Asthma

[Guest guest]

dr said his lungs sound clear except up high in his chest.

thanx, maureen k.

I asked my pulmonologist about this because my lungs are always clear even

when I feel SOB. He said that wheezing is a late sign when you have lost all

of about 15% of your lung function and not a reliable indicator of an asthma

attack at an earlier stage.

Carol

[Guest guest]

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>

[Guest guest]

this is interesting.  my husband's lungs are usually clear when he is short of

breath.  often the drs look at him like " why are you here " ?  they didn't look at

him that way last wed. when he sounded clear but his O2 was 88%!!  his

pulmonologist still thinks he aslo has chest muscle weakness from his

neuromuscular disorder that contributes to the SOB.  however, he always responds

to prednisones which the neurologists insist will have no effect at all on his

neurological condition.  now he has to do a sleep study in order to get a cpap

machine.  the pulmonologist thinks he can use that during the day when he feels

SOB & that he may be able to avoid all the prednisone meds.  has anyone used a

cpap in the day for SOB?

thanx, maureen k.

________________________________

From: instdesgn1 <instdesgn1@...>

Sent: Saturday, July 25, 2009 2:52:13 PM

Subject: [ ] Re: asthma

 

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>

[Guest guest]

There is also " silent asthma " plus with lung damage, you can never be totally

certain of what is going on.  When I am silent, I am almost worse because that

means I am junky and all filled up with sticky mucus.

Leigh

________________________________

From: instdesgn1 <instdesgn1@...>

Sent: Saturday, July 25, 2009 1:52:13 PM

Subject: [ ] Re: asthma

 

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>

[Guest guest]

>

> this is interesting.  my husband's lungs are usually clear when he is short of

breath.  often the drs look at him like " why are you here " ?  they didn't look at

him that way last wed. when he sounded clear but his O2 was 88%!!  his

pulmonologist still thinks he aslo has chest muscle weakness from his

neuromuscular disorder that contributes to the SOB.  however, he always responds

to prednisones which the neurologists insist will have no effect at all on his

neurological condition.  now he has to do a sleep study in order to get a cpap

machine.  the pulmonologist thinks he can use that during the day when he feels

SOB & that he may be able to avoid all the prednisone meds.  has anyone used a

cpap in the day for SOB?

> thanx, maureen k.

>

>

>

I am the same way. I am having probs pulling air in and the doc says " well, you

sound clear. "

I have been on a CPAP for over 3 years now and ABSOLUTELY LOVE IT!

It was a pain at first but after I got used to it I couldn't live without it. I

even use it when I take a nap. I am breathing clean, fresh, humidified air all

night long.

The sleep study wasn't bad. They wired me up and watched me sleep. When my apnea

started up, they came in and put a cpap on me.

Got my own the next day.

The CPAP is not for asthma. Sleep apnea occurs in the throat not the lungs.

Doug

Group founder

[Guest guest]

Hi! Sounds to me that your husband's breathing is definitely made worse by his

neuromuscular disorder and his asthma. Which neuromuscular disorder does he

have? I would ask his pulmo to communicate with his neuro to discuss his case.

Cpap and bipap is definitely used by people who cannot keep their saturation up

without assistance, in the case of poor ventilation-perfusion or when there is a

neuromuscular deficit for example. Cpap is one option to prevent intubation in

ICUs and can be used intermittently at home when neeeded. It is not just for

sleep apnea although that is how most of us know it.

Prednisone is big guns and will make EVERYONE breathe better including those

without asthma or any lung disease. As my pulmo said, if there wasn't such

horrible side effects, we would put every asthmatic on 50 mg and be out of jobs.

Pred is difficult esp in the condition of muscle wasting diseases because pred

alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo,

while it may be a temp fix, it is not a great solution for anyone.

There are many reasons for desaturation and chest muscle weakness and fatigue

could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like

the right hand and the left hand do not speak to one another, which,

unfortunatly, is often the case.

________________________________

From: Maureen Keller <mauireen14@...>

Sent: Saturday, July 25, 2009 3:47:48 PM

Subject: Re: [ ] Re: asthma

this is interesting. my husband's lungs are usually clear when he is short of

breath. often the drs look at him like " why are you here " ? they didn't look at

him that way last wed. when he sounded clear but his O2 was 88%!! his

pulmonologist still thinks he aslo has chest muscle weakness from his

neuromuscular disorder that contributes to the SOB. however, he always responds

to prednisones which the neurologists insist will have no effect at all on his

neurological condition. now he has to do a sleep study in order to get a cpap

machine. the pulmonologist thinks he can use that during the day when he feels

SOB & that he may be able to avoid all the prednisone meds. has anyone used a

cpap in the day for SOB?

thanx, maureen k.

____________ _________ _________ __

From: instdesgn1 <instdesgn1 (DOT) com>

Sent: Saturday, July 25, 2009 2:52:13 PM

Subject: [ ] Re: asthma

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>

[Guest guest]

i think you have hit his problem on the spot.  he had to go to the er last pm,

he was sob after having the 4th day in a row of 125mg solu medrol inj. & was

scheduled to get another today.  he has had this series twice before.  it always

worked for him in the past.  he was suddenly very sob while eating dinner.  his

O2 wasn't too bad in the er but the dr saw how his muscles have atrophied &

agreed with his pulmonologist that he has asthma plus chest muscle weakness. 

also that the corticosteroids make his muscles weaker.  they hospitalized him &

put him on oxygen.  unfortunately this is sunday & i doubt that tests can be

done today unless they are emergencies.  the biggest test will be to see if i

can convince him to stay in the hospital.  i am afraid that if he comes home, he

will just continue to be sob & we don't have oxygen at home yet.  he was to have

an overnight sleep study this wed. in order to get a cpap machine to use during

the

day.  he is being assigned a plumonologist & neurologist in the hospital but he

may not see them till mon.  i agree he needs a setting like the hospital where

these dr can communicate & come up with a home solution.  i am exhausted myself

taking him from dr to dr, urgent care, etc.  on an almost daily basis.  he has

pls primary lateral sclerosis possibly progressing to als.

________________________________

From: <carrie72583@...>

Sent: Saturday, July 25, 2009 7:58:11 PM

Subject: Re: [ ] Re: asthma

 

Hi! Sounds to me that your husband's breathing is definitely made worse by his

neuromuscular disorder and his asthma. Which neuromuscular disorder does he

have? I would ask his pulmo to communicate with his neuro to discuss his case.

Cpap and bipap is definitely used by people who cannot keep their saturation up

without assistance, in the case of poor ventilation- perfusion or when there is

a neuromuscular deficit for example. Cpap is one option to prevent intubation in

ICUs and can be used intermittently at home when neeeded. It is not just for

sleep apnea although that is how most of us know it.

Prednisone is big guns and will make EVERYONE breathe better including those

without asthma or any lung disease. As my pulmo said, if there wasn't such

horrible side effects, we would put every asthmatic on 50 mg and be out of jobs.

Pred is difficult esp in the condition of muscle wasting diseases because pred

alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo,

while it may be a temp fix, it is not a great solution for anyone.

There are many reasons for desaturation and chest muscle weakness and fatigue

could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like

the right hand and the left hand do not speak to one another, which,

unfortunatly, is often the case.

____________ _________ _________ __

From: Maureen Keller <mauireen14 (DOT) com>

Sent: Saturday, July 25, 2009 3:47:48 PM

Subject: Re: [ ] Re: asthma

this is interesting. my husband's lungs are usually clear when he is short of

breath. often the drs look at him like " why are you here " ? they didn't look at

him that way last wed. when he sounded clear but his O2 was 88%!! his

pulmonologist still thinks he aslo has chest muscle weakness from his

neuromuscular disorder that contributes to the SOB. however, he always responds

to prednisones which the neurologists insist will have no effect at all on his

neurological condition. now he has to do a sleep study in order to get a cpap

machine. the pulmonologist thinks he can use that during the day when he feels

SOB & that he may be able to avoid all the prednisone meds. has anyone used a

cpap in the day for SOB?

thanx, maureen k.

____________ _________ _________ __

From: instdesgn1 <instdesgn1@ . com>

Sent: Saturday, July 25, 2009 2:52:13 PM

Subject: [ ] Re: asthma

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>

[Guest guest]

I am really sorry to hear that your husband has PLS. That is a tough diagnosis.

How old is he? I am hoping they will keep him in hospital until they can set up

home oxygen. Tell the treating team you are exhausted and you cannot continue

with him like this. Perhaps they will be able to get you some home care as well.

Is he independent at home or does he need helps for his activities of daily

living? How long has he been on xolair for?

Keep us posted!

________________________________

From: Maureen Keller <mauireen14@...>

Sent: Sunday, July 26, 2009 7:15:47 AM

Subject: Re: [ ] Re: asthma

i think you have hit his problem on the spot. he had to go to the er last pm,

he was sob after having the 4th day in a row of 125mg solu medrol inj. & was

scheduled to get another today. he has had this series twice before. it always

worked for him in the past. he was suddenly very sob while eating dinner. his

O2 wasn't too bad in the er but the dr saw how his muscles have atrophied &

agreed with his pulmonologist that he has asthma plus chest muscle weakness.

also that the corticosteroids make his muscles weaker. they hospitalized him &

put him on oxygen. unfortunately this is sunday & i doubt that tests can be

done today unless they are emergencies. the biggest test will be to see if i

can convince him to stay in the hospital. i am afraid that if he comes home, he

will just continue to be sob & we don't have oxygen at home yet. he was to have

an overnight sleep study this wed. in order to get a cpap machine to use during

the

day. he is being assigned a plumonologist & neurologist in the hospital but he

may not see them till mon. i agree he needs a setting like the hospital where

these dr can communicate & come up with a home solution. i am exhausted myself

taking him from dr to dr, urgent care, etc. on an almost daily basis. he has

pls primary lateral sclerosis possibly progressing to als.

____________ _________ _________ __

From: <carrie72583@ .ca>

Sent: Saturday, July 25, 2009 7:58:11 PM

Subject: Re: [ ] Re: asthma

Hi! Sounds to me that your husband's breathing is definitely made worse by his

neuromuscular disorder and his asthma. Which neuromuscular disorder does he

have? I would ask his pulmo to communicate with his neuro to discuss his case.

Cpap and bipap is definitely used by people who cannot keep their saturation up

without assistance, in the case of poor ventilation- perfusion or when there is

a neuromuscular deficit for example. Cpap is one option to prevent intubation in

ICUs and can be used intermittently at home when neeeded. It is not just for

sleep apnea although that is how most of us know it.

Prednisone is big guns and will make EVERYONE breathe better including those

without asthma or any lung disease. As my pulmo said, if there wasn't such

horrible side effects, we would put every asthmatic on 50 mg and be out of jobs.

Pred is difficult esp in the condition of muscle wasting diseases because pred

alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo,

while it may be a temp fix, it is not a great solution for anyone.

There are many reasons for desaturation and chest muscle weakness and fatigue

could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like

the right hand and the left hand do not speak to one another, which,

unfortunatly, is often the case.

____________ _________ _________ __

From: Maureen Keller <mauireen14@ . com>

Sent: Saturday, July 25, 2009 3:47:48 PM

Subject: Re: [ ] Re: asthma

this is interesting. my husband's lungs are usually clear when he is short of

breath. often the drs look at him like " why are you here " ? they didn't look at

him that way last wed. when he sounded clear but his O2 was 88%!! his

pulmonologist still thinks he aslo has chest muscle weakness from his

neuromuscular disorder that contributes to the SOB. however, he always responds

to prednisones which the neurologists insist will have no effect at all on his

neurological condition. now he has to do a sleep study in order to get a cpap

machine. the pulmonologist thinks he can use that during the day when he feels

SOB & that he may be able to avoid all the prednisone meds. has anyone used a

cpap in the day for SOB?

thanx, maureen k.

____________ _________ _________ __

From: instdesgn1 <instdesgn1@ . com>

Sent: Saturday, July 25, 2009 2:52:13 PM

Subject: [ ] Re: asthma

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>

[Guest guest]

thank you.  he is 61 years old (3 days ago-bad birthday present).  he can take

care of his daily needs, but is constantly exhausted.  he has had 3 xolair

treatments.

________________________________

From: <carrie72583@...>

Sent: Sunday, July 26, 2009 3:24:24 PM

Subject: Re: [ ] Re: asthma

 

I am really sorry to hear that your husband has PLS. That is a tough diagnosis.

How old is he? I am hoping they will keep him in hospital until they can set up

home oxygen. Tell the treating team you are exhausted and you cannot continue

with him like this. Perhaps they will be able to get you some home care as well.

Is he independent at home or does he need helps for his activities of daily

living? How long has he been on xolair for?

Keep us posted!

____________ _________ _________ __

From: Maureen Keller <mauireen14 (DOT) com>

Sent: Sunday, July 26, 2009 7:15:47 AM

Subject: Re: [ ] Re: asthma

i think you have hit his problem on the spot. he had to go to the er last pm, he

was sob after having the 4th day in a row of 125mg solu medrol inj. & was

scheduled to get another today. he has had this series twice before. it always

worked for him in the past. he was suddenly very sob while eating dinner. his O2

wasn't too bad in the er but the dr saw how his muscles have atrophied & agreed

with his pulmonologist that he has asthma plus chest muscle weakness. also that

the corticosteroids make his muscles weaker. they hospitalized him & put him on

oxygen. unfortunately this is sunday & i doubt that tests can be done today

unless they are emergencies. the biggest test will be to see if i can convince

him to stay in the hospital. i am afraid that if he comes home, he will just

continue to be sob & we don't have oxygen at home yet. he was to have an

overnight sleep study this wed. in order to get a cpap machine to use during the

day. he is being assigned a plumonologist & neurologist in the hospital but he

may not see them till mon. i agree he needs a setting like the hospital where

these dr can communicate & come up with a home solution. i am exhausted myself

taking him from dr to dr, urgent care, etc. on an almost daily basis. he has pls

primary lateral sclerosis possibly progressing to als.

____________ _________ _________ __

From: <carrie72583@ .ca>

Sent: Saturday, July 25, 2009 7:58:11 PM

Subject: Re: [ ] Re: asthma

Hi! Sounds to me that your husband's breathing is definitely made worse by his

neuromuscular disorder and his asthma. Which neuromuscular disorder does he

have? I would ask his pulmo to communicate with his neuro to discuss his case.

Cpap and bipap is definitely used by people who cannot keep their saturation up

without assistance, in the case of poor ventilation- perfusion or when there is

a neuromuscular deficit for example. Cpap is one option to prevent intubation in

ICUs and can be used intermittently at home when neeeded. It is not just for

sleep apnea although that is how most of us know it.

Prednisone is big guns and will make EVERYONE breathe better including those

without asthma or any lung disease. As my pulmo said, if there wasn't such

horrible side effects, we would put every asthmatic on 50 mg and be out of jobs.

Pred is difficult esp in the condition of muscle wasting diseases because pred

alone wastes skeletal muscle tissue, thereby making the situation worse. Ergo,

while it may be a temp fix, it is not a great solution for anyone.

There are many reasons for desaturation and chest muscle weakness and fatigue

could definitely be the cause. Do ask the MDs to communicate. Sounds a bit like

the right hand and the left hand do not speak to one another, which,

unfortunatly, is often the case.

____________ _________ _________ __

From: Maureen Keller <mauireen14@ . com>

Sent: Saturday, July 25, 2009 3:47:48 PM

Subject: Re: [ ] Re: asthma

this is interesting. my husband's lungs are usually clear when he is short of

breath. often the drs look at him like " why are you here " ? they didn't look at

him that way last wed. when he sounded clear but his O2 was 88%!! his

pulmonologist still thinks he aslo has chest muscle weakness from his

neuromuscular disorder that contributes to the SOB. however, he always responds

to prednisones which the neurologists insist will have no effect at all on his

neurological condition. now he has to do a sleep study in order to get a cpap

machine. the pulmonologist thinks he can use that during the day when he feels

SOB & that he may be able to avoid all the prednisone meds. has anyone used a

cpap in the day for SOB?

thanx, maureen k.

____________ _________ _________ __

From: instdesgn1 <instdesgn1@ . com>

Sent: Saturday, July 25, 2009 2:52:13 PM

Subject: [ ] Re: asthma

Interesting! Doctors often say my lungs sound clear even though I have daily

SOB. The catscan did show damage to my lungs although thankfully it was

considered reltively minor to moderate. I'm a non-smoker and always have been.

So, I'm glad to hear that some doc somewhere had admitted that listening to

lungs does not always prove much! Thank you!

>

> dr said his lungs sound clear except up high in his chest.

> thanx, maureen k.

> I asked my pulmonologist about this because my lungs are always clear even

> when I feel SOB. He said that wheezing is a late sign when you have lost all

> of about 15% of your lung function and not a reliable indicator of an asthma

> attack at an earlier stage.

> Carol

>

>

>