, Some of my preferred dates will be taken. And yes, I'm hoping to

work it around my siter's teaching schedule.

Thanks for asking.

Sharon

[ ] GROUP

> Ca,good luck with your operation,I'll be thinking about you on

> tuesday.You'll be back here in no time typing away,just like the rest

> of the girls have been, we'll be right behind them.GOOD LUCK!!

>

> Sharon you still don't have a date yet?What's going on are you

> waiting for the Dr. or a certain time? Oh wait were you waiting for

> your sisters to help you when they would be out of work ? I forget

> with all the stories you hear on here.LOL Somwtimes it gets

> confusing..I hear you though I can't wait to get it over.

>

> Cam yes I have a 1/2 inch shoe lift put on all my shoes.Well the ones

> that I can anyway.But it seems to be alot more than it was before.To

> really straighten me out I need a good 1 1/2 lift..But of course I

> won't put one on that high.hopefully it will be better after the

> operation.

>

> Pa, How much does Rand want you to walk? That's another reason

> why I waited for warmer weather cause I heard you need to do alot of

> walking.But I hear you some people really take it seriously when

> their walking.Great job getting all dressed up and going to the

> cocktail party.That took alot of courage so soon after the surgery

> and you had a great time and I bet you looked beautiful..Good for you

> girlfriend!!! Vonnie

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

---

Dr.Rand told me that he wanted me to walk alot, he had mentioned to

my husband 5 miles a day, I think he might have been kidding but my

husband does not think so. I have not even been close to that a day.

I was too tired. Warm weather would be great right now for the

walking part but that won't be for a least another month here. The

mall is the next best thing, and we have a huge mall. I did not buy

anything because I was too tired to try anything on!!!, PA

In , " Vonnie " <vonniec20032000@...>

wrote:

>

> Ca,good luck with your operation,I'll be thinking about you on

> tuesday.You'll be back here in no time typing away,just like the

rest

> of the girls have been, we'll be right behind them.GOOD LUCK!!

>

> Sharon you still don't have a date yet?What's going on are you

> waiting for the Dr. or a certain time? Oh wait were you waiting for

> your sisters to help you when they would be out of work ? I forget

> with all the stories you hear on here.LOL Somwtimes it gets

> confusing..I hear you though I can't wait to get it over.

>

> Cam yes I have a 1/2 inch shoe lift put on all my shoes.Well the

ones

> that I can anyway.But it seems to be alot more than it was

before.To

> really straighten me out I need a good 1 1/2 lift..But of course I

> won't put one on that high.hopefully it will be better after the

> operation.

>

> Pa, How much does Rand want you to walk? That's another reason

> why I waited for warmer weather cause I heard you need to do alot

of

> walking.But I hear you some people really take it seriously when

> their walking.Great job getting all dressed up and going to the

> cocktail party.That took alot of courage so soon after the surgery

> and you had a great time and I bet you looked beautiful..Good for

you

> girlfriend!!! Vonnie

>

[Guest guest]

Hi Kam, PA,

I did a lot of mall walking after my revision surgery, when I lived in CT. Too cold and snowy in the winter to walk outdoors and the mall was just a about a mile and a half from home. I walked a steady pace in the mall area and in the stores themselves, watching for sales but not stopping until my exercise walking time was over. If I had found something on my walk that I wanted to buy, I made sure to end my walk in that store, would buy the thing without trying it on, then decide at home whether to keep it or return it the next day. My best find was a pants suit that was way to expensive originally and I watched it for weeks until it went on sale. Then I was able to buy the pants at one store and the jacket at another, on the same day. It was really fun shopping this way! The thing that wasn't much fun was watching the old ladies out for a stroll who walked faster than I did. Oh, well!

Bonnie

[ ] Re: GROUP

---Dr.Rand told me that he wanted me to walk alot, he had mentioned to my husband 5 miles a day, I think he might have been kidding but my husband does not think so. I have not even been close to that a day. I was too tired. Warm weather would be great right now for the walking part but that won't be for a least another month here. The mall is the next best thing, and we have a huge mall. I did not buy anything because I was too tired to try anything on!!!, PAIn , "Vonnie" <vonniec20032000@...> wrote:>> Ca,good luck with your operation,I'll be thinking about you on > tuesday.You'll be back here in no time typing away,just like the rest > of the girls have been, we'll be right behind them.GOOD LUCK!!> > Sharon you still don't have a date yet?What's going on are you > waiting for the Dr. or a certain time? Oh wait were you waiting for > your sisters to help you when they would be out of work ? I forget > with all the stories you hear on here.LOL Somwtimes it gets > confusing..I hear you though I can't wait to get it over.> > Cam yes I have a 1/2 inch shoe lift put on all my shoes.Well the ones > that I can anyway.But it seems to be alot more than it was before.To > really straighten me out I need a good 1 1/2 lift..But of course I > won't put one on that high.hopefully it will be better after the > operation.> > Pa, How much does Rand want you to walk? That's another reason > why I waited for warmer weather cause I heard you need to do alot of > walking.But I hear you some people really take it seriously when > their walking.Great job getting all dressed up and going to the > cocktail party.That took alot of courage so soon after the surgery > and you had a great time and I bet you looked beautiful..Good for you > girlfriend!!! Vonnie>

[Guest guest]

Sharon,I would call there and see what's taking so long to get back to you.They might have misplaced it you never know..try and see. good luck,VonnieSharon Green <sharon.green18@...> wrote: Hi, Vonnie.I'm still waiting to hear back from Dr. Rand's office regarding additional tests that will probably be needed. He's had my MRI for nearly 4 weeks, and I'm starting to wonder if I've been forgotten. My case is pretty complicated, so I don't want to rush him, but it could be that they got put in the wrong pile or something. I'm concerned that by the time I'm ready to schedule, Some of my preferred dates will be taken. And yes, I'm hoping to work it around my siter's teaching schedule.Thanks for asking.Sharon [ ] GROUP> Ca,good luck with your operation,I'll be thinking about you on> tuesday.You'll be back here in no time typing away,just like the rest> of the girls have been, we'll be right behind them.GOOD LUCK!!>> Sharon you still don't have a date yet?What's going on are you> waiting for the Dr. or a certain time? Oh wait were you waiting for> your sisters to help you when they would be out of work ? I forget> with all the stories you hear on here.LOL Somwtimes it gets> confusing..I hear you though I can't wait to get it over.>> Cam yes I have a 1/2 inch shoe lift put on all my shoes.Well the ones> that I can anyway.But it seems to be alot more than it was before.To> really straighten me out I need a good 1 1/2 lift..But of course

I> won't put one on that high.hopefully it will be better after the> operation.>> Pa, How much does Rand want you to walk? That's another reason> why I waited for warmer weather cause I heard you need to do alot of> walking.But I hear you some people really take it seriously when> their walking.Great job getting all dressed up and going to the> cocktail party.That took alot of courage so soon after the surgery> and you had a great time and I bet you looked beautiful..Good for you> girlfriend!!! Vonnie>>>>>> scoliosis veterans * flatback sufferers * revision candidates>

[Guest guest]

Duncan, your statements can't offend anyone in their right mind! Please

remember that this is a supporting and nurturing group of people who

offer each other Good Will and Best Wishes with no strings attached. We

need each other and we need you! All My Best Wishes, Muriel

[ ] Re: group

I am expressing my opinion, based upon hundreds of hours of research.

LD is a disease caused by a spirochetal infection. It has been proven

to cause autoimmune disorders. It can be treated by Tetracycline class

abx, and these abx have been proven safe in numerous long term trials,

and they will also treat the effects of many co-infections and help

modulate many autoimmune disorders, that may develop or be present

alongside the LD. These Abx are inexpensive and can be given long-term

with little likelihood of adverse effects.

All of these statements are true.

I'm not looking to offend anyone, in fact how can these statements

offend anyone?

cheers

Duncan

[Guest guest]

In a message dated 8/28/2007 10:29:46 P.M. Mountain Daylight Time,

dmunro@... writes:

But

I think that the standard abx treatments should be tried first, as

they will be effective for most people.

**********I do not agree.....ABX is ok for a recent bite and if they are

started with 24 hours, but some are now saying Lyme can go chronic within hours

after a bit, but once you get past that " chronic " is the name of the game.

Once you go chronic you are chasing your tail....I use to know 10 people who

claimed they were cured and 5 of them have relapsed in the last year...I also

know of thousands of Lymies who have been on ABX for yearsssssssssssssss and

continue to submit their bodies to additional toxins and not get well. IF

you choose to go the ABX route, that is " your " choice, but to say that ABX works

for most folks in my humble opinion is not true. Laurie is one of

thousands who are suffering from their treatment protocols.

*********I suggest those on ABX make some major changes in their lives and

start with their diet/nutrition.

Then focus on cleaning your terrain, and protocols to reduce your total

body burden of pathogens. You would be surprised how many people can't do this

simple thing....as my doctor says, " when they get sick enough, then and only

then, will they make changes in their lifestyle and diet/nutrition. "

********Laurie I'm happy to hear you woke up in time.....the allopathics

almost killed me 5 times and I'm a [] nurse....[]

Angel Huggzz

or Angel '

www.lymecommunity.com

[Guest guest]

I'm not at all offended by Duncan's comments. I am frightened by

them. I was on tetracycline class antibiotics long term and I almost

died before I found an LLMD who took a different approach. My life

flashed before my eyes when I read Duncan's comments. Had I stayed

with the doc who took this approach, I would not be here today. I am

absolutely against long running debates and hostilities, but I have

to say these comments scared me. The state of the science of Lyme

Disease is in constant flux. Peer reviewed or not, the final

analysis is not yet in. Peer reviewed research means only that the

research methods used were sound and the conclusions reasonable

based on the hypothesis posited. Peer reviewed means the results of

research are generally agreed on to be appropriate for publication

and dissemination. All too often the conclusions drawn from

circumscribed research results are overgeneralized. Research makes

progress a step at a time,adding a single piece to an extremely

complex and as yet incompletely understood disease process. It may

not be proven and peer reviewed, but my treatment protocol quite

literally saved my life. Additionally, proof of one course of action

vs. another is relative and dependent on the findings of further

research. The state of the science now can easily change with the

next publication. Please everyone, review the information here with

caution whether is sounds authoritative or not. Please don't advise

against a course of treatment or advocate for a specific treatment

as the " only course " . This disease is highly variable in its

presentations and the effects that it has on the individual. There

are mediating factors which affect each individual's recovery.

Please use common sense and don't use information posted here to

make potentially life or death decisions about your treatment. I am

very concerned about this issue. I have no problem with the

expression of opinions, personal experiences, and what has helped

others, but I get really worried when I read all or nothing

conclusions based on published research that is still in its infancy.

Laurie

> > >

> > > These statements (below) are the kind of statements that cause

people

> > > to run from the list.

> > > I agree with the poster that said people need to use their own

common

> > > sense when filtering any message (here, or any other group).

> > > Just like I don't accept my doctor's information uncritically,

I don't

> > > accept what I read on any site uncritically. I judge it as one

bit of

> > > information, taken in together with many other bits of

information,

> > > confirmed or negated by my own good sense, and by my

experience and by

> > > the experience of others I trust.

> > >

> > > That, to me, is the irreplaceable value of the internet -

where else

> > > would I be able to learn the experiences of people around the

world?

> > >

> > > After being on a group for a while, [and I spend more time on

the

> > > Buhner group, but I also learn a lot here] I come to know who

is

> > > speaking from their experience and who is making absolutist

statements

> > > like the one below.

> > >

> > > I'm not trying to start a feud here, and I have nothing else

to say on

> > > the subject, but it is irresponsible to present opinion

as 'statement

> > > of fact'. One can only hope that readers do use their own

common sense

> > > in interpreting.

> > >

> > > Further -in the post that said 'that which causes us to lose

our

> > > credibility', I find that very true. I have been to support

groups,

> > > where someone says, " Oh, you don't have MS, you have Lyme " .

That

> > > really turns me off. The doctors probably don't know what the

person

> > > has, sometimes one may never know, and this layperson is going

to tell

> > > them with absolute certainty what they have. That leads to

people who

> > > say, about us, 'Oh, those Lyme people they think everything is

Lyme.'

> > >

> > > Just because many things which should be diagnosed as Lyme are

not,

> > > does not mean every condition anybody has is Lyme.

> > >

> > > regards,

> > > ellen

> > >

> > > >

> > > > Lyme Disease is caused by spirochetal infection. Like

Syphilis it

> > > > cannot be cured or controlled except through the use of

antibiotics.

> > > > Many people who have LD will also develop an autoimmune

reaction to

> > > > the infection, which may cause chronic illness after the

actual

> > > > infection is gone, in which case non antibiotic therapy

might be

> > > > useful. Destroying the actual infection is difficult after

the

> disease

> > > > becomes disseminated, but it can be done, however there is

no hard

> > > > evidence to show that anything other than antibiotics can

accomplish

> > > > this.

> > > >

> > > > I advocate the use of tetracycline class antibiotics,

especially

> > > > minocycline, because they have been proven safe in numerous

long

> term

> > > > trials, and are also effective in dealing with numerous

autoimmune

> > > > disorders because of their neuroprotective and anti-

inflammatory

> > > > properties. They are inexpensive. An LD sufferer is probably

more

> > > > likely to convince an non LD literate DR to prescribe a long

> course of

> > > > these antibiotics, than any others. These antibiotics have

been

> proven

> > > > in published peer reviewed studies, to be effective against

LD and

> > > > many tick borne co-infections such as Bartonella and

Erlichiosis.

> > > > Other non antibiotic treatments cannot be proven to be

> effective, and

> > > > I can not recommend them.

> > > >

> > > > cheers

> > > >

> > > > Duncan

> > > >

> > >

> >

>

[Guest guest]

I can certainly understand that you would seek alternate treatment if

you're getting worse, and for some people this might be the case. But

I think that the standard abx treatments should be tried first, as

they will be effective for most people. I have tried to present info

on abx that have been proven safe in large scale, long term, trials,

and that will also treat LD and its complications, but as always,

YRMV, since, as you point out we are all individuals and our response

to this disease and treatments will vary.

cheers

Duncan

> > > >

> > > > These statements (below) are the kind of statements that cause

> people

> > > > to run from the list.

> > > > I agree with the poster that said people need to use their own

> common

> > > > sense when filtering any message (here, or any other group).

> > > > Just like I don't accept my doctor's information uncritically,

> I don't

> > > > accept what I read on any site uncritically. I judge it as one

> bit of

> > > > information, taken in together with many other bits of

> information,

> > > > confirmed or negated by my own good sense, and by my

> experience and by

> > > > the experience of others I trust.

> > > >

> > > > That, to me, is the irreplaceable value of the internet -

> where else

> > > > would I be able to learn the experiences of people around the

> world?

> > > >

> > > > After being on a group for a while, [and I spend more time on

> the

> > > > Buhner group, but I also learn a lot here] I come to know who

> is

> > > > speaking from their experience and who is making absolutist

> statements

> > > > like the one below.

> > > >

> > > > I'm not trying to start a feud here, and I have nothing else

> to say on

> > > > the subject, but it is irresponsible to present opinion

> as 'statement

> > > > of fact'. One can only hope that readers do use their own

> common sense

> > > > in interpreting.

> > > >

> > > > Further -in the post that said 'that which causes us to lose

> our

> > > > credibility', I find that very true. I have been to support

> groups,

> > > > where someone says, " Oh, you don't have MS, you have Lyme " .

> That

> > > > really turns me off. The doctors probably don't know what the

> person

> > > > has, sometimes one may never know, and this layperson is going

> to tell

> > > > them with absolute certainty what they have. That leads to

> people who

> > > > say, about us, 'Oh, those Lyme people they think everything is

> Lyme.'

> > > >

> > > > Just because many things which should be diagnosed as Lyme are

> not,

> > > > does not mean every condition anybody has is Lyme.

> > > >

> > > > regards,

> > > > ellen

> > > >

> > > > >

> > > > > Lyme Disease is caused by spirochetal infection. Like

> Syphilis it

> > > > > cannot be cured or controlled except through the use of

> antibiotics.

> > > > > Many people who have LD will also develop an autoimmune

> reaction to

> > > > > the infection, which may cause chronic illness after the

> actual

> > > > > infection is gone, in which case non antibiotic therapy

> might be

> > > > > useful. Destroying the actual infection is difficult after

> the

> > disease

> > > > > becomes disseminated, but it can be done, however there is

> no hard

> > > > > evidence to show that anything other than antibiotics can

> accomplish

> > > > > this.

> > > > >

> > > > > I advocate the use of tetracycline class antibiotics,

> especially

> > > > > minocycline, because they have been proven safe in numerous

> long

> > term

> > > > > trials, and are also effective in dealing with numerous

> autoimmune

> > > > > disorders because of their neuroprotective and anti-

> inflammatory

> > > > > properties. They are inexpensive. An LD sufferer is probably

> more

> > > > > likely to convince an non LD literate DR to prescribe a long

> > course of

> > > > > these antibiotics, than any others. These antibiotics have

> been

> > proven

> > > > > in published peer reviewed studies, to be effective against

> LD and

> > > > > many tick borne co-infections such as Bartonella and

> Erlichiosis.

> > > > > Other non antibiotic treatments cannot be proven to be

> > effective, and

> > > > > I can not recommend them.

> > > > >

> > > > > cheers

> > > > >

> > > > > Duncan

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I think my comments were misunderstood. I have tried to clarify

myself in another post. I am on abx,along with a strict diet,

lifestyle changes, herbal supplements, vitamin supplements, and

other medications. I am finally getting back on my feet after 15

years. My concern was that a single class of abx was advocated as

the best course of treatment across the board and this is simply not

true.

Laurie

>

>

> In a message dated 8/28/2007 10:29:46 P.M. Mountain Daylight

Time,

> dmunro@... writes:

>

> But

> I think that the standard abx treatments should be tried first, as

> they will be effective for most people.

>

>

> **********I do not agree.....ABX is ok for a recent bite and if

they are

> started with 24 hours, but some are now saying Lyme can go chronic

within hours

> after a bit, but once you get past that " chronic " is the name of

the game.

> Once you go chronic you are chasing your tail....I use to know 10

people who

> claimed they were cured and 5 of them have relapsed in the last

year...I also

> know of thousands of Lymies who have been on ABX for

yearsssssssssssssss and

> continue to submit their bodies to additional toxins and not get

well. IF

> you choose to go the ABX route, that is " your " choice, but to say

that ABX works

> for most folks in my humble opinion is not true. Laurie is one

of

> thousands who are suffering from their treatment protocols.

>

> *********I suggest those on ABX make some major changes in their

lives and

> start with their diet/nutrition.

> Then focus on cleaning your terrain, and protocols to reduce

your total

> body burden of pathogens. You would be surprised how many people

can't do this

> simple thing....as my doctor says, " when they get sick enough,

then and only

> then, will they make changes in their lifestyle and

diet/nutrition. "

>

> ********Laurie I'm happy to hear you woke up in time.....the

allopathics

> almost killed me 5 times and I'm a [] nurse....[]

>

> Angel Huggzz

[Guest guest]

I understand you totally, Laurie - did you do all this with a LLMD? or with

your own research?

I would like to know more about each thing you mentioned..... what abx? what

type of strict diet? what lifestyle changes? what herbal supplements? what

vitamin supplements? and what other medications?

I agree with you that a single class of antibiotics just won't do it - these

spirochetes are way too smart!

Ann

-- [ ] Re: group

I think my comments were misunderstood. I have tried to clarify

myself in another post. I am on abx,along with a strict diet,

lifestyle changes, herbal supplements, vitamin supplements, and

other medications. I am finally getting back on my feet after 15

years. My concern was that a single class of abx was advocated as

the best course of treatment across the board and this is simply not

true.

Laurie

[Guest guest]

Hi Ann:

All of my treatment has been done in concert with my wonderful

LLMD. I will try to relate the course of my treatment,assuming I can

remember what all I have taken! My Lyme Doc diagnosed me with Lyme,

Babesia and Bartonella clinically, i.e. based on the symptoms I was

experiencing. She interprets the Lyme testing I have had broadly,

i.e. she does not stop at " positive " vs. " negative " to draw her

conclusions because the available tests are just not that sensitive.

A comprehensive review of the sequence of my treatment would

constitute a book in itself. So, I have been on IV rocephin and

zithromax, Ketek, Bactrim, Minocycline, Mupirocin (for staph epi in

my sinuses), Gentamicinix/Xylitol/Mupirocin (for staph epi),

Minocin, Actos, Ursodiol, Cholestyramine, Malarone, and a host of

German-made homeopathic remedies to address a variety of symptoms (I

call them my " potions " because they are all liquids). My Lyme Doc

has thoroughly researched these homeopathic remedies and has had

great success using them with her patients. A complete review of

what they are and what they do would be another book. I have been on

a host of psychiatric meds including cymbalta, seroquel, geodon,

xanax, librium, lamictal (that almost killed me because I had a

reaction to it), provigil (fatigue), adderall (fatigue). These meds

were for severe depression, acute panic attacks, paranoia,

hallucinations and lots of other fun stuff. I have " leaky gut " ,

which means that I don't eliminate toxins because my GI tract

reabsorbs them. So the cholestyramine/actos combination was for

detox purposes and worked extremely well. I am " lyme susceptible " ,

which means that my immune system doesn't recognize the spirochete

as something it needs to get rid of. This determination was made

based on a blood test (can't remember the name right now) to look at

the genetically inherited composition of my immune system. A similar

test is used to match transplant patients with donors. So, for me,

it is particularly difficult to get rid of these nasty bugs. This is

based on the work of Ritchie Shoemaker, an expert in the area of the

effect of chronic neurotoxins. My diet has varied according to the

medication I have been on and the issues currently being addressed.

But in general, my diet is all natural, avoids sugars, eliminates

artificial colors, flavors, fillers etc. (no chemical additives),

grass fed meats with no hormones, high vegetable and fruit content

(avoiding the high sugar fruits), and avoids wheat products when

possible. Lifestyle changes have included ditching the diet soda

(artificial sweeteners are neurotoxins), low to no caffeine (I

thought this one would kill me), quit smoking (also almost killed

me), weight loss (helped by dietary changes), lowering stress (still

working on this one), and gentle, low impact exercise like walking.

My treatment has been extremely complicated, but it has helped me

dramatically. My abx change with whichever infection is most

prominent at the moment. Treatment has consisted of beating one

infection back only to have the next rear its ugly head. So we beat

that one down. Then the next infection takes center stage and we

beat that one back with a different abx. So far I've been through

six or seven " cycles " of who's on first: Lyme, Babs, Bartonella.

With each successful attack on the individual infections, their

return has been less powerful. Oh, as for vitamins and supplements,

here is what I am now taking: GNC Women's Ultra mega, Fish Body Oil,

Evening Primrose Oil, Alpha Lipoic Acid, Vitamin C, Vitamin D,

Magnesium, Potassium, Probiotics (to avoid yeast infections), and

Selenium. This list has changed over time. All vitamins and

supplements are medical grade and contain no fillers, colors or any

other junk (which is what makes them so expensive). I am also on

estrogen supplements and Dexamethasone to lower my sky-high cortisol

levels (its a steroid). I have my LLMD, a psychiatrist, an

endocrinologist, a PCP and a partridge in a pear tree! I am blessed

in that they all work in tandem, consult with one another, and are

supportive of each other's interventions. My treatment has not been

targeted just at the spirochete, but has also involved all the

collateral damage done to my body by the infection. My hypothalamic-

pituitary system was described by my endocrinologist as " a disaster

area " . Additionally, I have unique issues such as lyme

susceptibility (the inability to effectively fight and clear this

infection)that have required individualized attention. It is through

this extremely complex, involved treatment regimen that I have

finally improved. I hope this lengthy response gave you some of the

information you were interested in. I'll be happy to try to clarify

any other questions you may have. I was a bit lazy in my response to

you because I did not pull out all my notes and explain everything

in detail. So this is what's on the top of my head right now. I'm

sure I probably missed some meds in there. Anyways, hope this was

helpful. Peace and Healing....Laurie

>

> I understand you totally, Laurie - did you do all this with a

LLMD? or with

> your own research?

> I would like to know more about each thing you mentioned..... what

abx? what

> type of strict diet? what lifestyle changes? what herbal

supplements? what

> vitamin supplements? and what other medications?

> I agree with you that a single class of antibiotics just won't do

it - these

> spirochetes are way too smart!

> Ann

[Guest guest]

I live in VA, but my docs are in PA.

>

> Laurie,

> You are certainly fortunate to have doctors work in tandem to help

you - we

> have not found that easily, certainly locally here in AZ. Where do

you live?

> and where are these docs? I see many similarities and differences

in our

> treatment and appreciate how you have been treated - if it's not

too far, I

> may consider it. We have traveled far and wide looking for the

best combo.

> Thank you fro your lengthy comments, it gives me faith that there

is someone

> out there that can help me regain some quality of life!

> Ann

> aprow@...

>

[Guest guest]

Grandmom,

I know what you are saying. I am new and it is very frustrating. But I

stay, hoping that maybe a new person will come on and help. There are tons of

people registered on .

In a message dated 3/2/2008 10:57:33 P.M. Eastern Standard Time,

grandmom_julie@... writes:

I am leaveing the group cause since I have been here I have asked a

couple of questions and I just got 1 answer to them. And I myself

didn't think they helped me any. So I am going to go on my way. I hope

you all have can help each other more then you helped me. God Bless you

all.

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

In my experience on internet boards, the reasons people may not

respond are:

1. Nobody knows the answer - better to have silence than a bunch of

opinions!

2. The question is common & the answers can be found in the archives.

I've found this group to be quite helpful. I bet if you both stick

around, you'll find the same.

Kim

>

> Grandmom,

>

> I know what you are saying. I am new and it is very frustrating.

But I

> stay, hoping that maybe a new person will come on and help. There

are tons of

> people registered on .

>

>

> In a message dated 3/2/2008 10:57:33 P.M. Eastern Standard Time,

> grandmom_julie@... writes:

>

>

>

>

> I am leaveing the group cause since I have been here I have asked

a

> couple of questions and I just got 1 answer to them. And I myself

> didn't think they helped me any. So I am going to go on my way. I

hope

> you all have can help each other more then you helped me. God Bless

you

> all.

>

>

>

>

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-

campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

>

[Guest guest]

Good Morning

I changed IPs and had a new email address. Was formerly jackpinner@....

This forum has been extremely helpful of the fast few years.

Thanks

Jack Pinner

[Guest guest]

Hi

From: cathy mccarthy <bbhorsetack@...>

Subject: group

spinal problems

Date: Friday, September 4, 2009, 8:58 PM

 

I surely hope, everybody has forgotten and buried in their mind that total ....

errr can't say it here, " person " , that tried to wreck our very nice group. He

did a good job though. Worked too... Wrecked it. People like that are good at

it.

People like me, hesitate or simply do not get into discussions that I know

nothing about. Is that a bad thing??? Maybe I should of. I spend many hours

researching my problems/disease. I am not a Dr. or a medical person. I delete

hundreds of emails a day, not just from this group. The spinal disorders group

is one of the few groups I am on that I get all the individual emails (or

whatever it is called). I care about you guys. Yes I have a spinal disorder. But

this " disruption " makes me feel like an outsider.... which I was anyway.

Are we all gonna let him sit tight in Germany with a smug smile on his face and

laugh in his mug of German beer??? He was probably sitting in a run down apt. in

the slums of a city somewhere (I was gonna say a " where " but who knows how many

of our 'group' live there!!) in the US. I dunno, I have been thinking of

tracking the weasel down, and having one of my internet " terminators " friends

track him down. But he isn't worth it.

I just hope, if he is in the military, he just cleans out toilets and garbage

cans. And does not fly a helicopter, or have a finger on a button where he can

do something really stupid. Blow something up. Something. Besides wrecking our

group.

JMO... in NH

[Guest guest]

,

I am interested in a drama free group as well. I just joined and will be

leaving today but please let me know if you start another group for

information.

Kara

From: spinal problems

[mailto:spinal problems ] On Behalf Of

Babbitt

Sent: Monday, September 07, 2009 5:18 PM

spinal problems

Subject: Re: Re: group

A few of us tried to be brought in as moderators...but it didn't fly with

the current ones...who tend to become a little defensive when people

complain about lack of moderator activity. they are both busy people...which

of course we can all understand...but perhaps one needs to step down as

moderator when they are too busy to moderate, and allow others who do have

the time, as well as a clear head. It's not a fault situation...but it's

important to be able to accept one's limitations and back out so the group

doesn't suffer.

And I do believe there is a time and place here for medical advice...but it

needs to be carefully given...and should come from the perspective of " my

doc told me... " or " when I asked this of the spine surgeon he said... " or " I

read... "

ANY time I have given out advice...which I feel ok doing given my

occupation and personal experience, and my middle of the road stance...I

don't say no surgery or always surgery...and I always am aware that someone

else may have a better answer than me, and I learn something new...BUT

always I say " check with your pharmacist " or " ask yor doc " or here's the

link so you can read it for yourself..I often try to back up my info with a

link.

There have not been many, but there have been a few who take this liberty

too far...and can be a bit pushy about it. We need to be careful with what

we say and how we say it...always being aware of others' perspectives who

will be reading it...and aware that some people may take your word as fact

and not have the sense to find out on their own.

--- Babbitt

Re: group

CTPain,

now you knnow that kind of response is what this giy is looking for...thats

what he needs to go off on his personal agenda tangent. Lets just ignore him

now...and actually, I think its an old post, how I came acroos it while

looking at newer posts I'll never know..

---

> >

> > Larry here,

> >

> > ya know i sent that e-mail out for reading material, thats all but some

> > of you took it totally the wrong way. so its like this they took the

> > pledge of allegiance out why!?, because it had GOD in it " one nation

> > under god " they stopped our children and kids from praying in school,

> > and at one time in the past they wanted our children to eat " CATSUP " for

> > there vegetables. and when Jesus was here on earth he him self was

> > rejected by his own people,,,, and Jesus clearly states that in the

> > bible. and as i have said before i love my Jesus and lord god!. and who

> > ever does not want Jesus sure doesn't want me!!!. so you go ahead and

> > keep your site with no Jesus in it, and i will keep my LORD JESUS !!,

but

> > rest assured JESUS is far better than any site!!.

> >

> > Larry...

> >

>

>

>

>

>

>

[Guest guest]

Yes, please stay! We are determined to make this work!

>

> Grandmom,

>

> I know what you are saying. I am new and it is very frustrating. But I

> stay, hoping that maybe a new person will come on and help. There are tons

of

> people registered on .

>

>

> In a message dated 3/2/2008 10:57:33 P.M. Eastern Standard Time,

> grandmom_julie@... writes:

>

>

>

>

> I am leaveing the group cause since I have been here I have asked a

> couple of questions and I just got 1 answer to them. And I myself

> didn't think they helped me any. So I am going to go on my way. I hope

> you all have can help each other more then you helped me. God Bless you

> all.

>

>

>

>

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL Living.

>

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

>

>