Re: Update on meds and supplements

[Guest guest]

Hi ,

Food-related arthritis flare-ups seem to happen within 12 hours. I

discovered one reaction by eating a lot of peanuts one night, after

not having any for ages [_raw_ peanuts - hey, maybe that had

something to do with it], and next morning woke up extremely

debilitated. The only recent [couple of days] change in my diet had

been the peanuts, so I knew they were the cause.

So you should try keeping a food diary, or at least try to remember

what you've been eating in the last 24 hours. On the other hand, if

it's a food you have all the time, your body will adapt to a certain

extent, so the condition seems constant rather than flaring. [This is

just my experience and supposition, not based on any scientific

studies.]

Stress and fatigue may also be factors, but I don't know much about

that area.

Neil

> I have a question for you : some have reported that such and such

> causes a flare in the PA. I'm used to thinking of just P and the

> slow onset of any change in conditon, due to the nature of the

> maturing skin. Do PA flares happen so fast that you can definitely

> assign some cause to them?

[/snip]

[Guest guest]

My experience with PA is that my hands will hurt for a few days then

the next day I will be ok. So it comes and goes fast. It seems to be

unrelated to any diet or environmental event. I have tried all the

supplements that suppposedly help with inflamation, but can not

establish any cause and effect. Recently I have noticed that I have

one flare per month that last for 4 or 5 days.(Is it the moon?) I

keep a diary of what is happening so I can give the doctor good

feedback. My most recent X-rays show changes in the

joints " consistent with PA. " I am taking 20 mg of MTX per week, 400

mg of Celebrex per day.The doctor may start a biologic next month.

Mike

-- In , " castlinga "

<mcqueenm46@m...> wrote:

> HI this is from in WF..I'm the one who had a late diagnosis in

> January, saw the rheumy in March and have been on mtx since Jan,

> (injections since March) and Enbrel for 8 weeks now. I have been

> declining since January with additional joints in one hand being

> affected and my lower back starting to " feel weak " making standing

> painful. I did get some improvement in toe and fingernails.

> Have seen the rheumy twice and talk to her main nurse when I feel I

> need some advice/support.

> I had been taking flaxseed oil for cholesterol purposes and when I

> read about the 1 tablespoon dosage, I upped my intake over this

past

> weekend. For three days, I've had less pain in my really swollen

> left knee, back and sore feet. I've had an energy boost as well so

> am wondering - weather, meds, flaxseed oil???? who knows what's

> helping. I also stopped taking Lipitor since I hadn't known about

> the side effect of loss of muscle use before.

> I self-inject and have no problems and don't think I have much in

> side effects except fatigue. I have had some swellings; a boil in

> my neck, some glands in my jaw which went down, some underarm

> swellings which remind me of the boil, so I ignore them at the

> moment.

> I have a question for you : some have reported that such and such

> causes a flare in the PA. I'm used ot thinking of just P and the

> slow onset of any change in conditon, due to the nature of the

> maturing skin. Do PA flares happen so fast that you can definitely

> assign some cause to them?

>

> Thanks in advance, (just for being here - when I'm working fulltime

> I often don't have the strength to even read the newsletters

> regularly.

>

> in WF, TX

[Guest guest]

> HI this is from in WF..I'm the one who had a late diagnosis

in

> January, saw the rheumy in March and have been on mtx since Jan,

> (injections since March) and Enbrel for 8 weeks now.

>

> in WF, TX

Hi ,

I'm new on this board, but old to P.A. I also have Hep C,

so there aren't many of the drugs I can take. I have to be carefull

of anything that could effect my liver. I spend alot of time

searching the internet for all the drug info I can find. I know that

the doctors, for what erver reason, don't always tell us everything

they know about the drugs that they are asking people to take. I

noticed ENBREL, in your post. Here's a government site I found on

Metacrawler.com;

http://www.fda.gov/bbs/topics/ANSWERS/ANS00954.html We have to

look out for ourselves, cuz nobody else is as effected by the drugs,

as ourselves. Be carefull out there, it's a dangerous world.....

Carl Portland,Or.