Re: Ankle and foot swelling

[Guest guest]

Hi ,

During the past year, I have been diagnosed and treated for blood clots, Deep

Vein

Thrombosis, cellulitis, and impetigo within my legs. I realize that my

resistance to these diseases may have been lowered by receiving Remicade for PA

for

the past two years. Take care and best wishes.

Sincerely,

Bill in Washington DC

[Guest guest]

Hi ,

I had severe ankle and foot swelling for several years. The swelling

finally went down after cortisone shots and when I started MTX. I am now on

Humira

and Arava and experience occasional moderate swelling if I over use my feet,

but nothing like it used to be. In my case, it seems pretty clear that my

foot and ankle swelling is related to my PA rather than to other things,

because the swelling eased in tandem with the easing of my other PA symptoms.

Kathy F.

Finally got into see the vascular doctor and he told me that he thought my

foot and ankle swelling for the last five months was related to lymphademia.

NOT vasculitis. Since the swelling had gone down on it's own, it was hard

for him to make a better diagnosis.

Evidently lympahdemia is because our lymph nodes are not working properly,

and it can happen at any time with no cure for it. Confess to have no read

anything about it yet. All I do know is that the swelling went way down when

the psoriasis on the sole of that foot started to clear up. It had been

unbearable and I an receiving PUVA treatments for it. Deep fissures that would

not

heal.The vascular doctor did not think it was related, but I certainly do.

Anyhow, I know there are many of us on this list who have had swelling in

the lower extremities and wonder if their doctors have told them the same

thing?

Also my cousin is selling a product called Juice Plus and I am very

reluctant to take anything my doctor does not prescribe. There are ads for it

everywhere I go and it does have my curiosity peaked. Anyhow, has anyone on

the

list taken this and what do you think about it? You can email me off list with

any comments. Thanks so much. in Poulsbo, WA.

[Guest guest]

In a message dated 8/26/2004 8:14:00 PM Eastern Standard Time,

fran@... writes:

Dear , I've had problems with severe edema in my ankles and feet on

and off for the past year. No one would tell me what was causing it

because basically they didn't know. Most of the time it got blamed on

prednisone, which can cause swelling.

My ankles have been swelling up all year and my rheumy said it is the PA.

I get large swollen balls on the outside of ankle. It happens as soon as I

walk a little more then I should let myself considering the pain. I tend to

push myself and overdo it. He has injected then several times with

cortisone and it helps only for a short while.

Janet

[Guest guest]

Dear , I've had problems with severe edema in my ankles and feet on

and off for the past year. No one would tell me what was causing it

because basically they didn't know. Most of the time it got blamed on

prednisone, which can cause swelling. I ended up having 3 ultra sounds done

to my leg to be sure there wasn't a blood clot causing the problems. They

were all negative.

I've been on Arava for 1 month now and my PA has been so much better, I'm

almost afraid I'll jinx it if I put it into words. I still have pain and

some days, normally from over doing it, I really still ache. (If you knew

how bad I was before the Arava you would realize just those words, " over

doing it " , were impossible for me since I could barely move.) Anyway, since

I've been on Arava my swelling has almost gone away. I still have some by

the end of the day and if my feet are down all day I really notice the

increase in pain and swelling. I've kept my prednisone basically at the

same level this month just to see how I did on the new drug so it's not

related to the prednisone this time. I think swelling comes from PA and my

lymph glands always felt swollen and sore at the same time. Most of the

time they are still sore now to touch, but they don't ache like they did.

I " m still going to the Cleveland clinic in Sept (it got postponed due to a

doctor's scheduling problems) and I'll ask them about it then.

It is so annoying to have suffered with something like edema and then when

you see the doctor it's gone. I mean no one wants to be in pain or have

problems, but you at least want your body to back you up once in

awhile..lol. Anyway, I think edema and swollen lymph nodes go with a PA

flare. Sometimes I really wish all the rheumatologists out there would read

our PA support group site. They would really get a good picture of what

living with PA is like, and all these strange side effects that they

dismiss, they would realize are connected to PA. But that's just wishful

thinking I guess.

Sorry I don't know anything about Juice Plus. It sounds safe..lol, but

that's not much to go on. Let us know if it helps. Take care, Fran

[ ] Ankle and foot swelling

Finally got into see the vascular doctor and he told me that he thought my

foot and ankle swelling for the last five months was related to lymphademia.

NOT vasculitis. Since the swelling had gone down on it's own, it was hard

for him to make a better diagnosis.

Evidently lympahdemia is because our lymph nodes are not working properly,

and it can happen at any time with no cure for it. Confess to have no read

anything about it yet. All I do know is that the swelling went way down

when the psoriasis on the sole of that foot started to clear up. It had

been unbearable and I an receiving PUVA treatments for it. Deep fissures

that would not heal.The vascular doctor did not think it was related, but I

certainly do.

Anyhow, I know there are many of us on this list who have had swelling in

the lower extremities and wonder if their doctors have told them the same

thing?

Also my cousin is selling a product called Juice Plus and I am very

reluctant to take anything my doctor does not prescribe. There are ads for

it everywhere I go and it does have my curiosity peaked. Anyhow, has anyone

on the list taken this and what do you think about it? You can email me off

list with any comments. Thanks so much. in Poulsbo, WA.

[Guest guest]

In a message dated 8/27/04 5:59:40 AM Central Daylight Time, fam24@...

writes:

~~~I've had problems with severe edema in my ankles and feet on

and off for the past year. No one would tell me what was causing it

because basically they didn't know.~~~ I get large swollen balls on the

outside of ankle. ~~~

This is an old home remedy that is kinda complicated but it is cheap and well

worth a try and should yield positive results within 3 or 4 days.

Take a 1 gallon milk jug or a large pitcher and mix up the chemical formula

HOH. Formulate it as exact to this ratio as possible 1 part Oxygen to 2 parts

Hydrogen. Once you have the compound synthesized you should take it by mouth

in about 16 ounce doses spread evenly throughout the day, the first dose as

soon as you wake in the morning and the last of the gallon at least 2-3 hours

before bedtime. The formula should be mixed daily as although not extremely

volatile it will break down to a vapor so it might not be a bad idea to store it

in an airtight container. Refrigeration will slow the vaporization rate and

taken cool is more palatable for some although I enjoy it at room temperature.

If this is too complicated you may wish to just put your jug under the tap in

the kitchen and fill it with HOH. You may get a small amount of minerals and

such that way but those minerals may add to its effectiveness in some cases.