RE: Kallmann's Syndrome

[Guest guest]

How do you diagnose Kallmann's Syndrome? What are the symptoms?

I have ideopathic HH, meaning they have no idea why.

>From: " coacharnie50 " <coacharnie50@...>

>Reply-

>

>Subject: Kallmann's Syndrome

>Date: Wed, 18 Feb 2004 03:00:44 -0000

>

>I am 50 years old and just diagnosed with Kallmann's Syndrome, which

>explains my hypogonadism. From my understanding my body never

>finished puberty (x chromosone screw-up) and my hypothalamus doesn't

>work right, thus testicles don't produce T and consequently

>hypogonadism from teens. If there are any other men with this

>syndrome belonging to this group, are you doing anything for it

>beyond testosterone replacement? My doctor said he probably can't

>get my sex drive back if the Testosterone isn't doing the trick. I

>hate to think the rest of my life will be spent with no sexual

>desire of any kind. Any thoughts or suggestions from other KS

>people. Thanks

>

_________________________________________________________________

Find and compare great deals on Broadband access at the MSN High-Speed

Marketplace. http://click.atdmt.com/AVE/go/onm00200360ave/direct/01/

[Guest guest]

Make sure your T level is in the high range, bare minimum 700+ on a

daily basis. Get your e2 checked (estradiol), if it is high, take

arimidex or aromasin in small doses to manage it. This is a good

start to working on the sex drive problem.

I am not familiar if there are other treatments beneficial

specifically for kallmann's hopefully someone knowledgeable in that

area will also answer. Regardless, the stuff in the top is critical

for you to get started.

What is your current dose of T replacement and what method are you

taking?

Cheers,

Armyguy

> I am 50 years old and just diagnosed with Kallmann's Syndrome,

which

> explains my hypogonadism. From my understanding my body never

> finished puberty (x chromosone screw-up) and my hypothalamus

doesn't

> work right, thus testicles don't produce T and consequently

> hypogonadism from teens. If there are any other men with this

> syndrome belonging to this group, are you doing anything for it

> beyond testosterone replacement? My doctor said he probably can't

> get my sex drive back if the Testosterone isn't doing the trick.

I

> hate to think the rest of my life will be spent with no sexual

> desire of any kind. Any thoughts or suggestions from other KS

> people. Thanks

[Guest guest]

Hi

I do not have Kallmans.

However, I write as I think you can down load information from the UK's

Pituitary

Foundation at

http://www.pituitary.org.uk

They also have a book in their GP information section which they may be willing

to post to

you. I received some copies to distribute to local GPs ca 2-3 years ago so it

will depend if

they have any left.

Good luck!

On 16 Aug 2006 at 17:26, bklynn718 wrote:

> I'm just curious if anyone has kallmann's syndrome on this forum. It's a form

of

> hypogonadism thats usually recognized by the lack of the sense of smell. just

wondering

> if anyone here has it (i do) and could offer any sort of advise particular to

this disorder.

> Sometimes it's hard to tell if information on this site applies to me. I'm

only 21, so a lot of

> the advice on here may not apply. Thanks a lot

>

> -brandon

>

>

>

>

[Guest guest]

,

In case you don't know this, there's alot of helpful information

about Kallmann Syndrom on this website:

http://www.hypohh.net/

also, there is a large Group dedicated just to Kallmann

called: " kallmanns-syndrome "

You are young, so you have alot of hope. Good luck man.

>

> I'm just curious if anyone has kallmann's syndrome on this forum.

It's a form of

> hypogonadism thats usually recognized by the lack of the sense of

smell. just wondering

> if anyone here has it (i do) and could offer any sort of advise

particular to this disorder.

> Sometimes it's hard to tell if information on this site applies to

me. I'm only 21, so a lot of

> the advice on here may not apply. Thanks a lot

>

> -brandon

>