Guest guest Report post Posted April 30, 2005 Mark, I was watching Larry King Live just the other night and he had several people on the show who suffered from migraines and after hearing what happens to them when they have a migraine reminded me alot of seizures. All of the migraine sufferers on the show agreed that their migraines were mainly due to stress and two of them (his wife was one of them) had auras that came before the migraine, they also would throw up, were very sensitive to light, sound and smell, sound familiar? A couple of the people mentioned that they had been on I believe was Topamax which we know is also used to treat seizures. Larry's wife explained what happened during one of her auras and that was that she would lose part of her sight, she also explained that right after the auras that she would have the migraine and sometimes she would have to be taken to the ER because they were so bad. She also mentioned that these migraines could last as long as 5 days and she could not function during this period. Much of what she described about her migraines sounds alot like seizures and has been mentioned by seizure sufferers. So I think that epilepsy and migraines are very much related. Grace Mark Schauss <schauss@...> wrote: Great discussion here!!! A few comments, zinc is very important in improving the effectiveness of glycine, GABA and taurine (all neuroinhibitory amino acids) in the brain. Some AED's also can cause zinc deficiencies which in turn can make one AED dependent because if you lower zinc enough, only the meds can control the situation. This is something we learned with my daughter Tasya. The balance of minerals you mention is excellent as well as they are very closely related and over supplementation of one can have a cascading effect on the others. Adding heavy metals to the mix can wreck havoc with these balances as well (organic or non-organic heavy metals, doesn't matter they are both toxic). Aluminum often works in opposition to Zinc especially if pH is messed up. The glutathione issue is critical and from the studies we've been doing we find most epilepsy and autistic children greatly depleted. One could write a book on glutathione alone as it is so important in human health and definitely in epileptics. Many AED's also deplete glutathione as well. The insulin / glucose issue is also quite important with epilepsy. You have things right on Mindy. Zinc is also important here as it can help create sugars in the body. An interesting experiment to show how its done although it isn't all that pleasant is to suck on a zinc lozenge and puff on a cigarette. You begin to get a sweet taste in your mouth, sugar. The zinc has a catalytic effect to create a basic sugar. It does the same in the body which is why it is so important in keeping a steady flow of glucose instead of the spikes and drops we see in zinc depleted individuals. With the dyes and additives, an area I'm looking into is the production of pro-inflammatory cytokines caused by them as well as by some foods. I know that Tasya can be guaranteed a nocturnal seizure if she gets some MSG or a food with lots of red, yellow or blue food dyes. We are not sure if there are other foods that do that to her and were unaware of a good test for it until recently. The LEAP MRT test from Signet Diagnostics tests for these cytokines from 123 foods and 27 food additives. I will be running the test on Tasya in the next week or two and will report back to the group on the results. They have had remarkable results from using their test with irritable bowel syndrome and migraines. It is the later issue that has me most intrigued as migraines really are just different manifestations of a seizure. Mark Schauss, MBA, DB www.carbonbased.com [ ] Re: glucose 6 phosphate dehydrogenase(now ADHD) I'm not a member of epilepsy research. I'll check it out. Lots of causes of ADHD. One of the most common I believe is diet related. High glycemic foods. Hypoglycemia. The blood sugar rises after the high glycemic foods and then it drops to nothing when that spike is gone. Then the brain is forced to search for more fuel. In these cases, the fuel of choice is adrenaline. Someone being on adrenaline all the time can be fairly intolerable.LOL. I think that my other daughter's system switches over to glutamines for some reason. I only have a slight understanding of this so I may be interpreting this wrong or have a very elementary grasp of this. If you've seen MRI scans of ADHD kids, the glucose flow to the frontal lobes of the brains in ADHD children is very low. The frontal lobes being the executive functioning. In addition, food dyes and additives do have an effect though people choose to believe they don't. Yellow #5 is reportedly a known zinc depleter, for example. In a study that came out awhile ago, children supplemented with zinc did just as well as those on prescription meds. Zinc has a relationship to copper. Copper has a relationship with iron. Iron has a relationship with insulin. Back to the sugar control again. Unfortunately, supplementing too much zinc can knock copper out of balance in no time and still cause problems. I'm still learning about that too. Low copper is interesting as well. Not enough copper can be one of the causes of anemia. (As well as low B12). There is a lady with a website (www.autismhelpforyou.com) who maintains that schizo,autism,alzheimers,etc are ALL really epilepsy at its worst. All epilepsy related. I really think this basic idea is dead on. She did a bunch of research on insulin and iron. You have to find it on her site...it's an extremely busy looking site, but the iron insulin info was fascinating. On her site, she discusses how schizo used to be treated with insulin in the 1930s. I don't give my daughters any supplements at this time except for enzymes (those rock!) and prescribed carnitine for my youngest. I do give them a multivitamin that has no iron. That was very difficult to find! I'll post some more of what I've learned later. I have to head out to school now. Mindy > Mindy, > This is a fascinating insight. Are you a member of the group > epilepsyresearch ? > > My son was considered highly functioning ASD and ADHD. He did test low > for cystiene. His seizures are controlled now using the modified > version of the Atkins Diet that s Hopkins is doing. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 30, 2005 Absolutely Grace. Migraines are very much like seizures in so many ways. When my wife and I were looking backwards in our families history for any epileptics all we could find was both of our mothers had a history of migraines. Genetics? Maybe. Still, something to think about. Mark Schauss, MBA, DB www.carbonbased.com [ ] Re: glucose 6 phosphate dehydrogenase(now ADHD) I'm not a member of epilepsy research. I'll check it out. Lots of causes of ADHD. One of the most common I believe is diet related. High glycemic foods. Hypoglycemia. The blood sugar rises after the high glycemic foods and then it drops to nothing when that spike is gone. Then the brain is forced to search for more fuel. In these cases, the fuel of choice is adrenaline. Someone being on adrenaline all the time can be fairly intolerable.LOL. I think that my other daughter's system switches over to glutamines for some reason. I only have a slight understanding of this so I may be interpreting this wrong or have a very elementary grasp of this. If you've seen MRI scans of ADHD kids, the glucose flow to the frontal lobes of the brains in ADHD children is very low. The frontal lobes being the executive functioning. In addition, food dyes and additives do have an effect though people choose to believe they don't. Yellow #5 is reportedly a known zinc depleter, for example. In a study that came out awhile ago, children supplemented with zinc did just as well as those on prescription meds. Zinc has a relationship to copper. Copper has a relationship with iron. Iron has a relationship with insulin. Back to the sugar control again. Unfortunately, supplementing too much zinc can knock copper out of balance in no time and still cause problems. I'm still learning about that too. Low copper is interesting as well. Not enough copper can be one of the causes of anemia. (As well as low B12). There is a lady with a website (www.autismhelpforyou.com) who maintains that schizo,autism,alzheimers,etc are ALL really epilepsy at its worst. All epilepsy related. I really think this basic idea is dead on. She did a bunch of research on insulin and iron. You have to find it on her site...it's an extremely busy looking site, but the iron insulin info was fascinating. On her site, she discusses how schizo used to be treated with insulin in the 1930s. I don't give my daughters any supplements at this time except for enzymes (those rock!) and prescribed carnitine for my youngest. I do give them a multivitamin that has no iron. That was very difficult to find! I'll post some more of what I've learned later. I have to head out to school now. Mindy > Mindy, > This is a fascinating insight. Are you a member of the group > epilepsyresearch ? > > My son was considered highly functioning ASD and ADHD. He did test low > for cystiene. His seizures are controlled now using the modified > version of the Atkins Diet that s Hopkins is doing. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2005 In my family epilepsy runs in the family on my moms side. Mine is not inherited but my sisters is inherited. Her husband has migranes. She has two children only. Well she has a daughter who has epilepsy and another who has migranes. I guess the two genes put together and that is why she ended up with two with problems. > > Mindy, > > This is a fascinating insight. Are you a member of the group > > epilepsyresearch ? > > > > My son was considered highly functioning ASD and ADHD. He did test > low > > for cystiene. His seizures are controlled now using the modified > > version of the Atkins Diet that s Hopkins is doing. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 25, 2005 Are you going to AAA Conference? MAndi PS Thanks for discs Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 5, 2005 > > Mike, > > I have cognitive problems as well. Hypogonadism is one of many health > problems for me, unfortunately. I am on disability as well. Mine is > a long story. If you want to talk more, email me at mdw1000 at . > > Mark Dear Mark, Thanks for writing. You're the first person I've heard of who is off of work. Do you have disability insurance? I hope you are okay financially. I'm a high school teacher and about two years ago they pulled me out of my classroom because they said I had difficulty processing information. At the time I think it was true, and now I've left the denial behind. I'd love to here you're story. Mike > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 23, 2007 I have heard from Dr. and things are looking better for Mark; progress is being made. She made a strong case to me as to why we should not go to the media right now, as does Jim below. I will forward any new developments as I become aware of them. Terry Jim <mofunnow@...> wrote: That would be nice but not something I would rely on, These guys that are in the public light get so much incoming communication that it's a wonder they get around to a quarter of it. Legally I don't know what he can do. Psychiatrists can sheild themselves with HIPPA laws (for the protection of the patient of course, barf!). Psychiatrists will say " I cannot confirm or deny that Mr. is at this facility or not " So even if Mr. were to take his camera and go to the facility they might could probably stonewall him with " the rules " . I have seen a couple of people who know the rules and do not create antagonisim with the staff go down and politely ask for whatever the rules allow will eventually get the guy out. Mark should call out and request that people visit him and then many people should visit him and stay and stay with him, in pairs preferably, and basically once the staff know he is being watched out for then they will be more likely to let him go with family who will take responsibility for the patient. Jim I have done that. Waiting to see if he responds or acts. Terry - URGENT! One of us is in dire need of help right now . . . > > > > As most of you are aware Mark , from Columbine - his FDA > testimony is > > on the front of our website - and his mother stayed with me for a > couple of > > months right about the time that the VA Tech shooting happened. We > did a lot of > > media on that issue. Mark has been doing book signings for his new > book " I > > Asked, God Answered " But lately he has become extremely paranoid and > > delusional from what I believe is due to his blood sugar. His > father is diabetic, his > > brother is diabetic and hypoglycemia is rampant on his mother's side > of the > > family. Add to that the trauma of being shot 7 - 13 times at > Columbine and you > > have a pancreas that is LOTS of trouble. > > > > For several years now I have been telling his mom that I feared his > pancreas > > was beginning to have serious problems. He has had strong cravings for > > sugary, caffienated substances. And if you recall the explanation in > my book about > > how adrenaline (the fight or flight hormone) rushes come from the > blood > > sugar dropping and that leads to either anger outbursts or panic and > fear or > > paranoia. And as the sugar levels become more imbalanced delusions and > > hallucinations set in. Mark is there. > > > > While he was here I would give him Noni juice and he would come > right out of > > it and be Mark again. But he went back to Colorado and was picked up > for > > those delusions and placed in a psych ward. That was two weeks ago. > He has been > > given Geodon and is now on Invega (time release Risperdal). The > doctor had > > said that if I got Noni juice to him they would allow it. We > finally got some to > > him the middle of the week and they are now refusing to allow him > to use it. > > To quote the nurse, " We can't do that because it is an herb that > balances > > the blood sugar and boosts the immune system. " NO DUH!!!! Obviously > they have a > > problem with that! > > > > Anyway we need help getting Mark out of there. I have already had > Dr. n > > Whitaker, MD, agree to have Mark come to his clinic to be treated with > > natural means, but they have obtained a court order this week to > keep him there. > > Of course because the drugs he is getting are so hard on the > pancreas and > > known to CAUSE diabetes, he is getting worse and worse by the day. > His brother > > was only on Celexa for one month before becoming diabetic. Mark has > had these > > drugs for two weeks now. HE WANTS OUT! > > > > Brad if you have any ideas, I am open to anything. I feel so > helpless. We > > have an attorney working on it, but that takes time and I don't know > how much > > time we have. > > > > I would ask all of you to pray for Mark and at the same time pray > that we > > can take the final steps to get our center up and going. Mark is > going to need > > to come now. > > > > Dr. > > > > > > > > ************************************** Get a sneak peek of the > all-new AOL at > > http://discover.aol.com/memed/aolcom30tour > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 23, 2007 I have heard from Dr. and things are looking better for Mark; progress is being made. She made a strong case to me as to why we should not go to the media right now, as does Jim below. I will forward any new developments as I become aware of them. Terry Jim <mofunnow@...> wrote: That would be nice but not something I would rely on, These guys that are in the public light get so much incoming communication that it's a wonder they get around to a quarter of it. Legally I don't know what he can do. Psychiatrists can sheild themselves with HIPPA laws (for the protection of the patient of course, barf!). Psychiatrists will say " I cannot confirm or deny that Mr. is at this facility or not " So even if Mr. were to take his camera and go to the facility they might could probably stonewall him with " the rules " . I have seen a couple of people who know the rules and do not create antagonisim with the staff go down and politely ask for whatever the rules allow will eventually get the guy out. Mark should call out and request that people visit him and then many people should visit him and stay and stay with him, in pairs preferably, and basically once the staff know he is being watched out for then they will be more likely to let him go with family who will take responsibility for the patient. Jim I have done that. Waiting to see if he responds or acts. Terry - URGENT! One of us is in dire need of help right now . . . > > > > As most of you are aware Mark , from Columbine - his FDA > testimony is > > on the front of our website - and his mother stayed with me for a > couple of > > months right about the time that the VA Tech shooting happened. We > did a lot of > > media on that issue. Mark has been doing book signings for his new > book " I > > Asked, God Answered " But lately he has become extremely paranoid and > > delusional from what I believe is due to his blood sugar. His > father is diabetic, his > > brother is diabetic and hypoglycemia is rampant on his mother's side > of the > > family. Add to that the trauma of being shot 7 - 13 times at > Columbine and you > > have a pancreas that is LOTS of trouble. > > > > For several years now I have been telling his mom that I feared his > pancreas > > was beginning to have serious problems. He has had strong cravings for > > sugary, caffienated substances. And if you recall the explanation in > my book about > > how adrenaline (the fight or flight hormone) rushes come from the > blood > > sugar dropping and that leads to either anger outbursts or panic and > fear or > > paranoia. And as the sugar levels become more imbalanced delusions and > > hallucinations set in. Mark is there. > > > > While he was here I would give him Noni juice and he would come > right out of > > it and be Mark again. But he went back to Colorado and was picked up > for > > those delusions and placed in a psych ward. That was two weeks ago. > He has been > > given Geodon and is now on Invega (time release Risperdal). The > doctor had > > said that if I got Noni juice to him they would allow it. We > finally got some to > > him the middle of the week and they are now refusing to allow him > to use it. > > To quote the nurse, " We can't do that because it is an herb that > balances > > the blood sugar and boosts the immune system. " NO DUH!!!! Obviously > they have a > > problem with that! > > > > Anyway we need help getting Mark out of there. I have already had > Dr. n > > Whitaker, MD, agree to have Mark come to his clinic to be treated with > > natural means, but they have obtained a court order this week to > keep him there. > > Of course because the drugs he is getting are so hard on the > pancreas and > > known to CAUSE diabetes, he is getting worse and worse by the day. > His brother > > was only on Celexa for one month before becoming diabetic. Mark has > had these > > drugs for two weeks now. HE WANTS OUT! > > > > Brad if you have any ideas, I am open to anything. I feel so > helpless. We > > have an attorney working on it, but that takes time and I don't know > how much > > time we have. > > > > I would ask all of you to pray for Mark and at the same time pray > that we > > can take the final steps to get our center up and going. Mark is > going to need > > to come now. > > > > Dr. > > > > > > > > ************************************** Get a sneak peek of the > all-new AOL at > > http://discover.aol.com/memed/aolcom30tour > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 23, 2007 I have heard from Dr. and things are looking better for Mark; progress is being made. She made a strong case to me as to why we should not go to the media right now, as does Jim below. I will forward any new developments as I become aware of them. Terry Jim <mofunnow@...> wrote: That would be nice but not something I would rely on, These guys that are in the public light get so much incoming communication that it's a wonder they get around to a quarter of it. Legally I don't know what he can do. Psychiatrists can sheild themselves with HIPPA laws (for the protection of the patient of course, barf!). Psychiatrists will say " I cannot confirm or deny that Mr. is at this facility or not " So even if Mr. were to take his camera and go to the facility they might could probably stonewall him with " the rules " . I have seen a couple of people who know the rules and do not create antagonisim with the staff go down and politely ask for whatever the rules allow will eventually get the guy out. Mark should call out and request that people visit him and then many people should visit him and stay and stay with him, in pairs preferably, and basically once the staff know he is being watched out for then they will be more likely to let him go with family who will take responsibility for the patient. Jim I have done that. Waiting to see if he responds or acts. Terry - URGENT! One of us is in dire need of help right now . . . > > > > As most of you are aware Mark , from Columbine - his FDA > testimony is > > on the front of our website - and his mother stayed with me for a > couple of > > months right about the time that the VA Tech shooting happened. We > did a lot of > > media on that issue. Mark has been doing book signings for his new > book " I > > Asked, God Answered " But lately he has become extremely paranoid and > > delusional from what I believe is due to his blood sugar. His > father is diabetic, his > > brother is diabetic and hypoglycemia is rampant on his mother's side > of the > > family. Add to that the trauma of being shot 7 - 13 times at > Columbine and you > > have a pancreas that is LOTS of trouble. > > > > For several years now I have been telling his mom that I feared his > pancreas > > was beginning to have serious problems. He has had strong cravings for > > sugary, caffienated substances. And if you recall the explanation in > my book about > > how adrenaline (the fight or flight hormone) rushes come from the > blood > > sugar dropping and that leads to either anger outbursts or panic and > fear or > > paranoia. And as the sugar levels become more imbalanced delusions and > > hallucinations set in. Mark is there. > > > > While he was here I would give him Noni juice and he would come > right out of > > it and be Mark again. But he went back to Colorado and was picked up > for > > those delusions and placed in a psych ward. That was two weeks ago. > He has been > > given Geodon and is now on Invega (time release Risperdal). The > doctor had > > said that if I got Noni juice to him they would allow it. We > finally got some to > > him the middle of the week and they are now refusing to allow him > to use it. > > To quote the nurse, " We can't do that because it is an herb that > balances > > the blood sugar and boosts the immune system. " NO DUH!!!! Obviously > they have a > > problem with that! > > > > Anyway we need help getting Mark out of there. I have already had > Dr. n > > Whitaker, MD, agree to have Mark come to his clinic to be treated with > > natural means, but they have obtained a court order this week to > keep him there. > > Of course because the drugs he is getting are so hard on the > pancreas and > > known to CAUSE diabetes, he is getting worse and worse by the day. > His brother > > was only on Celexa for one month before becoming diabetic. Mark has > had these > > drugs for two weeks now. HE WANTS OUT! > > > > Brad if you have any ideas, I am open to anything. I feel so > helpless. We > > have an attorney working on it, but that takes time and I don't know > how much > > time we have. > > > > I would ask all of you to pray for Mark and at the same time pray > that we > > can take the final steps to get our center up and going. Mark is > going to need > > to come now. > > > > Dr. > > > > > > > > ************************************** Get a sneak peek of the > all-new AOL at > > http://discover.aol.com/memed/aolcom30tour > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 23, 2007 I have heard from Dr. and things are looking better for Mark; progress is being made. She made a strong case to me as to why we should not go to the media right now, as does Jim below. I will forward any new developments as I become aware of them. Terry Jim <mofunnow@...> wrote: That would be nice but not something I would rely on, These guys that are in the public light get so much incoming communication that it's a wonder they get around to a quarter of it. Legally I don't know what he can do. Psychiatrists can sheild themselves with HIPPA laws (for the protection of the patient of course, barf!). Psychiatrists will say " I cannot confirm or deny that Mr. is at this facility or not " So even if Mr. were to take his camera and go to the facility they might could probably stonewall him with " the rules " . I have seen a couple of people who know the rules and do not create antagonisim with the staff go down and politely ask for whatever the rules allow will eventually get the guy out. Mark should call out and request that people visit him and then many people should visit him and stay and stay with him, in pairs preferably, and basically once the staff know he is being watched out for then they will be more likely to let him go with family who will take responsibility for the patient. Jim I have done that. Waiting to see if he responds or acts. Terry - URGENT! One of us is in dire need of help right now . . . > > > > As most of you are aware Mark , from Columbine - his FDA > testimony is > > on the front of our website - and his mother stayed with me for a > couple of > > months right about the time that the VA Tech shooting happened. We > did a lot of > > media on that issue. Mark has been doing book signings for his new > book " I > > Asked, God Answered " But lately he has become extremely paranoid and > > delusional from what I believe is due to his blood sugar. His > father is diabetic, his > > brother is diabetic and hypoglycemia is rampant on his mother's side > of the > > family. Add to that the trauma of being shot 7 - 13 times at > Columbine and you > > have a pancreas that is LOTS of trouble. > > > > For several years now I have been telling his mom that I feared his > pancreas > > was beginning to have serious problems. He has had strong cravings for > > sugary, caffienated substances. And if you recall the explanation in > my book about > > how adrenaline (the fight or flight hormone) rushes come from the > blood > > sugar dropping and that leads to either anger outbursts or panic and > fear or > > paranoia. And as the sugar levels become more imbalanced delusions and > > hallucinations set in. Mark is there. > > > > While he was here I would give him Noni juice and he would come > right out of > > it and be Mark again. But he went back to Colorado and was picked up > for > > those delusions and placed in a psych ward. That was two weeks ago. > He has been > > given Geodon and is now on Invega (time release Risperdal). The > doctor had > > said that if I got Noni juice to him they would allow it. We > finally got some to > > him the middle of the week and they are now refusing to allow him > to use it. > > To quote the nurse, " We can't do that because it is an herb that > balances > > the blood sugar and boosts the immune system. " NO DUH!!!! Obviously > they have a > > problem with that! > > > > Anyway we need help getting Mark out of there. I have already had > Dr. n > > Whitaker, MD, agree to have Mark come to his clinic to be treated with > > natural means, but they have obtained a court order this week to > keep him there. > > Of course because the drugs he is getting are so hard on the > pancreas and > > known to CAUSE diabetes, he is getting worse and worse by the day. > His brother > > was only on Celexa for one month before becoming diabetic. Mark has > had these > > drugs for two weeks now. HE WANTS OUT! > > > > Brad if you have any ideas, I am open to anything. I feel so > helpless. We > > have an attorney working on it, but that takes time and I don't know > how much > > time we have. > > > > I would ask all of you to pray for Mark and at the same time pray > that we > > can take the final steps to get our center up and going. Mark is > going to need > > to come now. > > > > Dr. > > > > > > > > ************************************** Get a sneak peek of the > all-new AOL at > > http://discover.aol.com/memed/aolcom30tour > > > Quote Share this post Link to post Share on other sites