RA and ldn

[Guest guest]

Dear Group,

I am looking for doctors who have prescribed LDN to

their RA patients.

My rheumatologist will not prescibe LDN from the info

on the web-site without a discussion with another MD

about the LDN pathways and how they might interact

with the drug that I am presently on.

I live in CT and am willing to travel, if necessary.

Any help appreciated. Time is of the essence.

A Soos

[Guest guest]

What great news Shirley. It is early days like you say so lets hope

it just keeps getting better and better.

- In low dose naltrexone , Shirley <pj20844@...>

wrote:

>

> My husband has end stage RA. He has taken 3 doses of LDN as of

last night. The first night after about 3 hours, he found the very

hot temp in the elbows was GONE. Temp was normal in both joints. A

large, hard spur on one elbow was mostly gone and what remained was

soft, not hard as before. His very cold hands and feet were WARM for

the first time in a few years. He could completely close the fingers

of his right hand. His left hand is improved in this respect, but

not like the right one. He had suffered a crush injury to that hand

10 or so years ago and that is a factor in that situation we feel

sure. His mood is improved and so is his pain, but he still takes

Celebrex because he is afraid the pain might return or get worse.

He still has pain, but on occasion is pain free. Doesn't last

though as of yet. I had not intended to send a message to the group

for some time because we feel it is too early to get too, too

excited, but nevertheless,

> we are very excited. He feels some new sensations in his body

that are difficult to describe. Maybe 'enlivening' is a good word

for the situation. He is 72 yrs. old, going on 100 or so we hope!!

pj

>

[Guest guest]

Thank you Shirley for sharing; that gives something to look forward to.

Hope your husband continoues to improve.

Best to you and your family

From: Shirley <pj20844@...>Subject: [low dose naltrexone] RA and LDNlow dose naltrexone Date: Thursday, January 29, 2009, 7:53 PM

My husband has end stage RA. He has taken 3 doses of LDN as of last night. The first night after about 3 hours, he found the very hot temp in the elbows was GONE. Temp was normal in both joints. A large, hard spur on one elbow was mostly gone and what remained was soft, not hard as before. His very cold hands and feet were WARM for the first time in a few years. He could completely close the fingers of his right hand. His left hand is improved in this respect, but not like the right one. He had suffered a crush injury to that hand 10 or so years ago and that is a factor in that situation we feel sure. His mood is improved and so is his pain, but he still takes Celebrex because he is afraid the pain might return or get worse. He still has pain, but on occasion is pain free. Doesn't last though as of yet. I had not intended to send a message to the group for some time because we feel it is too early to get too, too excited, but nevertheless,we are

very excited. He feels some new sensations in his body that are difficult to describe. Maybe 'enlivening' is a good word for the situation. He is 72 yrs. old, going on 100 or so we hope!! pj

[Guest guest]

I've tried green lipped muscle oil, and it helped a lot. There is also krill oil, instead of using cod liver oil.

MJB w/RA-Fibro

Re: [low dose naltrexone] RA and LDN

I HAVE A VERY CLOSE FRIEND WHO HAS BEEN DIAGNOSED WITH MS, HER HUSBAND ALSO SUFFERS FROM RA AND BOTH OF THEM HAVE BEEN TOLD THAT COD LIVER OIL WILL HELP BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE MUST BE CAREFUL ABOUT MEDICATIONS LIKE THIS... Some folks posted here about taking cod liver oil daily, either as part of the Swank diet or in its own right. The Berkeley Wellness newsletter, a monthly newsletter Feb 09 issues says:

"Don't take cod liver oil, unless the label shows that its vitamin A content has been reduced. The oil usually contains very high levels of A which may weaken bones and cause birth defects. And since it is made from livers, which filter out toxins, there is greater concern about contaminants, even though the oil is supposed to be purified."

http://www.wellnessletter.com/

[Guest guest]

Mercola recently renegged on his recommendation to use cod liver oil for the

Vitamin A toxicity concern.

I do still take it, but feel it is worth further research.

> From: Jo Butitta <mjojob@...>

> Subject: Re: [low dose naltrexone] RA and LDN

> low dose naltrexone

> Date: Friday, January 30, 2009, 6:42 PM

> I've tried green lipped muscle oil, and it helped a lot.

> There is also krill oil, instead of using cod liver oil.

> MJB w/RA-Fibro

> Re: [low dose naltrexone] RA and LDN

>

>

>

>

> I HAVE A VERY CLOSE FRIEND WHO HAS BEEN

> DIAGNOSED WITH MS, HER HUSBAND ALSO SUFFERS FROM RA AND

> BOTH OF THEM HAVE BEEN TOLD THAT COD LIVER OIL WILL HELP

> BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE MUST BE

> CAREFUL ABOUT MEDICATIONS LIKE THIS...

> Some folks posted here about taking cod liver oil

> daily, either as part of the Swank diet or in its own right.

> The Berkeley Wellness newsletter, a monthly newsletter Feb

> 09 issues says:

> " Don't take cod liver oil, unless the

> label shows that its vitamin A content has been reduced. The

> oil usually contains very high levels of A which may weaken

> bones and cause birth defects. And since it is made from

> livers, which filter out toxins, there is greater concern

> about contaminants, even though the oil is supposed to be

> purified. "

>

> http://www.wellnessletter.com/<http://www.wellnessletter.com/>

[Guest guest]

hi maryjo

what kind and how much did you take? i've been thinking of trying this:

http://www.pernax.com/ingredients.htm

monique

http://www.pernax.com/ingredients.htm

[Guest guest]

You make a good point that echos what I was just thinking...a spoonful of cod

liver oil is an age old tonic/remedy. It seems rather tried and true.

I am glad to read this as I do feel I am being much helped by the cod

liver/butter oil combination I am using, which I believe to be very high

quality.

As a person with Crohns, I can practically feel it going in and helping my gut.

This is not science on my part, but I feel it is beneficial and a part of my

healing at this time.

> From: Case Health Pty Ltd <casehealth@...>

> Subject: [low dose naltrexone] Re: RA and LDN

> low dose naltrexone

> Date: Friday, January 30, 2009, 9:55 PM

> Hi Mark,

>

> It's always good to be cautious and research because

> everything has a

> chemical composition and can react not only with the body

> chemistry but all

> other ingested chemicals - medications, supplements, and

> even everyday

> foods and drinks.

>

> We all need to consider the total over the single -

> everything we take in

> combo, rather than everything in isolation.

>

> Having said that, a single 1000mg capsule of cod liver oil

> supplement (if

> good quality, mercury free, etc) has benefited many over

> the years - the

> treatment of children's Rickets is just one example -

> and so in isolation,

> a good quality cod liver oil is absolutely nothing to fear.

>

> Children not exposed to adequate sunlight when they were

> young sometimes

> developed Rickets, a softening of the bones which can

> progress to fractures

> and deformity, such as bow legs. Cod liver oil has been

> used extensively

> and safely to treat Rickets. (This is why new mothers are

> advised to give

> their children early morning sun baths - to help strengthen

> bones, clear

> nappy rash, etc).

>

> Cod liver oil offers many benefits: For example, it's

> also been used

> extensively to support a healthy respiratory system, and

> can help protect

> against the development of asthma.

>

> 8a. Re: RA and LDN

> Posted by: " Mark "

> jarheaddad56@... jarheaddad56

> Date: Fri Jan 30, 2009 2:10 pm ((PST))

>

> I HAVE A VERY CLOSE FRIEND WHO HAS BEEN DIAGNOSED WITH MS,

> HER HUSBAND

> ALSO SUFFERS FROM RA AND BOTH OF THEM HAVE BEEN TOLD THAT

> COD LIVER OIL

> WILL HELP BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE

> MUST BE CAREFUL

> ABOUT MEDICATIONS LIKE THIS...

> Some folks posted here about taking cod liver oil daily,

> either as part of

> the Swank diet or in its own right. The Berkeley Wellness

> newsletter, a

> monthly newsletter Feb 09 issues says:

> " Don't take cod liver oil, unless the label shows

> that its vitamin A

> content has been reduced. The oil usually contains very

> high levels of A

> which may weaken bones and cause birth defects. And since

> it is made from

> livers, which filter out toxins, there is greater concern

> about

> contaminants, even though the oil is supposed to be

> purified. "

> http://www.wellnessletter.com/

[Guest guest]

Hi Mark,

It's always good to be cautious and research because everything has a

chemical composition and can react not only with the body chemistry but all

other ingested chemicals - medications, supplements, and even everyday

foods and drinks.

We all need to consider the total over the single - everything we take in

combo, rather than everything in isolation.

Having said that, a single 1000mg capsule of cod liver oil supplement (if

good quality, mercury free, etc) has benefited many over the years - the

treatment of children's Rickets is just one example - and so in isolation,

a good quality cod liver oil is absolutely nothing to fear.

Children not exposed to adequate sunlight when they were young sometimes

developed Rickets, a softening of the bones which can progress to fractures

and deformity, such as bow legs. Cod liver oil has been used extensively

and safely to treat Rickets. (This is why new mothers are advised to give

their children early morning sun baths - to help strengthen bones, clear

nappy rash, etc).

Cod liver oil offers many benefits: For example, it's also been used

extensively to support a healthy respiratory system, and can help protect

against the development of asthma.

8a. Re: RA and LDN

Posted by: " Mark " jarheaddad56@... jarheaddad56

Date: Fri Jan 30, 2009 2:10 pm ((PST))

I HAVE A VERY CLOSE FRIEND WHO HAS BEEN DIAGNOSED WITH MS, HER HUSBAND

ALSO SUFFERS FROM RA AND BOTH OF THEM HAVE BEEN TOLD THAT COD LIVER OIL

WILL HELP BOTH OF THOSE SITUATIONS, MAYBE IT DOES BUT WE MUST BE CAREFUL

ABOUT MEDICATIONS LIKE THIS...

Some folks posted here about taking cod liver oil daily, either as part of

the Swank diet or in its own right. The Berkeley Wellness newsletter, a

monthly newsletter Feb 09 issues says:

" Don't take cod liver oil, unless the label shows that its vitamin A

content has been reduced. The oil usually contains very high levels of A

which may weaken bones and cause birth defects. And since it is made from

livers, which filter out toxins, there is greater concern about

contaminants, even though the oil is supposed to be purified. "

http://www.wellnessletter.com/