Re: Starting Remicade soon! Any advice?

[Guest guest]

..

>

> Any advice from ya'll established Remicade users? What

> should I expect? Any info would be appreciated.

>

Hi ,

I loved remicade. It was the best med I've had so far. Take a book to

read while getting your infusion. It takes at least 2 hours. You will

probably have a loading period where you go back in 2 weeks, then a

month, and then 6-8 weeks. I exprienced some small problems in the

beginning which were easily remedied. I got hives and was told to

take benedryl before a treatment. It worked. Also , I got dizzy and

so they slowed the infusion rate and that helped. It had to do with

fluid balance. It cleared my skin within 2 weeks. I didn't even know

p could clear that fast. It took longer for it to help my pa, I'd

say a good 3-4 months but then it really helped. so hang in here with

it. If I can answer any other qustions let me know.....and good luck!

I'm excited for you,

Marti

[Guest guest]

In a message dated 12/5/2004 4:01:46 PM Eastern Standard Time,

darkart42@... writes:

I'm excited and nervous. I got hives from the contrast

media they used in my CT. And if there is an uncommon

side effect of a drug, I'll usually get it. That's

what makes me nervous

That is not an uncommon side effect. Did they ask you if you were allergic

to shellfish before they gave you the contrast? Usually if you are they

will not give it to you. There are many people that do react to it.

Janet

[Guest guest]

One of the men who works with my husband said he felt absolutely

better immediately after the first dose of Remicade! He says if it

were not for Remicade he would be unable to work at all! Good luck!

I hope it works wonders for you!

Sharon

> > I loved remicade. It was the best med I've had so

> > far.

>

> Thanks!

>

> I'm excited and nervous. I got hives from the contrast

> media they used in my CT. And if there is an uncommon

> side effect of a drug, I'll usually get it. That's

> what makes me nervous.

>

> It's good to know that it worked quickly for you. My P

> is mostly undercontrol with the MTX, but my PA is

> getting worse -- mostly soft tissue / tendonitis. I

> hope the nurse is right -- she says I'll feel better

> after the first dose and be dancing by Valentines Day.

> (Fingers crossed. Ow.)

>

> --

>

[Guest guest]

> I'm excited and nervous. I got hives from the contrast

> media they used in my CT. And if there is an uncommon

> side effect of a drug, I'll usually get it. That's

> what makes me nervous.

>

>Hi ,

I was nervous too. I have had so many reactions to differet meds I

feel like it takes a big mental psych up just to try a new one. So,

congrats on your bravery too!

Marti

[Guest guest]

I call remicade a 'miracle'. I seem to only have it in my hands.

Prior to the remicade, we hadnt hit on the combination that worked.

And day by day, the PA got noticeably worse. It was scarey. Then

she put me on remicade. The psoriasis cleared up...and the pa is

kept in check and kept from worsening.

It is very expensive, but like with you, my insurance pays for it

all. I am blessed. Good luck.

Robbi

>

> Woo Hoo! My insurance company approved my doc's

> request for Remicade! I start treatment on 12/20 if

> my TB test is clear and I don't come down with

> anything between now and then. Yeah!