Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Thanks, Lynn. Thanks for sharing with us your observations on your husband's nodes and energy when using Iodoral. Very interesting. I hope you'll keep us informed of any other observations you hay have. I'm so sorry your report on the CLL list desolved into an acrimonious exchange when you reported it on another group. Iodine seems to bring forth very strong opinions from people! I find it all rather odd since we know so little about how iodine is actually functioning in the body. One of my reasons for starting this iodine group was that I couldn't find a place to talk about it. I brought it up on a few thyroid groups and quickly discovered that my comments were not welcome. I searched the , and couldn't find anything. So, I decided to start a group where it would be OK to talk about iodine. Since that time, I've noticed that iodine has become a more acceptable topic on various groups. One of the first signs that an idea's time has come seems to be that you get attacked for it. So, I'll be very interested to hear future developments with respect to CLL. Sounds like several people on CLL forum(s) were interested even though the one person was quite antagonistic. Thank you so much for sharing with us. Zoe My husband was diagnosed with CLL on 6/21/06, and I have read much about CLL since then. I have found references to iodine inducing apoptosis in breast and prostate cancer. but nothing about CLL and iodine. One anecdotal report is interesting, though. The wife of a CLL patient reported on a CLL list that they painted iodine tincture on a 2x2 square on his stomach for a month, and his lymph nodes had returned to normal, his hot flashes had disappeared, and he was feeling much better. I posted with my observation that my husband's nodes had diminished and his energy level had improved in the month he had been taking Iodoral. I posted references to this group and iodine4health. Unfortunately it devolved into a very acrimonious exchange with repeated commentary by one member that I was promoting a poison. It's unfortunate that reporting beneficial results and places to get more information could turn into such an ugly affair, but that was a real heads up on how any benefit from iodine is considered to be poppycock. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 I hate to sound dumb, but what is CLL?JackieOn Aug 31, 2006, at 1:48 PM, Zoe & wrote:Thanks, Lynn. Thanks for sharing with us your observations on your husband's nodes and energy when using Iodoral. Very interesting. I hope you'll keep us informed of any other observations you hay have. I'm so sorry your report on the CLL list desolved into an acrimonious exchange when you reported it on another group. Iodine seems to bring forth very strong opinions from people! I find it all rather odd since we know so little about how iodine is actually functioning in the body. One of my reasons for starting this iodine group was that I couldn't find a place to talk about it. I brought it up on a few thyroid groups and quickly discovered that my comments were not welcome. I searched the , and couldn't find anything. So, I decided to start a group where it would be OK to talk about iodine. Since that time, I've noticed that iodine has become a more acceptable topic on various groups. One of the first signs that an idea's time has come seems to be that you get attacked for it. So, I'll be very interested to hear future developments with respect to CLL. Sounds like several people on CLL forum(s) were interested even though the one person was quite antagonistic. Thank you so much for sharing with us. Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 CLL = chronic lymphocytic leukemia, the second most common form of adult blood cancer. The abbreviation was first defined in earlier posts yesterday or today about demythylation. You just jumped in on the discussion too late. Lynn Re: CLL I hate to sound dumb, but what is CLL? Jackie On Aug 31, 2006, at 1:48 PM, Zoe & wrote: Thanks, Lynn. Thanks for sharing with us your observations on your husband's nodes and energy when using Iodoral. Very interesting. I hope you'll keep us informed of any other observations you hay have. I'm so sorry your report on the CLL list desolved into an acrimonious exchange when you reported it on another group. Iodine seems to bring forth very strong opinions from people! I find it all rather odd since we know so little about how iodine is actually functioning in the body. One of my reasons for starting this iodine group was that I couldn't find a place to talk about it. I brought it up on a few thyroid groups and quickly discovered that my comments were not welcome. I searched the , and couldn't find anything. So, I decided to start a group where it would be OK to talk about iodine. Since that time, I've noticed that iodine has become a more acceptable topic on various groups. One of the first signs that an idea's time has come seems to be that you get attacked for it. So, I'll be very interested to hear future developments with respect to CLL. Sounds like several people on CLL forum(s) were interested even though the one person was quite antagonistic. Thank you so much for sharing with us. Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 >From: " Zoe & " <ZOEA@...> >Iodine seems to bring forth very strong opinions from people! I find it >all rather odd since we know so little about how iodine is actually >functioning in the body. Yes, it's like there was an attempt to drill it into people's heads that no one in America, or other civilized country could possibly have an iodine deficiency. Taking iodine is danerous, it couldn't possibly help someone with a thyroid problem because no one could possibly be iodine deficient. I've heard if you eat processed food, anything from a box, or restaurant you get plenty. Whereas there may be sodium or sal in such productst, that doesn't mean it's iodized, or has other sources of iodine in it. Not to mention, just because one might get 150 mcg of iodine per day, that's just the miniumun amount to prevent goiter, the outward appearance of goiter, and not necessarily all that everyone needs. Skipper Skipper _________________________________________________________________ Search from any web page with powerful protection. Get the FREE Windows Live Toolbar Today! http://get.live.com/toolbar/overview Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 well.... I think your comments were welcome on http://www.thyroid I remember your first emails! Gracia Thanks, Lynn. Thanks for sharing with us your observations on your husband's nodes and energy when using Iodoral. Very interesting. I hope you'll keep us informed of any other observations you hay have. I'm so sorry your report on the CLL list desolved into an acrimonious exchange when you reported it on another group. Iodine seems to bring forth very strong opinions from people! I find it all rather odd since we know so little about how iodine is actually functioning in the body. One of my reasons for starting this iodine group was that I couldn't find a place to talk about it. I brought it up on a few thyroid groups and quickly discovered that my comments were not welcome. I searched the , and couldn't find anything. So, I decided to start a group where it would be OK to talk about iodine. Since that time, I've noticed that iodine has become a more acceptable topic on various groups. One of the first signs that an idea's time has come seems to be that you get attacked for it. So, I'll be very interested to hear future developments with respect to CLL. Sounds like several people on CLL forum(s) were interested even though the one person was quite antagonistic. Thank you so much for sharing with us. Zoe .. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.7/434 - Release Date: 8/30/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.405 / Virus Database: 268.11.7/434 - Release Date: 8/30/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Thanks, Gracia. well.... I think your comments were welcome on http://www.thyroid I remember your first emails! Gracia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 >>I have been trying a lot of alternative treatments that I have researched for my husband and this is a winner along with zink every other day and green tea capsules,and the prescription singulair as it works on the leukertrions(spelled that wrong) Lynn got into the fray at the CLL site and I did not. She had a very poor response from them..It did get nasty. >> Well, it won't get nasty here;-D. I am so glad, in a weird way, that there are now what, 4 of us here? I'm beginning to doubt the statistics on CLL since it is held that only 8, 000 people are dxed each year. Eight thousand out of 300 million and it hits me and you and you and you? Bull fritters. And it's not passed on in families? Oh yes it is. That's so great about your idione results and zinc and green tea and singulair. I had spontaneous node reduction for about a month or so and now one side is growing back. I think I'll try iodine again and see what happens. What do you mean "the backward disease" Im curious. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Jane, I have read in numerous websites that CLL is technically a Non-Hodgkin's lymphoma. And small cell lymphoma (CLL) is considered the same disease as CLL (chronic lymphocytic leukemia). But even though there may be disagreement about this, I don't know that it makes that much difference what we call it. I also have noticed the irony that the literature says the more aggressive forms of lymphoma can be cured but CLL can't. But I do know a guy who says his CLL was cured by Insulin Potentiation Therapy (IPT), and there's a report on Ralph Moss' site about a guy that was cured by TCM (Traditional Chinese Medicine) herbs. But anecdotal reports don't count. The book I read about IPT says the less aggressive cancers are harder to cure. Lynn Re: CLL LynnM, I don't think CLL is a lymphoma at all but a leukemia, although it can transform. Funny how CLL can change into say AML (leuk to lymph) while CLL is *not* curable but Lymphoma is? Seems like we ought to try to make this thing jump the gap on over, doesn't it? They don't know what they are doing, Im telling you. Doctors that is. Jane _ _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 My Oncologist/Hematologist said Leukemia is a form of Lymphoma. But then he never takes the time to explain. Medicine is still in its infancy and CLL research has a long way to go. Doctors don't have a lot of answers to my questions, I just make them frustrated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Lynn, Yer right, it doesn't matter to us. I'm just knocking the confused establishment. Who is the cured guy who used ITP? Would he take an email? And what does the book say exactly about its reasoning for less aggressive cancers (leukemia included?) being easier to cure. I'm intrigued. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 I answered Jane in a private email. If anyone else wants this info, let me know. Lynn CLL = chronic lymphocytic leukemia IPT = insulin potentiation therapy Lynn, Yer right, it doesn't matter to us. I'm just knocking the confused establishment. Who is the cured guy who used ITP? Would he take an email? And what does the book say exactly about its reasoning for less aggressive cancers (leukemia included?) being easier to cure. I'm intrigued. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 I do. Thanks On Sep 6, 2006, at 10:28 PM, Lynn McGaha wrote: > I answered Jane in a private email. If anyone else wants this info, > let me know. > Lynn > > > CLL = chronic lymphocytic leukemia IPT = insulin potentiation > therapy >> Lynn, >> >> Yer right, it doesn't matter to us. I'm just knocking the confused >> establishment. >> >> Who is the cured guy who used ITP? Would he take an email? >> >> And what does the book say exactly about its reasoning for less >> aggressive cancers (leukemia included?) being easier to cure. I'm >> intrigued. >> >> Jane > Parashis artpages@... zine: artpagesonline.com portfolio: http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2007 Report Share Posted August 1, 2007 Hi, Tedd and All, I just joined this group however I am not new to Dr 's protocol - I have all 4 of her books trying to figure out the best and quickest way to help my husband who has CLL. This is not an easy way but I think it makes most sense. I read with interest about your mother and wife who you've helped. You are amazing. Would it be possible for you to share how you managed to do that? Especially how you've managed to control your mothers CLL? I would be immensely grateful for your help as I am frantically looking to help my husband. I will be awaiting your answer. Sincerely Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2007 Report Share Posted August 2, 2007 : I am sorry to hear about your husband; I understand how you must feel at this time. I will be glad to provide for you those things that have given the greatest benefit to my mom. Please e-mail me at watching@.... Tedd CLL Hi, Tedd and All, I just joined this group however I am not new to Dr 's protocol - I have all 4 of her books trying to figure out the best and quickest way to help my husband who has CLL. This is not an easy way but I think it makes most sense. I read with interest about your mother and wife who you've helped. You are amazing. Would it be possible for you to share how you managed to do that? Especially how you've managed to control your mothers CLL? I would be immensely grateful for your help as I am frantically looking to help my husband. I will be awaiting your answer. Sincerely Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 I just joined this group last week and have a question for all of you. My father has chronic lymphocytic leukemia (CLL). He was diagnosed with it at least about 8 years ago. The oncologist is pressuring him to do chemo but he has refused. We're fortunate that our family doctor is very open to alternative treatments. He also sees a naturopath on a regular basis and he and our family physician know each other. I could probably talk him into doing chemo but believe that (a) it's his decision and ( chemo doesn't resolve the problem but ends up creating more problems. My dad is very into alternative treatments for ANY problem, including this one, and, thus far, he has managed to deal with the disease. He just turned 81 at the end of February, is very alert and active, goes to the gym regularly (I bought him a membership a couple of years before he retired and we usually go together and spend 1.5 - 2 hrs there, half the time doing cardio, the other half working with weights ... not bad for someone 80+!!). His white cell count is in the low 200 range. His hemoglobin levels have been lower than they should be for about the last year. He's lost some weight just in the last few weeks, but that's because we've all had this flu bug. He's normally around 160-165 lbs at 5'10 " . He often feels tired but he says he has no pain. He has numeorus lumps (tumors) in his neck, armpit and groin areas, varying in size but they cause him no pain. He seems to have managed to get rid of some of them on one side. He only feels discomfort if the lump in his abdomen presses against one of his organs. I give him B12 shots (from the naturopath) on a weekly basis. He's been having some water retention in his lower legs the last 6 months or so. More than anything this condition affects him on an emotional level ... he has some really black mood swings and his naturopath agrees with me that he has " clinical depression " . He is otherwise is pretty good health and quite active, mentally and physically. Sorry about the lengthy monologue, but I wanted to let you know his full condition. Are any of you aware of what he can do in order to bring up his hemoglobin levels, bring down the white cell count and improve his moods? And generally just how to cure this damn disease?! Yes, I know, it's a tall order ... and if we did, nobody would have the disease! I would appreciate whatever advice I can get. Thanks in advance. Vera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Hi Vera, May I suggest you consider Low Dose Naltrexone as a treatment option for your father. To learn more, visit http://tinyurl.com/2p57xv Sincerely, Dudley Delany dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 I would contact www.Bioimmune.com/services/clinic_directory/index.asp (formerly CancerOption.com) 888-663-8844 or 480-778-1618 and ask them for names of practitioners they've trained who are in your area. I think their protocol is superb, particularly for leukemia. Other highly effective treatments for CLL: ARTEMISININ, OLIVE LEAF, CARNIVORA (venus flytrap), PAU D'ARCO, HOXSEY (w/POKE), olive leaf, resveratrol, BEETS, IV vit. C, PANCREATIN (large amounts), CHLOROPHYLL, green tea, acai; frankincense, lavender, Exodus II? (YoungLivingOils.com) essential oils; “GENISTEIN [in fermented soy]…CURCUMIN…with genistein….Flax seed oil†Gammill, 10/04; bitter almonds, laetrile; antifungals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 So glad to see your suggestions, Leonard. I'm happy and a bit releived to report that my husband, , will be starting artemisinin this coming Monday. From the get-go he has been taking standardized green tea extract and curcumin and has been drinking freshly juiced veggies daily. I will investigate some of your other interesting suggestions. Warm wishes to all, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2011 Report Share Posted May 1, 2011 Beverley,If anything, CLL is most likely independent of Samter's, which affects T-cells, not B-cells. A number of cases of CLL are linked to pesticide exposure. Curcumin (the spice) and EGCG (the green tea polyphenol) seem useful in addition to regular treatment.Clin Adv Hematol Oncol. 2011 Jan;9(1):22-31.Maintenance therapy for B-chronic lymphocytic leukemia.O'Brien S, Kay NE.SourceDivision of Hematology, The University of Texas M.D. Cancer Center, Houston, TX 77030, USA. sobrien@...AbstractAlthough modern treatment options for B-chronic lymphocytic leukemia (CLL) produce high response rates, virtually all patients relapse, presumably due to the persistence of minimal residual disease (MRD). Novel approaches that maintain response and therefore delay growth of MRD may ultimately improve survival outcomes. In CLL, any type of continued therapy must be not only well tolerated but also convenient to ensure compliance. There has been some exploration of rituximab as maintenance therapy in CLL; however, given its limited clinical activity as a single agent, other options need to be studied. One such agent is the immunomodulatory drug lenalidomide, which has demonstrated clinical activity both in patients with relapsed or refractory CLL and in the frontline setting. Other attractive agents being explored in the maintenance setting include epigallocatechin gallate, curcumin, and the citrus pectin-derived galectin-3 inhibitor GCS-100. These naturally occurring compounds are well tolerated, and they inhibit survival signals in the microenvironment necessary for tumor development, making them well suited for evaluation as maintenance therapy for CLL.>> Does any one have CLL - chronic lymphocytic leukamia - in addition to Samters? > > Beverley> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2011 Report Share Posted May 2, 2011 Thanks asfy. My interest lies in the inflammation angle - I also have osteoarthtritis as well as asthma and sinus polyps. Most of the time I think it is just bad luck my B cells decided to mutate and become useless. It is hard to stop trying to find causes for my various ailments in the hope that doing so might produce a path to wellness or save others from becoming unwell in the same way. I did read that aspirin have beneficial effects and also that Singulair seems to be helpful too. I am not current desensed to aspirin but am considering giving it another go, but probably not until after my next sinus surgery (if I can overcome my anxieties about that!) Thanks for all the info - helpful as usual. :-) Beverley Quote Link to comment Share on other sites More sharing options...
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