RE: New Member, Recently Diagnosed, need some Advice ple...

[Guest guest]

Hi Crystal,

Welcome to the group. I know you have been here for a few days now but I

have always been a bit slow. lol

Hope you can get the help and advice you need from this group of

knowledgeable and caring people.

I am on MTX and Ciclosporin along with Indocid and I do suffer from fatigue

and don't sleep well but I must admit I personally put it down more to the PA

itself rather than what I was taking for it, but then maybe I have been

looking at it the wrong way.

I think you are right to say that people must have a good idea that they are

suffering from depression. I would say that I suffer bouts of it but it is

not a case of being clinically depressed. I mean, of course we are not going to

be happy all of the time with a disease like this and there are certainly

some of us who will suffer from it in a serious way. I don't know, I am

beginning to prattle on a bit so I will leave it there. lol

Anyway, I hope things improve for you in the future.

Take care,

[Guest guest]

Hello , and thanks for the welcome.

I've gone through my personal testing, and I'm fairly certain it's the

Bextra that was causing my sleep problems. Since going off it, I'm sleeping

well again. Only problem is, now I am sore all the time when I " m awake. So I

think I'm going to ask the doc to perscribe something that isn't a cox-2

inhibitor.

I'm also going to the doctor(GP) today and asking them for a referral to the

Arthritis Society of Canada, which has an office here in Vancouver. I've

already called the Soceity, and they gave me the name of a doctor, the lady

I spoke to sees her, and highly reccomended her, as she is apparently quite

sympathetic to the problems that come with our disease. I was so utterly

disturbed at my current rhumys condecending and dismissive attitude that I

don't wish to see him any longer. Depression. Right. I can't help but laugh,

as I've seen depression in other people, and know that it's not what I " m

going through. I shake my head when I think about my rhumy patting me on the

shoulder as he shuffled me out of his office saying " It's just depression,

you'll be fine " .

I've learned more about my disease in this group in the last 4 days than I

have in the full 15 years of actually having it. When I started to feel the

pain in my thumbs, and watched the joints swell up, I knew there was

something wrong, but it took awhile for me to get my doc to refer me to a

Rhumy. I'm thankful that I have the diagnosis now, and have a path I can

take. Sure it hurts, especially after exercise, but I'm keeping my chin up

as otherwise I'd be eating pavement. LOL

Thanks everyone, the support is great, and since this isn't a widespread

disease, it's good to have a place to talk and learn.

Crystal

>From: martincoyless@...

>Reply-

>

>Subject: Re: [ ] New Member, Recently Diagnosed, need some

>Advice ple...

>Date: Mon, 25 Oct 2004 15:19:17 EDT

>

>

>Hi Crystal,

>

>Welcome to the group. I know you have been here for a few days now but I

>have always been a bit slow. lol

>Hope you can get the help and advice you need from this group of

>knowledgeable and caring people.

>I am on MTX and Ciclosporin along with Indocid and I do suffer from fatigue

>and don't sleep well but I must admit I personally put it down more to the

>PA

>itself rather than what I was taking for it, but then maybe I have been

>looking at it the wrong way.

>I think you are right to say that people must have a good idea that they

>are

>suffering from depression. I would say that I suffer bouts of it but it is

>not a case of being clinically depressed. I mean, of course we are not

>going to

> be happy all of the time with a disease like this and there are certainly

>some of us who will suffer from it in a serious way. I don't know, I am

>beginning to prattle on a bit so I will leave it there. lol

>Anyway, I hope things improve for you in the future.

>

>Take care,

>

>

>

>

>

[Guest guest]

Dear Turrelle, I'm so glad you decided to drop that rheumatologist. I hate

to hear about someone being treated badly (which unfortunately I had happen

to me) and they still stay with the same doctor. Changing doctors is hard

and I hate to do it as much as the next person, but you just end up wasting

time and in the long run hurt yourself by delaying real treatment. Believe

me I know because I've done it too many times. Looking back I could kick

myself for taking so long to find the right doctor, but as it was I still

saw over 5 rheumatologists before they knew what was really wrong with me.

I'm so glad you found our group. I felt the same way when I joined that I

learned so much from this group. No doctor has come close to all the

information you can get on this site. Plus you really have people who care

about you. I only have 2 or 3 doctors that I think fall into that category.

Anyway, good luck finding a new doctor and don't settle. I couldn't take

Bextra either. I'm going to try and wait it out until my next appointment,

but may end up calling the doctor anyway. Take care and I'm happy you are

with us. Love, Fran

Re: [ ] New Member, Recently Diagnosed, need

some Advice ple...

Hello , and thanks for the welcome.

I've gone through my personal testing, and I'm fairly certain it's the

Bextra that was causing my sleep problems. Since going off it, I'm

sleeping

well again. Only problem is, now I am sore all the time when I " m awake. So

I

think I'm going to ask the doc to perscribe something that isn't a cox-2

inhibitor.

I'm also going to the doctor(GP) today and asking them for a referral to

the

Arthritis Society of Canada, which has an office here in Vancouver. I've

already called the Soceity, and they gave me the name of a doctor, the

lady

I spoke to sees her, and highly reccomended her, as she is apparently

quite

sympathetic to the problems that come with our disease. I was so utterly

disturbed at my current rhumys condecending and dismissive attitude that I

don't wish to see him any longer. Depression. Right. I can't help but

laugh,

as I've seen depression in other people, and know that it's not what I " m

going through. I shake my head when I think about my rhumy patting me on

the

shoulder as he shuffled me out of his office saying " It's just depression,

you'll be fine " .

I've learned more about my disease in this group in the last 4 days than I

have in the full 15 years of actually having it. When I started to feel

the

pain in my thumbs, and watched the joints swell up, I knew there was

something wrong, but it took awhile for me to get my doc to refer me to a

Rhumy. I'm thankful that I have the diagnosis now, and have a path I can

take. Sure it hurts, especially after exercise, but I'm keeping my chin up

as otherwise I'd be eating pavement. LOL

Thanks everyone, the support is great, and since this isn't a widespread

disease, it's good to have a place to talk and learn.

Crystal

[Guest guest]

Hi Crystal,

You are quite right to change Rheumies. Having one you are not happy with is

enough to make you depressed isn't it? lol

It is difficult to get your head around it when you are first told that it

is Arthritis you have when you are young and healthy. My first reaction was,

" No........Its only older people who get that! "

Its good that you are getting something out of the group. As you say, most

of us probably don't know anyone else with P never mind PA. This group kinda

puts that right doesn't it?

Take care,

[Guest guest]

Hey Thanks for the encouragement.

I totally said that same thing when my thumbs started

swelling. " Arthritis is an old people disease, not a young person!

What the heck is going on??? "

Funnily enough the place I work in, 4 out of the 10 employees here

have P. None of them have PA, but one has RA, but the docs aren't

sure it's actually RA, so I might have someone, in my OWN WORKPLACE

that also has PA! But I'm hoping not, for her sake. Since finding out

about my own PA, she said she's going to start asking her doctors

about PA now.

It's certainly nice to have people to talk to about this, and not

have to explain every detail every single time. It's great to have a

forum to discuss and compare.

Crystal

>

> Hi Crystal,

>

> You are quite right to change Rheumies. Having one you are not

happy with is

> enough to make you depressed isn't it? lol

> It is difficult to get your head around it when you are first told

that it

> is Arthritis you have when you are young and healthy. My first

reaction was,

> " No........Its only older people who get that! "

> Its good that you are getting something out of the group. As you

say, most

> of us probably don't know anyone else with P never mind PA. This

group kinda

> puts that right doesn't it?

>

> Take care,

>

>

>

>

>