Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Dear , I totally understand how you feel about being frustrated with doctors who don’t’ have any answers. I guess I wouldn’t mind because they are human, if they didn’t act like they had all the answers or played God so often. Unfortunately, they are our only course of help…besides reading everything we can on this terrible disease and joining groups like these. I tried methotrexate too and couldn’t’ take it. It not only made me sick at my stomach, but my glands started swelling and it caused me to develop edema. I had a real similar but more horrible reaction to Enbrel and from what I understand they have some of the same preservatives in them. I was also on Folic Acid to help with the stomach problems and maybe your doctor can help you there. It’s just a vitamin, so it’s not hard to get. There has to be another drug you can try if this one makes you so sick. Keep searching for a doctor who will work with you. I have seen 5 rheumatologists in the past 5 years and still am not thrilled with my latest guy. They all start out great, but when they realize you aren’t getting much better, they get frustrated and want to move you on to another doctor. It happens all the time with PA, but hopefully you’ll find someone who will help and be willing to try new drugs. Keep looking. Sincerely, Fran in Florida [ ] methotrixate Hi I'm new and can relate with everyones pain and frustration. Just wondering if anyone is feeling as bad on Methotrixate as I am. I have nausea all the time, can't eat most things cause they taste awful and the total blur in my head is driving me crazy. I've had PA for 8 years I'm 27 and am taking 15mg MTX plus Salazopyrin and Celebrex. I also have Juvenile Diabetes and my Dr says its cause I have two major things that I feel so bad. When I come off MTX the pain is unbareable and now I'm on MTX again I can't cope with the side effects. I just don't know what most people are supposed to feel like. I'm in Australia and the temp is going from extremely hot to cold and I'm flaring because of this and am miserable. If anyone knows anything that can help with the nausea or any advise on coping with MTX can you let me know, I'd really appreciate it. I'm just fed up with Drs who don't have any answers. Thanks Please visit our Psoriatic Arthritis Group's informational web page at: http://www.wpunj.edu/pa/ -- created and edited by list member aka(raharris@...). Also,in August 2001,list member Jack aka Cornishpro@... began to conduct extensive research which he publishes as the " Psoriatic Arthritis Research Newsletter " , monthly in our email and digest format. Many thanks to Jack. Back issues of the newsletter are stored on our PA webpage as well as the archives of the list. Don't forget that the list archives comprise a tremendous amount of information (Over three years of messages and answers).Feel free to browse them at your convenience. LET'S HEAR FROM SOME OF YOU LURKERS out there! If you have a comment or question, chances are there is a person who has been around a while who can help you out with AT LEAST an educated guess for an answer! If not,we can steer you in the right direction with a good website to go to, Blessings and Peace, Atwood-Stack, Founder Alan , Web & List Editor Jack , Newsletter Editor Pat Bias, List Editor Ron Dotson, List Editor Orin, List Editor , List Editor and any others who help in any way (thank you!) _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi thanks for writing. I went to the rhemy today and asked about the shots. I'm going to start and hope this will help. He said I can't give them myself (Even though I have diabetes and inject 4x a day). Have you had any probs with giving the shots. What about side effects are they a lot less. Thanks again > Hi and welcome ;-)...sorry you are having trouble with the MTX. Do you > inject? Prior to giving myself injections I took MTX pills and they made me ill. > If you are taking pills you may want to ask your doctor about shots instead? > Good luck! (Va.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 ; I read your message saying your doctor said that you can't give the mtx shots to yourself. Doctors are concerned because it is considered " caustic " . My doctor and I agreed that I would have a nurse give me the shots for a few weeks so they could ensure I had no severe reaction. The nurse taught me one week, I gave myself the shot and now do it at home. My doctor agreed that it is too stressful and time consuming to go to the office weekly and she didn't want to add that on to my life. I'm sure your doctor will be agreeable once he/she sees how it is working for you and that you are skilled with shots (due to your diabetes). By the way my Rheumotologist said that patients must demand what they need. He said we know best. Good luck. And by the way I have had no reactions other than larger red blood cells which they are monitoring. Kerren - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Hi I'm going in tomorrow for my first shot. Hopefully after I get used to it I can talk him into letting me do them myself. Where do you inject? How have you found Enbrel? We can't get it yet here in Australia. Thanks for writing and I will let you know how it goes. Quote Link to comment Share on other sites More sharing options...
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