Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 " should I worry about this happening to me? If this is a inevidable >part of T replacement then perhaps I should go off of the treatment. >I really dont want this happening to me. " > HERE ARE MY TWO CENTS: MY NUTS ...WHILE I VALUE THEM, AND HAVE DERIVED GREAT EROTIC PLEASURE FROM THEM (BOTH IN ORAL SEX AND MASTURBATION),HAVE NEVER BEEN VERY BIG TO BEGIN WITH. HOWEVER, KNOWING NOW THE TREMENDOUS INCREASE IN THE QUALITY OF MY LIFE AND BEING...I WILL GRUDGINLY ACCEPT THE FACT THAT THEY ARE GONNA SHRINK. HOWEVER, I AM USING HCG...AND AM ACTUALLY MARVELLING THAT...WHEN USED EARLY ON...THEY DOUBLED IN SIZE. IN CLOSING: THE EFFECTS OF 'NORMAL' T...ARE WORTH IT. I LIKE FEELING VIRILE. _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 , I've been on TRT since Feb '99...I've not discerned any appreciable reduction in my nut mass. Palpable nut size is ~unshelled walnuts...when I'm relaxed, cock and nuts hang ~4 " below pelvic floor. There was something interesting on news about an hour ago...couples that cannot conceive.....male sperm may lack a protein to initiate fertilization.....I think the work came from London. OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 T-therapy normally shouldn't increase your sperm count, in fact it should decrease it. The reason being is that as your T count goes up, this should provide feedback to your hypothalamus (think of it as a thermometer). When it detects a higher level of T, it will slow down production of the chemicals that make the testes produce it. Because your testes will cut back on production they will shrink because the cells are not active. hCG used in conjunction with HMG should raise your sperm count and testosterone levels. This is a standard treatment for fertility. It does this by adding more of the chemicals that trigger the testes to produce sperm and testosterone. This will make your testes grow larger because they are working again (if you respond to the treatment). I believe that the reason that your T levels didn't improve with the T injection is because: 1. 400mg is too low of a dosage. 2. Once a month is too infrequent. It should be once every 2 or 3 weeks. Also, as far as the 5G packet of AG, that isn't really enough either. You should try to either use 2 packets of that per day or else have the doctor prescribe the 10G pack. I prefer the 2 5G's because it keeps me from having the lows between dosages. Once again, I am not a doctor so no guarantees on the accuracy of this information. I just do the best I can. :-) Good luck, Connery Email: jonathan@... <mailto:jonathan@...> Web: http://www.jonathanconnery.com <http://www.jonathanconnery.com/> " We must always strive to do the things we think we cannot do. " -Eleanor Roosevelt Androgel and Testicular Shrinkage My wife and I went through fertility testing last October. I was diagnosed with low T, 223 total. My urologyst started me with depo shots once a month 400mg. My sperm quality is much improved now however my wife still isnt pregnant. I then saw an endrocronolgyst to figure out what was going on about the low T. He sent me for a MRI to check for pituitary gland tumors. Everything is normal and healthy. Also my hormones with the exception of low T based on blood work are with in normal range, total T was 331 2 months ago. He sent me on my way with a follw up in 6 months. Then about 2 monthes ago my urologist stopped giving me the shot and put me on androgel instead... 1 packet of 5 mg a day. I will have some tests today to see where my level is at now after being on the Androgel. Now after doing more reading on the matter I have noticed that some men complain of testicalar shrinkage while being on T replacement. Should I worry about this happening to me? If this is a inevidable part of T replacement then perhaps I should go off of the treatment. I really dont want this happening to me. Also not to mention my doctors have no explanation for the low T after so many tests, when everything hormonally is normal. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 I will tell you what happened to me with androgel. I also had low T (<200) and doc put me on androgel. My T came up to an acceptable level from labs even though I didn't feel any better. While this was going on, my wife and I were trying to have a baby. Had my sperm count tested and found it was " 0! " . Freaked us out, went to a urologist who said I needed a testicular biopsy. So I did this thinking some was really wrong with me, he found no testicular malfunction, my testicles just weren't getting the signal to produce sperm. So my wife and I went to a reproductive endocrinologist(RE)..she said that the androgel absolutely was making me infertile!...so I went off it and she gave me a low dose of clomid as a boost and after several months, my sperm count went thru the roof and my wife is now pregnant. No doctor/urologist before the RE had a clue that external testosterone could make you infertile, I had to go thru a painful biopsy for nothing! The RE we saw hinted about better ways to treat my low T and after reading this group and doing some research the answer is HCG. Since my testicles are working ok it means my brain(for whatever reason) isn't producing LH /FSH(which by the way from labs is very low) which in turn tells your testicles to produce T and sperm. I would find a good endo to see if your hypogonadism is secondary(meaning your testicles are working ok) if so , HCG would be the better choice, especially if you want to have children. scott Lex72_98 wrote: > My wife and I went through fertility testing last October. I was > diagnosed with low T, 223 total. My urologyst started me with depo > shots once a month 400mg. My sperm quality is much improved now > however my wife still isnt pregnant. > > I then saw an endrocronolgyst to figure out what was going on about > the low T. He sent me for a MRI to check for pituitary gland tumors. > Everything is normal and healthy. Also my hormones with the exception > of low T based on blood work are with in normal range, total T was > 331 2 months ago. He sent me on my way with a follw up in 6 months. > > Then about 2 monthes ago my urologist stopped giving me the shot and > put me on androgel instead... 1 packet of 5 mg a day. I will have > some tests today to see where my level is at now after being on the > Androgel. > > Now after doing more reading on the matter I have noticed that some > men complain of testicalar shrinkage while being on T replacement. > Should I worry about this happening to me? If this is a inevidable > part of T replacement then perhaps I should go off of the treatment. > I really dont want this happening to me. Also not to mention my > doctors have no explanation for the low T after so many tests, when > everything hormonally is normal. > > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 > My wife and I went through fertility testing last October. I was > diagnosed with low T, 223 total. My urologyst started me with depo > shots once a month 400mg. My sperm quality is much improved now > however my wife still isnt pregnant. Lex, testosterone replacement, whether via depo shots or androgel, will result in your body ceasing its own manufacture of testosterone, resulting in total infertility. Therefore, it's hard to understand your statement " my sperm quality is much improved. " For men wishing to have children, testosterone replacement is not the way to go. Talk to your endocronologyst about HCG. If he isn't familiar with it, find one who is. HCG stimulates your testicles to produce more testosterone. If they're capable, it will increase fertility, Download, print out, read, then give to your endo the document from the American Association of Clinical Endocronologists AACE Clinical Practice Guidelines for the Evaluation and Treatment of Hypogonadism in Adult Male Patients. Go to http://www.aace.com/ do a quicksearch for hypogonadism then download the hypogonadism pdf file It's heavy reading, but worth it. If your endo won't consider trying HCG, find one who will. It's your life and your body. Good luck. PS: My t was 247; HCG increased it to 650. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 , Loss of nut mass is not necessarily a given on TRT...in addition to myself, I know of several other men that have maintained nut mass. " Perhaps " is perhaps a more appropriate term. OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 > My wife and I went through fertility testing last October. I was > diagnosed with low T, 223 total. My urologyst started me with depo > shots once a month 400mg. My sperm quality is much improved now > however my wife still isnt pregnant. This doesn' t make sense to me because depo-T stops your own production of both LH and FSH, in effect making you sterile. I was tested 6 months after taking 100mg per week of cypionate and my sperm count was zero. If your sperm count is not zero, you probably aren't taking enough testosterone, and your T level is probably not high enough. Also, it's unusual to have 400 mg once a month as well, since there is more of a mood swing variation on less frequent shots. Usually shots are given every two weeks or every week, which would work out to 200 mg every two weeks, or 100 mg every week. > Now after doing more reading on the matter I have noticed that some > men complain of testicalar shrinkage while being on T replacement. > Should I worry about this happening to me? If this is a inevidable > part of T replacement then perhaps I should go off of the treatment. > I really dont want this happening to me. Also not to mention my > doctors have no explanation for the low T after so many tests, when > everything hormonally is normal. MOST men on T shots or gel will eventually have testicular shrinkage, in spite of what happened to OR Eon, who reports no shrinkage. If you want to maintain the size of your testicles, you first have to find out if you have primary or secondary hypogonadism. If you have the secondary form, you can take HCG or HMG to make your own testicles keep working and maintain their size. You won't go sterile that way either. If you have primary, nothing can be done to prevent shrinkage, unless you stop the shots, but then your T level will be too low again. In fact, your T level may never come back up to the level it was before starting the shots, or it will take a very long time to return to that level. As for no explanation of what's wrong, most of us don't know why it happens--it just does. In my case I had an MRI of my pituitary and nothing unusual was found; no tumor or other abnormality. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Heh! Flame, flame, flame.... And people ask me why I add my little disclaimer at the end of my messages? Sheesh. Every single person is different and responds to type, dosage and frequency of medication differently. There are no absolutes in anything, certainly not medical treatment, and certainly not for endocrine related conditions. So please do me a favor and just assume that my statements will be based on the majority of results if I forget to say so. I will try to do better in the future. Although I am happy that you have not experienced this effect, I find it a disservice to not state the facts of all possible side effects when recommending treatment options. I do hope that you might concede that you and your " nuts " are a minority when it comes to the shrinkage side effect. A recent study I came across just last night showed 0 people out of a total of 40 people tested for testicular mass during a T-therapy study that retained their mass. All of them lost significant mass. Regards, Connery Email: jonathan@... <mailto:jonathan@...> Web: http://www.jonathanconnery.com <http://www.jonathanconnery.com/> " We must always strive to do the things we think we cannot do. " -Eleanor Roosevelt Re: Androgel and Testicular Shrinkage , Loss of nut mass is not necessarily a given on TRT...in addition to myself, I know of several other men that have maintained nut mass. " Perhaps " is perhaps a more appropriate term. OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 , Who you trying to flame? Can you address a person by their name? OR eon Queer Man! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 Heh, I wasn't intending to flame anyone... I was responding to your " perhaps " flame. Maybe I am in just one of those " sensitive " or aggressive moods today. Just seems every time I try to offer help on this list someone always has some sort of comment. Warning: Person posting this message is on testosterone and hCG therapy and may be considered drugged and dangerous! Hehe. Connery Email: jonathan@... <mailto:jonathan@...> Web: http://www.jonathanconnery.com <http://www.jonathanconnery.com/> " We must always strive to do the things we think we cannot do. " -Eleanor Roosevelt Re: Androgel and Testicular Shrinkage , Who you trying to flame? Can you address a person by their name? OR eon Queer Man! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 , I try to be very careful and qualify all my statements with a vigorous sprinkling of " perhaps " and " may " . As you stated yourself, there are no absolutes. When I was in grad school...several instructors would try drawing us in by wording T and F questions.... " all " , " every " etc. if you marked T your were wrong. My PSA runs 10 - 13 and has been elevating over time. Pathologist comment on two cores of my first TRUS prostate biopsy... " " The finding of high grade PIN on needle biopsies should instigate a careful search for accompanying adenocarcinoma which is present on repeat biopsy in 30% to 50% of patients. That was Feb '01 I'm a " the glass is half full type guy " the above statement can be turned around to read that " 50% to 70% of patients show no adenocarcinoma on repeat biopsy " . Had repeat TRUS May '02....12 cores collected...no adenocarcinoma. Your statement about X of Y men with diminished nut mass....then perhaps the sample size was not large enough. I've got a dig cam and I can send you and image. OR eon Really Queer P.S. I do think these discussions are healthy as long as we are gentlemanly and respect views of one another. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 > Heh, I wasn't intending to flame anyone... I was responding to your > " perhaps " flame. Oh, that was more of a spark than a flame. > Maybe I am in just one of those " sensitive " or > aggressive moods today. Just seems every time I try to offer help on > this list someone always has some sort of comment. As you observed there is a diversity of experience and people like to chime in with their own experiences. I wouldn't generally interpret comments as anything other than active participation. Of course civility is to be encouraged. Anyway, I think your posts are quite good. Besides we need good responses when someone asks " What's hcg? " for the 9,000th time... Brad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Don't forget that the statement is also another way of saying we are not sure. It is just a way for the medical community to cover themselves. But one interesting thing though. Your PSA is still going up with Arimidex. Do you take it daily or weekly. I take mine daily. For those who do not take Arimidex daily you might be causing a roller coaster effect with your Estrogen Levels. If you want sustained antiaromatization control then you have to take it daily. Re: Androgel and Testicular Shrinkage , I try to be very careful and qualify all my statements with a vigorous sprinkling of " perhaps " and " may " . As you stated yourself, there are no absolutes. When I was in grad school...several instructors would try drawing us in by wording T and F questions.... " all " , " every " etc. if you marked T your were wrong. My PSA runs 10 - 13 and has been elevating over time. Pathologist comment on two cores of my first TRUS prostate biopsy... " " The finding of high grade PIN on needle biopsies should instigate a careful search for accompanying adenocarcinoma which is present on repeat biopsy in 30% to 50% of patients. That was Feb '01 I'm a " the glass is half full type guy " the above statement can be turned around to read that " 50% to 70% of patients show no adenocarcinoma on repeat biopsy " . Had repeat TRUS May '02....12 cores collected...no adenocarcinoma. Your statement about X of Y men with diminished nut mass....then perhaps the sample size was not large enough. I've got a dig cam and I can send you and image. OR eon Really Queer P.S. I do think these discussions are healthy as long as we are gentlemanly and respect views of one another. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Dwight Meeks wrote.... " Don't forget that the statement is also another way of saying we are not sure. It is just a way for the medical community to cover themselves. But one interesting thing though. " >>>>>>>Dwight I use qualifiers all the time in emails, daily conservations...you're right it's another way of saying we are uncertain about something....but generally, since I'm a " the glass is half full type guy " , qualifiers are generally in a positive context. " If you establish a regular gym routine, you may/perhaps, change your physical body's appearance, and perhaps your self image " . Periodically, I see posts at ASI " You need to..... " , rather than, I would suggest.... " There are always individuals that are " controllers " want to tell us what to do, rather than make suggestions. " Your PSA is still going up with Arimidex. " >>>>>>>My PSA seems to hover around 10 I've posted this site a few times but it's worth posting again... http://www.t-mag.com/articles/171estro.html " Do you take it daily or weekly. I take mine daily. For those who do not take Arimidex daily you might be causing a roller coaster effect with your Estrogen Levels. " My estradiol/estrogen levels over time with Arimidex dosing Date ................................Estradiol........................Estrogen 9-28-00......................71 (<54) 12-19-00....................99 2-1-01.........................58 2-9-01.........................52 3-01-01.......................96 3-26-01.......................50 6-4-01.........................82..............................134 (40 -115) 7-9-00.........................55..............................200 8-2-01.........................87..............................198 Began 1 mg/dy Arimidex 9-29-01.......................37................................85 Began 1 mg Arimidex eod 11-2-01.......................59...............................101 Resumed 1 mg Arimidex/dy 12-5-01.......................50...............................124 3-11-02.......................16.................................44 1 mg Arimidex for two days....one day off 4-29-02........................27.................................73 7--3-02.........................52...............................112 Began Basic (7%) ChryDim Gel....Oct 16th '00 Began Super (10%) ChryDim Gel....Dec 25th '00 I'm still tinkering with Arimidex dosing....1 mg/dy brought Es down after two months...then reading posts here, I switched to 1 mg/eod...Es elevated..then I tried several other regimens. Yesterday, July 19th, I went back on injections (hurray!!!) 100 mg/wk...I've been taking 1 mg Arimidex/dy for couple of weeks now. I'll have T's and E's measured in ~two months. Off top of my head, I'm thinking that 1 mg two dys in a row followed by 0.5 mg....might work. " If you want sustained antiaromatization control then you have to take it daily. " " >>>>>>>>>>>>>Not sure about that...various factors probably have to be considered....maybe age...some of younger men here do well with 1 mg/eod. Form of external T, i.e. gel vs. injections. According to Shippen, injections cause most T > E conversion. Just my experiences... OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 > > Heh, I wasn't intending to flame anyone... I was responding to your > > " perhaps " flame. > > Oh, that was more of a spark than a flame. > > > Maybe I am in just one of those " sensitive " or > > aggressive moods today. Just seems every time I try to offer help on > > this list someone always has some sort of comment. > > As you observed there is a diversity of experience and people like to > chime in with their own experiences. I wouldn't generally interpret > comments as anything other than active participation. Of course > civility is to be encouraged. Anyway, I think your posts are quite > good. Besides we need good responses when someone asks " What's hcg? " > for the 9,000th time... > > Brad Guys I was just wondering. If the testosterone treatments shrinks your balls and then for some reason you decide to go off treatment do they return to there original size or are they shrunken forever . magna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Lex, Some people do not have testicular shrinkage. Others do. Mine are still shrinking, although at different rates. My right nut is about 1/3 it's original size. My left is about 1/2. In addition, I went through a period of several months where my penis shriveled up - looked like a charpei dog (the one with the wrinkled skin). The tissue inside seemed to be wasting away, and for a while it was almost all skin and a urethra. I think I lost length as well - maybe 3/4 inch (ouch!). I upped the T dose and now apply some Agel directly to penis. It is not back where it was, but is much more " normal " . Not sure what caused this, but I remember one guy on the forum who had his penis shrink up to an inch-long stub. Of course, the doctors don't mention any of this stuff when thy put you on these hormones.... Regards, K4 > My wife and I went through fertility testing last October. I was > diagnosed with low T, 223 total. My urologyst started me with depo > shots once a month 400mg. My sperm quality is much improved now > however my wife still isnt pregnant. > > I then saw an endrocronolgyst to figure out what was going on about > the low T. He sent me for a MRI to check for pituitary gland tumors. > Everything is normal and healthy. Also my hormones with the exception > of low T based on blood work are with in normal range, total T was > 331 2 months ago. He sent me on my way with a follw up in 6 months. > > Then about 2 monthes ago my urologist stopped giving me the shot and > put me on androgel instead... 1 packet of 5 mg a day. I will have > some tests today to see where my level is at now after being on the > Androgel. > > Now after doing more reading on the matter I have noticed that some > men complain of testicalar shrinkage while being on T replacement. > Should I worry about this happening to me? If this is a inevidable > part of T replacement then perhaps I should go off of the treatment. > I really dont want this happening to me. Also not to mention my > doctors have no explanation for the low T after so many tests, when > everything hormonally is normal. > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Fellow Group Memebers, I would like to thank you very much for all of the info you have provided me thus far. Most of which I have already read up on after al of the links you graciously provided to me. NO it seems that I have more questions. I have an appt with my urologyst this Thursday and hopefully will have mmore answers. After sveral visits and tests from my endo he seems to think that I dont need T replacement at all. That all of my hormones including LH levels are within normal. Also my T was at 336 (blood was drawn before my next T shot, 4 weeks had already passed) at my last blood draw from him. So I am totally confused. As far as he can tell I do not have any characteristics of having central hypogonadism and according to my hormone levels do not have secondary hypogonadism. He seems to think that I can go off of the T all together. Is it possible when I am having my blood drawn that I am having it done to late in the day? I read that blood should be taken when T levels are at their highest (morning), as apposed to when I have been having the draws, (late afternoon). That perhaps they are at their lowest then? Im not sure? All of this started so my wife and I could have kids, this is the course of treatment he has had me on so far, depo injections then Androgel instead of injections. I have become allot hairier since this began not to mention I dont have as many problems keeping an erection as I did before treatment. I am only 30 yo and seem normal other then the ed. Before I started treatment I weighed 340#, now I am 286# (working out has been really fruitful). Their have been allot of positive results of the T replacement. Now I am afraid that I go off of the treatment I will start to have more frequent ed, this could be a problem with trying to have a kid. I have not noticed any testicular shrinkage as of now, that I know of. However it does seem that my penis has become a bit longer, but I think I contribute that to the weight loss. The instruction for the Andro clearly said not to apply Andro to the penis and testicals, so I am kind of leary about doing that. Although doesnt the alcohol sting the glands a bit? I know long winded...(I know I repeated some info from my earlier post) Im not quite sure what to do. Tomorrow I am going to obtain my records and test results from the endo and be sure he didnt miss somthing. When he browses them over for only a few moments he could have really missed something important. If there is any more advice or tips I would really appreciate your time and efforts. Again thank you all so very much for being so supportive and helpful. Thank you, > > My wife and I went through fertility testing last October. I was > > diagnosed with low T, 223 total. My urologyst started me with depo > > shots once a month 400mg. My sperm quality is much improved now > > however my wife still isnt pregnant. > > > > I then saw an endrocronolgyst to figure out what was going on about > > the low T. He sent me for a MRI to check for pituitary gland > tumors. > > Everything is normal and healthy. Also my hormones with the > exception > > of low T based on blood work are with in normal range, total T was > > 331 2 months ago. He sent me on my way with a follw up in 6 months. > > > > Then about 2 monthes ago my urologist stopped giving me the shot > and > > put me on androgel instead... 1 packet of 5 mg a day. I will have > > some tests today to see where my level is at now after being on the > > Androgel. > > > > Now after doing more reading on the matter I have noticed that some > > men complain of testicalar shrinkage while being on T replacement. > > Should I worry about this happening to me? If this is a inevidable > > part of T replacement then perhaps I should go off of the > treatment. > > I really dont want this happening to me. Also not to mention my > > doctors have no explanation for the low T after so many tests, when > > everything hormonally is normal. > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 , Your post not long winded...IMO many posts here are too brief and give only scant details. What was your T level before you started TRT? This chart gives optimal Serum and Free T and SHBG levels in men by age groups. The same story heard many times, as long as your T level falls within testing lab's ref range, many docs consider you normal....even if for a 70 yo man. I'm 64 and I keep my T level in 700+ range. Glad to hear that you've not discerned any nut shrinkage....how long have you been on TRT? I started Feb '99. As far as putting AG on your cock n' nuts....Unimed does advise against that, but I think it's because of potential stinging of alcohol base. Everyone's skin sensitivity is different. Myself, I enjoy the mild, glowing sensation I get when I put AG on my cock n' nuts....it seems that I've developed tolerance as the sensation is not as intense as initially. I've gone back on injections, which I prefer over AG. I will continue putting AG on my cock n nuts periodically. Time for blood draw. I always like having first appt with my PCP, 8:30 AM, so my blood is generally collected 9:00 AMish. I know for natural T cycle, T levels are highest in the morning. I saw a figure once that extrapolated T level down if blood was drawn in afternoon....like ~30% lower....not sure. So perhaps someone more knowledgeable can comment....when one is on TRT, do T levels follow natural T production cycle. If your endo is uncooperative in letting you maintain an appropriate T level for your age, you might consider getting referral to another endo. For ED issues....Alt Support Impotence, Newsgroup and the web site http://www.communityzero.com/asi/index.cfm This is a new thread at the web site.... RE:RE:New endo doc -- what to expect So I follow this group, and both the ED sites. For me, not one site can provide all the information that I'm interested in. Good luck.. OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 , I failed to include link to chart on T/SHBG levels http://www.alt-support-impotence.org/hormone_charts.htm OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Lex, I would be very leery of an Endo who thinks a T level of 336 is OK. Not sure how old you are, but there is a link in the bookmarks section to a list of T levels by age. I'm 44, and the normal range for me is around 600. Your level of 336 is in the range for an 85 year old!!! Just to show you how dangerous this is, a friend of mine had a T level of 344 and he developed severe osteoporosis in his spine before he finally got treated with Androgel. Remember, just because your lab values fall in the range the laboratory considers " normal " does not mean its normal for YOU! If your Endo doesn't recognize this, he has a problem (and so do you!) Regards, K4 > > > My wife and I went through fertility testing last October. I was > > > diagnosed with low T, 223 total. My urologyst started me with > depo > > > shots once a month 400mg. My sperm quality is much improved now > > > however my wife still isnt pregnant. > > > > > > I then saw an endrocronolgyst to figure out what was going on > about > > > the low T. He sent me for a MRI to check for pituitary gland > > tumors. > > > Everything is normal and healthy. Also my hormones with the > > exception > > > of low T based on blood work are with in normal range, total T > was > > > 331 2 months ago. He sent me on my way with a follw up in 6 > months. > > > > > > Then about 2 monthes ago my urologist stopped giving me the shot > > and > > > put me on androgel instead... 1 packet of 5 mg a day. I will have > > > some tests today to see where my level is at now after being on > the > > > Androgel. > > > > > > Now after doing more reading on the matter I have noticed that > some > > > men complain of testicalar shrinkage while being on T > replacement. > > > Should I worry about this happening to me? If this is a > inevidable > > > part of T replacement then perhaps I should go off of the > > treatment. > > > I really dont want this happening to me. Also not to mention my > > > doctors have no explanation for the low T after so many tests, > when > > > everything hormonally is normal. > > > > > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 > I would be very leery of an Endo who thinks a T level of 336 is OK. > Not sure how old you are, but there is a link in the bookmarks > section to a list of T levels by age. I'm 44, and the normal range > for me is around 600. Your level of 336 is in the range for an 85 > year old!!! > GENTLEMEN....This is precisely what we need to educate ourselves about. " Normal " may not necessarily be so...nor is it OPTIMAL. I too had been denied treament, as a healthy 40 year old...with a Total T level of 240!!!!. This level falls withing the range considered normal, albiet, for that of an 85 year old man. I suffered all of the symptoms. Total impotence...shrinkage of penis..extreme fatigue..'Sore' body symdrome (which was treated with drugs, that exacted very bad side effects: ulcer from relafen...etc), I had no motivation was DEPRESSED. Basically, the quality of my life was dismal. Since starting HRT, which I was forced to obtain online.. THE QUALILTY OF MY LIFE HAS SKYROCKETED....TRULY REBORN. This account is no exageration. As mentioned in an earlier posting, my advice to you is; TAKE CONTROL OF YOUR OWN CIRCUMSTANCES. EDUCATE YOURSELF...LEARN FROM OTHERS...DO WHAT YOU MUST. (I do not, under any circumstances, advocate entering any treatment with disregard to healty and safety. Rule no. 1 : " Be prepared/ Be knowledgeable " ) This condition we have is treatable. Not everyone will respond the same, as our engines all run a little different...but consider the alternatives. I WILL NOT go back to where I was before. I invite my brothers to ask questions or respond. Singed, Hairy/Horny/Hard/Happy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Okay, lots to discuss: I agree with Kaitain4 that the level is far below what you should normally have as a 30 year old. I think the thing that may be throwing your doctor is because your LH/FSH levels are in the normal range (If I remember this right). When these levels are normal, the next things to check for are signs of Primary Hypogonadism. Just because your testes seem to be somewhat functioning, does not mean that you are not deficient. If it is idiopathic adult-onset Hypogonadism, then rarely do the testes cease to function like a switch, most often it is a more gradual process that slows before stopping. (Unless induced by some trauma, like injury or surgery.) I also agree that there will be fluctuations in readings between morning and evening draws. Those would vary due to your natural daily patterns. However, if you are undergoing T-therapy, then these patterns will not be impacted as greatly, it all depends on the percentage of testosterone being replaced vs. your natural production. Most importantly, 4 weeks seems to be far too long to schedule a draw after your last treatment. Within 4 weeks, I would guess that almost all of the testosterone from the injection had been depleted. I took my injections once every 2 weeks and I would start feeling somewhat worse 4 or 5 days before my next injection. But of course without replacement, my levels become nearly undetectable. (15 total T or so) Another thing I would recommend is trying to take a morning blood draw 1 week after your last injection, then sitting down with your doctor and discussing the results until you are satisfied. Lastly, if you do happen to be diagnosed as primary (never heard of central), I would suggest going off T-therapy, and having a sperm count done if you have not already. If this is too low, I would recommend looking into some sort of artificial insemination or a storage program. If you are primary and your testes are failing, you want to gather sperm before they go. Keep in mind that the T-therapy will also reduce sperm count. Please, do not take my word as correct. I am no doctor, just doing the best I can to control my own condition and help others. Always confirm this information with your endocrinologist. I wish you the best of luck. Regards, Connery Email: jonathan@... <mailto:jonathan@...> Web: http://www.jonathanconnery.com <http://www.jonathanconnery.com/> " We must always strive to do the things we think we cannot do. " -Eleanor Roosevelt Re: Androgel and Testicular Shrinkage Fellow Group Memebers, I would like to thank you very much for all of the info you have provided me thus far. Most of which I have already read up on after al of the links you graciously provided to me. NO it seems that I have more questions. I have an appt with my urologyst this Thursday and hopefully will have mmore answers. After sveral visits and tests from my endo he seems to think that I dont need T replacement at all. That all of my hormones including LH levels are within normal. Also my T was at 336 (blood was drawn before my next T shot, 4 weeks had already passed) at my last blood draw from him. So I am totally confused. As far as he can tell I do not have any characteristics of having central hypogonadism and according to my hormone levels do not have secondary hypogonadism. He seems to think that I can go off of the T all together. Is it possible when I am having my blood drawn that I am having it done to late in the day? I read that blood should be taken when T levels are at their highest (morning), as apposed to when I have been having the draws, (late afternoon). That perhaps they are at their lowest then? Im not sure? All of this started so my wife and I could have kids, this is the course of treatment he has had me on so far, depo injections then Androgel instead of injections. I have become allot hairier since this began not to mention I dont have as many problems keeping an erection as I did before treatment. I am only 30 yo and seem normal other then the ed. Before I started treatment I weighed 340#, now I am 286# (working out has been really fruitful). Their have been allot of positive results of the T replacement. Now I am afraid that I go off of the treatment I will start to have more frequent ed, this could be a problem with trying to have a kid. I have not noticed any testicular shrinkage as of now, that I know of. However it does seem that my penis has become a bit longer, but I think I contribute that to the weight loss. The instruction for the Andro clearly said not to apply Andro to the penis and testicals, so I am kind of leary about doing that. Although doesnt the alcohol sting the glands a bit? I know long winded...(I know I repeated some info from my earlier post) Im not quite sure what to do. Tomorrow I am going to obtain my records and test results from the endo and be sure he didnt miss somthing. When he browses them over for only a few moments he could have really missed something important. If there is any more advice or tips I would really appreciate your time and efforts. Again thank you all so very much for being so supportive and helpful. Thank you, > > My wife and I went through fertility testing last October. I was > > diagnosed with low T, 223 total. My urologyst started me with depo > > shots once a month 400mg. My sperm quality is much improved now > > however my wife still isnt pregnant. > > > > I then saw an endrocronolgyst to figure out what was going on about > > the low T. He sent me for a MRI to check for pituitary gland > tumors. > > Everything is normal and healthy. Also my hormones with the > exception > > of low T based on blood work are with in normal range, total T was > > 331 2 months ago. He sent me on my way with a follw up in 6 months. > > > > Then about 2 monthes ago my urologist stopped giving me the shot > and > > put me on androgel instead... 1 packet of 5 mg a day. I will have > > some tests today to see where my level is at now after being on the > > Androgel. > > > > Now after doing more reading on the matter I have noticed that some > > men complain of testicalar shrinkage while being on T replacement. > > Should I worry about this happening to me? If this is a inevidable > > part of T replacement then perhaps I should go off of the > treatment. > > I really dont want this happening to me. Also not to mention my > > doctors have no explanation for the low T after so many tests, when > > everything hormonally is normal. > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Does anyone know the significance of SHBG and T level. I " ve been reading that total T levels can be deceptive if not scaled with SHBG(Sex Hormone Binding Globulin) since this is what really determines the free levels in the blood. So if your total T is say 250 and your SHBG is way low...your true free T (the usable stuff) can still be normal?...... kaitain4 wrote: > Lex, > > I would be very leery of an Endo who thinks a T level of 336 is OK. > Not sure how old you are, but there is a link in the bookmarks > section to a list of T levels by age. I'm 44, and the normal range > for me is around 600. Your level of 336 is in the range for an 85 > year old!!! > > Just to show you how dangerous this is, a friend of mine had a T > level of 344 and he developed severe osteoporosis in his spine before > he finally got treated with Androgel. Remember, just because your lab > values fall in the range the laboratory considers " normal " does not > mean its normal for YOU! If your Endo doesn't recognize this, he has > a problem (and so do you!) > > > Regards, > > K4 > > > > > > > My wife and I went through fertility testing last October. I > was > > > > diagnosed with low T, 223 total. My urologyst started me with > > depo > > > > shots once a month 400mg. My sperm quality is much improved now > > > > however my wife still isnt pregnant. > > > > > > > > I then saw an endrocronolgyst to figure out what was going on > > about > > > > the low T. He sent me for a MRI to check for pituitary gland > > > tumors. > > > > Everything is normal and healthy. Also my hormones with the > > > exception > > > > of low T based on blood work are with in normal range, total T > > was > > > > 331 2 months ago. He sent me on my way with a follw up in 6 > > months. > > > > > > > > Then about 2 monthes ago my urologist stopped giving me the > shot > > > and > > > > put me on androgel instead... 1 packet of 5 mg a day. I will > have > > > > some tests today to see where my level is at now after being on > > the > > > > Androgel. > > > > > > > > Now after doing more reading on the matter I have noticed that > > some > > > > men complain of testicalar shrinkage while being on T > > replacement. > > > > Should I worry about this happening to me? If this is a > > inevidable > > > > part of T replacement then perhaps I should go off of the > > > treatment. > > > > I really dont want this happening to me. Also not to mention my > > > > doctors have no explanation for the low T after so many tests, > > when > > > > everything hormonally is normal. > > > > > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 , You can read some information at this site.... http://www.labcorp.com/ OR eon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 HI Everyone, I just got home from my endo visit (second opinion). This is the latest.... Since my hormone levels are normal, after viewing my labs and MRI report (pituitary gland normal) it seems that my testicals are not recieving the FSH/LH chemical signals in order to produce T. I show no obvious signs of primary hypogonadism, he recomended that I find a fertility specialist to start FSH/LH replacement. He said that type of treatment was to advanced for his practice. Also, he wasnt sure of any in Phoenix, Az. I have seen some material on this but would like to read more. Also he suggested that I stop with the Androgel. Because I am over 200 lbs that I have a higher chance or producing alot of estrogen becasue of the fatty tissues, although I am only at 26% body fat. He then suggested I go back onto depo shots. However, since my urologyst was only giving me 400mg once a month he would really like to see weekly injections instead. He did not recomend what kind of dosage...any ideas? I have an appt with my urologyst on Thursay to go over my latest labs, also to decide what to do about the Andro/depo issues. The endo was very concerned that a guy my age 30 shouldnt be having such problems. Tell me about it, LOL! Last lab being only 336 total T, 1 1/2 months ago. So now it seems I am at square one. The endo did say that if I can find FSH/LH treatment that after the mrs is pregenant that I should go back to T replacement. That my testicals will shrink in time. Very discerning. I am feeling at a pretty low mental state right now. I wish this wasnt happening. I have so much pressure on me...to sire a child (wife is really wanting a kid), to be fit and to be sane and healthy. Boo-hoo poor me, LOL! I hope if a specialist is found that my insurance will help me out. Ive heard that course of treatment can be very costly. I do know that my insurance company has paid for everything this far, including the womens fertiltiy clinic when my wife was getting tested. It does say they will cover most treatment except fertiltiy drugs, does this one count? Thank you , Quote Link to comment Share on other sites More sharing options...
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