Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Hi. I have a little boy who is almost 3 years old. He developed autism a year ago. For the past 10 months we have been trying to help him through biomedical means - diet and supplements to heal the gut. I spend several hours a day researching the biomedical treatment of autism to try to help him get better. Most parents who implement all the interventions that we have get some progress. Unfortunately, my son has continued to regress and is very unhappy. I feel like there is something stopping our interventions from working. An interesting thing about my son is that he has a HUGE appetite. Most kids with autism are picky eaters but he will eat anything and is always begging for food. He eats more than an adult. 2-3 pounds of turkey, 10 large carrots at a time. I can never cook fast enough. He does suffer from malabsorption and candida as do almost all kids with autism. Some have told me that these are the likely causes of his appetite. Others have told me that with an appetite that big he must have a very large tapeworm living inside him. We did a stool test last year and it was negative but I understand that those tests are often not accurate. I had had parasites through travel but I thought I had gotten rid of them before he was born through an herbal cleanse. I understand that there are also blood tests for specific parasites and worms. I could ask the doctor if we could run those tests. I understand that the drugs to treat parasites are very hard on the liver. The alternative doctor that we see said that herbs like black walnut and wormwood could be dangerous for a 3-year old. However, leaving parasites in his body could be worse. Nevertheless, I would feel more confident treating him for parasites/worms if I was sure he had them. Also, it would be good to know if we were dealing with microscopic bugs or something much larger because it would probably influence how we would proceed. I also do not want to try a whole bunch of little things that aren't that powerful if we are dealing with a persistent creature. I have already tried putting cloves in his pear juice and it didn't do anything. I want to create a solid game plan. I have looked a bit at the Web sites that have info. about Dr. and there is a lot there. I don't know where to start and I am anxious to act. I called some veterinary clinics and they said tapeworm/parasites are easy to get rid of (cats & dogs). I don't really know how much help there is for humans. I feel like we should be doing this under the supervision of a doctor or naturopath, especially since he is so young and the way he eats and begs for food I just picture this huge creature living inside him. If it comes out alive it will be scary and if we kill it inside him it might create a very big die-off that might be hard on his body. I should also say that my son is not overweight, nor underweight but he has a belly that really sticks out and is very firm. He has normal bowel movements every day. Sometimes output does not seem to reflect input. I might have seen tiny white specks in his stool on occasion but I am not sure. My son will eat any food. We currently have him on a diet that consists of mostly meat and vegetables. He really loves his meat and needs protein first thing in the morning. He has even woken up in the middle of the night asking for turkey. Does anyone have any suggestions for the best way to proceed, both in terms of testing and treatment? What is the likelihood that he has a large tapeworm inside him? How easy will it be to get rid of this and prevent it from coming back? Sorry this post is so long. If anyone has time to read it and has insight into our problem, I'd love to hear from you. Thanks, Hope Sylvie mother of Gibson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 Hope Sylvie: I am also the mother of autistic children (3), all of whom have made amazing progress towards recovery. Here's my advice: (1) DIET. Gluten free, casein free, which you may already be implementing. I also do not allow my children to consume anything with a dye, artificial ingredient, or artificial flavor. Since your son will eat anything, I STRONGLY, STRONGLY urge you to get him on the Specific Carbohydrate Diet ( " SCD " ) IMMEDIATELY. Parents have cured their children of autism just with the diet. He will stop begging to be fed constantly. Information on SCD: http://www.pecanbread.com/ http://www.breakingtheviciouscycle.info/ Parental support group for parents with children on the spectrum implementing SCD: pecanbread/ (2) ENZYMES. I use Houston's & I use all 3 (no-fenol, AFP Peptizyde, & HN Zyme Prime) for all meals. Link: http://216.114.78.114/webcenter/sites/hni/ To learn more about enzymes, consider visiting DeFelice's website: http://www.enzymestuff.com/index.htm I bought and read DeFelice's book which is shown on the home page of that website. It's excellent. She also runs an excellent group: / (3) NAET. Here's the protocol you want if you can get it: http://www.aaamps.net/ If you can't do that protocol, it would still be worth it to try NAET. The reason I wanted to do NAET is that I was continually seeing autistic adults post that NAET helped them eat more foods & lessened their allergies. (4) ENVIRONMENTAL CHANGES. I follow Dr. 's radical beliefs in this area. I started making changes in my home after I read Slimak's article: http://www.immuneweb.org/articles/slimak.html and Dr. 's " The Cure for All Diseases. " Slimak, an environmental expert, postulates that only 1/3 of the problem with autism is food allergies: the other 2/3 is due to environmental allergies & toxins, particularly VOCs, which Dr. also warns against. If you have a gas heating system, a gas dryer, a house full of carpeting, flame retardent mattresses, polyester clothing & bedding, and you use store bought cleaners & detergent . . . well you have a lot of work to do. Personally, I treat my kids as though they have MCS (Multiple Chemical Sensitivity) and order products designed for those with this ailment. Try: http://www.janices.com/ for starters. I order shampoo & soaps from Self Health. I am also starting to order organic clothing. Dr. was right on the money with her house clean-up advice. Go for it! (5) ABA & SPeech therapy. (6) CRANIAL SACRAL THERAPY. They will work on your child and then say: " I think you're going to see big changes in so-and-so this week " and sure enough you will. One time I was told " He will be more emotional this week " and that week he was weepy and told me he loved me for the first time. It's mind blowing stuff. No miracles overnight, but the progress overall is terrific. (7) Auditory Integration Therapy ( " AIT " ). Before AIT, my 2nd child would constantly chew on his hand or his shirt. He would also hold his hands over his ears a lot. Both stopped completely with AIT overnight. He also became unbelievably independent overnight with AIT. He had to open his car (and any other) door and shut it himself. This was unexpected and a little tough to deal with, but any signs of independence were welcome at that point. He could then dress himself too. (8) CHIROPRACTIC CARE. One theory behind chiropractic care is that if your spine is healthy and properly aligned, you'll be healthy and your body will heal itself. This is so true (if you find a good chiro!!!). None of my 3 kids have had to take any antibiotics or fever reducers (they're bad too unless you've got HIGH fever) this winter which is a minor miracle for us. We were constantly sick last year. (9) PRISM LENSES & EYE THERAPY. See http://www.autism.org/interview/kaplan.html http://www.autisticvision.com/index.htm 10) DO NOT EVER VACCINATE YOUR CHILD AGAIN. I mean it. Some parents started down the road to recovery only to have a well-intentioned though ignorant doctor talk them into one more shot, usually the Tetanus, only to have the child slip away for good. JUST SAY NO! Other links of interest in your research: a) http://www.autismrecovered.com. We use the supplement used to help cure this child of autism: gluconutrients. HIGHLY recommend them. http://www.autismrecovery.com/ c) http://www.factsformedia.com/ d) http://www.danasview.net/ e) abmd/ f) /messages How's that for starters? You can email me privately any time with any questions or for some help. To give you hope, my most affected child was diagnosed as severely autistic last January and now no one not connected with autism has any clue that anything is wrong with him. I have not done any chelation as I believe at this time it's too harsh on their weakened bodies. Best of luck in this trying time! Lorna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Lorna, An excellent post! Do you mind if I borrow this for my local Autism group? - > Hope Sylvie: > > I am also the mother of autistic children (3), all of whom have made > amazing progress towards recovery. Here's my advice: > > (1) DIET. Gluten free, casein free, which you may already be > implementing. I also do not allow my children to consume anything > with a dye, artificial ingredient, or artificial flavor. Since your > son will eat anything, I STRONGLY, STRONGLY urge you to get him on > the Specific Carbohydrate Diet ( " SCD " ) IMMEDIATELY. Parents have > cured their children of autism just with the diet. He will stop > begging to be fed constantly. Information on SCD: > http://www.pecanbread.com/ > http://www.breakingtheviciouscycle.info/ > Parental support group for parents with children on the spectrum > implementing SCD: pecanbread/ > > (2) ENZYMES. I use Houston's & I use all 3 (no-fenol, AFP > Peptizyde, & HN Zyme Prime) for all meals. Link: > http://216.114.78.114/webcenter/sites/hni/ > To learn more about enzymes, consider visiting DeFelice's > website: http://www.enzymestuff.com/index.htm I bought and read > DeFelice's book which is shown on the home page of that > website. It's excellent. She also runs an excellent group: > / > > (3) NAET. Here's the protocol you want if you can get it: > http://www.aaamps.net/ If you can't do that protocol, it would still > be worth it to try NAET. The reason I wanted to do NAET is that I was > continually seeing autistic adults post that NAET helped them eat > more foods & lessened their allergies. > > (4) ENVIRONMENTAL CHANGES. I follow Dr. 's radical beliefs in > this area. I started making changes in my home after I read > Slimak's article: > http://www.immuneweb.org/articles/slimak.html and Dr. 's " The > Cure for All Diseases. " Slimak, an environmental expert, > postulates that only 1/3 of the problem with autism is food > allergies: the other 2/3 is due to environmental allergies & toxins, > particularly VOCs, which Dr. also warns against. If you have a > gas heating system, a gas dryer, a house full of carpeting, flame > retardent mattresses, polyester clothing & bedding, and you use store > bought cleaners & detergent . . . well you have a lot of work to do. > Personally, I treat my kids as though they have MCS (Multiple > Chemical Sensitivity) and order products designed for those with this > ailment. Try: http://www.janices.com/ for starters. I order shampoo & > soaps from Self Health. I am also starting to order organic clothing. > Dr. was right on the money with her house clean-up advice. Go > for it! > > (5) ABA & SPeech therapy. > > (6) CRANIAL SACRAL THERAPY. They will work on your child and > then say: " I think you're going to see big changes in so-and-so this > week " and sure enough you will. One time I was told " He will be more > emotional this week " and that week he was weepy and told me he loved > me for the first time. It's mind blowing stuff. No miracles > overnight, but the progress overall is terrific. > > (7) Auditory Integration Therapy ( " AIT " ). Before AIT, my 2nd child > would constantly chew on his hand or his shirt. He would also hold > his hands over his ears a lot. Both stopped completely with AIT > overnight. He also became unbelievably independent overnight with > AIT. He had to open his car (and any other) door and shut it himself. > This was unexpected and a little tough to deal with, but any signs of > independence were welcome at that point. He could then dress himself > too. > > (8) CHIROPRACTIC CARE. One theory behind chiropractic care > is that if your spine is healthy and properly aligned, you'll be > healthy and your body will heal itself. This is so true (if you find > a good chiro!!!). None of my 3 kids have had to take any antibiotics > or fever reducers (they're bad too unless you've got HIGH fever) > this winter which is a minor miracle for us. We were constantly sick > last year. > > (9) PRISM LENSES & EYE THERAPY. See > http://www.autism.org/interview/kaplan.html > http://www.autisticvision.com/index.htm > > 10) DO NOT EVER VACCINATE YOUR CHILD AGAIN. I mean it. Some parents > started down the road to recovery only to have a well-intentioned > though ignorant doctor talk them into one more shot, usually the > Tetanus, only to have the child slip away for good. JUST SAY NO! > > Other links of interest in your research: > a) http://www.autismrecovered.com. We use the supplement used to help > cure this child of autism: gluconutrients. HIGHLY recommend them. > http://www.autismrecovery.com/ > c) http://www.factsformedia.com/ > d) http://www.danasview.net/ > e) abmd/ > f) /messages > > How's that for starters? You can email me privately any time with any > questions or for some help. To give you hope, my most affected child > was diagnosed as severely autistic last January and now no one not > connected with autism has any clue that anything is wrong with him. I > have not done any chelation as I believe at this time it's too harsh > on their weakened bodies. > > Best of luck in this trying time! > > Lorna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Thanks Everyone for all your input. We plan to take action soon. I will let you know how it goes and what happens. Hope Quote Link to comment Share on other sites More sharing options...
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