Re: Advice/Comments (, others?)

[Guest guest]

Marcy,

If bindweed is working then you should consider the addition of other

angiogenesis inhibitors. The body has three major pathways to assure

angiogenesis and you want to close them all. Additions might include

theobromine (from chocolate), squalamine, shark/bovine cartilage,

minocyline, captopril, spironolactone. There are many that you might

consider. If you have insurance then Avastin seems to be a good one for

breast cancer -- especially at double the dose used for colon cancer.

With the bleeding you want to make sure you are using plenty of green leafy

vegetables for the vitamin K. If you have access the vitamin K for your

purpose is K3 (menadione) which is best used with Vit C and alpha lipoic

acid. The menadione stops pain as well as morphine 75% of the time. Use

levels in the 20-30 mg range IV or IM once a day. Most physicians won't

want to do this as they are unschooled in its merits and safety.

To get more serious would probably involve travel.

At 11:03 AM 06/09/04, you wrote:

>Background: CA R. Breast ER+. Lumpectomy 11/98, sentinel node

>biopsy 1/99 (3 nodes all neg.). " Recurrence " 10/99. No

>conventional methods used since lumpectomy, many many alternatives

>tried and either incorporated or discarded over the years. After

>use of escharotic salve, ulceration never healed. CA progressed

>with lots of oozing and drainage. At this point entire breast

>ulcerated. Oncolyn since 10/03, oozing stopped. Showed improvement

>until 1-04, then developed staph and candida infections.

>Antibiotics for staph, now gone. Diflucan for candida, test 2 weeks

>ago showed no candida, discontinued diflucan, candida returned, back

>on diflucan again. Artemisinin since 3/04, C-Statin (bindweed)

>since last week. Since beginning bindweed, proliferation of blood

>vessels around the edges of ulcer has decreased a lot. The edges of

>the " crater " are flattening. Lots of burning pain for which I am

>taking massive doses of oxycodone (began taking 3 years ago during

>salve use) to which I am highly tolerant and of course addicted. Am

>experiencing LOTS of bleeding past 7 days since beginning the C-

>Statin. Enlarged lymph nodes feel smaller. My thoughts are that

>I'm at a crucial point in the healing process. Your thoughts,

>please!

>

>|

[Guest guest]

What is bindweed? An herb? Where can you find this? ~Amber

<<If bindweed is working then you should consider the addition of other

angiogenesis inhibitors.>>

[Guest guest]

> What is bindweed? An herb? Where can you find this? ~Amber

>

> <<If bindweed is working then you should consider the addition of

other

> angiogenesis inhibitors.>>

Hi Amber,

To learn the specifics on the plant bindweed (Convolvulus arvensis),

an internet search will yield the info you are looking for.

With respect to its use in fighting cancer, it was a recommendation

passed along by Ba Hoang

http://www.getwellinternational.com/about_us.html to an MD on

my " wellness advisory team " to be used in conjunction with

artemisinin. Apparently Dr. Ba has patients whose conditions are

similar to mine (ulcerated breast cancer) and who have used a

combination of artemisinin, DermaWeed, and CellSaver with good

results. DermaWeed and CellSaver are both fairly expensive, but

apparently these good results can be achieved in just a few week's

time---they're not products you will be using long-term.

I began using artemisinin in March with some success, but there was

no radical improvement.

Another of my " team " is a practitioner who happened to have a

bindweed product on hand called C-Statin. The bottles had expired

11/03 so he used electrodermal screening to test me for

compatability with it. Since I tested well he gave me 4 bottles of

the stuff (which retail for $88 each---I love this guy!) last week.

I've seen amazing improvement in my ulcerated lesions in just 10

days time taking daily doses of (8) 250mg capsules C-Statin (in

addition to 1200mg artemisinin and 8 Oncolyn caplets). The " ridges "

that surround my ulcers have decreased substantially, and in some

places have completely flattened to the level of the healthy tissue

around them. I had a great deal of blood vessels proliferating in

these ridges which has also substantially decreased. One

disconcerting thing though is the enormous amount of bleeding I

experienced these past 7-10 days.

Bindweed can be purchased as DermaWeed or VascuStatin (both from

Allergy Research Group) or C-Statin (Aidan). There may be other

brands that I'm unaware of. As I said, it's expensive, but

considering how things looked before I started using it, I think the

results are worth it.

Do you have breast cancer, too?

--Marcy

[Guest guest]

Hi Marcy:

<<To learn the specifics on the plant bindweed (Convolvulus arvensis),

an internet search will yield the info you are looking for.>>

==>Searched and found interesting info - seems like a good angegenisis

inhibitor.

<< With respect to its use in fighting cancer, it was a recommendation

> passed along by Ba Hoang to an MD on my " wellness advisory team " to be

used in conjunction with artemisinin.>>

==>Isn't artemisinin wormwood?

<<Apparently Dr. Ba has patients whose conditions are similar to mine

(ulcerated breast cancer) and who have used a combination of artemisinin,

DermaWeed, and CellSaver with good results. DermaWeed and CellSaver are

both fairly expensive, but apparently these good results can be achieved in

just a few week's time---they're not products you will be using long-term.>>

==>This is great if they work in only a few weeks :-)

<<I began using artemisinin in March with some success, but there was

no radical improvement.>>

==>I did some research on wormwood and decided to forego this. Sorry to

hear it didn't work for you.

<<Another of my " team " is a practitioner who happened to have a

bindweed product on hand called C-Statin. The bottles had expired

11/03 so he used electrodermal screening to test me for

compatability with it. Since I tested well he gave me 4 bottles of

the stuff (which retail for $88 each---I love this guy!) last week.

I've seen amazing improvement in my ulcerated lesions in just 10

days time taking daily doses of (8) 250mg capsules C-Statin (in

addition to 1200mg artemisinin and 8 Oncolyn caplets). The " ridges "

that surround my ulcers have decreased substantially, and in some

places have completely flattened to the level of the healthy tissue

around them. I had a great deal of blood vessels proliferating in

these ridges which has also substantially decreased. One

disconcerting thing though is the enormous amount of bleeding I

experienced these past 7-10 days.>>

==>Very scarey indeed! Thank you for the info on what you're taking and the

results.

<<Bindweed can be purchased as DermaWeed or VascuStatin (both from

Allergy Research Group) or C-Statin (Aidan). There may be other

brands that I'm unaware of. As I said, it's expensive, but

considering how things looked before I started using it, I think the

results are worth it.>>

==>Everything that seems to work is expensive ::::::sigh::::::

<<Do you have breast cancer, too?>>

==>Alas, yes; highest grade (most aggressive and malignant) invasive ductal

carcinoma, ER neg, her2 neg. Nothing promising out there in the way of

conventional treatment for me, so I'm trying to find proven alternative

supplements/herbs.

~Amber

[Guest guest]

Amber, I'm not sure what you mean when you say that you're trying to

find " proven alternative supplements/herbs " . Could you explain? I

was also curious as to why you decided against the use of wormwood.

Artemisinin is not wormwood---it's a derivative of wormwood, and

much more effective. I first heard about artemisinin a couple of

years ago on a network evening news program that featured info on

cancer research by a couple of scientists from the University of

Washington. I was involved with other alternatives at the time so I

kinda put that info into my mental filing cabinet. I do lots of

internet browsing on cancer and more recently I keep coming up with

references to artemisinin from sources that I consider to be

reputable and noteworthy. I had one of my " wellness team "

practitioners, an MD check into it also. He's discussed this

approach with doctors in CA who are using alternative methods as

well as with Simone from NJ (with whom he's

acquainted...http://www.drsimone.com/thefounder.cfm for some info on

Dr. Simone...I'd heard of and read about him before my doc told me

that they'd spoken) who are very excited about the use of

artemisinin to treat cancer, especially breast cancer.

You've got to read these:

http://www.mwt.net/~drbrewer/canart1.htm

http://www.mwt.net/~drbrewer/canart2.htm

I think you received the wrong impression from me. I've had a SLOW

response with artemisinin alone, but the tumors have indeed

responded. Since I've added the bindweed it's been amazing. The

first week or so was a bit scarey, with mega-pain and lots of

bleeding. It's been about 2 weeks now and both the pain and

bleeding have decreased.

One of the CA docs who treats Stage IV breast cancers recommends

adding CellSaver (from Allergy Research Group) in addition to the

artemisinin and bindweed, which I'm going to order today.

Something else you might want to look into is Oncolyn.

http://www.santelink.com/oncolyn.html

Have you researched the link between breast cancer and emotional

trauma, especially with a parent (mother and children, left

breast...father, right breast)?

By the way, I have an opportunity to meet with Dr. Simone and have

an appointment with him at the Simon Kramer Institute, New

Philadelphia, PA on Friday!

--Marcy

> Hi Marcy:

>

> <<To learn the specifics on the plant bindweed (Convolvulus

arvensis),

> an internet search will yield the info you are looking for.>>

>

> ==>Searched and found interesting info - seems like a good

angegenisis

> inhibitor.

>

> << With respect to its use in fighting cancer, it was a

recommendation

> > passed along by Ba Hoang to an MD on my " wellness advisory team "

to be

> used in conjunction with artemisinin.>>

>

> ==>Isn't artemisinin wormwood?

>

> <<Apparently Dr. Ba has patients whose conditions are similar to

mine

> (ulcerated breast cancer) and who have used a combination of

artemisinin,

> DermaWeed, and CellSaver with good results. DermaWeed and

CellSaver are

> both fairly expensive, but apparently these good results can be

achieved in

> just a few week's time---they're not products you will be using

long-term.>>

>

> ==>This is great if they work in only a few weeks :-)

>

> <<I began using artemisinin in March with some success, but there

was

> no radical improvement.>>

>

> ==>I did some research on wormwood and decided to forego this.

Sorry to

> hear it didn't work for you.

>

> <<Another of my " team " is a practitioner who happened to have a

> bindweed product on hand called C-Statin. The bottles had expired

> 11/03 so he used electrodermal screening to test me for

> compatability with it. Since I tested well he gave me 4 bottles

of

> the stuff (which retail for $88 each---I love this guy!) last

week.

> I've seen amazing improvement in my ulcerated lesions in just 10

> days time taking daily doses of (8) 250mg capsules C-Statin (in

> addition to 1200mg artemisinin and 8 Oncolyn caplets).

The " ridges "

> that surround my ulcers have decreased substantially, and in some

> places have completely flattened to the level of the healthy

tissue

> around them. I had a great deal of blood vessels proliferating in

> these ridges which has also substantially decreased. One

> disconcerting thing though is the enormous amount of bleeding I

> experienced these past 7-10 days.>>

>

> ==>Very scarey indeed! Thank you for the info on what you're

taking and the

> results.

>

> <<Bindweed can be purchased as DermaWeed or VascuStatin (both from

> Allergy Research Group) or C-Statin (Aidan). There may be other

> brands that I'm unaware of. As I said, it's expensive, but

> considering how things looked before I started using it, I think

the

> results are worth it.>>

>

> ==>Everything that seems to work is expensive ::::::sigh::::::

>

> <<Do you have breast cancer, too?>>

>

> ==>Alas, yes; highest grade (most aggressive and malignant)

invasive ductal

> carcinoma, ER neg, her2 neg. Nothing promising out there in the

way of

> conventional treatment for me, so I'm trying to find proven

alternative

> supplements/herbs.

>

> ~Amber