New to the Group

May 26, 2003

Hi .It is nice to see you on today..I hope everyone is having a nice day today..I am not doing much..I might take my daughter fishing in the pond behind our house this afternoon..Once again hi to all and have a GREAT day!!!!! <ralexan@...> wrote: Hi Welcome to the group.Please keep us updated on the progress of your treatment. [ ] Re: New to the group> Hi,> I have just joined the group and would like to share my experience with> interferon treatment.> In 1998 I went on Interferon thru a protocol group with Drs. Schiff and> Jeffers at U of Miami (FL)- 10 million units 3xs per week for 6 mos.> I responded during treatment but rebounded afterwards.> Last year I did 6mos on PegIntron and Ribaviron and the same thinghappened.> Last night I started a new regime with Multiferon (not available in USA)that> I imported from Sweden. If the last 24 hrs is any indication - the side> effects are significantly less and I have a lot of energy today. Fatiguehas> been the worst indication of my Hep-C> More to come> >>>

July 8, 2003

I didn't have any side effects and it took 2 weeks to START feeling better.

----Original Message Follows----

From: " lmscrappy " <@...>

Reply-hypothyroidism

hypothyroidism

Subject: New to the group

Date: Tue, 08 Jul 2003 17:23:22 -0000

Hi, I'm new to the group. After going to the Doctor for the third

time pushing and pushing because I KNEW something was not right she

finally ordered blood tests and stopped screaming Menopause and

Depression at me and lo and behold I needed synthroid. Which I

started to take today. When will I feel better? What are the side

effects? Curious. Thanks!

Scrappy

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July 8, 2003

Hi, glad you are so scrappy and did the right thing for yourself. Most of

us have gotten the " diet, exercise, and antidepressant " approach. You

might want to look for a better doctor, read some good books. Some of us

think $ynthroid sucks but it will probably help you for a while. Look

at http://www.geocities.com/thyroide

Gracia

> Hi, I'm new to the group. After going to the Doctor for the third

> time pushing and pushing because I KNEW something was not right she

> finally ordered blood tests and stopped screaming Menopause and

> Depression at me and lo and behold I needed synthroid. Which I

> started to take today. When will I feel better? What are the side

> effects? Curious. Thanks!

> Scrappy

>

July 8, 2003

Well truthfully I think I've outgrown my family practitioner and I

don't think she really even knows that much about it. I have just

now found a new Dr. (have to drive a bit to get there) but I'm

changing OB/GYN docs right now. Should I find an endocrinologist

while I'm at it? I'm assuming so. Also does anyone go to a good one

in the St. Louis area?

I'm impatient and want results. I'm so sick of feeling sick.

Thanks!

>

> Hi, glad you are so scrappy and did the right thing for yourself.

Most of

> us have gotten the " diet, exercise, and antidepressant " approach.

You

> might want to look for a better doctor, read some good books. Some

of us

> think $ynthroid sucks but it will probably help you for a

while. Look

> at http://www.geocities.com/thyroide

> Gracia

>

> > Hi, I'm new to the group. After going to the Doctor for the third

> > time pushing and pushing because I KNEW something was not right

she

> > finally ordered blood tests and stopped screaming Menopause and

> > Depression at me and lo and behold I needed synthroid. Which I

> > started to take today. When will I feel better? What are the

side

> > effects? Curious. Thanks!

> > Scrappy

> >

July 8, 2003

Great, you will get well if you are proactive. IMO it might save time,

money, misery to check topdoc lists, call and ask questions. Good ones are

Does doc do Free T3 and FREE T4 testing and not just go by TSH? Does doc

prescibe Armour thyroid or just synthetics? IMO holistic docs are best and

some of the worst horror stories are told about endos (ignorant, arrogant

syndrome). Some places to look for docs:

http://www.armourthyroid.com

http://www.thyroid.about.com

Gracia

> Well truthfully I think I've outgrown my family practitioner and I

> don't think she really even knows that much about it. I have just

> now found a new Dr. (have to drive a bit to get there) but I'm

> changing OB/GYN docs right now. Should I find an endocrinologist

> while I'm at it? I'm assuming so. Also does anyone go to a good one

> in the St. Louis area?

>

> I'm impatient and want results. I'm so sick of feeling sick.

>

> Thanks!

>

> >

> > Hi, glad you are so scrappy and did the right thing for yourself.

> Most of

> > us have gotten the " diet, exercise, and antidepressant " approach.

> You

> > might want to look for a better doctor, read some good books. Some

> of us

> > think $ynthroid sucks but it will probably help you for a

> while. Look

> > at http://www.geocities.com/thyroide

> > Gracia

> >

> > > Hi, I'm new to the group. After going to the Doctor for the third

> > > time pushing and pushing because I KNEW something was not right

> she

> > > finally ordered blood tests and stopped screaming Menopause and

> > > Depression at me and lo and behold I needed synthroid. Which I

> > > started to take today. When will I feel better? What are the

> side

> > > effects? Curious. Thanks!

> > > Scrappy

> > >

July 9, 2003

My personal opinion is get an endocrinologist. Sheila

--- lmscrappy <@...> wrote:

> Well truthfully I think I've outgrown my family

> practitioner and I

> don't think she really even knows that much about

> it. I have just

> now found a new Dr. (have to drive a bit to get

> there) but I'm

> changing OB/GYN docs right now. Should I find an

> endocrinologist

> while I'm at it? I'm assuming so. Also does anyone

> go to a good one

> in the St. Louis area?

>

> I'm impatient and want results. I'm so sick of

> feeling sick.

>

> Thanks!

>

> >

> > Hi, glad you are so scrappy and did the right

> thing for yourself.

> Most of

> > us have gotten the " diet, exercise, and

> antidepressant " approach.

> You

> > might want to look for a better doctor, read some

> good books. Some

> of us

> > think $ynthroid sucks but it will probably

> help you for a

> while. Look

> > at http://www.geocities.com/thyroide

> > Gracia

> >

> > > Hi, I'm new to the group. After going to the

> Doctor for the third

> > > time pushing and pushing because I KNEW

> something was not right

> she

> > > finally ordered blood tests and stopped

> screaming Menopause and

> > > Depression at me and lo and behold I needed

> synthroid. Which I

> > > started to take today. When will I feel better?

> What are the

> side

> > > effects? Curious. Thanks!

> > > Scrappy

> > >

July 20, 2003

My goodness!! It sounds like your family is having one heck of a time. I'm

so sorry to hear that.

Don't feel alone on the weight issue. I've had the same problem with weight

for the past 5 years also. Those have been my most inactive years also. I

think it has something to do with my slug metabolism!!

I'm trying to get my insurance to pay for a hormone urine test, to see if my

hormones could be responsible. My LLMD says most Lyme patients have wacked

out hormones and that could greatly contribute to the problem.

Of course, there's lack of exercise. Hard to do when the room spins!

One girl told me that her LLMD sent her to a pituitary specialist, I think

that's what it was called who took blood and found a hard to find thyroid

problem. I'm still looking into that theory.

I wish I could give you a success story, but I'm having the same trouble.

Especially with stairs. Let me know if you find out anything!!!

July 20, 2003

Hi - I am so sorry for what you are going through with the Lyme. You are

fortunate that you are getting the extended i.v. treatment, however, I too

gained

about 75 lbs over the course of my Lyme treatment. I knew that I could not

have possibly consumed enough food to gain that much weight, although my sugar

cravings did get out of hand at the time. What I did learn was that the

extended use of antibiotics cause Candida which is a systemic yeast overgrowth

which causes us to blow up like " the Pillsbury Doughboy. " The more white flour

and sugar we eat along with the antibiotics, the larger we grow. I have been

antibiotic free for eight years and discovered through reading the book " The

Yeast Connection " that Candida symptoms and Lyme symptoms are very similar and

until we rebuild the immune system, and get the yeast problem under control, we

will continue to suffer. There are several paths to take in order to do this,

and I have found a rather easy path to do this. If you would like more info,

please fell free to e-mail me privately, or you can call me. It is too much

to explain by typing. My e-mail address is Poeticsue@....

Sue Rauch

(732) 946-2216

July 27, 2003

In a message dated 7/27/2003 7:18:19 PM Eastern Daylight Time,

Joliedel@... writes:

> I look forward to getting to know everyone and sharing and giving what

> support I can!

>

Hi Jo,

Welcome to the group. We are all here to support one another.

Janet

July 28, 2003

Welcome Jo, great to have you as part of the group.

Allan

July 28, 2003

In a message dated 7/27/03 7:18:14 PM Eastern Daylight Time,

Joliedel@... writes:

<< I am also on

2.5 Methotrexate with folic acid of course. I was previously on 10 mg of

prednisone, which he recently reduced to 5 mg, which has not been the most

pleasant of transitions. >>

Jo,

How long were you on Prednisone total? Man, that is really tough!

July 28, 2003

I don't know how much surfing you have done of the many posts on this

board, but if you have not yet done so, I think you will soon come to

realize just how informative and supportive this board is. I have

only been a member for about a month myself, but every morning I look

forward to logging in and " meeting " again with everyone. It has made

a big difference in my life - I feel much less alone, and much more

confident that I can deal with this yucky disease we all have. I

hope the same is true for you. Take care, and I look forward

to " getting to know you " .

All the best,

July 28, 2003

Welcome, Jo!

Penny

>

> Hi! I just joined and wanted to introduce myself. My name is Jo

July 28, 2003

I've been on prednisone for five years. One rheumy had me on 15 mg, but I

didn't like his attitude so I switched to the one I have now. He cut me

down to 10 then 5. He's very thorough and is trying to come up with the

best combination of meds for me, so I'm going to hang in there and work

with him and hope for the best.

Jo

>

> Jo,

>

> How long were you on Prednisone total? Man, that is really tough!

>

--

Using M2, Opera's revolutionary e-mail client: http://www.opera.com/m2/

July 28, 2003

Jo,

Welcome to the group. Nice to see someone else from Ohio in the group? I

live in southwest Ohio, just north of Dayton. Where do you see your rheumy,

where you live now or in Columbus? I have my first appt. tomorrow (actually

later today). I hope I am ready for it. Will report back after the appt.

Lynda (with a " y " , from Ohio)

July 29, 2003

Hi! I live in mid eastern Ohio ... near Cambridge, which is on the

intersection if I-70 and I-77. My rheumy is in Canton, an hour's drive

north. All rheumys are at least a half hour from me, but he was the best

option and I haven't regretted it.

Good luck with your appt!

Jo

August 12, 2003

-Hello Tempest Welcome too the group. Sorry too hear about your

pain. I have DDD too and have been battling L5-S1 for over a year.

What kind of information are you looking for?? Maybe I can steer you

in the direction of articles and sites I have found. I had surgery

but it didn't work and now the dr's won't touch me, again. Back too

square one I'm afraid. But I did try accupucture last week for the

first time, I heard several people say it helped them. One of the

dr's I saw suggested Yoga to help stretch out my back. I'm looking

for answers too,cause the last 2 days I can barely walk. I get up

for 15 min and my leg starts screaming. Very frustrating trying too

get much done. So I want too find something that helps. After

surgery I had 3 days where it didn't hurt and it was heaven. I think

nerve pain is the worst pain in the world. Let me know if I can find

anything for you. I have alot of sites and information, also check

on the links a few of them are in there too the left on the club

home page. S

p.s. no can spell and think when you hurt, its ok

In neck pain , " ELANA " <tempest19610@y...>

wrote:

> Hello all Im new to the group, and I have degenerative disk

diesase

> sorry for the spelling not my best subject... but Im on workmans

> comp and this has been a never ending roller coaster ride and i

> would like to get off now.... I have L5 S1 problems. And I just

hope

> I can get some information here...

>

> Thanks,

> Tempest

August 12, 2003