IEP

[Guest guest]

Terry:

I'm glad the school is being so helpful. Nonetheless, an ounce of parental

input into the process is worth a pound of the school's input. An excellent

site for IEP suggestions is Barb Kirby's AS site

http://www.udel.edu/bkirby/asperger/. Also, I highly recommend Teaching the

Tiger, which has been referred to numerous times on this list. It is a

wonderful source of ideas for modifications/accommodations for children with

ADD/OCD/TS. Please don't sign the IEP until you are satisfied that it is what

YOU want. Take a copy home and review it. Make sure that there are adequate

provisions for evaluation of progress toward goals that are measurable. Barbara

Bateman's book, Better IEPs, can also give you ideas. It also needs to be clear

that the IEP team will meet periodically to review and/or change the IEP to

better meet your child's goals. You are, of course, free to request a meeting

at any time.

Hope this helps.

Jule

[Guest guest]

Thanks Jule, you're always very helpful.

Terry

Re: IEP

>

>

> Terry:

>

> I'm glad the school is being so helpful. Nonetheless, an ounce of

parental

> input into the process is worth a pound of the school's input. An

excellent

> site for IEP suggestions is Barb Kirby's AS site

> http://www.udel.edu/bkirby/asperger/. Also, I highly recommend Teaching

the

> Tiger, which has been referred to numerous times on this list. It is a

> wonderful source of ideas for modifications/accommodations for children

with

> ADD/OCD/TS. Please don't sign the IEP until you are satisfied that it is

what

> YOU want. Take a copy home and review it. Make sure that there are

adequate

> provisions for evaluation of progress toward goals that are measurable.

Barbara

> Bateman's book, Better IEPs, can also give you ideas. It also needs to be

clear

> that the IEP team will meet periodically to review and/or change the IEP

to

> better meet your child's goals. You are, of course, free to request a

meeting

> at any time.

>

> Hope this helps.

>

> Jule

>

>

>

>

> You may subscribe to the OCD-L by emailing listserv@... . In

the body of your message write: subscribe OCD-L your name. You may

subscribe to the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access the

files, links, and archives for our list at

. Our list advisors are Tamar

Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are

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Roman, and Jackie Stout. Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at harkins@... .

>

>

>

[Guest guest]

In a message dated 1/25/01 10:06:11 PM, egroups writes:

>>From: Roxhopp@...

I am about to go through the dreadful process for the first time :-(

Does anyone know of a website I can look at for help. Also I hear there is a

place with the forms online. >>

a couple of suggestions to begin with:

1. Download and print out a copy of IDEA....read it, using a highlighter to

mark pertinent info.

2. Find a support group in your area to attend, hopefully they will have

guess speakers and workshops.

3. Check with your local community colleges or university and see if they

offer courses in IEP writing, if so, take it.

4. Check with local advocacy groups to see what type of workshops/training

they offer.

5. Call your state Department of Education/special education and get any and

all materials and information they have.

There are no standard IEP forms. Each school is allowed to make their own

form. They do however have to contain certain common/standard information

according to the law under IDEA and your own state law. Remember that the

individual states may add to but not take away from the requirements of

Federal IDEA law.

You can contact your local school and receive a blank copy of the forms they

use, usually refered to as an IEP packet.

some sites to visit include:

<A HREF= " http://www.nichcy.org/ " >NICHCY</A>

<A HREF= " http://www.ed.gov/offices/OSERS/index.html " >Office of Special

Education and Rehabilitati…</A>

<A HREF= " http://www.edlaw.com " >EdLaw</A>

<A HREF= " http://www.reedmartin.com " > </A>

<A HREF= " http://wrightslaw.com/ " >slaw - Special Education Law & Advocacy

</A>

Green

Mom to 17/ds

[Guest guest]

Hi,

Not sure about websites, but the book we use in our workshops is called,

Negotiating the Special Education Maze: A Guide for Parents and Teachers.

The authors are Winifred , Chitwood and Deidre Hayden. It's

now in its 4th or 5th edition and is updated regularly. Lots of good

information, step-by-step through the process and even includes a whole

section on IFSP's.

Hope this helps,

Fran

[Guest guest]

<<. Last September the Psychologist attending his IEP said that " in

his opinion " 's behaviors and loss of skills (lost speech by age 3

yrs, etc.) were due to his level of retardation, not autism. Then later on

he went on to say something about 's behaviors being autistic and I

told him he couldn't have it both ways. Either he HAS autism, or he

doesn't.

He didn't answer me, but the dx of autism still stands in his IEP. I think

the guy was just new and trying to make a " statement " . LOL Unfortunately,

he picked the wrong kid with the wrong mom on the wrong day! LOL

Terry >>

Terry,

It's Wed. morning & I've been thinking of you & a lot. Many

prayers & good wishes. I'm getting caught up on some old posts & am trying

to keep my mind off my up-coming meeting with the principal! Anyway, with

regards to the above, I hope I have the courage to call these guys on this

sort of thing - I think they picked the RIGHT KID WITH THE RIGHT MOM ON THE

RIGHT DAY!!! Way to go! You inspire me!

[Guest guest]

a,

.. They added bicycle safety and riding to his

> PE somewhere under adaptive requirements, whew! and he

> gets to ride his bike for some SI too on occasion in

> the gym.

How, pray tell, did you get bicycles in his IEP?????

I have been trying since preschool, and everyone I have talked to, both

in Cincinnati and Las Vegas, insist that bicycle riding is NOT an

educational goal and they won't include it. Matt will not even sit on a

trike yet! And he will be 11 on Thursday. He is so " earth bound " and

unsure of himself. I have brought this up repeatedly,b ut they say he is

" functional " at school, will climb the steps needed to get into the

portable, and will even get on the playground equipment, but he will not

do any kind of wheeled playtoy.

Suggestions?

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

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[Guest guest]

In a message dated 8/20/01 11:52:47 PM Eastern Daylight Time,

mashawnag@... writes:

> Sooo, all please pray that tomarrow

> goes smoothly,heheh, eventhough schedules are still a

> mess at school and homeit will all work out. prayers

> for everyone starting their schooling wheather public,

> private or at home this week goes well. shawna.

>

Congrats on the good IEP a!! Feels so good when that happens, doens't

it? Maddie is home for two weeks, then starts back after Labor Day.

That's when all the schools start here. Cept for (my 18 yo) who we

just dropped off at college on Sunday (BOO HOO). I miss her desperately

already!!

Donna

[Guest guest]

It would go under adaptive PE requirements.Maybe check

with your OT, if they are being poopoo about it, get a

really good advocate that knows the laws and rules for

this. Its good for many things to learn to pedal a

bike/trike. All of our early intervention schools help

teach this with special pedals ect., Its a

developmental thing i do beleive. Benefits to riding:

learn road/travel safety and independence for when an

adult,go to work or store, or activities, not likely

that my nathan will ever drive a car. Excellent source

of excercise which leads to better weight management,

stronger heart, stronger leg muscles for walking,etc

etc healthy reasons. And its an awesome SI tool, he

gets to ride in the gym and when nice out to errands

and music, sometimes they even mentioned riding with a

peer student around the school...coool huh, this helps

nathan relax so that he is more attentive to his

academics. Oh and it helps teach directions and

balance some too, even though its a trike. is

starting to get left and right a little ive noticed

when riding with him he will say the direction we are

turning sometimes b4 i do, neat huh. Also, riding a

bike or trike makes him more apt for peer social

activities, many boys and girls ride their bikes here

and there, we did often tothe pool and library daily.

I dont know if any of these ideas will help persaide

them, GAIL!!??? You are really great in the advice

area got any tips? shawna.

__________________________________________________

[Guest guest]

In a message dated 8/20/01 8:52:44 PM Pacific Daylight Time,

mashawnag@... writes:

<< Sooo, all please pray that tomarrow

goes smoothly,heheh, eventhough schedules are still a

mess at school and homeit will all work out. prayers

for everyone starting their schooling wheather public,

private or at home this week goes well. shawna.

>>

Hope my prayers aren't late a. Sounds like the IEP went really well.

So happy for you.

Gail

[Guest guest]

In a message dated 8/22/01 1:24:05 PM Pacific Daylight Time, duffey48@...

writes:

<< Cept for (my 18 yo) who we

just dropped off at college on Sunday (BOO HOO). I miss her desperately

already!!

Donna >>

Awww, sorry Donna. How is your SIL doing? Been thinking about her and

remembering her in my prayers. Haven't seen anything about her in a while.

Gail

[Guest guest]

Donna,

Y'll get over the missing part in a few days. I

know, I mean with my brother. I got over the missing

of him within a few days.

[Guest guest]

Gail,

I'll pray, I hope everything turns out good.

Thanks for your prayers, I'll be needing it to get

over this sadness of changes which I hate.

__________________________________________________

[Guest guest]

Hi ,

Thanks for the link, unfortunately it didn't work. Could you just type it

in, I can copy & paste it. I will try anything that may help. I think Bri's

IEP will be written to cover occupational therapy. I am so happy, hopefully

his immune system can get strong this year, and at the same time his

educational needs are being addressed.

I was worried that he may be behind at this point. But the reading book

they sent home isn't a problem for him, and they haven't even started the

math in the classrooms that he was doing last year. So, I think he's a

little rusty at this point, but will do fine. Do you know if the tutor is

separate from the occupational therapist? I guess I'm assuming that we'll

have two different people coming in.

What is the most effective thing that you do to help with his

writing/fine motor skills? I hope you guys are having a great weekend.

Thanks Again!!

Sandi, Mom to , age 8, suspected IgAdef., chronic sinusitis, ear

infections, severe allergies.

[Guest guest]

Hi ,

Thanks for the link, unfortunately it didn't work. Could you just type it

in, I can copy & paste it. I will try anything that may help. I think Bri's

IEP will be written to cover occupational therapy. I am so happy, hopefully

his immune system can get strong this year, and at the same time his

educational needs are being addressed.

I was worried that he may be behind at this point. But the reading book

they sent home isn't a problem for him, and they haven't even started the

math in the classrooms that he was doing last year. So, I think he's a

little rusty at this point, but will do fine. Do you know if the tutor is

separate from the occupational therapist? I guess I'm assuming that we'll

have two different people coming in.

What is the most effective thing that you do to help with his

writing/fine motor skills? I hope you guys are having a great weekend.

Thanks Again!!

Sandi, Mom to , age 8, suspected IgAdef., chronic sinusitis, ear

infections, severe allergies.

[Guest guest]

Stacey, each of my sons had speech therapy. The teachers never came

for the speech IEP meeting except for once when we were going over

some other things not speech-related. You CAN request the teacher to

be there if there's things you want to ask, such as how is he

affected in class by his speech, can she and others understand him,

etc. If this meeting is to set up the eval, I'd wait until after the

eval is done and the results in; that's when they'll set up the real

IEP once they know he needs speech. If he's had the eval, then I'd

plan on a real meeting.

Forgive me if you've said this in another post - but how is he

affected in class and at school by his OCD. I'd certainly plan on

bringing it up if he's affected by it there. And I'd definitely have

the teacher come to the meeting. Tell the speech teacher you have

some things to go over and want the teacher at the meeting. If you

don't know if his OCD is affecting him at school, I'd probably wait

and see. Once he's got that speech IEP, you can accommodate him for

OCD if it becomes a problem.

Just my opinion, quick as it is....the kids are wanting the computer!

> I just got word that I FINALLY haven an IEP scheduled for my son on

the 13th

> at his school. It is all about his speech and getting speech

therapy

> because I have been trying to get him evaluated since the school

year

> started, and long before my son's recent diagnoses with OCD, but

would it be

> okay to talk about the OCD at the IEP and see what they have to say

or could

> do on their end? I have told his teacher but she is not part of

the IEP

> meeting (is that normal, by the way?). I wouldn't even know what

kind of

> accommodations to ask for.... any help from the experience out

there would

> be great. Thanks!

> Stacey from NM

> (with 5 year old with OCD)

[Guest guest]

In a message dated 12/6/01 3:12:00 PM Pacific Standard Time,

mashawnag@... writes:

<< We had nathan's yearly IEP meeting yesterday. Went

very well, only there about a hour and a half. We

dropped his behavior goals alltogher now, he only on

occasion anymore will lay on the floor and refuse to

work, yaaaaaaaa, >>

Wow, good work (and a) !!! Glad to hear it all went well.

Gail :-)

[Guest guest]

So a....

Tell us what they did to encourage to work instead of lay on the

floor? I " m pretty sure we'd all benefit from hearing some more strategies

to that little behavior.....

j

[Guest guest]

they will continue the redirection to activity, and/

or give him a timed break, usually 1-5min and when the

timer goes off nathan just gets up and goes back to

work on his own, but this has taken about 6-7years of

behavior management and consistencies with the

teachers, and during the meeting we noted things that

have changed witch may have inproved his beahvior too,

first he is getting older, being 10 now and is

maturing a little on his own,(many of the younger ones

i think zeb(?) remeind me of nathan in his younder

years,lol, doing whatever it took to get out of work),

His med change, and upped the luvox, too, has helped

tremendously in the ocd area, tx for his sleep apnea,

over the last year and half, the classic classroom for

all his academic times, and the SI therapy thoughout

his day too. There might of been more, cant think of

DH hurrying me off line,lol. shawna.

=====

shawna

__________________________________________________

[Guest guest]

In a message dated 12/7/2001 1:28:56 PM Eastern Standard Time,

mashawnag@... writes:

>

> they will continue the redirection to activity, and/

> or give him a timed break, usually 1-5min and when the

> timer goes off nathan just gets up and goes back to

> work on his own, but this has taken about 6-7years of

> behavior management and consistencies with the

> teachers, and during the meeting we noted things that

> have changed witch may have inproved his beahvior too,

> first he is getting older, being 10 now and is

> maturing a little on his own,(many of the younger ones

> i think zeb(?) remeind me of nathan in his younder

> years,lol, doing whatever it took to get out of work),

> His med change, and upped the luvox, too, has helped

> tremendously in the ocd area, tx for his sleep apnea,

> over the last year and half, the classic classroom for

> all his academic times, and the SI therapy thoughout

> his day too. There might of been more, cant think of

> DH hurrying me off line,lol. shawna.

>

Hi a,

Zeb isn't that much younger than and he too is on Luvox. Do you mean

there is hope LOL I figured the bigger and older he got the more tricks he

would have. Zeb does get sensory breaks with a timer but still many times

will not transition back to do work. He also has a reward system used

throughout the day but it works depending on what mood he is in. is

doing great!

Charlyne

Mom to Zeb almost 9 DS/OCD ?

[Guest guest]

In a message dated 12/8/01 1:42:39 AM Eastern Standard Time,

charlyne1121@... writes:

> Zeb does get sensory breaks with a timer but still many times

> will not transition back to do work. He also has a reward system used

>

Did you write sensory breaks into the IEP? Is it every two hours? What's the

best way to incorporate this into the daily schedule. Rochelle gets sensory

everyday but I'm not sure how regular it is. Any suggestions that work better?

Diane

[Guest guest]

thanks, does deb use a trantsition object? this was

the trick his behavior psychologist came up with and

it works very well. ofcaurse you need a pic schedule

and social stories some, this helps withtransitions

too greatly infact, but nathan always has to have a

toy or shostring or something to that effect to go

anywhere, then when he gets there it goes to his

pocket or in his backpack, or in his desk, he gets to

choose, but he has to put it away for work, and

gradually uping the amount of work time and then relax

with toy of the day for 1-5minutes helped with this

issue too. now when he goes on his " break " he gets his

thing out and when the timer goes off, he puts it away

no complaints and starts working again. so everyone

needs to be consistant, follow a plan according how

zeb coordinates/tolerates time frames, and ofcourse

the biggy we all major in is patience.shawna.

=====

shawna

__________________________________________________

[Guest guest]

nathan's SI is in his IEP that way they have to do it,

it was slow at first not know who ar what so the ot

came in mad eexact iep goals and peramiters and

trained all of nathan's personel to do, but his SI is

worked into his dly schedule dly. On certain mornings

he loads the pop maching, and the other morings he

vacumes the rugs. He carries a backpack full of books

or mail whatever for the teachers and return them

downtown (he walks)to the library or to post office

where he also buys stamps etc, sometimes he goes to

office supply store too, and grocery too. He also does

scooter where he scoots backand forth between word

cards and reads them, gets to bounce a big therapy

ball, and lays on it too sometimes, he gets to leift

chairs up to the tables, dust books, wash white

boards, oh and ride his trike too. It just depends on

the day and schedule for that day. All the staff have

agreed this has helped in deminishing his behavior

outbursts greatly. And we always try to make them

functional types of SI too, aids in learning. shawna.

=====

shawna

__________________________________________________

[Guest guest]

In a message dated 12/8/2001 8:05:04 AM Eastern Standard Time,

dben937342@... writes:

> Did you write sensory breaks into the IEP? Is it every two hours? What's the

> best way to incorporate this into the daily schedule. Rochelle gets sensory

> everyday but I'm not sure how regular it is. Any suggestions that work

> better?

> Diane

Hi Diane,

I think using sensory breaks depends on the child. Our kids are all so

different it is hard to give you an answer as to what will be right for

Rochelle. Zeb does have sensory breaks written into his IEP. As I always say

if it's not in writing it won't happen. They are usually incorporated as

needed depending on his mood. If they are working on math and the teacher can

see that he just can't focus and she can't keep his attention she will give

him a break. She will usually try to have him answer the question and tell

him then we will take a break. The break can be a snack or maybe a toy that

is calming for him. I sent in some of those squeeze toys with the goo in side

them. Zeb likes to pull and squeeze them. He also has a lego piece that has a

rattle in it and that is calming to him. He loves beenie babies and at times

they take a walk. The breaks can last from 5-10 min. for him.I hope this

helps.

Charlyne

Mom to Zeb almost 9 DS/OCD ?

[Guest guest]

In a message dated 12/8/2001 10:16:00 AM Eastern Standard Time,

mashawnag@... writes:

>

>

> thanks, does deb use a trantsition object? this was

> the trick his behavior psychologist came up with and

> it works very well. ofcaurse you need a pic schedule

> and social stories some, this helps withtransitions

> too greatly infact, but nathan always has to have a

> toy or shostring or something to that effect to go

> anywhere, then when he gets there it goes to his

> pocket or in his backpack, or in his desk, he gets to

> choose, but he has to put it away for work, and

> gradually uping the amount of work time and then relax

> with toy of the day for 1-5minutes helped with this

> issue too. now when he goes on his " break " he gets his

> thing out and when the timer goes off, he puts it away

> no complaints and starts working again. so everyone

> needs to be consistant, follow a plan according how

> zeb coordinates/tolerates time frames, and ofcourse

> the biggy we all major in is patience.shawna.

>

Hi a,

Zeb does have the picture schedule,uses PECS, and did have transition toys

but he wouldn't give them up. They tended to be more of a distraction for him

so now he earns a reward for good transitioning. If he finishes his spelling

words etc. he will get a reward before going on to his next task. The class

may be going to gym etc. he can chose a peer he would like to walk with or

sit with at lunch etc. The class is now doing money in math. One of Zeb's

rewards, also educational,senory break and fine motor goal, is to count out

the change he would need to buy a drink from the soda machine in the

teacher's lounge. He is allowed to walk down the hall, put his $ in the

machine and chose his drink. The aide does go with him but on a few

occassions Zeb has done this himself.I send in a baggie full of change every

few weeks.

Charlyne

Mom to Zeb almost 9 DS/OCD ?

[Guest guest]

Allright zeb!! wtg!! nathan likes to get pop too, he

usually gets one after he loads the pop machine, he

has to put his money in and choose on his own. he is

still working on identifying pennies, nickles and

dimes, and their amounts, but he does know its money

and the machine takes it. shawna.

=====

shawna

__________________________________________________