Re: Chelation and s syndrom

[Guest guest]

----- Original Message -----

From: rathmanmom

Hi All,

I'm hoping to chelate my very sensitive 2 1/2 year old son this summer. At a

bio med

support group, I just met a woman who chelated her son with DMSA at 2 1/2 (he

is now 8),

his face swelled up and both her and her husband were chelating as well and

her husband

swelled up and they all felt very crummy and sick.

====>This is very rare, never happens with Ala.

This woman explained to me that her son is an " over methalor " (sorry about all

the mis

spellings) and chelation just wasn't a possibility for her son at all. She

said that if my son

is mostly intolerant to food but not affected by environmental toxins, then my

son may

have this issue as well.

====>Not true, as I understand it SJS is a rare, extreme allergy to a drug,

nothing to do with methylation.

She put her

son on Amy Yaskos protocol for the last 2 years and he is doing great and that

is where

most of his gains have been.

====>Has she been able to get him off the 100+ supplements he needed? We

chelated because we did not want to have to give a plethera of supplements all

the time and worry that she would decompose if she didn't get a dose of this or

that.

To me, noone can tell for absolute certainty what is happening to our kids

until they have completed puberty and are still okay.

Doing great with supplements is wonderful, doing great without them, even

better and IMHO, much, much preferred.===>

This story really bothered me, I was up most the night thinking about it

because chelation

has been a big hope for me to help my son.

Do you have any thoughts?

====>Yes, don't worry about things that haven't happened, I do this also

:-). Plan A, chelate with Dmsa/Ala, Plan B, chelate with just Ala, no SJS

problems with Ala.

By very sensitive, I mean my son can't tolerate supps outside of enzymes and

does not

tolerate most food. He's got lots of language, tells us what he wants but can

be a big time

stimmer and scripter.

====>He should do well with chelation.

The only bio med I have been able to do with him are homeopathy,

enzymes, diet and diflucan.

Dani

[Guest guest]

,

You are a joy! Thank you for your generous and thoughtful response! I'm saving

it in my

archives to go over again this summer.

dani-

-- In , " " <Ladyshrink111@...> wrote:

>

>

> ----- Original Message -----

> From: rathmanmom

>

>

> Hi All,

> I'm hoping to chelate my very sensitive 2 1/2 year old son this summer. At a

bio med

> support group, I just met a woman who chelated her son with DMSA at 2 1/2

(he is

now 8),

> his face swelled up and both her and her husband were chelating as well and

her

husband

> swelled up and they all felt very crummy and sick.

>

> ====>This is very rare, never happens with Ala.

>

>

>

>

> This woman explained to me that her son is an " over methalor " (sorry about

all the mis

> spellings) and chelation just wasn't a possibility for her son at all. She

said that if my

son

> is mostly intolerant to food but not affected by environmental toxins, then

my son may

> have this issue as well.

>

> ====>Not true, as I understand it SJS is a rare, extreme allergy to a drug,

nothing to

do with methylation.

>

>

>

> She put her

> son on Amy Yaskos protocol for the last 2 years and he is doing great and

that is

where

> most of his gains have been.

>

> ====>Has she been able to get him off the 100+ supplements he needed? We

chelated because we did not want to have to give a plethera of supplements all

the time

and worry that she would decompose if she didn't get a dose of this or that.

>

> To me, noone can tell for absolute certainty what is happening to our kids

until they

have completed puberty and are still okay.

>

> Doing great with supplements is wonderful, doing great without them, even

better and

IMHO, much, much preferred.===>

>

>

> This story really bothered me, I was up most the night thinking about it

because

chelation

> has been a big hope for me to help my son.

> Do you have any thoughts?

>

> ====>Yes, don't worry about things that haven't happened, I do this also

>

> :-). Plan A, chelate with Dmsa/Ala, Plan B, chelate with just Ala, no SJS

problems with

Ala.

>

>

> By very sensitive, I mean my son can't tolerate supps outside of enzymes and

does not

> tolerate most food. He's got lots of language, tells us what he wants but

can be a big

time

> stimmer and scripter.

>

> ====>He should do well with chelation.

>

>

>

>

>

> The only bio med I have been able to do with him are homeopathy,

> enzymes, diet and diflucan.

> Dani

>

>

>

>

>

>

[Guest guest]

Dani,

Diflucan was harder on my son than DMSA. We have done 7 rounds and the only

negatives can be the day or 2 after a round is over (grumpiness, irritability)

Everyone on this board kept telling me once you get started it isn't so

frightening.....I was still very unsure. I understand how it feels to want to do

the safest, gentlest treatments possible. I must tell you....chelation is easier

than yeast treatments at my house. When we still saw a DAN my son was on

Diflucan, Prednisone, Spironolactone, and Glutithione cream. Now he takes no

prescriptions and everything is done with naturals (well, except DMSA).

Make sure you ask all the questions you need to feel comfortable. Now, after

only 7 rounds it has become like second nature and I've lost that panicky

feeling I had the first 2 rounds.

I wish you all the very best.

Maggie

rathmanmom <dani@...> wrote:

Hi All,

I'm hoping to chelate my very sensitive 2 1/2 year old son this summer. At a bio

med

support group, I just met a woman who chelated her son with DMSA at 2 1/2 (he is

now 8),

his face swelled up and both her and her husband were chelating as well and her

husband

swelled up and they all felt very crummy and sick. Then they went to see Andy

Cutler who

put them all on DMPS(I think) and ALA. Her son swelled up so bad and became

very, very

sick they had to take him to the emergency room where he was told he had s

Syndrom (Spelling?). I know the doctor she went to first and he is

great, as I know

Andy is as well, It's not because of bad doctors.

This woman explained to me that her son is an " over methalor " (sorry about all

the mis

spellings) and chelation just wasn't a possibility for her son at all. She said

that if my son

is mostly intolerant to food but not affected by environmental toxins, then my

son may

have this issue as well. Anyway, she is a veteran in bio med. Her son was very

severe and

is now doing great. She is one of those mothers that has tried everything, been

down

every road and has a lot of knowledge and experience to share. In fact, I'm sure

I'm

butchering her very intelligent explanation of why her son could not chelate.

She put her

son on Amy Yaskos protocol for the last 2 years and he is doing great and that

is where

most of his gains have been.

This story really bothered me, I was up most the night thinking about it because

chelation

has been a big hope for me to help my son.

Do you have any thoughts?

By very sensitive, I mean my son can't tolerate supps outside of enzymes and

does not

tolerate most food. He's got lots of language, tells us what he wants but can be

a big time

stimmer and scripter. The only bio med I have been able to do with him are

homeopathy,

enzymes, diet and diflucan.

Dani

------------------------------------

=======================================================

[Guest guest]

Dani,

If this were my child I would go and see an EAV practitioner and have

everything tested first before giving him anything. Far too often

people take unnecessary and even toxic supplements. It was through EAV

that we finally found out what was wrong with us and medical tests

backed it up.

Your son may benefit from NAET treatments if you have someone good in

your area but I would only use a NAET practitioner by referral since

they are not all equal. www.naet.com for more info. We got rid of our

environmental illness with this and were able to tolerate just about

anything after 15 treatments.

Healthy bacteria will create enzymes in the bowels. Have you tried

him on any probiotics? Again, probiotics are not all created equal

and we tried dozens of brands including prescription ones before

finding something that worked for us. Most of them are dead by the

time they hit the stomach let alone the bowel and sometimes there are

strains of bacteria missing that need to be replaced before the gut

can get back to normal. The bowels and kidneys need to be functioning

optimally to do chelation so getting the bacteria balanced first or

simultaneously is crucial for sensitive kids.

Our kidneys and livers were too damaged for chelation therapy and the

doctor wouldn't do it on us for fear of organ damage. We finally got

totally well after using NCD and that in a matter of days. Probably

all the other treatments kept us alive and our bodies were primed by

the time we got on the NCD. A year later I had my organs tested and

everything is above average now for healthiness. No signs of damage

at all. My daughter was born with kidney damage and after a week on

NCD stopped her life-long bedwetting and migraines disappeared never

to return. One parent theorized that headbanging is caused by severe

pain due to inflammation of the brain from mercury. His son also got

much better and stopped headbanging after a while on high dosages of

NCD.

Sharon Hoehner

>

> Hi All,

> I'm hoping to chelate my very sensitive 2 1/2 year old son this

summer. At a bio med

> support group, I just met a woman who chelated her son with DMSA at

2 1/2 (he is now 8),

> his face swelled up and both her and her husband were chelating as

well and her husband

> swelled up and they all felt very crummy and sick. Then they went

to see Andy Cutler who

> put them all on DMPS(I think) and ALA. Her son swelled up so bad and

became very, very

> sick they had to take him to the emergency room where he was told he

had s

> Syndrom (Spelling?). I know the doctor she went to first and

he is great, as I know

> Andy is as well, It's not because of bad doctors.

> This woman explained to me that her son is an " over methalor " (sorry

about all the mis

> spellings) and chelation just wasn't a possibility for her son at

all. She said that if my son

> is mostly intolerant to food but not affected by environmental

toxins, then my son may

> have this issue as well. Anyway, she is a veteran in bio med. Her

son was very severe and

> is now doing great. She is one of those mothers that has tried

everything, been down

> every road and has a lot of knowledge and experience to share. In

fact, I'm sure I'm

> butchering her very intelligent explanation of why her son could not

chelate. She put her

> son on Amy Yaskos protocol for the last 2 years and he is doing

great and that is where

> most of his gains have been.

> This story really bothered me, I was up most the night thinking

about it because chelation

> has been a big hope for me to help my son.

> Do you have any thoughts?

> By very sensitive, I mean my son can't tolerate supps outside of

enzymes and does not

> tolerate most food. He's got lots of language, tells us what he

wants but can be a big time

> stimmer and scripter. The only bio med I have been able to do with

him are homeopathy,

> enzymes, diet and diflucan.

> Dani

>

[Guest guest]

>>had s

> Syndrom (Spelling?).

This is a possibility with almost every medication, altho some are

more likely to cause it than others. Go to google images and type

that in the search box, you will see lots of scary pictures. You

can't miss it. If you notice that with your child, stop the

medication immediately.

I am unaware of ALA causing this.

> This story really bothered me, I was up most the night thinking

about it because chelation

> has been a big hope for me to help my son.

> Do you have any thoughts?

> By very sensitive, I mean my son can't tolerate supps outside of

enzymes and does not

> tolerate most food.

My son tolerated no foods and almost no supplements [i used HNI

enzymes only]. I chelated him with ALA. At round 50, he started

tolerating foods and supplements without enzymes. At the end of

chelation, plus several supplements, he tolerated everything.

Dana

[Guest guest]

My sister has had SJS once or twice. She is allergic to sulfur. At

least one of those times, she was put on a sulfa drug (by some jerk

doctor -- it was in her medical record that she is allergic to

sulfur). My best understanding is that it is a severe, life-

threatening allergic reaction, though I don't know if it is

specifically an allergic reaction to a drug. It has a high death

rate (something like one in three people die from it) but, yes, it's

pretty rare.

Not an expert. Just someone whose sister has had this.

Michele

www.kidslikemine.org

www.healthgazelle.org

>

> ====>Not true, as I understand it SJS is a rare, extreme allergy

to a drug, nothing to do with methylation.

>

>

>

[Guest guest]

Allergies to sulfa drugs and sulfur are two different things. We have huge

family history of allergy to sulfa drugs, but someone would be seriously in

trouble if they were allergic to sulfur as sulfur is in just about every

protein.

[ ] Re: Chelation and s syndrom

My sister has had SJS once or twice. She is allergic to sulfur. At

least one of those times, she was put on a sulfa drug (by some jerk

doctor -- it was in her medical record that she is allergic to

sulfur). My best understanding is that it is a severe, life-

threatening allergic reaction, though I don't know if it is

specifically an allergic reaction to a drug. It has a high death

rate (something like one in three people die from it) but, yes, it's

pretty rare.

Not an expert. Just someone whose sister has had this.

Michele

www.kidslikemine.org

www.healthgazelle.org

>

> ====>Not true, as I understand it SJS is a rare, extreme allergy

to a drug, nothing to do with methylation.

>

>

>

[Guest guest]

Well, it runs in my family. My sons and I had to give up eggs for

over a year because of it. I often have to limit high sulfur foods

because I react allergically to them -- itching, blotchy skin, etc.

And one of the times my sister nearly died was due to sulfur in the

air from coal plants, if I recall correctly. She was also on

medication because the sulfur in the air was making her so sick. So

I don't know which was " the cause " of SJS that time. It was many

years ago and Idon't know all the details.

But thanks for the feedback.

> >

> > ====>Not true, as I understand it SJS is a rare, extreme

allergy

> to a drug, nothing to do with methylation.

> >

> >

> >

>

>

>

>

>

>

[Guest guest]

I think Yasko actually explains this... it's something like... maybe - I'm

really unsure...

allergic to sulfur = allergic to sulfa but allergic to sulfa doesn't

necessarily mean allergic to sulfur...

it has to do with the transulfuration pathway I think and sulfur, sulfites,

sulfates... they're all different even though they sound the same... perhaps

someone else can chime in and tell us what they know?

On Wed, Mar 26, 2008 at 9:38 AM, Michele <talithamichele@...> wrote:

> Well, it runs in my family. My sons and I had to give up eggs for

> over a year because of it. I often have to limit high sulfur foods

> because I react allergically to them -- itching, blotchy skin, etc.

> And one of the times my sister nearly died was due to sulfur in the

> air from coal plants, if I recall correctly. She was also on

> medication because the sulfur in the air was making her so sick. So

> I don't know which was " the cause " of SJS that time. It was many

> years ago and Idon't know all the details.

>

> But thanks for the feedback.

>

>

>

> > >

> > > ====>Not true, as I understand it SJS is a rare, extreme

> allergy

> > to a drug, nothing to do with methylation.

> > >

> > >

> > >

> >

> >

> >

> >

> >

> >