Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 In a message dated 11/17/04 8:16:18 PM Central Standard Time, skruff@... writes: ~~~I am angry with the world. I am grieving for the loss of my career, my wife, my life. ~~~ ~~~I am not considering suicide - just wishing for a better world. Greg. I've walked the path you are now on. Maybe if you look close enough you can see my shoe prints. I was flat busted, no job, savings depleted, hurting so much that even getting from the armchair to the bathroom was a battle, no insurance, no healthcare, and being completely dismissed by everyone I sought to gain some type of public assistance from cause I was relatively young and undiagnosed. I had waited until it was too late. I had to prove I could take it, typical, " stop whining and deal with it " , male ego. My dad saved US 50 states quarters and I stole at least $300 dollars worth of them to put gasoline in my vehicle which I was close to selling. For the first time since I was 8 years old I didnt even have 1 dollar and was unable to earn a buck. There were many times when I seriously considered ending it all and to be totally honest I still have those thoughts from time to time. I wish that I could with full confidence say that some of the dietary changes I adopted made the difference or perhaps the psychosomatics of psoriasis are more than I give them credit for and the changes in my attitude made the difference but long story short, I survived the storm. Pain and rejection led to depression, which led to despair and destructive ideation and eventually anger. I got so enraged at psoriasis I vowed that I would find a way to fix this and nothing else mattered. I spent probably 18 hours a day for about 9 months online and later in University medical libraries researching everything I could find about psoriasis and how the human body works. Even though I never did identify a magic bullet I think all the little things combined is what turned the tide. Go ahead and get mad and use that anger as motivation to understand your enemy. Focus your attention and use whatever resources you have to find what will work for you. There is a better world just waiting for you to discover, utilize and promote it. Orin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Orin: Sounds sappy, but your story brought tears ... was very kind of you to be so candid and open about your (very personal) struggles. For what it's worth, I think your advice excellent! Greg: I am new here and confess I don't yet " know " all of the folks here, or their personal histories -- actually, I am very newly- diagnosed and not really even sure that the diagnosis was an accurate one (denial??). But I am well acquainted with the hell that one goes through with a chronic health problem. 5 years ago -- at age 35 -- my pelvic organs began falling out of my body (I'm sure you can use your imagination and understand how wholly devastating such a thing could be to a young female). Not only that, but surgery after surgery to " fix me " failed. I am a former minister and ... I don't know ... I guess I thought that fact should've earned me some " brownie points " with God and I'd somehow be exempt. Not so. I did very much like Orin suggested -- educated myself and " channeled my energy " towards becoming an advocate for women with pelvic organ prolapse. I co-manage/moderate a support website for women with POP, and am presently working towards an RN degree. Not sure I've said anything especially helpful but just wanted to say, you're not alone. We DO mourn and grieve, as with any loss. The loss of ones good health IS as tangible as the loss of ones spouse, child, etc. and it can take some time (for some, longer than others) to find your bearings again. I think it's fair to say that the people here will offer their hands, their ears, their shoulders -- along with their hearts -- and walk alongside you during your journey. There have been times when I've found that being in the company of others fighting the same fight is the " spark " I need to just get me through one more day. I am terrified of what my future might hold and just try hard not to think too far ahead. One of the members of my group sent me a precious gift awhile back -- a bracelet inscribed, " One Day At A Time. " I wear it EVERY day; amazing how it inspires me. God bless you, Greg; a big ((((( HUG ))))) to you! Cat > > In a message dated 11/17/04 8:16:18 PM Central Standard Time, > skruff@p... writes: > ~~~I am angry with the world. I am grieving for the loss of my career, my > wife, my life. ~~~ > ~~~I am not considering suicide - just wishing for a better world. > > Greg. > > I've walked the path you are now on. Maybe if you look close enough you can > see my shoe prints. I was flat busted, no job, savings depleted, hurting so > much that even getting from the armchair to the bathroom was a battle, no > insurance, no healthcare, and being completely dismissed by everyone I sought to > gain some type of public assistance from cause I was relatively young and > undiagnosed. I had waited until it was too late. I had to prove I could take it, > typical, " stop whining and deal with it " , male ego. My dad saved US 50 states > quarters and I stole at least $300 dollars worth of them to put gasoline in my > vehicle which I was close to selling. For the first time since I was 8 years > old I didnt even have 1 dollar and was unable to earn a buck. There were many > times when I seriously considered ending it all and to be totally honest I > still have those thoughts from time to time. I wish that I could with full > confidence say that some of the dietary changes I adopted made the difference or > perhaps the psychosomatics of psoriasis are more than I give them credit for and > the changes in my attitude made the difference but long story short, I > survived the storm. Pain and rejection led to depression, which led to despair and > destructive ideation and eventually anger. I got so enraged at psoriasis I > vowed that I would find a way to fix this and nothing else mattered. I spent > probably 18 hours a day for about 9 months online and later in University > medical libraries researching everything I could find about psoriasis and how the > human body works. Even though I never did identify a magic bullet I think all > the little things combined is what turned the tide. Go ahead and get mad and > use that anger as motivation to understand your enemy. Focus your attention > and use whatever resources you have to find what will work for you. There is a > better world just waiting for you to discover, utilize and promote it. Orin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Cat, Orin's story affected me in exactly the same way - and then you write what you just did and i must confess, i've goosepimples and teary eyes myself now... you are a very very wise woman and have been through so much. with everything you said i could not agree more.... when you wrote about our pain being as tangible a grief as losing a spouse... and how this group provides the spark.... you are so very very wise.... thank you so much for such an inspiring message, and God Bless, > > > Orin: Sounds sappy, but your story brought tears ... was very kind of > you to be so candid and open about your (very personal) struggles. > For what it's worth, I think your advice excellent! > > Greg: I am new here and confess I don't yet " know " all of the folks > here, or their personal histories -- actually, I am very newly- > diagnosed and not really even sure that the diagnosis was an accurate > one (denial??). But I am well acquainted with the hell that one goes > through with a chronic health problem. 5 years ago -- at age 35 -- > my pelvic organs began falling out of my body (I'm sure you can use > your imagination and understand how wholly devastating such a thing > could be to a young female). Not only that, but surgery after > surgery to " fix me " failed. I am a former minister and ... I don't > know ... I guess I thought that fact should've earned me > some " brownie points " with God and I'd somehow be exempt. Not so. I > did very much like Orin suggested -- educated myself and " channeled > my energy " towards becoming an advocate for women with pelvic organ > prolapse. I co-manage/moderate a support website for women with POP, > and am presently working towards an RN degree. > > Not sure I've said anything especially helpful but just wanted to > say, you're not alone. We DO mourn and grieve, as with any loss. > The loss of ones good health IS as tangible as the loss of ones > spouse, child, etc. and it can take some time (for some, longer than > others) to find your bearings again. I think it's fair to say that > the people here will offer their hands, their ears, their shoulders -- > along with their hearts -- and walk alongside you during your > journey. There have been times when I've found that being in the > company of others fighting the same fight is the " spark " I need to > just get me through one more day. > > I am terrified of what my future might hold and just try hard not to > think too far ahead. One of the members of my group sent me a > precious gift awhile back -- a bracelet inscribed, " One Day At A > Time. " I wear it EVERY day; amazing how it inspires me. > > God bless you, Greg; a big ((((( HUG ))))) to you! > Cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Orin, You are an inspiration. Thanks for all you do. Becky Elko, NV Re: [ ] Angry with the world In a message dated 11/17/04 8:16:18 PM Central Standard Time, skruff@... writes: ~~~I am angry with the world. I am grieving for the loss of my career, my wife, my life. ~~~ ~~~I am not considering suicide - just wishing for a better world. Greg. I've walked the path you are now on. Maybe if you look close enough you can see my shoe prints. I was flat busted, no job, savings depleted, hurting so much that even getting from the armchair to the bathroom was a battle, no insurance, no healthcare, and being completely dismissed by everyone I sought to gain some type of public assistance from cause I was relatively young and undiagnosed. I had waited until it was too late. I had to prove I could take it, typical, " stop whining and deal with it " , male ego. My dad saved US 50 states quarters and I stole at least $300 dollars worth of them to put gasoline in my vehicle which I was close to selling. For the first time since I was 8 years old I didnt even have 1 dollar and was unable to earn a buck. There were many times when I seriously considered ending it all and to be totally honest I still have those thoughts from time to time. I wish that I could with full confidence say that some of the dietary changes I adopted made the difference or perhaps the psychosomatics of psoriasis are more than I give them credit for and the changes in my attitude made the difference but long story short, I survived the storm. Pain and rejection led to depression, which led to despair and destructive ideation and eventually anger. I got so enraged at psoriasis I vowed that I would find a way to fix this and nothing else mattered. I spent probably 18 hours a day for about 9 months online and later in University medical libraries researching everything I could find about psoriasis and how the human body works. Even though I never did identify a magic bullet I think all the little things combined is what turned the tide. Go ahead and get mad and use that anger as motivation to understand your enemy. Focus your attention and use whatever resources you have to find what will work for you. There is a better world just waiting for you to discover, utilize and promote it. Orin Quote Link to comment Share on other sites More sharing options...
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