Re: Creative Outlets (was Oseoporosis and PA!!)

[Guest guest]

In a message dated 8/17/2004 6:49:40 PM Eastern Standard Time,

darkart42@... writes:

Hang in there. I work with pastels, pencils, and

digital media. My right hand is affected with the PA,

and there I days when I drop my chalks, can't pull

apart the kneaded eraser, can't hold my pencils or

click the buttons on my digital paintbrush.

Its not a cure, but you both might benefit from getting a home paraffin

bath...my PA started in my hands, and when they were really stiff and in pain,

the hot paraffin was the only thing that offered temporary relief...My hands are

mostly better now, but I still use the paraffin for hands and feet when they

are in pain...

[Guest guest]

Hi ,

Thanks so much for the idea about the paraffin for my hands. The PA

is really affecting my left hand instead of my right-(my right index

finger I can no longer bend) but my left hand lately has been the one

being affected in the thumb and the top of my knuckles of my index

and middle finger and swelled up terribly-thank God I am right

handed. I can draw for about two hours with alot of breaks

throughout that time period, but I pay for it dearly the next day in

the morning. Hey do you or any of the others ever chat? Just

finding this website and you replying to my posting has been God

sent, my family has noticed the difference in me-knowing that others

suffer from the same thing I have. My Dr. doesn't want to put me on

Enbrel yet because I'm going to have another surgery on my hip around

Christmas time-I'm going to have a total hip put in and he doesn't

want to do the surgery with the chance that Enbrel might mess up my

immune system and my recovery from surgery.

Thanks so much for writing. God Bless, Sue.

>

[Guest guest]

I think we have a link here to PA finally! (just kidding) I am an

artist too, and was suprised to read that some of you are as well. I

love pencils, watercolor and some pastels. Lucky for me the PA is

mostly in my feet and only a little in my hands. I don't do art

professionally anymore, but I did get my degree in fine arts and that

is where my heart is.

Welcome to the group,

Tamara

>

> In a message dated 8/17/2004 6:49:40 PM Eastern Standard Time,

> darkart42@y... writes:

>

> Hang in there. I work with pastels, pencils, and

> digital media. My right hand is affected with the PA,

> and there I days when I drop my chalks, can't pull

> apart the kneaded eraser, can't hold my pencils or

> click the buttons on my digital paintbrush.

>

>

> Its not a cure, but you both might benefit from getting a home

paraffin

> bath...my PA started in my hands, and when they were really stiff

and in pain,

> the hot paraffin was the only thing that offered temporary

relief...My hands are

> mostly better now, but I still use the paraffin for hands and feet

when they

> are in pain...

>

>

>

>

>

[Guest guest]

In a message dated 8/18/2004 11:47:12 PM Eastern Standard Time,

susieesue@... writes:

Hey do you or any of the others ever chat?

Hi Sue, I don't think we have the capability to chat? But I know they do on

the NPF (psoriasis foundation) website, and I used to try but there was

never anyone there...

[Editor's Note: Yes, we DO have chat capabilities here! Marti used to host

chat, if I'm not mistaken. I think interest may have waned during the summer

months. Marti will clear up the mystery, I'm sure. Anyone can chat at any

time: Just go to www., then sign in and click on this list on

the left side. When you're in this site, click on " CHAT " on the left side and

it will take you to the chat room. Kathy F.]

[Guest guest]

-> [Editor's Note: Yes, we DO have chat capabilities here! Marti

used to host chat, if I'm not mistaken. I think interest may have

waned during the summer months. Marti will clear up the mystery, I'm

sure. Anyone can chat at any time: Just go to www.,

then sign in and click on this list on the left side. When you're in

this site, click on " CHAT " on the left side and it will take you to

the chat room. Kathy F.]

Hi Kathy and all,

Yes, I moderated a weekly chat on Tuesdays and Cheri did one on

Saturdays for almost a year. We had varied attendance but always had

an interesting time. Attendance dropped, and we also developed

trouble with the chat room with people getting knocked off at

least once during a chat session. I wrote to several times but

never received a reply as to why the problems were occurring or what

we could do about them. In lieu of a formal weekly time someone

could post a message like: chat room 8pm Eastern Tuesday ...come join

us. If this is acceptable to and the board. We never

experienced any trouble what so ever from members. It was always

cordial. Hope some of you can enjoy it.

Marti