Re: Question for Alan

[Guest guest]

Hi Alan,

This is a question for you...I am thinking seriously about IV chelation and I also had my mercury filling(I only had one large one)out.It is a serious expense( about 3 grand) and insurance will not cover it. My question to you is... did it help a lot?I often feel like I'm chasing rainbows.Expensive ones.The last label put on my MS was RR, but I have had the symptoms that I live with(imbalanceand a need for a cane, fatigue,foot drag)for about 3 years now. I've had the DX of MS for almost 12 years. I had no progression until an exascerbation in 1999. I was on no drugs until1999, when I took Avonex for 2 years until I had the worst exascerbation I ever had.I quit for 1 year and then found LDN. Taunted by my DR. and my family, I decided to go on Copax to appease them, since it didn't interfere with the LDN.I have been on both since last May(7 mos.) So far I've had no problems with the copax. I'm careful to move my shot site.

I can't tell a lot from either the LDN or the copax, but I will stick with the LDN for sure. I've had No exascerbations since I've started.I was always told that the longer you go without progression, the better your prognosis is to be able to stave off disability.I guess those 10 years I had without the cane or imbalance, were my lucky years. I'd give any thing to go back to that level.

I'm wondering if the chelation might put me back to that level of 2-3 years ago.

The Dr. that wants me to start the chelation, also wants to get my hormones in balance(good luck on that...I'm 52 and menopausal).

Alan, what is your level of disability, if any.What "label" do you have on your ms?RR?SP?PP?

-------Original Message-------

From: low dose naltrexone

Date: Thursday, November 04, 2004 22:41:18

low dose naltrexone

Subject: [low dose naltrexone] Re: Anybody using LDN as first MS treatmnent?

> I appreciate all those who have responded to other posts about

your

> experience with LDN. With only one exception I recall, they have

used

> on of the ABC-R-N drugs. I have not and would like to hear from

> anyone else who has not. Everyone has been so helpful. Thank you

for

> the group.

I am using LDN at 4.5mg as my first and only "MS" "treatment" since

diagnosis in Feb this year. Also had mercury fillings out and doing

metals IV chelation.

My insurance company would have paid for a couple of years of CRAB

drugs but after reading the LDN site, the archives of this site and

the clcinical studies of CRABs (and there marginal results) I chose

LDN. I did a phone consult with Dr. B after seeing 2 neuros locally.

I am 49 years old with an engineering degree. My optical neuritis

led to the Dx. I have had a numb side for almost 6 years that I

believe to be my first major attack. My eye is still difficult to

see through but managable. I watch my diet (minimal grains) and

mostly now follow the Maker's Diet. I inject B12 daily

(methycobalimin) and feel pretty good most days, with very few off

days and pretty good energy. I also recently started Bio-Identical

Hormone replacement and believe it has helped me immensely with

strength (I beleive I had muscle wasting) coordination and balance.

I also take a variety of supplements (many come and go) but fish

oil, Vitamin C and E are regulars.

I believe LDN to be the cornerstone of my general improvement from

the "MS" diagnosis.

Hope that helps,

Alan