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Re: Dr. Weil You should not say bad things that you know nothing about.

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On Thu, 13 May 2004 17:01:16 -0000, you wrote:

>I have been going to his web site for years he is a big Humanitarian

>and sells nothing but his books at a book store.

>When he talks about using his Antioxidant Formula it is something he

>came up with and he does not sell it. You can go to his site and

>get it free. Then go buy it where ever you want. I can't believe I

>posted this for info and help and all it got was slammed

>This man has done nothing but help people go to his site and see for

>you self you might learn something good. How do you people expect

>to get more negligible about you health if you judge a book by it's

>cover.

Phil,

Please, I don't think any one was slamming you or this guy. I'm sorry.

I was merely commenting on how difficult it is to persuade doctors

with web links to wellness clinics, longevity clinics and the like.

the doctors like to see specialists and studies for persuasion.

they're predisposed to look down on these sort of sites. I was

commenting only that its a shame some of our best information is on

such sites and not more broadly available.

It's hard enough to persuade doctors to read this stuff, and then to

have to persuade them that the source is reputable too is just another

burden handicapping our efforts.

please don't take offense. None was intended.

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Hi, Phil,

I apologize if my comments made you feel " slammed " , your help

is always appreciated. My own comments on aerobic exercise

for full blown CFS are based on sad personal experience,

confirmed by research. Aerobic exercise might be beneficial for

hypogonadism-related fatigue, but I'm still scared by past

exertion-caused crashes.

Best,

Bruce

>

> I have been going to his web site for years he is a big

Humanitarian

> and sells nothing but his books at a book store.

> When he talks about using his Antioxidant Formula it is

something he

> came up with and he does not sell it. You can go to his site

and

> get it free. Then go buy it where ever you want. I can't believe I

> posted this for info and help and all it got was slammed

> This man has done nothing but help people go to his site and

see for

> you self you might learn something good. How do you people

expect

> to get more negligible about you health if you judge a book by

it's

> cover.

> A Disappointed Phil

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Ditto on what Bruce said. His idea of forcing exercise doesn't work

for people with more severe CFS, and actually can hurt them quite a

bit. A lot of people with CFS have made their conditions much worse

by forcing too much activity, including myself. There is a lot of

research that shows that exercise can really harm people with CFS.

Something to do with the immune system. His ideas also don't address

hormonal problems like HYPOGONADISM (capitalized so that we know we

are staying on topic :) that can be related to CFS.

Any kind of exercise with a chronic illness be it hypogonadism,

chronic fatigue, etc. has to start out extremely light and gradual.

But chronic fatigue requires you to be extremely careful in this

area. His idea of trying to force yourself to get 20 or 30 minutes a

day can only be achieved through a partial remission and increasing

exercise very gradually. If you are in a relapse, trying to get 20

to 30 minutes of aerobic exercise would probably kill people with

more severe CFS or at least put them in the hosptial. Its taken me 6

months to get up to a 20 minute walk with the help of some medicine

that I finally found that helps me somewhat. I had to start out

walking 3 or 4 minutes with a cane. On some days I still have to use

a cane to get around without collapsing. Blanket advice and

mentioning of products are an automatic alarm bell for me.

Wasn't meaning to slam you or him, Phil, and i apologize if you got

that impression. Based on your experience I'm sure he is a great guy

and has helped a lot of people. I actually thought you might be

trying to point out some problems with his ideas regarding CFS. I'm

sure his ideas and products help some people. We actually ordered

his magazine recently.

But a lot of people think they have the answer for CFS and other

poorly understood conditions when they don't understand it very

well. No one really understands it, and every case is different. He

may or may not be one of them, but I've seen too many cases of people

with chronic illness being taken advantage of by people who think

they have the answer or simply have something to sell. For example,

I had a guy who was certain that my CFS was caused by fillings in my

teeth - I have no fillings.

This is not to say all products are bad. Some have actually helped

me. But none of them work for everybody or even a majority.

So please don't stop posting advice that you think might be helpful.

Your advice has already helped me a great deal. But i think all

angles need to be considered, and I hope you won't take offense to

that.

Mark

> Hi, Phil,

>

> I apologize if my comments made you feel " slammed " , your help

> is always appreciated. My own comments on aerobic exercise

> for full blown CFS are based on sad personal experience,

> confirmed by research. Aerobic exercise might be beneficial for

> hypogonadism-related fatigue, but I'm still scared by past

> exertion-caused crashes.

>

> Best,

> Bruce

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Phil,

Sounds like you've gotten good results with his ideas. I'm looking

forward to getting his magazine based on what you've said.

Sorry again - didn't mean to cause any offense.

Mark

> I see where you guys are coming form and I feel better. I know

what it is like to not be able to even get up and go to the

bathroom. He very well may be off here but I feel this man is

great. I had ear aches all the time form sinuses He said to put a

small piece of garlic in your ear with cotton and I will be dam all

gone. Sucking Salt Walter up you noise is the best thing for bad

sinuses You all could to better by going to his site and reading.

You go to the search and type in a work and you get all kinds of info

from all over the world. He is an M.D. that has been all over the

world learning about natal medicine.

> Phil

>

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