superior vena cava, need help advice

[Guest guest]

floks i woke up one morning with face swollen. thought i had an

allergy or something. noticed nothing until this happened, thought i

was fine. to make a long story short swelling got worse, they sent me

for cat scan and said i had superior vena cava. lungs were clear they

have not ot this day found anything in my lungs. they told me this

was caused by lung cancer. doing chemo and radiation. radiation is

making it hard for me to swallow anything, and everything i eat taste

like cardboard. doing flax oil and cottage cheese, cq10, ip6,and

vitamin c and e. radiation is burning skin on chest and back. chemo

is doing all kinds of crazy things to my body,it varies from day to

day never know what to expect each day. brother that chemo is rough

stuff! anything, anything, anybody can tell me to do to help myself

please,please do!i will tyr anything to get me through this. i have

no insurance and am at the mercy of the local hospital where i

live.please help me! help me anyway you can. will try anything to get

through this and or make this easior.folks i will apreciate anything

any of you have to offer. thanks fdhere

[Guest guest]

In a message dated 12/22/04 4:40:38 PM Eastern Standard Time, grdnkat@...

writes:

> lungs were clear

> they

> > have not ot this day found anything in my lungs. they told me this

> > was caused by lung cancer.

Here is something I found on the causes and Lung Cancer doesn't seem to be

very high on the list, if at all. Have you had a second opinion?

There are many causes for this condition and not all are malignancy.

Best to get a second, even third opinion. Mistakes are made every day.

Causes:

Today, the most common etiology of SVCS is related to malignancy.

Prior to modern antibiotics, infectious causes including syphilis,

tuberculosis, and fungi occurred with almost equal frequency.

The most common cause of malignancy-related SVCS is bronchogenic CA, which

accounts for nearly 80% of cases.

Lymphoma accounts for approximately 15% of cases.

Other cases have a variety of causes, including infectious and

catheter-related etiologies. Increasingly, dialysis catheters and pacemaker

leads are

becoming associated with superior vena cava syndrome due to thrombosis.

[Guest guest]

Hi fdhere...sorry to read of all the difficulties you are having and

so far no one on this list has any helpful suggestions for you. I'd

like to suggest that you go to http://listserv.acor.org/ There you

can join the list for lung cancer and be in touch with many other

people in exactly the same situation as yourself. I'm sure they'll

be able to help you out. A friend of mine has cancer of the mouth

and even though he is not going through traditional medical

treatement, I joined the ACOR head neck cancer group and the people

have been very supportive and a wealth of information. Hopefully

this doesn't sound as though the folk here aren't supportive and

helpful, because they certainly are when it comes to alternative

therapies....but the acor groups are made up of people going through

exactly the same disease as you...many of them will have experienced

the same problems you have with rads and chemo. Hope this helps...K

>

> floks i woke up one morning with face swollen. thought i had an

> allergy or something. noticed nothing until this happened, thought

i

> was fine. to make a long story short swelling got worse, they sent

me

> for cat scan and said i had superior vena cava. lungs were clear

they

> have not ot this day found anything in my lungs. they told me this

> was caused by lung cancer. doing chemo and radiation. radiation is

> making it hard for me to swallow anything, and everything i eat

taste

> like cardboard. doing flax oil and cottage cheese, cq10, ip6,and

> vitamin c and e. radiation is burning skin on chest and back.

chemo

> is doing all kinds of crazy things to my body,it varies from day

to

> day never know what to expect each day. brother that chemo is

rough

> stuff! anything, anything, anybody can tell me to do to help

myself

> please,please do!i will tyr anything to get me through this. i

have

> no insurance and am at the mercy of the local hospital where i

> live.please help me! help me anyway you can. will try anything to

get

> through this and or make this easior.folks i will apreciate

anything

> any of you have to offer. thanks fdhere