Re: 41 severe ED and back from the specialist, I'm pissed

[Guest guest]

Hello -

I would make an appointment with an endocrinologist immediately.

In addition to T & Free T, have LH, FSH, Prolactin, and Estradiol

tests. I, too have above normal T (522) and low normal free T

(10.9). It could be that you have elevated prolactin and/or

estradiol levels, which would supress T production. You need to find

out if your brain and/or testes are the problem.

I also saw a urologist before seeing my endo and he wasn't that

helpful at all. Many people in the group have the same problem. You

need to aggressively seek treatment, while at the same time remain

patient and find out exactly what is wrong first. Good luck.

Dave K.

> Hi all, I'm new to this group. I posted whats below in another

group

> so it may be redundant to those members of both groups. Thanks to

> the many memebrs who've been supportive of both groups. I thought

> I'd post this here and see if anyone has any ideas.

>

> Hi all,

>

> Thought I'd keep everyone updated that's read my previous posts

> and/or had suggestions for me. I drove 3.5 hours to UCSF to visit

> the Uro super specialist only to be diasppointed once again. I was

> given a cursory physical exam and the two doctors examining me

> commented by sayin I am in very good physical health for my age.

>

> They wanted to do a doppler check on me to find out if there are

any

> physical problems so off we went to the doppler room. I thought

> doppler was some special procedure but it's not. All it is, is an

> ultrasound to check the arteries in the penis for blockage. Ok.

They

> have me strip down and lay on the table and do a flacid ultra

sound.

> Thye say it looks fine. The they tell me they are going to get my

> dick hard with a trimix injection. First injection and fifteen

> minutes later, I get about a 15% increase in size which I thought

> was odd. The doc giving me the ultrasound says everything looks

> good. But then the specialist comes in the room and sees it still

> soft and says its not supposed to be like that. So he has me

> stimulate for 5 mins. Nothing. Then he gave me a second injection,

> the maximum dose possible. After another 15 minutes and

stimulation,

> my erection is only 40%. The specialist says it should be standing

> like the gibralter rock but its not.

>

> They finish the ultrasound and said " well, everything looks good. "

> The specialist consuled me and said " You're in very good health and

> you should be getting errections. " But I'm not, I said. He

> refrenced that I must have been a heavy cocaine user at some time

in

> my life and killed my brain. What? I've never been a drug user! I

> showed him my tests that are above normal Total T, low normal free

> T and the extremely low percentage of free to normal T. He

> says " They are within range so thats not the problem. " I asked why

I

> dont get nocturnals, I dont have drive and why I cant get a dam

> erection. He says " Its appears to be in your head because you

appear

> to be in good physical health. " I'm so sick and tired of doctors

> making that statement because I look good!!!!! I've heard this too

> many times now!!!! I just want to choke the crap out of them!!! Do

> they say that to HIV patients too? That, " hey, you look good so we

> think you dont have aids even though the test says you do? "

>

> Despite the fact I didnt get an erection at full dose, I'm fine.

Its

> in my head. Yeah right. What a big f--ing waste of $2000 that my

> insurance wont cover. What kills me is that this guy blew off

> everything that says I have a physical problem because of the way I

> look. Man, if I could rob a bank and get away with it because " I

> look like a nice person " , maybe I'll change my carreer. The only

> thing I learned by going to this appointmetn is, nothing.

>

> Any suggestions from the group??????

[Guest guest]

Hi,

I agree you got ripped off. You have something out of the ordinary

wrong and they had nothing left in their tool box. They pronounced you

well and gave you the bill.

I figure the trimix was probably the right mixture and if your penis

was in good condition, you should have had a very firm erection.

I'm not a medical type but have been using trimix for over 10 years.

The interior of the penis is supposed to be a lacy set of blood

vessels that fill the interior of the cavity and swell when the penis

is erect. Smooth muscles control this blood flow.

Dr. Irwin Goldstein, Boston Univ., is the most famous urologist I know

about. He is world renouned and developed trimix. He also does repairs

on the blood supply to the penis if it has been damaged by injury or

abnormal development.

One of the biggest discoveries he made was the injury from bike seats,

mentioned in his books. One of which is " The Potent Male " . Venus

leakage of blood out of the cavity may be somthing he can care for if

that is your case.

He does by-pass surgery to the penis blood supply if needed to give

you back your erections.

ernestnolan

> Hi all, I'm new to this group. I posted whats below in another group

> so it may be redundant to those members of both groups. Thanks to

> the many memebrs who've been supportive of both groups. I thought

> I'd post this here and see if anyone has any ideas.

>

> Hi all,

>

> Thought I'd keep everyone updated that's read my previous posts

> and/or had suggestions for me. I drove 3.5 hours to UCSF to visit

> the Uro super specialist only to be diasppointed once again. I was

> given a cursory physical exam and the two doctors examining me

> commented by sayin I am in very good physical health for my age.

>

> They wanted to do a doppler check on me to find out if there are any

> physical problems so off we went to the doppler room. I thought

> doppler was some special procedure but it's not. All it is, is an

> ultrasound to check the arteries in the penis for blockage. Ok. They

> have me strip down and lay on the table and do a flacid ultra sound.

> Thye say it looks fine. The they tell me they are going to get my

> dick hard with a trimix injection. First injection and fifteen

> minutes later, I get about a 15% increase in size which I thought

> was odd. The doc giving me the ultrasound says everything looks

> good. But then the specialist comes in the room and sees it still

> soft and says its not supposed to be like that. So he has me

> stimulate for 5 mins. Nothing. Then he gave me a second injection,

> the maximum dose possible. After another 15 minutes and stimulation,

> my erection is only 40%. The specialist says it should be standing

> like the gibralter rock but its not.

>

> They finish the ultrasound and said " well, everything looks good. "

> The specialist consuled me and said " You're in very good health and

> you should be getting errections. " But I'm not, I said. He

> refrenced that I must have been a heavy cocaine user at some time in

> my life and killed my brain. What? I've never been a drug user! I

> showed him my tests that are above normal Total T, low normal free

> T and the extremely low percentage of free to normal T. He

> says " They are within range so thats not the problem. " I asked why I

> dont get nocturnals, I dont have drive and why I cant get a dam

> erection. He says " Its appears to be in your head because you appear

> to be in good physical health. " I'm so sick and tired of doctors

> making that statement because I look good!!!!! I've heard this too

> many times now!!!! I just want to choke the crap out of them!!! Do

> they say that to HIV patients too? That, " hey, you look good so we

> think you dont have aids even though the test says you do? "

>

> Despite the fact I didnt get an erection at full dose, I'm fine. Its

> in my head. Yeah right. What a big f--ing waste of $2000 that my

> insurance wont cover. What kills me is that this guy blew off

> everything that says I have a physical problem because of the way I

> look. Man, if I could rob a bank and get away with it because " I

> look like a nice person " , maybe I'll change my carreer. The only

> thing I learned by going to this appointmetn is, nothing.

>

> Any suggestions from the group??????

[Guest guest]

Unfortunately that is all too common with " invisible " illnesses. You

look fine so you must not be sick. Look for a new doc. I don't know

much about it, but I would think if the injections don't work then

there must be a problem.

Mark

[Guest guest]

The fact that you are not getting nocturnal erections is a big

concern. Your doctors comments are very odd, considering the

injections failed to work, that in itself warrants further

investigation. If your free T is low that also needs further tests.

> Hi all, I'm new to this group. I posted whats below in another

group

> so it may be redundant to those members of both groups. Thanks to

> the many memebrs who've been supportive of both groups. I thought

> I'd post this here and see if anyone has any ideas.

>

> Hi all,

>

> Thought I'd keep everyone updated that's read my previous posts

> and/or had suggestions for me. I drove 3.5 hours to UCSF to visit

> the Uro super specialist only to be diasppointed once again. I was

> given a cursory physical exam and the two doctors examining me

> commented by sayin I am in very good physical health for my age.

>

> They wanted to do a doppler check on me to find out if there are

any

> physical problems so off we went to the doppler room. I thought

> doppler was some special procedure but it's not. All it is, is an

> ultrasound to check the arteries in the penis for blockage. Ok.

They

> have me strip down and lay on the table and do a flacid ultra

sound.

> Thye say it looks fine. The they tell me they are going to get my

> dick hard with a trimix injection. First injection and fifteen

> minutes later, I get about a 15% increase in size which I thought

> was odd. The doc giving me the ultrasound says everything looks

> good. But then the specialist comes in the room and sees it still

> soft and says its not supposed to be like that. So he has me

> stimulate for 5 mins. Nothing. Then he gave me a second injection,

> the maximum dose possible. After another 15 minutes and

stimulation,

> my erection is only 40%. The specialist says it should be standing

> like the gibralter rock but its not.

>

> They finish the ultrasound and said " well, everything looks good. "

> The specialist consuled me and said " You're in very good health and

> you should be getting errections. " But I'm not, I said. He

> refrenced that I must have been a heavy cocaine user at some time

in

> my life and killed my brain. What? I've never been a drug user! I

> showed him my tests that are above normal Total T, low normal free

> T and the extremely low percentage of free to normal T. He

> says " They are within range so thats not the problem. " I asked why

I

> dont get nocturnals, I dont have drive and why I cant get a dam

> erection. He says " Its appears to be in your head because you

appear

> to be in good physical health. " I'm so sick and tired of doctors

> making that statement because I look good!!!!! I've heard this too

> many times now!!!! I just want to choke the crap out of them!!! Do

> they say that to HIV patients too? That, " hey, you look good so we

> think you dont have aids even though the test says you do? "

>

> Despite the fact I didnt get an erection at full dose, I'm fine.

Its

> in my head. Yeah right. What a big f--ing waste of $2000 that my

> insurance wont cover. What kills me is that this guy blew off

> everything that says I have a physical problem because of the way I

> look. Man, if I could rob a bank and get away with it because " I

> look like a nice person " , maybe I'll change my carreer. The only

> thing I learned by going to this appointmetn is, nothing.

>

> Any suggestions from the group??????