remicade and LDN

[Guest guest]

Hi all, I had posted earlier asking about a Doc in the midwest for my

son with crohns. We found a doc and started the LDN but unfortunately

he was pretty ill when we started. During the build up phase he had

one really good week where I thought he was turning the corner but

then the next week he tanked. His hemoglobin was in the low 8s and we

had to initiate some traditional therapy to get him stabilized. He is

now on a steroid taper and has had his first infusion of remicade.

The Mayo clinics docs were totally freaked out about me putting him on

LDN and really let me have it. I was wondering if any of you have had

experience with using LDN with remicade, and eventually weaning off

remicade to LDN alone. I have seen some postings about that but would

appreciate any stories about first hand experience.

Thanks

[Guest guest]

· Remicade - Someone called Skip's Pharmacy at the suggestion of people in this group, and the pharmacist there told them you have to be off Remicade for 50 days before starting LDN. Since the two meds have opposing effects on the immune system, LDN won't work while on Remicade. http://www.skipspha rmacy.com/

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 9 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] remicade and LDN

Hi all, I had posted earlier asking about a Doc in the midwest for myson with crohns. We found a doc and started the LDN but unfortunatelyhe was pretty ill when we started. During the build up phase he hadone really good week where I thought he was turning the corner butthen the next week he tanked. His hemoglobin was in the low 8s and wehad to initiate some traditional therapy to get him stabilized. He isnow on a steroid taper and has had his first infusion of remicade. The Mayo clinics docs were totally freaked out about me putting him onLDN and really let me have it. I was wondering if any of you have hadexperience with using LDN with remicade, and eventually weaning offremicade to LDN alone. I have seen some postings about that but wouldappreciate any stories about first hand experience. Thanks

[Guest guest]

I do Remicade concurrent with LDN, an I have FINE RESULTS with those

two agents together - i have skipped taking 6MP from mat 1. this year,

and been on LDN since mid april - i have NOT stopped Remicade as it is

now, but I VILL DO SO as soon as possible!!

By " possible " I need to see LDN keeping me off major flare-up's...

Please also see my message no: 68050 for further info - the posting you

have seen on this subject may be mine (even earlier)- feel welcome to

forward further questions any time. I can also make you a copy of what

i've vritten on this subject earlier.

All this is MY experience, and some " hardcore " LDN'ers in this group

may disagree totally... but we are ALL DIFFERENT, and different people

need different measures )))

My best wishes for your son. My heart goes out to you and him, because

I DO KNOW EXACTLY HOW ILL he actually is - and how EXHAUSTED he may

feel in his situation - I've " been there " several times... and I am

53... Remicade CAN BE the one and only (additional) option in such

case, or he may have a flare-up to the extend that it will actually

kill him!!!

Pick your poison..!!

...

>

> Hi all, I had posted earlier asking about a Doc in the midwest for

my....

> I was wondering if any of you have had experience with using LDN

with remicade, and eventually weaning off remicade to LDN alone. I

have seen some postings about that......>

>

[Guest guest]

The LDN AND Remicade will cancel each other out. Remi is

VERY expensive, painful (for me), and time consumming. I wouldn't

do both, that would just be a waste.

[Guest guest]

they say that you should not use them both.there is peter from norway

that used the both with success.now he tries to solve candida which is

the cause of many problems.

remicade is a dangerous medecine.

>

> Does anyone have any experience with the use of Remicade with LDN. I

> know Remicade is an immune modifier and LDN is an immune booster.

>

> What is the best way to discontinue R with LDN. Can I take them at

the

> same time.

>

[Guest guest]

· Remicade - Called Skip's Pharmacy at the suggestion of people in this group, and the pharmacist there told me you have to be off Remicade for 50 days before starting LDN. Since the two meds have opposing effects on the immune system, LDN won't work while on Remicade. http://www.skipspha rmacy.com/

May there be a miracle in YOUR life today and may you have the EYES to see it.From My Heart to Yours Love, Hugs & Blessings, CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No Relapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htm LDN Website http://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/

LDN MySpace

http://www.myspace.com/low dose naltrexone

Cris - Case Health - Health Success Storieshttp://casehealth.com/case/about.html

Crystal's LDN Gift Shophttp://www.cafepress.com/crystalldngifts Skip's Compounding Pharmacyhttp://www.skipspharmacy.com/

From: khasperg <khasperg@...>low dose naltrexone Sent: Friday, February 13, 2009 6:59:01 AMSubject: [low dose naltrexone] Remicade and LDN

Does anyone have any experience with the use of Remicade with LDN. Iknow Remicade is an immune modifier and LDN is an immune booster. What is the best way to discontinue R with LDN. Can I take them at thesame time.

[Guest guest]

> >

> > Does anyone have any experience with the use of Remicade with LDN. I

> > know Remicade is an immune modifier and LDN is an immune booster.

> >

> > What is the best way to discontinue R with LDN. Can I take them at

> the

> > same time.

> >

>

Thanks, not much info on this subject. Remicade is a very scary drug.

I hope to get off of it soon.

[Guest guest]

I think your specific question was answered re Skip's comments and

's personal experience as far as concurrent use of Remicade and LDN.

My teenage son had been on Remicade from April - Dec 2008. We did not

like the whole idea of it and had been asking to try LDN instead. But

the IBD doc would not go for it ( " not enough known yet " ) and said we

could be facing surgery if we didn't try Remicade. So we did the

Remicade but did not see much improvement and kept telling him the only

thing that helped was Cipro to treat pathogenic bacteria that Genova

Diagnostics found in July 08. He kept insisting the Remicade " was

helping some. " We couldn't continue the Cipro as it can cause C-diff to

recur (which has been a problem.) The thing that kept us from just

stopping Remicade to try LDN, was the warning the IBD doc gave that if

you are off Remicade for " too long " (I think 4-6 months?), you might

have severe allergic reaction when you get back on (I think had

personal experience disproving this for his case). So we put off trying

LDN, being afraid of what if the LDN didn't work and we couldn't go back

to Remicade (these doctors really prey on your fears!)

Finally this week they did a colonoscopy and the findings were not good

- severe inflammation, ulcers, etc. Again, the IBD doc wants to talk

surgery. BUT we had been working with our holistic MD and he had already

placed an order for the transdermal cream form of LDN through Coastal

Compounding. It just arrived today, so my son will take the first dose

tonight!!! I am SO excited, and praying that it works like the photos

posted by Dr. Jill . Turns out the IBD doc is fine with us trying

LDN (as if I even care at this point), but he won't prescribe it. He

has had some patients participate in Jill 's Penn State study with

varying results. He didn't know if the ones that didn't respond were in

the placebo group or not.

Hopefully I will have good news to report soon!!!

Sally

[Guest guest]

You cannot take remi and LDN at the same time. I started LDN about four

or five weeks after my third remicade infusion, I was getting too many

sides from remi and it didn't seem to be working as well as it did at

first. That was three months ago. I'm taking LDN for crohn's/colitis

and am still having some monthly issues, it's always worse for me

during my time of the month. I've been progressively having much less

bleeding and my last cycle has been much better than previously. I wish

I would have known about LDN before I ended up in the hospital for

twelve days and was so bad that I needed the remicade. I feel I'm

slowly but surely better with LDN.

Miss

>

> Does anyone have any experience with the use of Remicade with LDN. I

> know Remicade is an immune modifier and LDN is an immune booster.

>

> What is the best way to discontinue R with LDN. Can I take them at the

> same time.

>

[Guest guest]

YUP - this is from Norway - I'm doing LDN concurrent with

Remicade - not that I recommend Remicade by any terms, but is has

helped my Crohn's and RA issues VERY MUCH - and with NO ADVERSE EFFECTS

so far (first infusion Dec. 2005) - LDN has helped me to skip

Imuran/6MP and Prednisolon totally - haven't taken those meds since

April 2008 when I began LDN (and joined this group)- that said, I find

meds like Imuran/6MP FAR MORE DANGEROUS than Remicade (and to some

extend also Prednisone) Imuran alters your bone marrow (blood producing

organ) to the extend of near fatality - vital blood-building elements

are distorted by this drug, causing defective blood cells to be

produced BY INTENT - severe liver and Cancer issues are evident,

especially by prolonged use - and ESPECIALLY together with Remicade -

actually many of those " fatal incidents " reported to be possible

Remicade inflicted incidents, could in fact be the COMBINATION of the

two meds - this could be true, as MANY who get Remicade also are taking

Imuran/6MP. Remicade/Infliximab home page has a warning against this.

You can continue with Remicade if you REALLY NEED TO - I did - our

immune system is NOT just a question of enhancing or depleting - it's

FAR MORE COMPLEX than such " simple statement " can justify - nobody

REALLY knows the function of LDN - we KNOW that it has something to do

with our endogenous opioid balance - it is " believed to produce a

prolonged up-regulation of vital elements of the immune system by

causing an increase in endorphin and encephalin production. " As such,

LDN, by this interaction, is ALSO an " Opioid-Induced Immune Modulator " -

these are excerpts from low dose naltrexone.org - Imuran modulates the

immune system by weakening the ENTIRE immune system - Remicade

modulates the immune system by removing the cytokine TNF-alpha (very

pro-inflammatory) as it is an TNF-alpha antagonist - it touches nothing

else, the rest of the immune system is left intact - and TNF will

regenerate within 6-8 weeks and everything will be back to " normal " -

LDN modulates the immune system by means of the increased endorphin and

encephalin production - this in turn seem to calm down the whole group

of immune-cells and some nerve tissue (including the demyliated ones of

MS patients) - several body cells is found to have an abundance of

opioid receptors, and therefore LDN may indirectly modulate several

body-chemical functions - as said - this is very complex and NOT KNOWN

in full...

So... LDN is not a cure - nor is Remicade - to MY OPINION, both can be

of great help in some autoimmune diseases - Remicade for the time

needed, LDN probably for the rest of your life...

My Candida issues are dealt with by other means - yet it seems to head

in the right direction, slowly but steady - WHEN I've cleared my body

of invasive Candida, I may be able to quit Remicade as well - something

I WILL DO ASAP - no more meds that absolutely necessary - FOR SURE!!

Best wishes

" The Norwegian "

>

> Does anyone have any experience with the use of Remicade with LDN. I

> know Remicade is an immune modifier and LDN is an immune booster.

>

> What is the best way to discontinue R with LDN. Can I take them at the

> same time.

>

[Guest guest]

> >

> > Does anyone have any experience with the use of Remicade with LDN. I

> > know Remicade is an immune modifier and LDN is an immune booster.

> >

> > What is the best way to discontinue R with LDN. Can I take them at the

> > same time.

> >

>

Thanks , that is alot of good info. I had a really bad experience

with 6MP, almost killed me. I think I'll continue with Remicade and

LDN Oh and also Liallda. As time goes on and I start to feel more

confident LDN is really working hope to discontinue Remicade. Best

Wishes and thanks again for the in depth info, really helped.

[Guest guest]

>

> I think your specific question was answered re Skip's comments and

> 's personal experience as far as concurrent use of Remicade and

LDN.

>

> My teenage son had been on Remicade from April - Dec 2008. We did not

> like the whole idea of it and had been asking to try LDN instead. But

> the IBD doc would not go for it ( " not enough known yet " ) and said we

> could be facing surgery if we didn't try Remicade. So we did the

> Remicade but did not see much improvement and kept telling him the only

> thing that helped was Cipro to treat pathogenic bacteria that Genova

> Diagnostics found in July 08. He kept insisting the Remicade " was

> helping some. " We couldn't continue the Cipro as it can cause

C-diff to

> recur (which has been a problem.) The thing that kept us from just

> stopping Remicade to try LDN, was the warning the IBD doc gave that if

> you are off Remicade for " too long " (I think 4-6 months?), you might

> have severe allergic reaction when you get back on (I think had

> personal experience disproving this for his case). So we put off

trying

> LDN, being afraid of what if the LDN didn't work and we couldn't go

back

> to Remicade (these doctors really prey on your fears!)

>

> Finally this week they did a colonoscopy and the findings were not good

> - severe inflammation, ulcers, etc. Again, the IBD doc wants to talk

> surgery. BUT we had been working with our holistic MD and he had

already

> placed an order for the transdermal cream form of LDN through Coastal

> Compounding. It just arrived today, so my son will take the first dose

> tonight!!! I am SO excited, and praying that it works like the photos

> posted by Dr. Jill . Turns out the IBD doc is fine with us trying

> LDN (as if I even care at this point), but he won't prescribe it. He

> has had some patients participate in Jill 's Penn State study with

> varying results. He didn't know if the ones that didn't respond

were in

> the placebo group or not.

>

> Hopefully I will have good news to report soon!!!

>

> Sally

>

My prayers are with your son. Hope to hear good news soon.